Come join others currently navigating treatment in our weekly Virtual Support Groups! See times and register here.

Exchange City

19599609629649651387

Comments

  • thirdgenerationmomof2
    edited April 2013

    Sweetandspecial: Thanks! Yes I am "ok" with the delay in exchange. Of course I'm disappointed but better to be safe than sorry. Don't want to get put under and never wake back up! Know my doc is doing what is best to make sure all is ok with my health before letting me proceed.



    Just means one more week to bond with these lovely bricks on my chest!! Oh TE how I won't miss you when you're gone!



    Hugs,



    Jen

  • di2012
    di2012 Posts: 871
    edited July 2013

    Thirdgeneration.....oh I am so sorry this happened to you......I KNOW the feeling....as On Dec. 17, 2012 I was admitted to the hospital for my BMX and then the anesthesiologist and my breast surgeon came in and told me I had an irregular EKG (it was done at the hospital the prior week)....so they were canceling my surgery......I was so ready to have my CANCER gone.....they said I would need to see a cardiologist before they could proceed....after leaving the preop area, husband bought me breakfast at the hospital and we waited for my my primary doc's office to open...(ready to go in with my hospital gown onSurprised) if she had been there earlier....with much investigation and appointment, made with the cardiologist for a stress test, by my doctor, and then both docs  realized the 2012 EKG and my 2007 EKG by doc was exactly the same, they contacted my breast surgeon and then she wanted it in WRITING to clear me for surgery so my primary gave the okay....had my surgery on Friday 12-21 instead of Monday.....

    For you own safety it is better to find out that your ticker is ok and then proceed.....so sorry for youFrown

    HUGS,

    Di

  • di2012
    di2012 Posts: 871
    edited July 2013

    JDevon,

    Really sorry about Your PS.....and his lack of caring, "bedside manner" (& skills)....He need to be exposed....know anyone in the media?

    Di

  • sherry67
    sherry67 Posts: 370
    edited April 2013

    My Ps has no bedside manners either..afraid to tell him I'm not happy..don't get me wrong they look great in a bra but there is alittle rippling on the left and the right which had the rad is alittle smaller...

  • thirdgenerationmomof2
    edited April 2013

    Di thanks for sharing your story and so sorry you had that experience with your BMX! I would have gone nuts too as getting the cancer OUT was always my first priority. While annoying having to be delayed for exchange, I would MUCH rather wait anther week or two and be sure all is well with my heart. Just keeping my fingers crossed that the second EKG got misread somehow and all is really ok with the ticker!



    Jen

  • tinat
    tinat Posts: 2,235
    edited April 2013

    I credit my PS and his whole staff in great part for how well I've done with all of this.  I feel so so so lucky to have been sent his way.  At one visit he said that if a patient is unhappy and doesn't feel comfortable raising a concern then something is wrong and the PS has not done his/her job properly.  It makes me sad to read of so many who can't get their questions answered :( 

  • di2012
    di2012 Posts: 871
    edited July 2013

    Chantel,

    I am so sorry you are faced with this decision  at your age,  I was just about ready to jump on I-5 and drive down to give you a hug, but getting there would be a 2 1/4 hr drive to get down there and the same back home, a bit too much for me just a week out from surgery!  But remember I am sending my support, hugs down I-5 just for YOU!  Are You having your surgery in Vancouver or over the river?  (I use to show my dogs in Ridgefield, and Portland....so I am familiar with the area.)

    This decision is not easy but after many many days of tears and my dear husband's support as well as the support of my Primary care doctor and her nurse, I came to peace and was ready....so ready....of course I am an  "oldie".

    I chose to have no nipples along with no breast, but I do have feeling on both my "foobs" all over except right in the center of my cancer breast, a small amount of areola was left on both sides, and I do want that  removed with my revision.

  • di2012
    di2012 Posts: 871
    edited July 2013

    I saw my PS to day for my first post op (exchange).....he is the BEST!  He said he could tell I was doing well by the smile on my face.   (I had the Frown look after my TE surgery which was 1 month after my BMX)

    He warned me, that even though I have NO PAIN, not to lift or stretch as the incision can open up if I over do. YIKES!!!!.....I will be taking it easy for at least another week and a half!  (less than 24 hour after surgery I was cooking meals, and making a homemade soup (favorites or red letil or broccoli)  so hub and I could have it for lunch.

    My upper poles indicated I haven't dropped yet which his says will give me a nice teardrop effect, "natural looking"...Then he address "sharpei" (he used that term too) and showed me what he would be doing, I said GOOD, I don't want that barking dog on my chest! He  then addressed "muppet mouth" my term for my cancer breast as it looked like a screaming muppet, from the side (profile) as it had a top and a bottom (skin sparing) but nothing in the middle.  (since expanders and now my gels, things have fill mostly....now it is a grimace on my muppet...I was given a band to to start wearing next week that is made to push the "muppet and the dog" down.  Muppet also is missing fat tissue on the cleavage side, but he said it may resolve when they drop...if not he will fix it.    I also talked to him about some remedial tummy tuck issues I had 11 years ago by a general surgeon, (My PS recognized his "work" when he saw my staple scars, ( & like a belly button that is at my xiphoid prossess...the thing attached to the sterum) so I may be doing that the day of revision, although that part is on my dime....still considering...but not a done deal

    I am so comfortable with having conscious sedation, in his own surgical suite, rather than being in the hospital and being intubated (my PS is NOT a fan of that).

    Enough...have my 7 yo grandson for the next 4 day...for a few hour today and then a few TH and FRI & then all day on Sat...and he thinks POP POP and NANA are boring!

  • PamKou
    PamKou Posts: 5
    edited April 2013

    Feeling better after getting some feedback and just knowing I am not crazy. Thank you!! I haven't carried yet today :-) lol.

  • jdevonm
    jdevonm Posts: 30
    edited April 2013

    Hey ladies... After a few emotional days, this morning I picked myself up and contacted my insurance company to get going in right direction... And they said that the new Dr I want to see will be covered!!! I have an appointment on Tuesday for my consult :-) I'm going today to get copies of all of my medical records/Dr notes/operating notes/ anything else that may be pertinent. Even if the new Dr tells me he wants to start reconstruction from scratch, I will be ok with it. As I am right now due to one side being higher than the other as well as one side smaller than the other and being told to just 'stuff my bra' by the PS, ANYTHING it takes to get things going in the right direction is OK by me. THANK YOU ALL FOR YOUR PRAYERS/THOUGHTS AND ADVICE!!! You are wonderful women :-)

  • di2012
    di2012 Posts: 871
    edited July 2013

    JDEVONM.....what wonderful news.....I know we all want the best for our "sister"!!!!

    Di

  • shellshine
    shellshine Posts: 930
    edited April 2013

    YAY JD! Good News!

  • di2012
    di2012 Posts: 871
    edited June 2013

    I just checked  and my exchanged surgery claim was DENIED by medicare....guess they wanted me to live with expanders for life.....Frown

    I just protested the denial of my "cosmetic" mastectomy as they call it, now this...

    Now another battle begins....

    I want to cry

  • shellshine
    shellshine Posts: 930
    edited April 2013

    I just copied this from the Medicare website:

    Indications and Limitations of Coverage 

    Reconstruction of the affected and the contralateral unaffected breast following a medically necessary mastectomy is considered a relatively safe and effective noncosmetic procedure. Accordingly, program payment may be made for breast reconstruction surgery following removal of a breast for any medical reason.

  • lorij44
    lorij44 Posts: 27
    edited April 2013

    Hey jdevonm, I just pushed the LIKE button!Smile

  • di2012
    di2012 Posts: 871
    edited June 2013

    Shellshine,

    I am aware of the law....unless this is some "belt tightening" of the government....which I have not been informed

  • mnsusan
    mnsusan Posts: 139
    edited April 2013

    I'VE GOT A DATE, I'VE GOT A DATE!  I didn't think I'd be this excited, but I am!!

    (-)(-) to (@)(@) <------ Yay!

    Surgery is scheduled for May 16, and I have an appointment with my PS on May 7 to go over the details.  Woot!

    We've called the TEs Hans and Franz, because "we're going to pump <clap> you up," and they're going in the trash!  Its now time to get serious about naming the new girls.  In the running - Wilma & Betty, Lucy & Ethel, Cagney & Lacey, Laverne & Shirley.  They definitely won't be Thelma and Louise because they had a tragic ending.  

    I've got a date.... sigh.... 

  • sweetandspecial
    sweetandspecial Posts: 1,669
    edited April 2013

    MNsusan:  A great big YAY for you!!!!!  I got a big smile on my face and almost teared up over your obvious excitement!  And it's SO SOON - only 3 weeks away, I'm so excited for you!

    I gotta think about that whole naming thing....I've been calling mine Thelma and Louise but I never thought about the tragic end aspect Surprised.  Since beginning to over-expand several weeks ago, though, I've just called them the rocks on my chest because they're soooo firm right now.  They seriously feel like one of those foam stress balls that you squeeze in your hand!  Not painful or any more uncomfortable than usual, just really firm.

    Enjoy the happy, happy, joy, joy time! 

  • di2012
    di2012 Posts: 871
    edited June 2013

    MNSusan,

    Congrats!!!....having a date is exciting!....it's a light at the end of the tunnel

    I guest I will rename my "muppet mouth and sharpei" After everything is done, that can be done and then I will name them again or keep their names.   I keep going through the "tunnel"....7/8 for my revision

    My hubby grew up in WAY north MN....we, along with his brothers own land up there, the family farm. 

    Di

  • tinat
    tinat Posts: 2,235
    edited April 2013

    jdevonm - That is great news, so happy for you!  I would expect that even the new PS is going to want to wait awhile before subjecting your body to more surgery.  Try to take it one day at a time.  Yay!

    Di2012 - :(

  • mnsusan
    mnsusan Posts: 139
    edited April 2013

    Di2012-- We live in a suburb of the Twin Cities but spend winters in FL. I've spent lots o'time Up North. It's like another world there... so pretty. Ya sure, you betcha!

  • violet_1
    violet_1 Posts: 335
    edited April 2013

    jdevonm: Good for you!!!! Wishing you luck!

  • violet_1
    violet_1 Posts: 335
    edited April 2013

    ALL ABOUT BATHING SUITS:

    I have a question...

    HOW do those of you that have had your exchange, like how your foobs look in a swimsuit now...especially a bikini?

    Any issues there? Did you have to get a certain type top because maybe they didn't look right in say, a triangle shape? Cleavage issues? Side boob issues? Upper pole issues--too much or not enough?

    And what about those that had teardrop implants vs round?

    Thanks!

  • di2012
    di2012 Posts: 871
    edited June 2013

    MNSusan.....you made me laugh!.....yep northern MN accent....

    As a newlywed, my husband took me back to his home which is about 90 mile from Grand Forks, ND.....everyone had such an accent....it was winter and I was NOT impressed with -40 degrees!   (that was almost 45 years ago)

  • di2012
    di2012 Posts: 871
    edited June 2013

    Violet, too soon for me to even try on swimsuits (not sure I will wear my bikinis any more, just because I am old)

    For me but I can see the edge of my implant on my cancer side, but my PS said  yesterday if it doesn't go away when they drop and fluff he will fix it at my revision.

  • di2012
    di2012 Posts: 871
    edited June 2013

    Anyone elses plastic surgeon give you a breast wrap to help with stabilzation and positioning for your implants?

    Am I the only one?  I start wearing it 2 weeks post op (next Monday)

    it is on this website: www.designVeronique.com    (model # 5103)

  • peanutsgal
    peanutsgal Posts: 64
    edited April 2013

    Yay, jdevonm! Your insurance company must've seen all the smoke coming up from our collective keyboards when we saw what you were having to go through. So glad you are able to see someone new.....they had BETTER do ya right or they will have all of us to contend with ; ). Seriously, really happy things are looking up for you!

  • shellshine
    shellshine Posts: 930
    edited April 2013

    Di2012 - it's so frustrating to get a notice like that when it is required by federal law. It really, really bothers me that our tax dollars are paying for this incompetence. I just know  you will be successful, but it is wrong to put you through this.

    MNSusan - so wonderful you have a date - it's a wonderful feeling. Congratulations!

    I remember Cheryl_e  wrote such a cute poem the night before her exchange. I should get started on one now..........

  • tinat
    tinat Posts: 2,235
    edited April 2013

    violet - Somewhere on BCO or on the picture forum I remember reading a suggestion to try bathing suits with a halter-type top.  Good luck!

  • sweetandspecial
    sweetandspecial Posts: 1,669
    edited April 2013

    violet - I'm not at a weight where I'd feel comfortable in a bikini right now, but I did find a couple of really cute tankini tops that I took on a tropical vacation.  I wore each of them with either a black bikini bottom or black skirty type bottom.  They were slightly different from each other.  One had an underwire bra-like top that had foam pads inside.  Even though it was underwire it just happened to fit nicely and was comfortable and even better really figure flattering. The other was not underwire and did not have 'cups'.  It had more of a shelf-bra type liner at the top but did have fairly hefty foam pads.  It was also very figure flattering and I was really happy to find both of them.  I took the foam pads out of both about half-way through the week because they kept folding up inside the pockets every time I took the tops on or off.  Oh, and neither of them were figure hugging in the torso, they had just enough float to camoflage my currently soft, muffin-toppish tummy.

    Good luck shopping!!