TRIPLE POSITIVE GROUP
Comments
-
LOL at Hobby Lobby. We recently moved from California to Arizona and I've seen a couple Hobby Lobbies but haven't ventured in one yet.
I agree re: being twenty again - although I wouldn't mind a crack at 34 or 35 again.
Speaking of cracks - my husband cracked me up tonight. He coined a new expression for my reconstruction. We were inside a store and I quietly told him my "breasts" felt odd. Out of the clear blue he replied: "are the adopted girls giving you trouble?"
0 -
This is ridiculously hilarious!! Landing strips are nice. I must admit I felt like a 70's porn star when regrowth exceeded the raise in my WBC. I was still on a shaving ban...the need for landscaping was driving me crazy.
The adopted girls....love it!!
Reminds me of my rads appt on Friday. Allowed to bring iPod to listen to while lying still. They have a boom box. Last song to come on during treatment. One Headlight...it was extremely difficult to not bust out laughing....I thought how appropriate for a uni! Forgot that song was in there. Silly shuffle...
0 -
Ha! One Headlight!
<---- I hope those are headphonesI've never heard that song it but I experienced a few weird music synchronicities during radiation. One of them was the Alan Parsons song "I am the eye in the sky, looking at you." That apparatus moving overhead was the ultimate eye in the sky.
0 -
Nothing could be more inappropriate than the first song played 2 years ago at a breast cancer walk: Another one bites the dust. Thank goodness we were just setting up and very few people were there.
0 -
and yes friends - there has been a research study done on this....
"Ladies and gents who pride themselves in sporting groomed nether regions may want to consider paying a professional to bushwhack. A national study conducted by researchers at the University of California, San Diego, found that emergency room visits following pubic hair grooming sessions gone awry have increased five-fold in the last eight years. That's right, readers. UC San Diego scientists have analyzed the bloody aftermath of pubic hair primping.
Here are the numbers from the study, according to NY Daily News:
A total of 11,704 people landed in the E.R. after waxing, shaving or trimming sessions went awry — and it's a pretty even split between women (56.7%) and men (43.3%).
Nonelectric razors were responsible for 83% of injuries, followed by scissors (22%) and hot wax (1.4%). Laceration was the most common injury, and most ended up being minor.
The reason behind this bump in pubic region wounds is actually quite simple. It's not that people are becoming more careless or their tools are less reliable, there are just more people taking interest in personal gardening. And the numbers exist to prove it. "Previous surveys have found that 70% to 88% of young women in the U.S. partially or fully remove their pubic hair, as well as 58% to 78% of men. Almost 29% of the women's injuries occurred in girls younger than 18."
Who would have ever thought that tidying the ol' bush would evolve into such a dangerous cultural trend?!"
link to full article
0 -
...it feels nice...
lago, i agree that has got to be the worst song for that.OMG
0 -
LeeA - omg that's what your onc said - yikes!!!!!! I know that's many mens fantasies but really, to say it to a patient!!!!
0 -
LeeA - I am thinking the Onc's on the West side are a little less "outspoken" I can't imagine any of my docs saying that...
Iago - I have to agree, worse song ever. Wow....smh...
0 -
My last Herceptin treatment today!
From now on is just follow up visits with doctors. Yea!!!0 -
susan - I had my babies in a military hospital, with the first one I had a very, very long labor with many hours of Pitocin, no epidural, then a C-section - but had to be shaved first. By nurse Bob. Eeeesh. It was an interesting experience.
Some of you may remember that I had a very chatty woman in the chair next to me for my first chemo. She said she had to keep talking or she would get panicky, but I was trying to soak up what was going on around me and listen to the nurses, etc. I was very nervous and she would not shut up. After she extolled the virtues of the free Brazilian she told me how much her DH liked the fact that there was nothing in her "lady garden" and at that point I turned my back on her. She had a panic attack and had to be Ativan-ed.
Right now I only have one headlight - I may have to adopt that as my theme song for the next few months!
LeeA - yikes on your onc and the fact that certain of his thoughts actually come out of his mouth!
0 -
So happy for you Karenrm! Can't wait til I'm there.
0 -
Karen - yay!
0 -
Lago, Pbrain, or anyone-- Any thoughts on ASCO revelations like the SOFT trial and how it relates to Her2+? Do you think they'll be recommending everyone Er+ get ovarian suppression or removal and then go to AI? Who should receive tamox? And is it possible people with Her2 would have different outcomes or not? I'm on the border having been pushed into menopause probably permanently but my MO is keeping me on tamox for now just in case.
0 -
Iago - great song choice!
I am also very curious about AI vs. Tamoxifen. I really need to print out the info on ILC and Tamoxifen not being as good a match. My MO feels tamoxifen is still my best weapon as he is not finding enough data to support ooph and switching to AI.
0 -
momwriter I haven't read the the study so I don't now what the issues are. Do yu have a link?
I was in perimenopause prior to chemo. My last cycle was 2 weeks before chemo. My onc felt based on my age at the time (49) and when my sister and mother started menopause (51) that it wasn't coming back and prescribed Anastrozole. She tested me for 5 months to be sure.
Now that I need to switch she is recommending Aromasin not tamoxifen even though I now have osteoporosis. My friend and I (same onc) feel she really hates Tamoxifen because the SE can be a bit more life threatening.
0 -
Lago,
I don't have technical link though perhaps if I dug around I'd find one. There are a lot of summaries posted right now. Here's one. http://www.medpagetoday.com/HematologyOncology/Br...
0 -
Lago' that's a hilariously awful song choice.
Pbrain, see what you started?
LeeA onc needs to wash his brain out!
Robin and Specialk One Headlight! Great song choice too.
Linda thanks for the pruning story! I didn't realize just how far from the "norm" I am! LOL
Susan the hot glue gun made me cringe because you know as well as I do there is someone out there who's thinking "I wonder if this would work"!
Vajazzeled. Just can't wrap my mind around the whole concept..but it reminds me of the joke:
A mom told her 5 year old to clean up her crafting area and yo be sure to get those sequins and glitter too. The little girl got a washcloth and put them in there for safekeeping. The mom, like all mom's trying to do everything at once remembered the Dr apt. She only had a few min to get ready. Since it was her gyn she grabbed the first washcloth she saw and put it under the water and swiped as fast as she could. Finally got out of the house and into her gown at the Dr office. Dr comes in sits down and says"oh. I see you too the time to pretty up for your appt! Uep. The glittery washcloth was used. LOL
And Karen, congrats!
Much love to all
0 -
So-speaking of lady gardens-does that grow back to the way it was or stay straggly? Only asking since we can ask anything here-lol.....I personally dont like the brazillin or straggly look on myself...want my garden back
Anything we can put there safely to assist in growth?I am doing the lateise on the eye lashes...only about 4 days in so not sure if it is working. MY PS says it takes about 16 weeks.
0 -
So-I am 16 days past my surgery-lumpectomy on right with lift, nipple moved up and TE put in. Masectomy on left with TE. My path came back that I had 6 tumors in the left, not the 3 they originally stated. I am doing well with my post surgery so far. drains out. Started driving day 12...was actually back to work day 5 in home office...everything is healing good....blood counts coming back up, all is fairly well.
So-when I saw my Mo this past week-he stated that since the chemo did not fully remove the cancer before surgery-that I have a slightly higher risk of reoccurence. Anybody else get told this? he offered me a clinic trial involving another 18 weeks of chemo-called Halaven-a her2 arm is still open. he is not suggesting I do it or not do it, but wants me to know my options. I dont want to do it. I have completed my 18 weeks of chemo, had surgery, and will start radiation mid July...followed by reconstruction later. I have been through enough. I dont want this crap back though either. Has anyone else been suggested this trial or done this trial to help with lowering the chances of reoccurence???
0 -
Vettegirl:
Sorry, I don't have any answers, but I feel for you! Sorry your care is going in an unexpected direction.
I also did chemo, surgery (lumpectomy) then radiation. Now I should be on AIs (didn't care for them) but will be soon trying Tamoxifen.
I with I had some wise words to share... I'm sure someone here does. Take Care.
0 -
momwriter
https://community.breastcancer.org/forum/108/topic/773534
check out the discussion on this thread - its what we have been discussing
0 -
momwriter - im going to be speaking to my MO Thursday about these preliminary studies - I will report back!
0 -
Thanks Rozem! I look forward to hearing what he/she says. The best news I guess is that survival rates are so high. ( it seemed study indicated more recurrence on Tamox but survival was the same?) Still want to know what implication, if any, for her2.
0 -
Karen. Yay
Lago my nails are lifting. Three so far. If they lifted did you lose them for sure sure or just some?
Vadazzeling the vajayjay?! Lmao
0 -
yay Karen!!!
Moon, that is a funny story.
0 -
Tee hee, this thread took a turn into stand-up comedy!! I was peeing over here.
Vettegirl, don't be too discouraged. Were all 6 tumors the same type? Were they Her2+? Ask your onc about other approaches. Maybe he/she would consider the newer drugs for Her2+ tumors, because while most do, not everyone responds to Herceptin. I'm wondering if that might be your case?
Mom, my thinking is you are taking two different approaches to estrogen supression. Tamox blocks receptors on certain cells (like breast and ovary) but not on bone. So it has bone advantages for sure, but what if you express a lot of receptors and the Tamox isn't blocking them all?
The aromatase inhibitors shut down the production of all estrogen from all tissues. So there just isn't any after awhile. This is why they are so hard on bone, which sucks up estrogen like no other tissue in the body. One of the very protective things about the AIs is that they stop all tissues from making estrogen, so the fat cells are shut down too. In post-menopausal woman, that is where a lot of our estrogen comes from (especially for me since I have a nice, hearty supply of adipocytes) tee hee...I'm working on shrinking them. So I have my ovaries, but even if they did still want to give up the ghost and make estrogen, they can't. All my estrogen receptors are happy and able to receive estrogen, but I just don't make any anymore.
So the way I see it, the AI is "the buck stops here" drug. But the bone issues are worrisome for someone younger. After menopause (which I went through a little before diagnosis) I already stopped making estrogen from my ovaries for my bones (now those fat cells are another story). So physicians feel ok giving an AI to someone like me because I wasn't going to be doing much bone building anymore. I think they struggle with giving an AI to someone like you because they don't want to cause osteopenia or osteoporosis so early.
I'll keep my eyes out for the SOFT data, but I will say I wouldn't know how to make a decision in your situation either. Since I never, ever want this crap to come back, I'd probably go for the AI. But that's because I'm risk adverse.
Princess, all my toenails fell off about May-ish of last year, so ~3 months post final chemo. It didn't hurt at all, and I spent a summer without wearing sandals. It was super weird, but no infection or pain. Just no pedis.
Ok, don't get me started on beauty treatments...
0 -
Pbrain, in addition to your ability to keep us entertained, you always supply us with much needed and appreciated factual information. I am sure everyone who comes to this thread will join me in telling you just how grateful we are that you are here. This has always been my favorite thread because of all the knowledge so eagerly shared and the wonderful support given. I rarely share, but love reading all the posts.
0 -
princessrn I didn't lose any of my fingernails just toenails. Granted they all lifted. It started with my toes after the first treatment I think. Lifting started in my fingers after 3rd.
Pbrain my onc had no problem starting me on an AI even though I was already osteopenic, had family history, small frame, former smoker, and Caucasian… Hell why not add 2 more, chemo and AI
I see my onc on Wednesday to discuss Aromasin, etc. I'm really enjoying my vacation. I'm getting more done
0 -
pbrain. Thanks for the info. I am leaning towards staying on the lupron and going to an AI but i tell u these shots ate doing a number on me. Im not ready to yank the ovaries. Oh what to do.
0
