TRIPLE POSITIVE GROUP

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  • honeybair
    honeybair Posts: 234

    I drink a product called Zero which has no sugar but contains electrolytes as well as vitamins.  The lab tech of my primary doctor's office told me about it.  Most energy drinks are just too loaded with sugar.  The price ranges from about 80 cents to 1.29 per bottle.  Many times it is on sale.  Other than water, decaf coffee, and tea, it is the only product that I drink.  I  think it would be helpful for anyone undergoing chemo.

  • linda505
    linda505 Posts: 395

    Hi Honeybair - I drink some Poweraide Zero also - I can't have the sugar because of my diabetes. But I hate, hate, hate drinking anything with artificial sweetner.  I now just mix some with my water to give it a little flavor and a little of the minerals and vits.  Wish they made something like this with stevia but haven't found anything like this yet. 

  • lago
    lago Posts: 11,653

    Artificial sweeteners… just get through chemo. It's only a few months. Dump that crap when you are done with SE! Stevia hasn't been completely tested yet although it is said to be safe.

  • I drank a low sugar Gatorade during chemo.  It really seemed to help.

  • linda505
    linda505 Posts: 395

    Yep Lago - I only started buying this crap again after I started chemo. 

  • ashla
    ashla Posts: 1,566

    Great thinking Lago! Occasionally do that myself. Too right! Just do what ya gotta do to get your body and spirit through chemo. Don't sweat the artificial sweetener now. You can go all healthy everything in a few weeks! 

  • momwriter
    momwriter Posts: 277

    Ashla, 

    I had a 3D Mammo at my last checkup. I've no idea if it would have found my tumor. An MRI would have. Any idea on the amount of radiation in 3D v. regular mamma?

    I would have loved for my BC to have been caught earlier. I have to believe that for some tumors, if you get them before they spread and become systemic, you have saved your life.  That said, it is true that some are so aggressive early detection doesn't matter. 

  • lago
    lago Posts: 11,653

    I too would have loved for my tumor to be caught earlier. I had a scar 4 years prior which is when my BS said mine started. Everyone back then said it was nothing. Had to grow to 6.5cm with a bloody nipple and still the place said suspicious but not typical of cancer. Granted I had very dense tissue but if this was caught earlier I bet it would be DCIS. Less than 25% of my tumor was DCIS, still the invasive part was 5.5cm which puts me at high risk for recurrence. Yes it does make a difference.

  • ashla
    ashla Posts: 1,566

    anyone in the San Francisco area. Army of Women is starting a research project on environmental pollutants and breast cancer. Looking for volunteers.

  • Ahhh, I found someone in my boat about job hunting.

    Mornings are my bad time, I am overeducated and overqualified and want to downsize into a position with low stress, no travel, no supervision of others. Just do my work and go home. I am very project oriented.

    Don't know about Canada, but the US is in such crisis and ageism rules. I'm 53, look mid 30s, and will always be 27 in the head.

     I lost my network. The longest time I was in one place was when I was married--7 years in a house.

    As a trailing spouse, twice, I was the one uprooted. In between marriages, moves and lay offs, I did a lot of high level temp work. It is very hard to get now because there are so many qualified people out there to compete with now.

    I have my suits and just made another gorgeous, professional portfolio.

    What are people like me doing to find work that is successful?

     

  • lago
    lago Posts: 11,653

    bluepalace you aren't alone. I lost my job 5 months prior to diagnosis. I have freelanced and had one 6 month job with ACS but so far no luck. Like you I'm 53, look good for my age (in my 40's). I've been beaten out of jobs by folks in their 20's (ACS did that to me. Hired someone who hasn't even volunteered or worked for the organization) even though I am willing to work for the same wage. I too am over educated. I've removed my Master's from my resume. 

    But I do see the job economy picking up. The age thing is really tough especially when you live in a big city with lots of young unemployed people to compete with. And if you are in a field like design, as am I, it's always been rough for over 40's… because we all know you can't be creative after 40.

     Devil

    Have you registered with any recruiters. I have landed a few jobs that way.

  • footballnut
    footballnut Posts: 449

    hi all!

    I've just caught up on the thread - wow so much activity!  Today I found out that I am negative for the mutated BRCA 1 and 2 gene. 

    I also found out that my mothers "down there" cancer was uterine. So I called her to give her the news. 

    :-)

    Next wed is my 4 th round of chemo. Taxotere. I am ao nervous about SEs although I know some women that breezed through it. I knew what to expect with FEC and feel like I have to start all over again

    Any advice would be most helpful

    Have a great day!!

  • lago
    lago Posts: 11,653

    I worked out for 70 minutes on the elliptical after my first TX of taxotere (with Carboplatin and Herceptin). Photo on the left is 2 weeks after my 4th tx with my wig: linky  I don't look that good now! LOL

  • efcjax
    efcjax Posts: 74

    Hi Football,

    I have my 4th round of taxotere, carboplatin & herceptin on Friday.  I've had some pretty rough rounds so they reduced the taxotere by 25% last time and it really helped.  So just know that's something they can do.  Weirdest SE was extremely dry skin on my hands.  They ended up peeling.  Even now my fingertips are peeling.  They had me take extra steroids and it helped a lot.  One thing that gets me through is now realizing that I should call the MO when things get bad and they are great about helping.

  • Pbrain
    Pbrain Posts: 773

    Lago, removing your Master's from your resume just makes me sad.  What have we all come to?  But the ageism is real and hits hard after 50.  

    Bluepalace, is there any way in your field that you can go learn something that is really odd or different?  As an example, with me, I'm in regulatory in my company.  We are the people who submit products to FDA for sales in the US.

    The majority of people in regulatory positions worldwide are in pharmaceuticals (I'd say ~95%).  They are falling out of the trees there are so many.  But I'm in regulatory for our diagnostics division (blood, urine, cerbrospinal fluid, tissue, genetic tests...ie. BRCA I and II or Her2 receptors on a tumor).  We diagnostics people who understand this obscure area of FDA are so dang rare that I have recruiters calling me every single day.  They are like fruit flies that I'm always swatting away.

    This doesn't mean I'm brilliant or way better than others in my field, it just means my experience is unique.  Do you think there is a niche area like that for you in your field?  I completely stumbled into this, being adept in clinical pathology (which is not rare) and had no idea I was making a smart career move (tee hee, I'm not a strategist...).  Now I could go just about anywhere to work even though I'm 54.

    So GOOD NEWS!!  --clean mammo on my left breast this morning!  (6th month check up on the cancer breast).  My tech was so sweet.  She came and gave me my letter and results and told me she admires brave women like me and she understands how hard this screening process is.  I started to cry and told her I'm so far from brave it is amazing!  I'm wussy, but whatcha gonna do when you get that diagnosis?

  • bren58
    bren58 Posts: 688

    Pbrain, that is such great news!!! Very happy for you!

  • lago
    lago Posts: 11,653

    Whoo Hoo Pbrain

  • ashla
    ashla Posts: 1,566

    Brilliant good news PBrain! 

    For all you girls in treatment, we have had many , many milestone  moments in this forum.

     Next week is my 6 mo with BS but I already had my 3d mammo & US of the offending boob in April. 

    FYI ... I ... Like so many of us ...have  very dense breasts and I have developed 2 very tiny oily cysts  along the lumpectomy scar line. Apparently very common. I got a birads 3 score on mammo. 

    Will get my 6 mo clinical with the BS and ask him if I need 6 mo follow up forever because of cysts !

    Hang in there  

  • geewhiz
    geewhiz Posts: 671

    Ashla -sorry about the cysts. I got one too, right along the scar line. Both my onc and PS said they could drain it simply. I just havent had it done yet. Its not really a terrible nuisance, so its low on the priority totem pole. 

    On a happy note, all the fatgrafting seems to have paid off a bit. I am quite a few years past it but I really notice feeling across my breasts again. Its nice not to have a complete "dead zone". Maybe it wasnt fatgrafting and nerves just regenerate, but Id like to think all those surgeries weren't for naught.

  • Mommato3
    Mommato3 Posts: 468

    That is great news Pbrain!!  I love coming to this thread because it is so encouraging.  I see so many of you doing well and it makes me think I can get through this too!

  • Great news Pbrain!

  • fluffqueen01
    fluffqueen01 Posts: 1,801

    yahoo pbrain! Great news!

    Ashla, my daughter is in New York, so I am up for a get together anytime. And pbrain likes to travel, so we are good to go!

    Also, you mentioned 6 months check ups forever. I thought if you did lumpectomy, it was an automatic checkup every six months? Didn't think there was an end date.

  • susanhg123
    susanhg123 Posts: 257

    PBrain--yeah squared on the good news. Ashla and GW-hope the cysts are just that. Cysts that will go away.

    Ashla-thank you so much for the writing compliments. I just let go! Have had others tell me I should write about my experience though. And I might. As a nurse-I really think I can add to what is told and what is real.I also want to find all of the little ones I gave adriamycin, cutoxin, vincristin, 5FU to and told them and their parents we could take care of the pain and nausea with medicine. That is what I was taught and that-as all of you know is just top of the line excretement from bulls. 25-30 years ago I gave littles the same drugs I got. I have written before-but just articles in nursing journals and textbooks and edited textbooks. Those writings are so boring I bore myself. This would be fun. 

    Well to add to the  humor of the day. Last summer when I was in a drug induced stupor after my 2nd mastectomy a friend talked me into joining our time.com. Yes, I was bald, just had my 2nd breast cut off, no reconstruction planned as 2nd PS said probably not, and was on drugs. Anyone else see anything wrong with this picture? She-and her clueless husband come up with a profile, upload a couple of pictures--oh yes--pictures---and leave me drugged. After 3 months of being hit up for money, admired as an older woman, and generally felt the entire thing was creepy-I dropped. Still-every few days I get and email with "Oh boy! Here are your top hits of the day!" Very rarely I click on the email and look @ the site. Well-hang on to your big girls---today guess who checked out my profile? You guessed it. #$%^%@# ex-husband from hell. Yep. Gastric bypass, penile implant, supposed to get married, but still will not respond to requests to finalize the property settlement looks like Eben Schrooze. WTF! I feel violated. And. To top it all. And #$#@ won't remember this. He can hardly remember where his nose is. Today is the 2nd anniversary of my signing the new contract to take the new position  @ work-happened @ 1000, having the mammogram @ 1:00-that I was sure was just another pile of dense breast tissue, and @ 6:00 discovered #$$%$^ had a date with a former nursing student--that I helped through her divorce, found a therapist for her cutting daughter, etc. I spent the w/end with friends nursing a very very old bottle of scotch. With that memory of the day-I am off to watch the first episode of True Blood. Yes. I have already established I am shallow. Bill and Eric are fine specimens of vampires. I am old, Not dead. 

    much love

  • fluffqueen01
    fluffqueen01 Posts: 1,801

    Susan....I googled Eben Schrooze and got some foreign language stuff. No pix. Who is that?

    And I still look all the time. Took a pic of a very fine specimen at the gym the other day and texted it to my daughter and sons gf with the tag "eye candy at the gym." My daughter questioned my taste in men and my future DIL was impressed!

  • PatinMN
    PatinMN Posts: 784

    fluff - Ebenezer Scrooge?

  • moonflwr912
    moonflwr912 Posts: 5,945

    susan. Bill and Eric. Yes. Old not dead! Well maybe THEY are.......

  • susanhg123
    susanhg123 Posts: 257

    Ebenezer Scrooge. Yes. Tall, skinny, stooped, not nice. Going from morbidly obese to anorexic. 380 to 195 and 6'6". But-this is all reported. Have not seen him since he walked out day of port placement-July 23, /12. Walked out my backdoor into some poor woman's back door. Bless her heart. Granted-I am way past the day to become a bracelet on some gents arm. Or even the walking cane. But seriously. I am so so grateful THAT bag of cancerous bones is out of my life. Thank god I did not genetically reproduce with him. So I can say we did not "know" each other in the biblical way :)

  • Tomboy
    Tomboy Posts: 2,700

    susan,that penile implant thing alone is killing me! anybody want to read a great book with some seriously terrific writing? lionel shriver, a book called 'so much for that'. it is about the health care system, friends, what a good relationship looks like, oh, and there is a penis in there, too. warning: there is one person with cancer. but this book is so good, i just about promise, you will enjoy it and forget all about your own troubles. lionel is a she, and is one of the most adept writers i have ever had the pleasure to enjoy. watch out for that penis,tho.

  • ang7894
    ang7894 Posts: 427


    Great news Pbrain!!!!

  • moonflwr912
    moonflwr912 Posts: 5,945

    Happy for you pbrain!