TRIPLE POSITIVE GROUP
Comments
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Happy Birthday Nicky! I hope you have a really enjoyable day!!!
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Happy birthdaty, Nicky J!!0
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Yay Nicky! Happy Birthday and many, many more!
Dance, bone loss is a complicated thing and depends on so many things going on in the body (including your parathyroid gland) so there is no real estimate for how early you'll lose bone. I'm worried about my next DEXA which is scheduled for this summer, one year after being on arimidex...but I've built good bones over my lifetime, so maybe I'll be ok. Plus I know there are so many newer drugs out there for bone loss. It isn't all bisphosphonates anymore.
Yeap, I'm doing organic dairy now. Out here in the midwest we have a wonderful service called Greenbean Delivery. Everything we buy from them is organic and no hormones/antibiotics. But I worry about all the years of just eating so much cheese, yogurt and drinking so much milk. I thought that made me a healthy vegetarian, but I don't trust these mega farms anymore.
Alaska, ask what your TSH value is. Newer US guidelines say that normal is below 3, not 6, but many physicians aren't following this. The American Endocrinology dudes who write the guidelines say between 3 and 6 is subclinical hypothyroidism and should be treated. TSH is the hormone that is being kicked out to stimulate a lazy thyroid, so the lower the better. My last measurement was below 2 so I know my fat belly isn't from a sluggish thyroid...rats...
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Happy Birthday Nicky!
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I hope you had a beautifully blessed birthday Nicky!!!
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Nicky -hope your birthday was wonderful! What kind of cake does a girl get in France?
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The PCP I'm seeing wants me to get a second opinion from a different derm doc and did a referral for me for that 12 days ago, and the derm doc was supposed to call me to set up an appointment but I haven't been contacted. I tried calling the derm doc yesterday, but at 3 PM on a Friday they were closed, so Monday I will pursue it further just to get out of the never-never-land hole the referral is keeping me in while continuing to itch.
In the meantime, in desperation I restarted vaginal low-dose Estrace in hope that it may at least reduce the itching -- but it is an Rx I had from 2010. I very much do not like being put in the position of having to beg and wait like this for a decent caregiver response to my problem.
A good friend also suggested applying the baby oil while still wet from showering and then waiting to dry without toweling off, which I did last night, and there is a positive difference with trying that, as my skin is at least less dry.
It has been long enough since I was last tested that I will request another TSH, and hope I don't have to beg and wait long for that as well as part of my "care". Thanks, pbrain!
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Happy Birthday Nicky, Have a great day..
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thanks for the birthday wished ladies, i had a great day and got spoilt rotten!
Mckatherine, my birthday cake was from my favourite boulangerie, ordered by my dh. It was a chocolate 'opera' - a many layered alcohol infused wonder! And a lovely bottle of Veuve Cliquot champagne to wash it down - fantastic!
Nicky
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McKatherine I weighed a little less than you and I'm 5'6" at diagnosis. Pushed into chemo pause. Lost all the chemo weight after so about the same. Had a flat stomach etc. Well now that I was pushed into chemo-pause my middle has put on some. This is typical of menopause. Nothing you can do about it even if you stay the same weight. Lack of estrogen does that. So if you remove your ovaries your middle might get a bit bigger. You'd be surprised what your estrogen levels might be even with out ovaries. Love the new head shot.
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Happy Birthday Nicki!!!!!!
-------------------------------------dancetrancer
1) How long does it take before bone loss starts to show up?
Hard to say because some of the bone loss can be due to chemo, menopause etc. Bone loss is usually gradual. I had a big drop after chemo/chemo pause. Then I was stable. Then had another drop that now makes me just over the border into osteoporosis 3 post diagnosis.2) If you stop the AI, will your bone density go back to what it was prior to AI's?
NO. The only way to build that bone back is with those bone building drugs. Right now they really aren't sure if its even building good bone IMO. There have been studies that eating a serving of prunes every day will increase your bone density some. More study is being done.0 -
Thanks for all the replies on bone loss with AI's - much appreciated!
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What Lago said! LOL. If you think you don't like prunes, think of them as a maxi size Raisin! They ARE REALLY Sweet AND chewy. Of course you COULD dip them in DARK chocolate..... hey Dark chocolate us good for you. Not to mention it is a high magnesium food. That my story and I'm sticking to it!!!! LOL unfortunately I was osteopenic BEFORE Dx. After chemo my bone density declined to be twice as bad as before. Leaving me at just under the limit for osteoporosis. Sigh....
Happy Belated Birthday Nicky! I am glad it was a fine one.
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Oh Nicky I missed u'r birthday but Happy Belated Birthday---u seem like u had a good one, the cake sounds so yummy and good choice with what u followed it with.
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Hi everyone , welcome newbies ! Just popping in to say hi. Traveling & entertaining recently.
Hope things are rolling in the right direction for all!
Not much news on the treatment, clinical trial front lately.
Happy belated birthday Nicky....
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Well a bitch of a w/end in NM. Finally had to make the decision to put my 14 year old totally mentally retarded loving rescue part lab part God knows what down. Vet thinks he has a bone cancer and lymph node cancer that came on about as fast as my BC did (14 days). I have been writing letters for years-long before my BC to allow people to chose when to die with cancer. Both my parents suffered so @ the end. Had I ever had a moment alone I swear I would have helped them. My sweet dog was allowed a medicine to help him relax then the drug to ease his way to death. So peaceful and quiet. Of course these are my views only and I am NOT pushing to others. I have watched How to Die in Oregon so many times. I have friends who hurt so bad when they died besides my parents. My other dog has whined and cried and looked for the dog all w/end/
Sorry. I am so sad about my pup. And I feel so damn bad. These orals are supposed to help us. Yet some of us hurt so darn bad every single day I sometimes wonder if it is worth taking them It is hell getting up in the morning and hell getting up from my desk. I am always the happy person who keeps everyone laughing. I want to get in my car and drive west. Turn right at a large body of water and stop when I run out of gas.
And before I took my dog I saw my attorney about the property settlement from the ex husband from #%#%# who has really spent everything. Pointed out to the attorney. Do not run up a large legal bill-there will be nothing for me nor for you.
Thank you for listening. Not many others understand the pile of things that make us cry. I forget to eat and still gain weight. Seriously. Forget to eat. Who does that? Vision is crap. And my foobs feel like mattresses.
Much love to each
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SusanHG123 hang in there Susan. Being sad about your dog is normal. You have every right to mourn. You did the right thing for your dog but it's still hard. F@ck the X. If he spend marital assets so what if there's still property. Should mean you just get a bigger share. Divorces sucks and messy ones suck the life and money out of everyone. Just saw this happen to a friend of mine a few years ago. Fast forward to last week... She sent me a text saying "I love my new life." She does have a great new life. In a relationship, a good one for a change! All this crap will eventually pass. Feel free to vent though. That's what these boards are for. Sharing the good, the bad AND the ugly.
♥
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Susan I am so sorry for the loss of u'r furbaby, I've been there and it is horrendous. I think I cried about that much more than my divorces, but I would think hearing about what u'r ex did at the same time had to be a double whammy.But Lago is so right give u'r self time the suffering will lesson and u can settle into a new life that will be brighter than u think. I know too money can be a terrible issue but if u have enough to be comfortable u will be more than comfortable. Please don't think such dark thoughts, this is a sad time for u, and u need to mourn, mourning is so much needed without the dark thoughts, U will feel better in all ways, but be patient--u've been thru so much emotionally and physically keep that in mind and build from there. It will happen if u let it.
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Ditto lago... Susan, it's always darkest before the dawn. I know that's a reeeeeaaaaly cheesy cliche, but I believe things are going to turn around for you. Hang on!
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{{{{{{{{{{{Susan}}}}}}}}
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So sorry Susan
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Susan, I'm so sorry to read about your pup. They are the joy in our lives. If you haven't seen this, hopefully it will help:
Just this side of heaven is a place called Rainbow Bridge.
When an animal dies that has been especially close to
someone here, that pet goes to Rainbow Bridge.There are meadows and hills for all of our special friends
so they can run and play together.There is plenty of food, water and sunshine, and our friends
are warm and comfortable.All the animals who had been ill and old are restored to
health and vigor; those who were hurt or maimed are made whole and strong
again, just as we remember them in our dreams of days and times gone by.The animals are happy and content, except for one small
thing; they each miss someone very special to them, who had to be left behind.They all run and play together, but the day comes when one
suddenly stops and looks into the distance. His bright eyes are intent; His
eager body quivers. Suddenly he begins to run from the group, flying over the
green grass, his legs carrying him faster and faster.You have been spotted, and when you and your special friend
finally meet, you cling together in joyous reunion, never to be parted again.
The happy kisses rain upon your face; your hands again caress the beloved head,
and you look once more into the trusting eyes of your pet, so long gone from
your life but never absent from your heart.Then you cross Rainbow Bridge together....
Author unknown...
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Trisha--Every time I read this I get moist eyes=it's so beautiful.
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a very important, positive development in medical research...PBrain? What do you say?http://mobile.nytimes.com/2014/02/03/opinion/give-the-data-to-the-people.html?_r=0&referrer=
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So sorry Susan.......
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So I had chemo three of 6 on Friday-tch plus perjeta-usually I dont feel too bad the first couple of days. This one really hit me. Lots of nausea, cant sleep. just feel miserable. Hoping this is not going to be a rough cycle. Did you experience more severe SE's after round three of chemo?
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YEP!!! Altho i just missed perjeta, with it, but still. entirely normal. Just hydrate & eat & REST, as well as you can. Big hug for you..
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susan - so sorry for the loss of your doggy - it is so hard, time helps, but we always miss them.
nicky - Happy late B-day!
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For you very smart ladies out there I need help and info is 113pg/mg for morphine a lot? will let you know why if anyone can answer me.
I know this is a weird question but it will make sense to all you when I let you guys know why I am asking.
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vette, yes it can get cumulatively worse. Or not. It's just what ever it does on that tx. Although as it goes on you are worn down so it hits harder. But Kathec is cirrect. Drink even if you don't want to. Sleep when you can no matter the time do it on your own schedule if at all possible. Much love!
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Cami - it is beautiful isn't it - it always brings me comfort to think of my fur babies that are waiting for me ... happy and whole and healthy
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