TRIPLE POSITIVE GROUP
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Footballnut, don't swim especially in lake or river, as immunosupression means you can pick up a bug. Check with your doctor first. Not a good idea in a pool or hot tub either. Billy Gardell is a riot, a bit off-color, but so am I!!! You will love him! I had abdom pain during chemo, too. Unpredictable, used some lorazepam my MO gave me to quell the crampy stuff and pain pill for comfort when it hit me. Ask for what you need. My DH is in Canada right now fishing! Enjoy your trip.
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On My third surgical biopsy, the surgeon removed the entire tumor with clear, but close margins, and it was staged. At BMX, the report basically said there was nothing there and margins were still clear, so I don't believe I had anything to adjust either.
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Efcjax, my resting heart rate stays between 95-100 for my "bad" week. Others have told me this happens to them too. Illness in general, like a cold or the flu can cause this, so I'm guessing its just the body's reaction to feeling like crap. My MO is not concerned, but made me promise I would take the adivan this round. I don't feel particularly anxious, but he said this may help bring the heart rate down.
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good morning!
Tummy trouble is getting better. This morning I still have some discomfort in my lower back - mostly in the middle. When I lean back I feel like I'm pressing against cardboard. Ugh! I've had all of these sensations before when battling tummy issues. It seems that things tend to hit my stomach even prior to this nonsense
Just dropped hubby off at work. Felt strange to leave the house so early as this was my regular routine
Oh well. I know that regular will return soon enough!
Next year is hubby's 50 th. While it's in January I want to plan something big but once all of my treatment is over. Thinking about a cruise from NYC to Bermuda or a Hawaii cruise in September.
Both offered by Norwegian cruise lines. Anyone ever done either of these?
As far as off color comedy - being it on! Lol
Here's a question for all of you - has anyone smoked weed for chemo SEs? My infusion nurse continues to hint that this will help with any SEs and keep me relaxed. While we have medical marijuana in Ontario it is VERY restricted.
When my hubby had his bout with shingles he was given lyrica for pain which he takes to this day. Despite this his head continues to be on fire and he rubs it everyday. He tried a bit of weed awhile back and you could see the pain disappear. When he was really bad and couldn't open his eye, you could see a transformation and his eye would open completely
So interesting to see - with lyrica he still feels burning everyday!! I hate seeing him suffer and since it's been nearly a year I don't think that it will get any better
But we make a great team and he continues to make me laugh and smile which makes dealing with this a lot easier
Have a great day all!!
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Football if either of you are considering medical marijuana look into an Vaporizer. Not as bad as smoking as far as carsinegens
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Hi everyone, just poppin in.
FBN u could always choose the type u eat, but if u never taken it that way u have to do it differently cuz it doesn't react as quickly so when u eating a piece of something don't keep on eating it thinking it's not working but since it does relax most people I think that's why the pain lessins cuz of relaxation. I know some people freak out so it doesn't work. But u don't sound like u would and since I am the free thinker that I am do whatever u can do feel better.
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I hear u cam. Tx!!
:-)
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Do these night sweats ever go away? I am five weeks out of surgery. I have not had a period since November as I started chemo in December so I am sure it is hormonal. I wake up multi times a night pretty wet with sweat. Just wondering at what point we get some relief or is there any meds they can give us?
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FBN, i ate some brownies for the worst pains. they were wonderful. given to me by a new friend of a friend. thinking about getting a card, for the worst days.
vettegirl, sorry! that sounds horrid! i had menopause -lite, years before dx. i would just keep ice water by bed, and sip, --poof, gone!
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Kathec stay away from chocolate. It's one of the things that can upset my stomach. I won't even eat chocolate now if it's withing hours of going to bed. If I do I know I'll wake up with reflux.
vettegirl my night sweats were worse on chemo. I also notice certain foods will trigger them (spicy-hot). They aren't as bad for me now as they were on chemo but mine were never that bad. Never got drippy wet. Call your onc. They do have stuff. Most recommend Efflexor.
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lago, not particularly interested in choc at all, was just the carrier. more perplexing is how all during chemo, is, every. single. day, ate spicy scratchy doritos. i do have a cast iron stomach, no gerd that i know of.
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Spicy stuff isn't a problem for me either. Just got finished eating a bunch of Kim Chi, had guacamole tacos for lunch and I make mine spicy. But chocolate can be very tricky and if I eat it with raspberries or strawberries I'm in hell.
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sounds awful, lago, im sorry. anyway, i normally never touch the stuff, chocolate or the other. i do seem to be addicted to two things lately, for treats. both from trader joe's. mango passionfruit gummies, and the carrot cake muffins they have there. i try to justify, by saying the muffins have fiber, and the gummies have gelatin, which are building my nails, but i do know i can be in denial, way too easy. i love spicy food,too, mex or indian. this one spicy thing i love now is the Sambal Oelek, a brand of ground fresh chili paste, often found in thai restaurants. so good! kimchi is awesome, too, and i love this other stuff, called chili ime(edited to say lime!) paste, found at the east indiand sweets and spices store, and also other stores sometimes.
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Come to Chicago and we can do Pakistani. It's similar to Indian. Love the Frontier Chicken. But I'll eat just about anything Asian, Thai, Vietnamese, Korean, Japanese, Chinese, Indian, Pakistani and probably all that I haven't tried yet. I like good Mexican too but I really don't find that as spicy as eating something like Chicken Vindaloo! This is why I love living in the city. Pick an ethincity and we probably have it in Chicago.
BTW the Kim Chi at Costco is pretty good. I hate store bought but theirs is good.
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thanks! i havent tried pakistani, yet, and i would love to go to chicago for a trip! if i do, i will for sure let you know!
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You better look me up!
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thanks, that would be great fun!
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footballnut, during my worst time of going through chemo a friend gave me some weed, and boy, did it help. the anti-nausea medications didn't work well for me, mostly they gave me headaches and my stomach just felt like shit. I would puke for 4 or 5 days after a treatment, and couldn't even drink water without puking some of the time. Pot really helped with the nausea. Immediately I would feel better. It helped with appetite and sleep too. I would highly recommend it :-)
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FBN, that's a great picture of you guys, by the way! i don't think i can ever get my man to stand in front of the computer with me, i have tried and tried, and he is pretty good lookin, but real shy of pics!
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FBN, fantastic pic! My hubby runs from the camera.
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I was just diagnosed on Thursday, and I am "triple positive". I am doing research and learning what that means, how it will affect treatment, etc.
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Welcome VioletKali, and i totally love your avatar name! I am glad that you found bco quickly, you will see how good it is to have this to come to. Amazing women and a great way to educate yourself. it is a good thing that you are triple positive, you will see. Get comfy, and read read read! glad/sorry that you are here, tho. when you find topics that you like, add them to your favorite topics, so we can get to know you, and help you, if we can. it took me forever to figure that out, i wasn't the calmest person for sure! I hope i do see your name here and there! welcome welcome welcome! kathe
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Hi Violetkali - welcome to the forum but sorry to had to find it. I was lucky in finding this forum very early on in my diagnosis and read for a long time before I ever posted as I wasn't even sure the questions I had. The triple positive thread is very active and we "newbies" are lucky as we have quite a few women that have been through it all that have stayed around to help. They are all great about answering questions and pointing you in the right direction to find answers elsewhere on the forum. The first and best piece of advice I received when I finally posted was stay off Dr Google. Most of the data that you will find on triple positive is outdated and doesn't reflect the current treatments and will scare you if you don't realize that. The women in this thread are great about bringing in the latest studies and research information.
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Great picture FBN!
Welcome VioletKali, ditto what kathec and linda said!
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Welcome violetkali this is a great thread for info for u and yes do not read Dr. Google for sure, The women here have more knowledge than I've ever seen and will help u thru this whole process. I am sorry u found u'rself here but really u found very caring women and know their stuff (not me) but they all do. So hope to see u often checking in and u will feel better.
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VioletKali welcome to the best thread on this forum
Seriously we are all here to help. Use this site to ask questions and then check with your onc (oncologist). Remember your doctor will give you information based on your specific diagnosis and health issues. We are not all the same. So many things figure into this. Also wanted you do know I'm coming up on 4 years since diagnosis. I still come here to help others. Cancer treatment is a time suck but you will get your life back.
also note on the left, under the navigation bar, below the search window is a button for abbreviations. It's on every page of the forum. You'll find this very helpful.
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a very informative article on peripheral neuropathy.
http://medivizor.com/blog/2014/05/21/cancer-survivor-patient-experience-peripheral-neuropathy/
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welcome VioletKali!
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Ashla, thank you so much for those links, i have bookmarked both of them, read the first one, and saving the second for entertainment later! yes, i do get entertained, in a funny way, by educating myself and reading things like that! Violetkali, i am so glad that Ashla mentioned these things,because if your docs tell you that you must have nodes out, or chemotherapy, it is best to know a little about these things before hand. probably not every woman here develops lymphedema (LE), or chemotherapy induced peripheral neuropathy,(CIPN), but some do, and it is better to ask your doc about how to prevent them if at all possible. but here i am getting a little ahead of myself, none of these treatments may be necessary for you at all, and i am for sure not trying to scare you, just to inform!
Keep your eyes out for camillegal and susanhg123, they are unintentionally hilarious, and count on lago to simply tell the truth. and all the others are pretty good, too.
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Let's get physical : cancer survivorship and physical activity
http://medivizor.com/blog/2014/05/13/physical-activity-and-cancer-survivorship/
Met hours exercise
FYI ... I don't run. Brisk walk . Don't want to risk a fall since I do it outdoors on uneven surfaces
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