INSOMNIACS place to talk in the wee hours
Comments
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I have a question that is probably going to make me sound stupid but here it is anyway:
What is it called if the BC spreads to the spinal column? And does BC have a tendency to do this?
I guess why I'm asking is that I keep hearing about spinal mets and I was assuming that meant it had metastasized to the actual backbone!
Sorry to be so naïve about this, just looking for some clarity!
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Nettie, I am pretty sure that ANYone else can answer this besides me.... I KNOW that women on this thread have, or ARE going through this....
Your Docs or Onco should know this, and can answer your question.... They have all the tests to do this.... So don't worry, and don't go frettin' none, cause without knowing, you will just be a nervous wreck, maybe for nothing!
I know SOME women with pain in their back, think it could possibly be that, and it isn't! Looks by your DX, that you've had radiation AND chemo, and that should help you know that you are pretty safe...
I know Sass would also tell you to ask your Doc's! So since she is on some sort of vacay then the rest of us will have to take her place...Ha!
Maybe Sass will be back soon.... I don't know what happens, or why some of our friends don't post here anymore....It's that way with ANY thread..... But maybe they just go post somewhere else.... Yes, I came to the Insomnia thread too, because Sass told me to..... But I like it here, and even though Sass is not posting, I like the REST of you gals too! So I'm not leaving.
You are all my friends, and besides we need to accumulate more.... so please don't go......
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Thanks Chevy, but actually the reason I asked is this:
I was talking to a friend that also has BC, she was diagnosed about the time I was finishing chemo! She was telling me that she had a friend who supposedly had "beat" it, didn't ask how many years, but she said she had mets to the spine and within less than a year she died! I was thinking mets to the spine meant the back bone and I thought bone mets was certainly treatable! Maybe she just didn't have the whole story, but she said her friend never kept anything from her! And I wouldn't think that spine(bone) mets would "take" someone that fast! That's what has me asking and kind of scared!
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Nettie, there are a lot of threads on here, that talk about mets, but honestly I wouldn't even look at them, until, and IF you were diagnosed with bone mets...
And I would call the Doctor, or your Oncologist, and ask if that is possible, and maybe ask for a test, like a CatScan or an MRI? I would be afraid too, so I would want to know, and then when you get the all clear sign, then you won't worry any more...
I don't think bone mets "happens that fast" either..... But I would want to find out if this were possible.... I also think it depends on how many positive nodes, and how aggressive YOUR cancer was.
Tell your Docs why you are worried.... about your symptoms, and tell him that's why you just want to be tested to make sure.... I mean I would....
Okay now.... go enjoy your week-end!
Hi Teka! 0 -
OMD THAT WAS FUNNY!!!!!!!
We don't have that problem, but that would go with WHY she got her name. Her bday is Halloween. And the poor thing was afraid to jump off the chair.
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Nettie I believe if u get mets to the spine sometimes all of a sudden u mets has turned into u'r whole body organs and it can't be treated. Now if u'r worried about u'r back the chances are u have spinal and disc problems--that seems to happen a lot with all of this--so many of us have disc proplems with our bones after, it seems to make our bones osteopenia at least of not more--I have lower vertebrae and the bottom 2 discs decaying (I can't think of the proper word) I have scoliosis, and extreme arthritis all in my back and arthritis everywhere this all happened quickly after crap, I've gone to pt and such and do what I'm supposed to do but the pain is always there and not much they can do--and so many of us have lower back problems now so I guess it could be scary, but I do know other people who found mets and did go quickly it just depends I guess--My sister has bone mets and is going good for for 7 yrs still working FT but again it just depends on each person.
Did u understand anything I said, cuz I know I'm bad 'splaining everythin.
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wait...what did I miss...do we know where sas is and why is teka being deleted...why am I so confused . Someone help me out here
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Nettie, I have mets to the spine. C7 to be exact. Didn't show in the last tests..yeahhhh. This chemo must be halting it a bit. The best way I can explain is that since it's in my nodes, they can "break" apart and travel anywhere. When they hit the spine, they also get into the bone marrow, and again, they can break off, so to speak, and travel. When bc gets into the nodes, it has already traveled out of breast, but still called breast cancer cause that is it's DNA, so to speak. If a recurrence isn't a primary, it's harder to treat. Primary's are always easier cause they r new. I kinda think of it as....the cancer has been sitting there a long time plotting its return, if it comes back, it is smarter, and comes back to fight against the treatments . But they have a lot of tricks in their bags to help us along. I am a good example of that. Been fighting this for 12 yrs and I am walking a marathon tomorrow . So it isn't always gloom and doom.
Hope that made some sense
. I am not sas....lol0 -
Susan calm down--Teka deleted her own post--I've done that at times, when pics don't turn out right and someone will search out Sas.
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See Susan.... It's all okay.... Teka deleted herself, for just because.... that's alright.... I think Sass is taking a break or something....
I don't think you are confused, anymore than we are..... Of course WE ARE, but that's another story.... Ha!
If I can help you in any other way, just holler!
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whew.. I have been missing a lot even though I've been checking in every so often. Last thing I knew Chevy was playing with chickens and Cami had had a shower and smelled good & sassy was in the doghouse which luckily Chevy and I left very clean when we vacated (not like the good-for-nothings that occupied it before us). And there was a discussion going on about an unmentionable slithery thing, which I was luckily backed up on about non-allowance in the doghouse.
Susan - I'm so glad that you didn't get that holeinone was hole in one 'cause for a very long time I was reading it like holl - leen- ih-noo-nee. Like that name in Harry Potter that I still can't say because I never saw the movies or read the books. I call her Hi, ho sometimes and she doesn't seem to mind. Pretty even-keeled gal that lovely delphinium. (I have one blooming in the garden now hole).
TANG! - Stop it with these infections. Time for you to be done with this chit. And you will be. With the chemo done, your body should be able to heal better. Hugs to you sweetie.. you have sure had a rough go of it. As far as your daughters go.. they really are coming up with new tests and things all the time. It's hard to say what things will be like ten years from now - I know one thing, Sassy's going to have rid the medical world of paintball therapy... and that is going to be a big improvement. For now, just get yourself better.
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Ok the Chevster lost her marbles (well duh) and Cami got drunk and Nettie's falling down - YUCK, vertigo, nasty stuff, I hope you're upright again Nettie. Chevy I didn't break any more fingers, but I think I rebroke the one and some of the keys on my keyboard went out - a few are still sticky so if I don't pay attention, there won't be any ems or cees or vees in my posts. But before it was the ee and the ar and the esses plus the aitch sometimes and it's REALLY HARD TO WRITE WHEN HALF YOUR LETTERS ARE MISSING!!!!!!!!!!! It's kind of like trying to understand things when half your marbles are gone. You know how that is. Oh FBB I am glad that you had a family memorial day AND that you caught the fact that Cami & Chevy were showering together AGAIN. (we won't talk about that cause it gets chevy's chicken feathers all ruffled up). FBB, I'm going to make one of these to attract Orioles, and we get finches and cardinals and bluejays and woodpeckers ... but unsure how to get bluebirds to come visit so you're going to have to be my one and only bluebird, which is fine with me since you are bestest and fiercest bluebird of them all:
Pawprint, so glad that little pooch of yours is doing okay.
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Oh Ziggers! Lilshit I'm so glad you found your way back...!!! BBL in the morning! xoxoxo
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Hi Ziggy missed you. Oh and I like the reasoning why spelling is so difficult yes my keys stick all the time nd there the ones you don't see when I'm typing.
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Netti. I have read in several places on BCO that if a pain lasts more than 2 weeks, get checked out. My MO said bones mets hurt a LOT.
It is hard to deal with any new ache or pain. Always in the back of your mind, is it back? But as time goes by, it does get easier. Really.
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I just called Sas, got her ans mach. Left message to call me, or put a message here.
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Tree Babies!
I think I'm gonna get Sassy a tree baby for her birthday. Shhh.. don't tell. 0 -
Crap, I take the night off to go dancing and I missed do much..... hope to catch up tomorrow. Going to bed..tired and achy. Was achy before dance, took muscle relaxer and had a good time. But it's wearing off do I'm off to bed.
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Owlettes - many, many thanks to all of you who responded to my post about quitting Femara. It meant the world to me to hear your encouragement, and I know in my heart that I'm doing the right thing.
And if I had any doubts left, I had the most amazing phone conversation with the new Cancer Coordinator at Kaiser this afternoon, who assured me that I had done everything and tried my hardest to stay on the meds and now it was time to stop. She said that my quality of life was more important than fighting SEs for another three years, and that I should start making those plans with my husband.
Today is my third day off the drug.... we know that the chemicals don't completely clear your system for six days, but mentally I am in such a better place. We went for a bike ride after dinner... (me on my adult trike, all trussed up with my back brace) The breeze was cool, the sunset was beautiful, the birds were flying overhead as we rode past a stream.
I have so much to thank God for, and I just wanted you all to know that YOU are all special blessings in my life, and I am grateful for each and every one of you.
xoxoxoxoxo
Get it? THREAD? yuk yuk yuk....
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ok, I know most of you have gone to bed already. Here's the girls and me and the happy couple.
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Blessings, it will only get better from here! Having the stress gone must be a relief in itself.
Love the tree babies!
Can I ever get caught up? That would be a No!
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Happy couple, BEAUTIFUL dresses, and one gorgeous, svelte Smaarty!!!
2TA - thinking about going to be early tonight - I have an early appointment tomorrow: NOON!!!
You are right. The mental stress diminishes day by day. Sending you L&H&P..... and 
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Great photo, Smaarty! Everyone looks beautiful and happy.
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Susan, that was a very good explanation.
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We had some disturbing news today. We live in a 55+ adult community (I'm 55, my husband is 54 and we just moved here from California in late September). Apparently there was a murder/suicide a couple of blocks away sometimes yesterday. We didn't know the people but our neighbor told us the husband is said to have killed the wife, the dog and then himself. It feels like there's a dark cloud suspended overhead. When I think of how many people are trying to stay healthy and stay alive and then someone has to end another person's life. Why not just take your own?? These are rhetorical questions of course. I'm just having a hard time shaking the thought of this happening. I mean, I know it happens all the time but . . . (trails off)
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Blessings, I'm so glad u have that relief, now u can get on with enjoying u'r life with u'r DH.
Smaarty I love that color for the dresses and u look so proud---beautiful pics.
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Lee- OMG I know we hear of these things, on TV and news stuff, but to have it so close to home must be shattering whether u knew them or not. U can never understand the mindset of anyone doing such a horrible thing like that, how can anyone take anothers life for any reason and then take their own, like u said when so many are struggling to make it thru life. U'r whole neighborhood must be in shock, maybe just stay clear of all the drama for u'r sake, but knowing me I'd want o know everything that led up to it. But I'm weird we all know that.
chit how sad.
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So am I mistaken, or did Lilshit somehow pop in ? I mean I THOUGHT I saw her, and she actually SAID something, but then I .... Oh wait, then she posts a picture of "tree babies"??? WHAT did I miss?
What does that have to do with anything somewhere, or likely no-where? Oh well... She comes and she goes.... probably off working in her gardens somewhere...
Spookie, that makes sense... about the pain... Maybe that will help Nettie.... We've been HOLLERing at her to go get it checked, just to make sure.... Maybe she will mind us now.....
Oh? So now she's "dancing?" That's what she SAID gals.... Nettie went pole dancing! Did I read that wrong? Oh well, you GO girl! I LOVE dancing! I used to do that, but only when our guys were deer hunting, and gone for a few days, and THEN we would go out and raise hell, and have fun! And we would drink, and tell dirty jokes, and just do things I never did when I was younger....!
Just like Cammi did.... I mean SHE was out every night with Billy Bodandistal, raising hell, and never going home! Ask her! She'll probably deny it, but we all know different...
Blessings! I loved your post.... and the kitty! Yes, I love this thread too, cause YOU gals are here! Glad you quit the med..... Sometimes those things are harder on you than the actual DX....
You went for a bike ride? I would kill myself..... It would have to have 8 wheels!
Does it look like this?
You need to put cards with clothespins on the spokes of the tires... AND a little bell to ring, to get people out of the way.... Maybe a few streamers on the handle-bars! THEN you will be ridin' in style!
Smarty! I love the pictures you post! Weddings are just magical!
And MaddyMae.... Morning kiddo! We don't worry about catching up, we just jump in, and pretend we know what we are doing...Ha!
Lee.... I'm sorry.... It's like the older WE get, and the lousy news we hear, just makes you more afraid! People are just NUTS now-a-days. I mean more than me and Cammi even! I'm with you.... Don't hurt anyone else, if you are THAT mad, or hurt, just go somewhere and leave everyone and everything else alone! Damn people!
Cammi, you are not weird... But that word is fun.... you even spelled it right... WHAT? did you look it up?
Okay gals.... the sun is starting to come up, and I have been going out back every morning to watch the world wake up.... with my coffee...
BBL..... xoxoxoxo
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Here I am again---I was out too Chevy I do a little walking now that it's nice, I do my stripping at nite 00ps I mean my phones and TV at night. And yes Chevy Back in the day I would stay out all night and work a double shift the next day and never paid for a drink and I did drink those days, that would be the weekends my girls would stay with their grandparents and a little bit with their father00so I'd come home Sunday adternoon and sleep a little then my kids would be home but I could hide the circles then, now if I stay up it's not out of chouce but I can't sleep out of pain hahaha--but I did have fun. All my real friends were married then so I'd see them differently, these were my drinking and staying out buddies.
It's a beautiful day today and we were all out on the deck already even the cat and dog---- OK I'll be back later on
Happy Saturday
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You are on a deck? On a boat? DRINKING? Figures..... Just like ole' times!
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Stripping? Good Grief! I don't even let my mirror see this body nekkid! It would probably shatter into a gazillion pieces! Pole dancing? Ha! The Polish people I know don't know how to dance, so I guess that's out too.
Have to wake up DH. He works OT all day today. Chi Ching!
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