TRIPLE POSITIVE GROUP
Comments
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twinMamaHeather don't pay attention to the video that went viral about the woman dancing before her BMX. I know I was scared to death. It wasn't till afterwards that I was releaved the cancer was gone. "I woke up thinking What the hell did I just do?" But I have to admit it wasn't as painful as I had thought at all and I still felt like me. The never felt my lump either in my small dense barely 34B breast…and my tumor was 6.5cm! I was doing mammograms regularly too. I'll be thinking of you on Friday.
LizA17 we are up to 35 in the city. I would go walking but I am just recovering from a cold. I should be good to go again tomorrow.
Hi Bridget0 -
Lago...so glad you mentioned that viral video of the girl dancing up a storm in the surgical room before her BMX. I guess I'm glad it worked for her but when I saw the video...I cried. I guess I was (and still am) scared of the procedure. As if we all haven't been through enough. Chemo, radiation, now an amputation!!! I will do what I have to do but glad to know that others weren't dancing for joy before their surgery; I guess I'm not crazy.0 -
I was scared literally Sh*Tl*$$, it is normal. And, it is how i Found BCO. best thing possible, and for sure will be holding you up on friday.0 -
i missed kadcyla by one year0 -
Twinmama Like Lago said amazingly no pain if fact at first I thought they didn't do it. I mean all that cutting and yet it doesn't hurt, I get pain from a paper cut but not this so please do't concern u'r self about that---but do get u'rself prepared that things are very reachable for u cuz there are limitations for what u should and shouldn't do, it'll just make it easier for u. And personally I slept in a recliner I even did in the hospital it was so much easier getting up and down. But I always look for the easiest way of doing everything so.......and drink plenty of water, vitamin water, reg, propel water anything that's water. LOL that's why a recliner is my choice. Now I'm no expert, nor do I know much but I just remember what I did for my comfort, my GF laughed at me when I was home cuz she always called where I sat my own little Island cuz I had everything needed at my fingertips, she said I should teach a class in how not to move to much LOL But u will need to after a while I know but baby u'rself first as much as u can.0 -
lago, thank you. You obviously knew where I was coming from when I said I didn't feel like dancing in the OR. I know it's nuts, but I swear that dang video made me feel worse about everything, like somehow I wasn't handling things correctly because I wasn't going into the situation with joy and laughter. Honestly, it will be a small miracle if I make it into the OR without tears streaming down my face!
Girlstrong, I cried too, for the above reasons.
Cami, thank you so much for your kindness and your words about your experience. I definitely need to set up my own little island.
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Funny Camillegal I hated the recliner. I think I'm too small for them. I bought a ton of pillows and made a wedge in my bed. As I felt better I would remove a pillow till I eventually could sleep flat in my bed. I had the issue of not being able to use my arms to push myself out of bed because I had nodes removed on both sides. Lucky for me I was in great shape and had amazing abs at the time.
But Kathec like Camillegal says be sure to lower things in your home. You aren't supposed to reach above your head when you have drains in. BTW I only had 2 drains that came out in 1 week.0 -
Miss Twin....sending you lots of hugs and prayers for Friday.
My bmx was the easiest part of this whole crappy ride!
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Thanks Chick, I have heard that from a couple of people. I think maybe whatever comes first is the "easiest". It's like I feel like I have already done so much with the chemo that having to have my breast removed seems like a slap in the face! I imagine it's the other way around for people who have the BMX first!0 -
twin. It is a slap in the face whenever it happens. It is after all an amputation! Just fyi, the lady in the video is an obgyn. Those were her coworkers in the OR with her. And if you look at her face near the end, she looks as scared as we all were. If it made her feel better more power to her. But I am NOT her so no dancing for me. I'm always glad if I can get to the OR without the big D hitting from stress! Of course when I got my TE replaced for the 3rd time I woke up with not only nausea but the big D. How embarrassing. Ugh. But when I had to go in the next time 3 weeks later I sailed through. The difference no gas just IV anesthesia for me. EVERY ONE IS DIFFERENT . In reactions physical, emotional, spiritual! So dance or sing, blow a raspberry to cancer or simply tell the OR staff you are depending on them to bring you through this or even just take a deep breath and sleep. Whatever you do will be right for you.0 -
Prayers for you and your family, Twin.
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Moon - I agree, it's a slap in the face whenever. What I meant was, for me chemo was the "easy" part, I think because I did it first, and for others the surgery is "the easy part" and a lot of times it seems like it happened first in those instances.
Also, I totally don't fault that girl for dancing, I don't think it was fake or that it was wrong or weird and I am happy it made her feel better. It just made me feel like I was the one doing it wrong, haha.0 -
Moonflwr912 I have the same problem with anesthesia. I would have been home a day earlier except I was so nauseous from the anesthesia (7-8 hour surgery) I couldn't even sit in a recliner. I told them at my exchange and all the did was give me a motion sickness patch. Granted that surgery was only 3 hours so I wasn't as bad but that patch thingy dries you out. They want you to eat light, like saltine crackers but your so dry… Next surgery the anesthesiologist was a doll (and hot too). No gas for me either. What a huge difference. No nausea at all!
LeanneF BTW I don't blame that gal with the dancing co-workers either. But for most of us we are not celebrating. But do take pictures the night before so you have a record. You may think you might not want it but if you do it's too late once their gone. You can always toss the pictures out. I still have mine.0 -
lago - I had "pin up" photos done last night. I know when I see them next week they will make me sad, because the girls look GOOOOD, but I am trying to focus on my legs and the fact that they remain the same. :~)0 -
Don't look at the photos till your ready. Yeah my old girls looked good too. Small but they were nice. Us dense tissue gals have very little droop issues. But my new ones will never droop. Still not used to the larger size but it makes bra shopping much easier.0 -
As in you don't wear a bra? Or finding your size is easier? Most of the girls I talk to seem to not even wear bras anymore!0 -
I wear a bra. As in I can find things that fit properly. Not only was I small before but not full. I wear a bra because it actually is more comfortable. Also because I don't care what women thing but gravity will eventually pull them down. My PS wants me to wear a bra with underwires. Maybe if I was still a 34B I wouldn't worry so much but these weigh almost 2lbs (1lb per boobie prize) more than what I had before.0 -
I am currently a 36B, I am hoping to stay about the same! I agree with you that gravity will eventually win! :~)0 -
Iago, did have my surgury august 2012, had drain removed 3 weeks later. but i still think it was removed too early, some days nothing, other days lots of fluid. developed a seroma pretty quickly in axilla, took a long time to resolve. and fluid had to be aspirated from lumpectomy site. Bs wanted to go back and "clean up" area of lumpy,(because of hematoma) i refused. Had huge huge huge area of hematoma, but clean margins. i was careful. but really wish i had found Bco at time of diagnosis, i would have been even more careful, and definately way more informed! i Still have a slight small area of bruising on breast, that only went away during rads. i was imagining it 'cooked ' to staunch the small bleed, but no-one at treatment center has ever seemed concerned about this, only me. i finished rads in april.0 -
Last Taxol treatment today Whoohoo!!
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Yay Goutlaw! That is something to celebrate!0 -
Congrats Goutlaw..0 -
lago- great idea on the photos. Don't get me wrong, I'm not really celebrating inside, more of a rebellious celebration. Flipping the bird, if you will: "I will choose how to face this, you stupid cancer." Though I will probably be sobbing as I enter the hospital. Definitely not something I am looking forward too. It sucks, but I can't do anything to change it.0 -
Thanks now the scary part is doctor is doing pet scan which they say is more accurate than a MRI& cat scan........so scaried! Then doing MRI of breasts& surgery& radiation next!!
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Miss Gout.....
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Hi all, an oldtimer rejoining the forum to check in. I was triple-positive, just had my 4th anniversary of diagnosis. I went through it all: major lumpectomy, reconstruction (on both sides, so I'd match, ha ha), TCH, in the UCLA study for Avastin, radiation, Tamoxifen, and now I'm on Arimidex. All's well. Hard to believe for many of you, I'm sure, that the day will come when you go weeks without thinking about cancer, but it's true, especially if you stay busy and positive. I was lucky to have tons of support and to have been pretty strong and healthy when it happened, plus I was born with a lot of energy and a pretty positive outlook-- a lucky bit of genetics, I think. Anyway, if anyone has questions for an oldtimer, I'm here.
And I have a question: Does anyone have the statistical averages for recurrence for triple-positive, node-negative women? Like I said, I don't dwell much at all, but I have a friend dealing with a bad recurrence (an early cancer, not triple-positive, and she didn't stay on top of it much, but it's terminal now), so it's on my mind. I guess it's good motivation to stay active and healthy and do all the cliche things, like live life to the fullest.
To all of you in the thick of it: It gets better, it really does. You'll get through it.0 -
writer - try this tool, it factors in Herceptin where cancermath does not:0 -
Thanks, SpecialK. It gives me a 91% chance of 10-year survival. I guess that's as good as anyone gets
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writer - you may be able to increase your odds beyond that with a healthy lifestyle, I imagine the population sample is a cross-section. Glad you found the predictive tool helpful. Best to you!0 -
Yes, I would hope so. I live a healthy life: never smoked, exercise a lot, strong, eat well, lots of social support, great family, etc. etc. Plus no cancer in the family, except skin cancer. So let's hope that moves it to 94%!0