INSOMNIACS place to talk in the wee hours
Comments
-
Chevy Good Luck will u be back by Christmas????
4444 That's what I've been saying about implants I honestly thought u get them and that's it. Of course sometimes different things happen but u and I know some of the same people and everyone seems to have a problem with them---I don't understand.
0 -
4sewhat, at the time of my exchange in Dec 2013, I was so happy to finally get implants n get rid of the horrible TE. But as things settle down my results were not great not only the look or feel but the burning and pain I still have due to the pocket work and type of implants my ps used. So once I realized ps used something we had not agreed on I decided to find a new Ps. After waiting months thinking it could just need more time then my right side where I had rad started to change and I know have capsule contraction too. So I ask my onco and she had a look n say," what happen? " there I saw light 💡 cuz it made me feel as if I was not crazy. She then refered me to another Ps n sent an email asking him to help. So there's am in for another exchange . I think that implants are a simple fix the key is been able to be part of the decision .I now think if I ever come cross some extra funds I ll do something to race my voice n make people aware of how we bc survivor have to go through so much in order to meet the right ps.
sorry I am still piss I guess I need to vent a little lol 
The good thing is that due to my experience I was able to fight with my sister s ps and she did get what seams to be the right implants, so far so good for her. We are praying there ll be no need for rad, for her now. Back home there was not access to TE so she has the implants.if she needs rad that could complicate the situation in the sense that she may need to replace them once again in a year. When u get rad, most likely you get capsule contraction 50% chance.
0 -
Chevy, good luck with new Dell. JWoo great video! ♥ to all
0 -
enerva and 4sew, the right side started dropping back in May, and with the weight loss it has made it worse. So probably September they will get fixed. Pocket work and a sling. I'm waiting until I'm back on food and my weight has stabilized. I like my ps very much and he will fix it. He says they aren't dropping but my skin is still stretching. Oh well.
We got more packed up today, but ran out of boxes. A big load will be put in storage tomorrow so we will have room to pack more and finish packing. He had over 5000 DVDs and 3000 CDs. A ton of books. Yikes. We have to have it all done before August 1.
0 -
TBT:
I tried to post this last week but it didn't take. My sister and me, about 1959. I'm the older one.
0 -
Smaarty how cute, u look so tall.
I just woke up hurting so I took some pain meds and hoping to go back to sleep. Oh well it's not like it's the first time. I feel so tired so hopefully I can sleep.
0 -
I hope the pain meds help you sleep Cami.
Just checking in tonight. Feeling tired myself. Had another iron infusion today with labs. Saturated iron came up 5%. Serum iron up 10...but Tibc (total iron bonding capacity) down 80. So this means, I think, my iron storage is coming up. But I lack a protein needed to bind the iron circulating in my body. So hopefully I can get a prescription for that protein that helps bind iron. I see my doctor Tuesday next week
Sleep well everyone. Hugs....
0 -
Pawprint I have to be so tired, body type tired, it doesn't always mean u can sleep tho. O hope they get u going soon.
0 -
Morning gals.... Just trying to go through things I want to save from my old computer, before I set the new one up.
I saved this a few years ago... Did any of you watch the Owls, Molly & McGee in SD Ca? It was a live feed, and the baby owls were raised by those two, so for WEEKS, I watched them grow... Evey day, it was something different!
This is just one of the video's I saved...
0 -
good morning ladies.
Chevy - good luck on your new puter
Cami - I hope you finally got some sleep. I was up hurting all night and seen your post but I couldn't think straight to string a few words together to encourage you. Sorry :-(
Fbb - praying for you and your husband
Paw - hope u get your iron leveled out
Smarty - sorry u got to get the ladies fixed - ugh. Loved your pic. U look very tall.
Hey to all those I missed. Hope everyone has a great day.
I am off to mo visit today. Should be a 3-4 hour visit. Ugh. They are so slow there but I try not to complain. I know when my time with the doc finally comes , he will stay in the room until I have answers to all my questions. Love that mo is so compassionate. Lucky me.
Hootie hoo
0 -
Okay, I couldn't stay away long
FBB-thinking of you and your family today.
Blessings-saw the stuff about your fall ((hugs))
also saw stuff about computers and techy stuff and my brain went to mush!
ziggy is with vinnie...lucky girl!!!
I was really sad on Wedensday, felt like throwing in the towel and today I realize I was being a bit dramatic. I had to see PS to remove stiches and just check on my healing. He said everything looked good. I went on to ask him about possible recon down the road. He initially had said the a flap recon would be my best option. WED he told me that if we did anything I would be a very special case and considered high risk. DIEP he puts me on 8-9 out of 10, and LAT Flap 7-8. He said its complex because of all of my wound healing issues and infections. Then the dreaded mention of my BMI! He said if I lost about 50lbs it could make things easier. He was so sweet and nice about it, but I felt terrible.
When his nurse came in and was wearing a "I love Botox" tee-shirt I wanted to puke. I realize that a plastic surgeon's office is full of people getting cosmetic stuff done, but that hurt me. I'm trying to get some part of me back not just get rid of some pesky wrinkles. It just hit me wrong and I've been eating way to much ever since.
TMI? I have issues....obviously. It sounds sort of petty when I know there are ladies around these boards dealing with much worse. But, I feel so duped by my original PS and I'm angry that I didn't know better.
That is where I'm at. I'm angry!! Angry at BC and all the crap that goes with it.
0 -
Tang, I feel the same somedays when I want to whine and complain, I feel like why should I be complaining when others are dealing with much worse, but I've learned that to each our problems are big and sometimes we just need to get it out!
I'm praying that everyone dealing with troubles and such will have a peaceful, restful weekend!
I made the week without seeing my chiro or massage therapist and it seems that I'm no worse and possibly even a little less sore, so that tells me that maybe I need to space out my visits because maybe the actual sessions were adding soreness, which is expected, but is hard to tell the difference!! I still have one pain in an exact place that has not changed and that is scaring me, but overall, after my week off, I feel better! I will see the chiro on Monday and we will be discussing this one place!!!
I have a very busy weekend, so Monday I will probably show up tired!
Happy Friday!!!!
0 -
Tang, I completely understand your feelings. How inappropriate for a nurse to be wearing "I love botox" t-shirt.
I have completely lost my spark and fight and feel like a worn out dishrag. I'm in a lot of pain and can't take narcotics because they make me sick. I'm just beside myself in misery. Taking ativan and ibuprofen. And once I'm in an emotional state like this, everything makes me fall apart. I was happy this morning when the Cleaning for a Reason cleaners came, but then she just brought me my great grandmother's china teacup that she accidentally broke. I am ready to fall apart once again.
I'm due to start back to work on Monday after I've been off on leave for a year, and starting whole brain radiation next week. I know I'm going to have trouble managing and will probably have to leave work but I'm so worried about benefits. I'm hoping to get through this round of radiation and then chemo and then go out. But hoping God will give the the strength to make it.
Love you ladies all and at times like this, just reading about everyone's day and seeing videos and pictures makes me feel so much better. Loved the throw back picture Smaarty!
0 -
fbb, I am sending you lots of strength, here is a picture of my walk today.
0 -
(((((Tang)))))
(((((FBB)))))
And hugs for everyone else who can use one.
I'm a bit brain dead from waking in the middle of the night to feed bottle baby kittens.
0 -
enerva. - wow beautiful. Where are you again , I forget ?
Wren. / wow how adorable indeed
0 -
I just got back from spending the afternoon with Ms Sas. She is at her sons house in Tampa. Spookie got to meet Auntie Sas too! Sons cat wasn't so sure about this intruder in its house, but it was ok.
She will be back on tonight or tomorrow.
0 -
spookie and SAS. How awesome.
Haven't seen any ladies on here anywhere near my area. So jealous.
0 -
just popping by for a moment.
Happy 7-11 day!
http://corp.7-eleven.com/NewsRoom/2010NewsReleases...
Hoping I get more than a couple minutes soon.... Waving as I run by...
Hugs all around!
0 -
lol Patty, I am in Canada 🍁 , trying to get as much out door walks as possible cuz soon old winter will come back
Spookie and Sas, so nice you got together
0 -
enerva. Oh my. That is absolutely beautiful !!!! So very blue. Thanks for the pic.
0 -
its Lake Ontario
looks good but it's cold lol I went nordic walking had a great walk. 0 -
Good afternoon Ladies---
FBB how are u going to work? Have u spoken the the people that deal with this disability to see how long u can be off or what the state of keeping u'r job--(which I thought u couldn't loose it because of this) but don't go by me, I just think if u need more time off u'r job has the responsibility to give it to u. I'm sure u've checked it out but maybe someone knows more. (((HUGS)))
He no one can throw in the towel, u know how much laundry we'd have and who's going to do it. So hold tight and u'll see u will get thru this, some take longer than others. I think we all had the idea from the celebrities that talked about their cancer, I don't know what treatment they had--but they all made it seem like a walk in the park, so when all this is and still happening apparently celebrities are immune to this part--I don't know, but's it's no walk in the park, it's like walking on those fire rocks but slowly.
0 -
Enerva....can I PLEASE come up thereFBB-don't throw it in, I know we all have to allow ourself our moments of despair....but don't give up. Wish I could hug you...or just sit with you and be quiet. ((hugs))
Cami-you are right, why are the celebs immune to this crap??
0 -
0
-
Spookie - sounds like you and the SasMaster had a good visit. Thanks for letting us know. Did she get the chair back?
Oh Enerva I agree with everyone. That looks like a beautiful place.
FBB - sweet gentle hugs for you. Wish is was there to sit with you and just talk and shoot the breeze.
Today is my DD's birthday. She's 27 today. I find that impossible to believe. I think she's coming out next weekend but not this weekend.
We are getting a summer polar vortex. Highs several days in the low 80s. Unbelievable.
You all remember the real polar vortex?
0 -
HIGHS in the low 80s????????
I'm coming, sounds good to me, better than 90 something and humidity in the sauna range!!!!!
0 -
I know Spookie I won't believe it until it happens. It was only 93 here today. I think they thought it might have been our 1st 100 degree day. Wrong again.
My fig bush/tree is actually looking good. It might attain some size this year but I cannot keep it from dying back to the ground with freezing temps. Hoping for a decent fig crop - at least more than the 4-5 I've harvested in the past. None last year. I did finally water it today. I think I've only done that maybe 2x. We have been lucky so far.
Neighbor hayed his field. We are planning to go Tuesday (high 88 degrees but chance of rain) on DH's day off and buy 20 square bales from another guy we bought from last year. Darn luck I just bought feed store hay then I found the Craigslist ad. That is the limit of what my little Heartland storage shed will hold but I think that will be close to 2 to 2 1/2 months supply.
0 -
Littlegoats, so sorry, I went to Tampa wed to see the thyroid doc. I didn't make a note. Sorry, I was so careless. F/U with him was great!.
Smarrty, foobs falling in the armpits was one of Gods little learning experiences for me. Very uncomfortable and painful. From Feb 2009, UNTIL June of 2013. Cami got me unto exersizing. For me it was swimming. Backstroke because of spinal problems. Not sure how many days I was swimming, and I noticed the girls were sitting in their pockets where they ought to be Perfectly Positioned and Perky. Pain subsided. It was wonderful. DBF noticed too! Then I screwed the back up in August of 13. Then two dog falls (wet tile & hole in yard covered with grass) and screwed up both shoulders. Haven't been able to swim since. The girls started slipping into the armpits again. But didn't have the pain. Why no pain--no clue. Also, noticed when I wear a bra they tend to stay where they are supposed too for some time, not long, but enough to notice. Then they start slipping again. Now they kind of stay put, but prior to the swimming they didn't. ??????? With the backstroke, I figured it was using the pectorals evenly b/c of the windmill like stroke. Is trying this an option? If it is hope you have luck with it. Sure would be nice to avoid sx
Blue, hugs ,Thinking of you
Tang, girl you need an outlet. We're here for you. Don't let it bottle up.
Blessings, hope your feeling better. Was thinking while driving. I don't know if I was clear re: ruling out an acute cause. You just had so many S/S's show up in a short period of time. It was a suggestion to be sure it wasn't something new. I know all the vestibular problems just can do wacko things, then be quiet, then get wacko without any event. I have BPPV too. Original event was wacking heads in the middle of the night. Then slowly resolved over months, But I did have an MRI within 24 hours b/c it was a new occurrence. The nystagmus was wild when PCP checked eye movement. Then maybe a month ago all I did was stand up and it was back with a vengance, resolving again.Hope you are feeling better after the fall. The coccyx/tailbone just doesn't allow you to get comfortable in any position. It's always something.
Had a great visit with Spookie'sMom and Spookie today. She came to DS house. A pecarious moment when I leaned on the glass top table and it tipped. Big crash was averted. But it shook us up.
$$$444$$$$$, Enerva, Cami, Teka, Badger, Nettie, Jwoo funny cat
& Chevy the balls story was a side splitter---please C&P to W& F's page. Waving ( (((////))))))).I 've been worried about Ziggy too. Her last login she didn't post. I don't have her phone wish I did. I know the town she lives in b/c it's near where I used to live, but that's it.
0 -
Tang yes, know when I go for my walks I do think of all of you soon a way you are here too.
I wish you could come and take a walk by the lake it has helped me a lot, very peaceful and relaxing. I am surprised how much it actually helps me to go for those walks. 0
