TRIPLE POSITIVE GROUP
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vettegirl like the others said it gets more intense each time. I know I didn't even know I had some taste changes my first round. The only thing that tasted funky was this new gum I bought after my 1st TX. I just thought I didn't like the flavor. Tried it again months after chemo and it was fine. Taste changes started to be a little more noticeable after that but I never had it bad. Now that you know you get nausea note the day. Next round be sure to take the anti-nausea drugs just before you get it. That's how I handled the big C. First round was so bad I ended up with hemorrhoids. All the other rounds I started with Metamucil the night of chemo and continued 3+ days. Never had the problem again.
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Love, love, love this forum ! I don't post often, but I read every couple of weeks and catch up. I learn something new every time. Thanks to all of you for the info and more especially the inspiration.
Much love to all !
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Hi. Haven't posted in a while, but I follow also this thread. Such a great group of knowledgeable and caring women!!
Does anybody have ideas as to why, over one year PFC, and 4 months post final herceptin, platelet numbers would randomly drop? They were normal during chemo and up until blood work last week. My MO ordered the blood tests redone today, and again they came up low. I am feeling fine and don't have any other symptoms.
Thanks,
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Susan, when I had my little chihuahua, Gino, put to sleep I lived in Pittsburgh, doing some 1.5 year training at a local hospital. I knew no one there, so my best friend came out from Philly and helped me with the whole thing. She arrived on Friday afternoon, we had Gino put to sleep on Friday night, went home and cried, woke up on Saturday and wandered IKEA (a store I just love, especially when you are as poor as I was), cried in IKEA, went out for junk food and wine, cried...she left Sunday morning and I cried and cried and cried. My Ma said to me to remember a time will come when we are all telling hysterical Gino stories (he had quite the personality) and it did. By Christmas, (12 months later) I was back in Philly hanging with my parents and my BF, drinking wine and laughing and laughing starting every story we told with "remember when Gino did..."
Hang in there.
On the physical pain part, GMaV told me to try fish oil and I started taking it again after not taking it during chemo. At Christmas I was hobbling. A few weeks later I was pain free. Interestingly, I ran out of fish oil and the day I was going to go buy more, my buddy showed up in my office and we were chatting about doing healthy stuff. He's a body builder with a PhD in nutrition, and he was telling me how much he felt krill oil was better than regular old long chain fatty acid fish oil. So I bought that instead. Instantly, within a few days, I was back in pain, with the bones in the toes of my left foot making me limp again, knees hurting, stiff when I stood up. I went to the store that night and bought good old, burp it up and feel gross fish oil. Give it a try, 4000 IU's a night. Thanks G Ma!! Best suggestion ever. I love this board.
Ashla, yeap a very interesting idea and yet very scary...but all of us researchers know you can make a large data set tell you what you want with the right statistical approach. But I agree, so much of this stuff never gets published. At work we just saw a large drug in phase II trials fail to meet the primary end point. It is so disappointing for everyone...but now the mining begins to see what else might be there. That's when it gets interesting for independent, academic groups to mine too!
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I'll join the chorus for small SEs!
And to quote Winston Churchill, "When you are going through hell...... KEEP GOING!!!!!
well, yeah! You certainly don't want to stay THERE!!! LOL
and remember, Drink lots of fluids!
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Moon, I like the part just drink a lot. Sounds like more fun.
CG did u'r platelets fall super low or are they in the low normal range.
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Camille, I like the way your mind works!!
Nicky
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Hi Nicky, I know u've been busy and I hope it's all working well for u.
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cgesq - platelets are a pretty mercurial thing - they have a very short life in the body so they can fluctuate wildly. If you have consistently low platelets it may be a signal of a problem though - this can be caused by some medications, an immune system problem, and sometimes chemo drugs can cause a malfunction in the manufacture of blood cells that can persist for a while, or be permanent. Are you having any issues with excessive bleeding or bruising? Has your doc done any clotting factor studies?
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hi Camille!
Still seem to be spending my time going from one appointment to another, and cos I can't drive much I have to rely in other people a lot which I hate! Other than that things are pretty ok at the moment. I'm just looking forward to next Monday - I'll have tests and see the surgeon who'll operate on my back, so I'll know if they're operating on both areas or just one. After that it'll be full steam ahead for the operation on the 21st!
Nicky
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Cami and SpecialK,
My platelets were 142K (low normal) on Dec. 17th, and were 122K on Jan. 29th and 121K yesterday.
I'm not bruising easily or bleeding excessively. In fact, I have no bad symptoms at all.
The only drastic change I have made recently is that I am on a very carbohydrate restrictive diet. I'm basically doing South Beach phase 1 for the past 2 months. I've lost 22 pounds so far and I feel great!! I'm doing this because I had bad liver enzyme numbers due to fatty liver disease, which was diagnosed in October. So, long story short, my blood work this week revealed that my liver enzymes had returned to normal level (YAY) but now I have low platelets!!
Hopefully, this platelet issue is short lived, and possibly might reverse itself when I start eating more carbs. I'm not sure if there is a scientific correlation, but it seems to be the only thing I am doing differently now.
Thanks for your input!!
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Interesting "What if the body could heal itself of even the
most aggressive and deadly tumors?
In the span of a few years, the idea has gone from
New Age notion to medical reality.
Researchers are investigating the potential of immunotherapy
to be a powerful, effective and long-lasting solution
to kill cancer."
http://www.ucsf.edu/news/2014/01/111531/killing-cancer-through-immune-system
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Anyone know how much in liquid form is 113pg/mg is??? please let me know... Like is that like a teaspoon or table spoon? Any info would be great. can't seem to find on the net.
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Thank you so much for the kind words about my pup. I love The Rainbow Bridge. I had him cremated (could not stand the thought of him being tossed in a red bag) and on the top is engraved "Until We Meet Again On The Rainbow Bridge". I My other dog has been in mourning. He has only known life with his friend. So tonight-my best friend sent one of his dogs home with me for a sleep-over. We take care of each others pets when out of town and these two adore each other.
I am actually cooking. Wanted comfort food-grandma's meatloaf and the way she did baked potato's. Weird. I almost never cook.
I send hugs to each.
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Ang7894
If I read it correctly, that is 113 picograms per milligram ( this is a tiny amount) I will try to explain so you can visualize.
A picogram is a unit of mass and it is equal to one trillionth of a gram.
A milligram is one thousandth of a gram.
28439.5 milligrams in an ounce.
4739.91 milligrams in 1 teaspoon
One liquid ounce is equal to 6 teaspoons.
I teaspoon is equal to 0.166667 of an ounce
V
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naiviv-- Thank you so much .. You explained that very well.
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Anyone on any Vitamins? If so what kind, I feel like Im a pill-a-holic now. I got flaxseed oil, green tea , multivitamin,Vitamin D
Just seems like I wanna gobble things now to prevent it from comming back!
My vitamin D at 34& my doctor said thatis good! I think that is too low!
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Nicky u actually sound excited about all this, but I guess u would be if this will help u and I relly hope it does.
Susan that sounds so good about having a fur visitor, I love it.
cg sometimes the platelets take care of themselves with time, I'm sure u'r Dr. will watch this closely, but u seem like u are doing good. And I don't know---but I don't think it has to do with diet. It's not like anemia. Oh please u know I can be wrong completely.
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goutlaw, you should be taking Calcium too. Especially if you are on a hormonal. Don't take more than 600 me because that is all your body can absorb at one time. You are supposed to take that much 2x a day. So don't waste your money buying huge honking amounts of calcium! LOL. As to your vitamin D level 34 is very low normal. I was told they like it to be closer to 50 with 100 being the max. At least that's what I've been told.
Nicki, I hope all the tests make it a go for the sx you need!
Susan it's good you have a playmate for your lonely furbaby! My neighbors DH bought her a puppy after one of hers passed. O my. LOL. It's a mix of things mostly generic hound and so totally different from her Healing Therapy dog, Best who passed. It's been a hoot to see her try to train a very juvenile boisterous pup. LOL
Much love to all.
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Research has not only shown that human epidermal growth factor receptor 2 (HER2)-positive breast cancer can be classified into four different subtypes, but has also unmasked a subtype showing both a greater response to and increased benefit from chemotherapy and anti-HER2 therapy. Such newly refined classification of different tumor subtypes will ultimately facilitate more effective treatment tailored to a specific tumor as well as will advance targeted therapy against HER2-positive breast cancer.
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cgesq - camillegal is totally correct (see, you don't give yourself enough credit!) - not much diet correlation with platelets - and know that your platelet count could be different at different points in the day, and certainly different each day. It is not like WBC and RBC and hemoglobin, where the numbers are relatively stable day to day, and change with very small percentages, your platelets can change pretty dramatically each day.
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Holy chit SpecialK I'm actually right about something---makes me feel smart a little.
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Cami, you crack me up!
Nicky, that is such good news and I'm rooting for you. Years ago my uncle was in so much back pain and he tolerated it, too busy to get anything done (also known as petrified to get anything done). He finally got his spinal fusion and the first thing he said to his wife when he was up and walking around- "Crap! Why did I wait so long?" He was skipping out of the hospital.
Gout, that is a very decent vitamin D level. Congrats! I had mine measured January '13 (in the middle of chemo) and it was 10. Now that is crappy and is why I'm on prescription vitamin D.
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Pbrain, that's a great story, and exactly the sort of thing I want to hear at the moment! Although I'd obviously rather not need an operation, I'm looking forward to the end results 😊
Camille, we know you're only pretending you're not smart. You're one very smart cookie!!
Nicky
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hello my beauties; I've been keeping up but haven't posted in a while. I had my BMX 1week ago today and so have been healing. The drains are still in place and the TEs are very tight!!! I got my oath report back and have mostly good news.....0/7 lymph nodes; no residual tumor; clear margins; but something called "minute intralymphatic carcinoma...too small to test for ER/PR or HER2" my surgeon and MO are pleased with this report and the pathologist has stated that this is "very rare" to see, my surgeon seems to think that these type of cancer cells may be in the general population. I know this thread has a bunch of smarty pants and so any insight is helpful.
NickyJ: so glad your headed in the right direction; as crazy as it sounds; spinal fusions restrict rNge of motion but do relieve pan. All the best always
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Had my first MO appointment since August 2012. Vit D is low again - actually 10 pts lower than where I tested last year when I was prescribed repletion. MO sending me for thyroid/parathyroid testing. Had a discussion about switching from Tamoxifen to Arimidex. I'll stay on Tamoxifen.
The good news - My bone mass as shown in this year's Dexa scan is improved! I have reversed the advance of osteopenia for this year. My risk of fracture in the next 10 years has improved from "moderate" to "low". In 3 out of 3 measures there is improvement. This is a result of diet, exercise, supplements and maybe the bone protective features of Tamo.
cheers
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Trying to read back a few pages and catch up. PBrain, do you ever go to Traders Point. Love that place and their yogurt. And their chocolate milk....yum! Liquid milkshake.
My vitamin d was 34 before diagnosis. They said that was too low and put me on prescription d2 to bring it up annd then told me to buy the d3. I need to take calcium more than I do. I got tired of swallowing so many pills and got away from taking vitamins. I am slowly getting back on them.
Rehabbing my toe after surgery two weeks ago is painful. Geez. I'm hoping this works, but beginning to wonder. Patience is not my virtue.
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Yea someone just told me last night also about calcium, these doctors here dont tell u crap!! And found out Antidepressants interact with Tamoifen so stopped them as I want full benefit! Yes 34 is low It should b like 70 to treat cancer!! I already take 4,000 units a day!! What is max to take a day for Vitamin D?
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sorry you are having these problems, goutlaw, i agree, sometimes it feels like they dont tell you anything. before i started treatment, they gave me vitamin d, prescription strength, it was, i think, 50,000 units they had me take once a week, and my endocrinologist, when it went low again later, has me do 5000 a day for awhile. are tou doing vit d3? or 12? and i am sorry. maybe one doc thinks another doc told you, but you would think that mo would go over blood labs w/us.
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It's pretty hard to over dose on vitamin D..i take 5000 per day. And barely made it to 32. I'll keep trying.
Fluff. I hope your toe heals fast.
Much love to all.
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