TRIPLE POSITIVE GROUP
Comments
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I had conscious sedation which isn't a problem for me. I just never get nausea from surgery. I'm a big chicken and was happy to be out while they were doing it. I can't imagine being conscious!
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cypher - yay!
Pbrain - funny you mentioned swimming for lago - my kids were both competitive swimmers - during the peak of my son's swim career he was probably in the best shape of his life. I immediately thought of that in the discussion regarding core exercises because he had a pronounced six-pack.
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loved the pirate update!! you go, girl!! pirates & Florida, how can you go wrong!?
personally can't wait to get my port out - no matter how they do it - recently found out I have to keep it to September - thought it was 12 rounds of Herceptin not 12 months
as far as my Stage - I remember getting run around answers about Stage/grade - i do know they said it was worse than a 2 less than a 3 - i should probably know this...and I know that ILC is aggressive but the triple positive gives me more targeted ammo
as far as physical therapy - i was disappointed that I never had anyone talk to me about what i should or couldn't do after surgery - I just got reading material with excersizes & pictures. When I recently asked the RO about excersizes to keep my mobility he just referred me to their Rehab clinic, where I assume I will have to make appts & pay extra - not cool
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NBI, I lived rehab. My PT was wonderful with a lot of CA rehab experience. She worked with me and showed me what kind of Excercises to do snd more importantly what not to do. You might enjoy it but it sure does help.
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http://www.americanbonehealth.org/images/stories/F...
Hi, couldn't help but notice all the discussion on exercises for osteoporosis. The bottom line is that there are a ton if exercises that can safely be done for that patient population; crunches aren't the only thing. Planks static hold, plank with alternating lower extremity movement; supine leg lowering, stability ball static and dynamic movement etc.. The point is not to get discouraged because one if the most important things for everyone is to keep a strong core. That includes not only the abdominal a but also the back extensor muscle groups. I've included a link (that I hope can be opened) that shows pics of some safe exercises.
Pbrain: love the streak. Your moms reaction made me laugh!!
Cypher: congrats !!!!!!!!!!!!!!
http://therapilates.wordpress.com
PS I've included another link(above) from a well known and credentialed PT who is the guru of osteoporosis research etc. hope this helps too.
Hugs to all you great ladies
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I agree, the hat was just too cute.
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Planks for those of us with lymphedema are problematic. I have been forbidden to do anything that puts my body weight on my arms.
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Cypher Yay for a good scan--always good to hear/
PBrain I did love the hat but this is a great pic and I too notice the blue but I thought it was a shadow but now that I know good for u it's really cute.
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Planks are a problem for me not only because of lymphedema but also because I have implants. My PS did not want me to do exercises that focus on my pecs. So double no no for me.
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Pbrain-I am going tomorrow to my general surgeon. He put the port in July 2-12. Removing in his office. Said I will be in and out in 20 minutes and can go back to work if I choose. Hardly! I trust the guy-so am going that route. He was not my breast surgeon-he sent me away for that.
Plus-I am weird and like to watch. I watched when I had a cardiac cath-would only let them give me a bit of a benzo so i could watch. Watched all of my myriad of tests with the crappy BC. Every invasive and nuclear. Tried to talk them into a localish for one of the surgeries. And told them, no, I did NOT need a psych consult. I did that on my own thank you very much. When I had the non-treadmill nuclear scan I told one of the cardiologists to please move so I could see. He glared at me. I pointed out it was my heart and I was fully aware I was not having a treadmill and the room was filled with people with initials after their names because there was some sort of bet I would crash on the table because the chemo drug was trying to kill me. That being said-please move so I could watch and be somewhat prepared for the paddles if such happens. He glared again. But moved. I did not crash. And got up way too soon to suit the big guns. When the glaring doc left one of the techs asked me if I knew who he was. Said no and did not care. Apparently some semi cheese if interventional cardiology. Replied-well he needs intervention on communication skills.
Will let you know tomorrow how it goes.
Special! Yes it was you who told me about the Pirates in Florida. My chemo brain seems to be getting worse. Maybe my age is reversing and I am having a fascination with pirates as my brain sinks to a mushy puddle.
P-I forgot about the scop patches. Had those for both of my surgeries and were wonderful! I wish I had them non stop for chemo. Maybe I can get one tomorrow. Lidocaine is a good friend-and imagine is what he will use. I keep a tube in my purse @ all times for my horrid cold sores. Swipe from the EMS stock. I am really nervous about having it taken out though. Afraid I will wake up in a week with a big ole lump.
Sleep well ladies. Love to each.
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I used to do planks a lot, even after my BMX and implants. It was my favorite core exercise. No one ever told me not to. But then again I was not given any restrictions after the first 6 mos post BMX
Now I know better, especially after LN surgery and the LE risk. My core used to be pretty strong, now I too struggle with what I can do that will not cause harm to the LE risk arm.0 -
cypher-yah!
Planks-I don them as part of the sun salutation. There are some exercises that bother me pec sis, but I don't even notice it with the plank. I probably wouldn't do the. If I had lymphadema.
All you thai recipe lovers, when we were in Thailand, we went to a lady's home who taught thai cooking. We picked three recipes that we wanted to make. All involved red or green curry last which we made from scratch.
Here are the recipes. I might need to do a few posts.
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fluff two of my favorites Tom khan gain and chicken with green curry. I also love a green curry with potatoes. Yum! What fun to learn from the best!
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moon, you should have seen us. First it is 106 degrees...actual temp. Second, the house is not air conditioned, although we are cooking on a kind of screened porch, but no breeze. Third, we are cooking the chilies in oil. All of a sudden, I can't open my eyes. Tears are streaming everywhere mixing with the sweat. She gives me cool clothes for my eyes, but it takes forever to calm everything down. It was awful.
Delicious at the end though, lol.
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PBrain - re: port removal. Mine was done by interventional radiology also. I was given similar preop instructions as you and was prepared for conscious sedation. The radiologist didn't use the conscious sedation when I got in for the procedure, just local freezing. Mine was in pretty good and took a little work to come out, at one point I did have to ask for a little extra freezing. Once done I was monitored for about an hour and then allowed to go home. Mine was sore for a day or two afterwards but muscle was involved as no subcu fat in that area post mastectomy.
Love not having it!
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Thanks Websister, I don't know why, but this whole thing sounds gruesome. I guess because it's been in there for a year and a half? I want to take a xanax before I go. Think I should call them and ask if that's ok? I only take 0.25 mgs at a time and it chills me a bit. I am shocked by how weird I'm feeling about this. I'm more nervous than the lumpectomy. I'm a nut.
Moon, I love your story about the baby docs doing your line. Hysterical! You must be a fun patient.
And Fluff, your story is funny too, but oh I can't imagine the pain, heat, oil, eyes...reminds me of the time I dipped a piece of popcorn in the little green dish of salsa at the farmer's market in the French Quarter. I was with my buddy Rob and he was being all manly "try the red hot sauce!" I said "no, I'll take the green, I'm sure it is cooler." Holy mother of pearl, I was sobbing, sweating, drooling and generally burning to a crisp for about a half hour. The Cajun vendor had some chunks of bread there and I ate the whole basket. Meanwhile Rob was on his 15th piece of popcorn, dipping into a new red hot sauce. Never again.
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Pbrain when I got my port out it had been in for 2 years. They told me not to eat or drink anything... take my meds after the procedure. So I didn't take my diuretic (very small amount because of Anastrozole makes me retain). Anyway I get this call the next day from my PCP asking about my hypertension. What?!!!! Seems I filled up with fluid during the procedure. Well Doh! If you take away my diuretic and fill me up with saline what the hell do you think is going to happen. I do not have hypertension.
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BTW now I wish I was making Thai tonight. Everything looks so good
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Lago, I made Tom Yum Koong yesterday. Yum! Yum!
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Soriya next time take a photo and post it.
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pbrain LOL! It was funny.
Lago man! Blown up like a balloon and they thought it's your fault? Duh....
Fluff, dripping or not that was an experience!
Soriya wish I was in Cal!
Dinner today was a marinated boneless pork rib I bought that way at our good local small chain grocery. It's an upscale store and the meats are amazing. So is the prepped food. I buy their soups all the time. Like red pepper curry. Or chicken corn. Or even the chili. It's just good. And if I don't want to eat a Whole big pot of stuff its good to buy it. They use real good ingredients. I used the leftover rice I had and added the leftover kidney beans and spices. I cooked the ribbs in a cast iron fry pan. Voila! Supper! LOL
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BBQ pork ribs today my own recipe n Cambodian chicken soup with galanga,lemon grass n keffir leaves. PBrain my MO told me i will have my port out in July but not sure in what procedure, i didnt ask. Lago next time i will post pic, if i know how to post pic. LOL nev er done that before. Moon, yes come down to Cali sometime....nice weather down here n great food
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I almost forgot what thread I'm on! LOL. Are we sure it's not the Dinner thread? LOL
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soriya, don't post a picture, post the recipe!
thanks everyone for the recipes.
In terms of heat, I went to Thailand long ago when a friend called me and said, "do yo uwant to go to southeast asia with me for two months before I start grad school?" Things were simpler then, I just said yes on the spot. We went to this one restaurant where there were these little green things that looked a lot like peas but had a little bump on an end, just like little cartoon tnt bombs. We both bit into one at once and OMG were we in pain. Those things were HOT HOT HOT! We basically guzzled the rice whisky we had on the table just because it was a liquid. They were laughing at us, little bit...
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Pbrain. Had my port out today @ my general surgeons office. The purple port-could be used for colonoscopy, all the scopes, etc, and chemo. He used lidocaine-he said 40 mls but he is a friend and full of BS-used 3.5. Was completely numb. Have had my port 22 months. Came out easily. Internal sutures with steri-strip pad on top. Minimal edema. Bruising-but I am a pale face freckled blue eyed red head who bruises if I look @ a rock. No pain since. None. Had it removed about 3. It is 9 now.
Only problem-is I was an emotional wreck when I got in my car. Fell apart and melted into a puddle. I did not get to ring the bell or have a party at the end of chemo. Because I never had an end. No celebration when leaving the BGC. Because I did not know the last time I was there was really the last time. I got kicked to the curb due to all the complications. So my port was a security blanket. I have this BIG fear I will grow a tumor the size of an elephants head in the next few days. Since my first one grew to 6x6 in 15 days. My surgeon hesitated until I told him it had gotten sluggish and my MO said if I needed a port again I would need a new one.
So. No pain after the initial sticks for the lidocaine. Which I find is minimal if anything after having markers plunged into my breast or needles and dye injected into my nipples.
Much love. I am heading to bed to continue my pitty party,
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Hugs Susan! Tingaling tingaling tingaling! I'll help you ring the bell! I didn't get the chance either since they stopped me from finishing Herceptin after my 2nd Herceptin only infusion because of EF problems. So i kinda know how it is! Hugs.
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Susan, I didn't get a bell either. Don't know why, maybe they don't do it at my facility? I never heard bells ringing....
Hurray!!! You're done!!! Woo hoo!!! Does that help? You are entitled to a pitty party if you really want one though. (hugs)
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Susan - if it makes you feel any better, I finished everything but rang no bells, had no party, etc. My center does not do that. I bought myself a kickass piece of jewelry after my last chemo and every time I wear it I remind myself just how kickass I am! I highly recommend it!
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