INSOMNIACS place to talk in the wee hours
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thx 2ndtimearound..
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mamaray and stix welcome, wish you can keep up with this ladies better than me lol
2nd time, I just want to say thank you for been there for your parents. I hope the universe give you and your dad patience and strength to your mom, I always wondered why mom was losing her short memory and I did everything to help her my place was full of notes every where lol I was so greatful it was only her short memory cuz i could not imagine no been recognized by her
my heart goes out to you and your parents. Woo you are right where all the money goes? I still don't know how the info tread works but i am in.
PAWPRINT I had a friend that went through the iron thing and it is terrible sending you hugs are you eating lots of iron rich food? I remember her eating lots of different grains. Hope it start to stay in your system.
Also pls take pictures of your pups soon
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2nd - I use 2nd instead of my usual 2TA since we have new gals joining us. So your Dad is prepared if she doesn't recognize him. Maybe start a whole nother relationship with her. Is this the 1st time you will have seen her since you placed her there? I mean the 2 weeks is up. 61 years wow. Can we bottle what they have?
Welcome MammaRay and Stix. Be forewarned your name might be forever garbled on here. Someone will make up a nickname or shorten one. I myself am variously LittleGoats or LMG but I answer to anything. Edited to add of just Luv.
OK give Susan. You and MammaRay know each other really? MammaRay sorry about the 2nd Dx. What are the plans?
Aw Pawprint what we gonna do with you? Has the SassMaster taken on your case? Lacking an enzyme in the liver? I'm just thinking out loud. Remind me what specialists you've gone to. Doggie hugs to Snuggs and Annie Mae.
Patty - well just YEAH to a successful rfa and NO pain. You go girl but mind the heat. Actually cancelled our heat advirsory - that nasty humidity went down. I don't think my birds have even found the feeder yet. But instead they are munching those ever reproducing grasshoppers.
I read that staying off electronic equip. at bedtime helps. Something about the light source they emit. Same with TV. I'm bad, never read the Sas's suggestions up top. I'm the hit the pillow I'm out kind but wake up around 2-3 am awake for an hour or 2, not wide awake but then not really asleep either. Then when the traffic outside bedroom really gets started I fall fast asleep. I have threatened to buy a white noise machine but too cheap to do it right now.
Anyone have grandkids that use a white noise producer (only because I think the kids ones are cheaper)?
Yes Stix anesthesia and antibiotics and stress all mess with sleep. Not to mention pain, new routines, new appts, did I mention stress. Do what you can do about sleep. Nap right now.
Men's brains are wired differently. I also think they don't take on the weight of the world like we women do. I don't think my DH has ever mentioned not sleeping to me. Again we sleep in diff. beds d/t my/his snoring. Have for years.
Well, I'm sitting at home waiting for the UPS man. Did not get to go with DH to his appt and get my tetanus shot. He ordered one of those DR trimmers and darn it it's being del. today instead of Monday. We had one but it finally broke. We need to get after some of the brush. My low hanging front elm has taken over half the yard and goodness knows what critters are living under there (hope only toads and grasshoppers). DH likes it to hang low for privacy (we are on the corner) but ragweed, johnson grass, etc under there has got to decrease.
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Morning Owlies, Been a tough couple of days Hugs and Prayers. Be easy on yourselves.
Welcome Stixs and Mamaray
Chevy you always pull us together in the morning just right.
Patty, remember the post where I explained about RFA. That you would know fairly quick. Nice eh! The RFA burns the nerve ending. The initial pain post RFA is the nerve not being happy with the b u r n i n g. But the nerve is now dead. Particular to the use for nerve pain, is that the nerve was in a hyperexcitable state(Gate Theory). So, it was really unhappy, that's why the crescendo in pain post RFA. Conversely, it may not happen entirely this way. Just as each of our experiences with breast reconstruction is different, same with RFA.
RFA and Cyrotherapy(freezing which has the same outcome--burning) are being experimented with in use during breast surgery with the idea of killing any little cells that might be missed. RFA was developed in the early 90's in Sweden at the Karolinski Institute for use with tumors. It's use for nerve ablation came later. One of it's first uses outside of the original research was for the heart. Particularly, Wolfe-Parkinson White syndrome(WPW). Then was extended to other irritable spots it the heart for Atrial and Ventricular problems. A common study now for heart rhythm problems is cardiac mapping i.e locating the exact spot that is causing the rhythm abnormality. Then ablating them. Ablation is, also, being used to burn blood vessel supply to tumors.
The point is RFA is only 20 years old and has branched out for use in many other areas of use. Cryoablation started in the 70's and was used for use on the cervix. It didn't branch out into other areas of use for another decade plus. Only in this last decade is more research being done to evaluate it's use. This research is being done because of the wide ranging use of RFA now. One application is driving the other application. For those that chose to read the above, knowing the wider use of both therapies is a benefit.
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Lil goats
Re white noise. I keep a small LOUD fan by my head in bed. Serves 2 purpose, white noise, relief from hot flashes.
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Thanks Sass I want to read more about it
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Jwoo and all regarding list contact. The Mods started a thread that people can post there info if they choose. That's one avenue. The list that I did on STFU was for that particular thread. I will attempt to bring that list forward and you can see how it was managed. It was doable. Jwoo trust me, please, taking on the responsibility for all of BCO is too much.
I wanted to let my thoughts g(j)ell overnight. I would suggest all review what the MODS have done. I don't have the link. 2TA does I believe. Our pain over BlueBird's loss causes us to fear loss of each other. Smarrty referred to when I was "gone". That was unique because it was a banning. I couldn't notify you because the outcome could have been a permanent ban for myself, and/or a potential ban for someone that may have posted that they had contact with me. That was a painful experience for us all. I hope the Mods learned how injurious to all that was. But there learning is separate from what our immediate concern is, which is not to lose somebody without a way to contact them.
Keep in mind there are members that absolutely want there information kept only to themselves. It has happened that they are simply not able to be contacted if they choose not to be. It's a hard thing to accept, but it is true. I corresponded by PM with a gal for months who never shared her real name and we never talked on the phone. My last contact with her was a wonderfully happy PM about her leaving for a family safari in Africa. That was our last contact. She never returned to BCO. No way to trace her. She did not leave any contact info in her registration data. It was the way she wanted it.
A side affect of the STFU list is that I do have allot of phone numbers because I offered to be a contact. Plus, with those that I have talked with b/c of nursing/medical issues, I have more numbers than just the STFU list. One of the things I asked for on the STFU list was that each have two contacts which allowed for better connection in the event of one contact interruption.
Let me locate the list and C&P it here for you to review. I suggest our own list and the use of the Mods list is a best approach.
Jwoo the reason for this is- if our path is to wellness or death, what each of us has to do is grab hold of each life moment we can.
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Good Morning all--I know I'm late, or maybe I was already here, I never remember.
Welcome Mammaray and Styx, this is a wonderful place to lay it all out whenever u feel like it--we're here. And it has turned into a 24/7 thread so anytime is a good time. And mamma u also have another cancer--I'm so sorry.
Patty u feel good today Whoot Whoot--keep it up.
2nd U'r poor Dad, but bless their 61 years. I never lasted more than 6 yrs. was my limit with husbands.
Pawprint that odor reeks, I know it's like garlic from the pores only worse00I told my Dr.. I swear a family of skunk got mad at me all one time. That's when I really started slathering lotions on me, if coarse I've kept it up just not so extreme. Well sometimes, cuz one of my meds does awul things to my pores.--plus my garlic too. And yes pics paw--not of u'r pores but u'r furbabies
I know we all still have sad hearts,
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Sassy, do you mean "Our Central Address Book?" It is run very similarly as the Pic Forum -- you need special access to it. Easy to get but not available to everyone on BCO. The link to that is:
https://community.breastcancer.org/forum/7/topic/7...
Follow the directions......
As many of you know, I am in contact with others here on IT (and elsewhere on BCO) thru email, text, FB and of course, PM. Even so, if something happens to me, there's no way anyone else would know as my family has no clue about my BCO family. Maybe this is true for others, too? I know I've tried to track down NickyJ (for those of you who remember her, she's the member in France), she just stopped posting (and I have feared the worse) and I have run into enough brick walls trying to find contact. Lesson learned: there has to be a better way to keep in contact with everyone if they fall off the BCO grid. Willing to help Jwoo (or anyone else) towards this end. The passing of FBB has left me sad and empty (as many of you can relate).
For those who have commented about my parents: yes, they did have a very special relationship. All the time growing up, they NEVER had an unkind word or raised their voices towards each other, never argued (so no wonder I can't handle conflict of any kind). That is, until Alz reared its ugly head and Mom became cray-cray. In many respects, similar to The Notebook, except only good times (in The Notebook, they seemed to thrive on disagreements). So, the past year or so has been very difficult on them, and me too. My brothers have offered assistance remotely (their wives don't even acknowledge my parents or me) so in many ways, feel blessed with the timing of my BC to be able to care for them. One year ago today (and only 3 weeks post-revision-sx) the movers were packing up their house. So much in one year............... And I can't tell you how much I appreciate all of your support listening to my venting and whining when I had no where else to turn.......
Gotta run, several hours behind where I need to be, just wanted a quick check-in.
Love and gentle hugs to all the Owlettes out there, happy a wonderful Friday!
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Sassy, I know some threads do a roll call, is that what you're talking about? I started something like that, if that's what you have. Contact me later (better yet, let me contact on my way, we can have another one of those wonderful commuter chats). I'll C&P what I have to myself so I can have later today.
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Here's the list from STFU as an example. Where it's not complete info wasn't sent to me i.e treatment was in people's bio. The treatment section in the list _intent was to keep track of things when people were in active treatment. PG 175 of STFU
May 17, 2013 07:53 AM, edited 6 hours ago by sas-schatzi
May 10, 2013 11:44 AM, edited 22 hours ago by sas-schatzi
May 6, 2013 10:29 AM, edited a few seconds ago by sas-schatzi
By next week we're going to have to do a roll call to see who's who and who've each has decided to be. I'll start off then as people add the old ,the, new, and the wanna be, I'll keep adding names to this list as I see them, except leaving off "B"'s.
"A child of many names is much loved"
*Camilegal, Cami, Spunky, Spunkie, ILLINOIS, Treatment:done,Furball:Kati-Kat, Contact:sassy
*Chevyboy, Chevy, Olds, SweetPea, Chevette,Chevylicious,Chevorlette, GM Chevy, COLORADO, Treatment:done? furbal:?, Contact:
*Pdgraham, Phyll, Phyllis, Phyllopian(phoenetically that's fa'-lop-pian, Chevy did you really mean to call her a tube attached to the uterus?), Phillissians(now Chevy's got you in the bible), Ph/pH now your a measurement symbol for acid/base balance. Choro-phyll ah environmentally correct producing___? Is it oxygen or sugar? Phyllo Dough. Phyllopteryx (the weedy seadragon) now she's a dinosaur er weed?. PhollicleDamage speaks for itself. Phyllandita, is this a drink or a plant species, PK,Phillidromia=plant?, Phyllipinat, Miss Pie Dough, Phylissnavidad, Phyllylopsided NE, Treatment:chemo, Furball:none, Contact:sassy
*SasSchatzi,Sas,sassy,cassyorlina,sassafrass, FL., Treatment: BMX, recon, chemo, brainsx, done, Furballs:dini-lab, schatzi-germanwired haired pointer(GWP), Contact:CkickaD,PPK,GMA,Lindan3,Fuzzy,Julianna,Stacey,Marywh,PdGraham,Wren44,blondie:
*Shellshine, Shell, Shells, Shinyshells, HA. Treatment:TE to foobs May2013, Furball:, Contact:sassy
*Blondiex46, Blondie, Sandy, Miss Purple, Blondiepurpledarling, akaBPD, PA., Treatment:rads, Furball:, Contact: sassy
*Wren44, WA., Treatment:LX, re-excision, MX 2012. 1year anastrasole done/4 to go. Furball:none, Contact:sassy
EDIT 7/26/2014 per request, I removed everyone from the list that's not on this thread. But it is still useful as an example of how a list can be done.
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Yes I keep the ceiling fan on medium always even during the winter. Sometimes on high. (Why do they even have a low speed?) Also have a box fan for extreme times. Neighbor has a pack of dogs kenneled just across the creek. They have not been bothering me lately but some nights they have been terrible. Traffic does not bother me at all. We used to live in Ft. Worth on the Loop around the city - 2nd house from the access road. Helicopters/police you name in all night long.
And yet weirdly I do no like air blowing on me. PTL hot flashes - except one in the morning just after I awaken that I think is more related to circadian rhythm thing - have never been a problem. Went thru natural meno. with nary a one.
Sassy - there is a way to leave contact info in registration data? Don't remember that but I prob. would not have done it then but would certainly update it now if possible. Do you know? I know someone else banned a good while ago prob. nearly 2 years ago and it was common knowledge at the time that she was banned. I know who but don't remember what thread. Didn't know that there was potential ban for contact with "banee".
Missing Nicky even though had only brief relationship with her. She's another missing. Also Chabba.
2TA - doing hospice I would hop in the car and hop on the phone. It was routine. DH knows about BCO family but no clue how to get on. Never been on a thread that does a rollcall. We had Mother's day check-in on my "yearly" thread.
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Maddy would love a chat. Thanks for the link to the Mods thread. It will help everyone decide whats best for us all. Personally, I chose the route for info to people here. DS Has my info here and a logon for himself as a family member of a member. He checks up on me every once and awhile to see how I'm doing. It was a hoot when he was in the middle of closing on the house. there was a bank SNAFU. I'd taken a bed day. Phones off. He came here looking for me cuz he needed me right now. HMMM
Jwoo looking at the STFU list lots of info incomplete, but was updated routinely. Just this list even with all the absent info was allot of work. I C&P'd every 20 days or so. i started the list after RED went MIA and no one had any info for her. Then she was tracked done. She had passed. It was very distressing.
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My gosh - lots of people on there. Many just not on this list. Some not around at all - CMBernardi (Flowers) for one. Some I don't recognize and I lurk on lots of lists.
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ok so I am lost again lol recalls?
2nd time I miss Nicky too
Also another girl Tessa, but I have Tessa # and I know she is ok
Humm my sisters know about this site but never been on it. I will ask one of them to keep my info to come here and tell u if anything goes wrong. I
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sas...wow, I am so confused..easy to do..lol I pm'd jwoo all,my info. I will send to you to...that's the only thing I understand right now..ha ha
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Littlegoats-Flowers relocated to texas, got a new job, and moved on. BUT I have her phone number. Looking for it now I'll call her if you like and see if it's okay to give it to you?
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goate
I have a ceiling fan going full blast too. This small fan , about 12" square goes year round primarily for white noise. In winter it's not blowing on me, but I hear it. Out like a light.
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Susan I am with you lol I will do the same
since I have no family in this country lol0 -
LMG that was a problem with the list. As I said earlier some people choose not to give information. Each time I updated it and moved it forward, I would announce that I was updating and if info needed added please Pm me. What was great about the list was to be able to recognize who was who. Great for newbies to the thread. In looking at the list, not sure why I didn't have some names as me as their contact. Like flowers?
I already left a message on her recorder
Enerva ROLL CALL-------Lol. I think it's originally a military term. Used to take attendance or establish presence.
Susan would love to have your info, but with my PM'ing limitations I think Jwoo will have to be central to organizing it. There is allot of PM work with doing the list. But she has an example of how it can be done. Only contact is kept public. The list keeper---has all the info at their home. I had only members phone numbers, didn't have emergency contact. Jwoo's thread is a good guide as to what info is needed.
Jwoo what do you think. I looked at the Central Address Book thread that Nowheregirl is keeping. I would also suggest that two people be keepers of the list info, in case one goes MIA. i.e like my banning.
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oh SAS you were do right about the rfa. Blown away by your knowledge. Thanks.
I am kinda lost about the contact info but ism sure you guys will figure it out. I def want to give my info. Dh probsbly wouldn't mind posting a message here but this is where I let my private feelings out. Not sure I want him or anyone else in my family reading all my posts.
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oh lol ok
I am back at the lake again recharging my batteries lol
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enerva. Always love your pics. I could set and look thru the rocks for hours I bet. Wonderful.
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Patty, thanks re Rfa and knowledge stuff LOL I've in recent years described I had the longest Internship/ Residency ever.
Started as a nursing assistant at 18. Then nursing school from 21-24. After graduation until relieved because of brain tumor I've worked about everything except neonatal and peds. Love learning and research. Just with researching stuff for Nettie I learned a bunch more stuff that I didn't know. For example. Scoliosis--I knew stuff, but to verify what I knew and to see what was new, I ended up learning lots. Not just applicable to Nettie , but for myself too. Now "banked" for future questions.Patty, there's away to keep it private from friends and family. You keep the info in a sealed envelope that you have directions on how to use.
I had my son register, but that was my choice. It's also, DS's choice if he wants to check and see how I'm doing. LOL he'll have to put up with info about DBF.
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Susan I tried something I haven't done before. I printed off your info. If I were the list keeper I'd do a ring binder with 3 hole punch.
Jwoo, BTW that first person that responded to your thread, wasn't very nice.
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Howdie gals! Okay, the list thing.... I know a lot of the gals have left, for one reason or another, and maybe they just quit posting? Or move on to other threads... I think we pretty much know who we all are.... And can get ahold of someone if we need to, like when I was in the Hospital Sass, and I had my DD get onto my email account, and give me the phone numbers, so I could call you and Cammi, and I had Jackie's number too...
Oh damn, my hearing aid battery just went out! It's been "beeping" for 2 days, TELLing me it is getting low, so it just gave up!
I just want all you guys to stay HERE and never leave! I get to "know" you , and it's so good that you can talk to us here, even when you can't blab about it all to your family.
SOMEtimes that's good...... oh wait....... I'm trying to think of a time when I could tell my DH the things I tell YOU guys....... and I can't think of any....
Cammi, and I are usually busy talking about nothing.... or she is making fun of me falling off that pole when I was dancing.... and that's how I broke my hip. It's true....
So now I have to take it easy..... Ha, ha! THAT is such a funny idea! And I sometimes watch the neighbor's chickens..... ! That's a whold 'nother story! They all make fun of THAT job too! Cammi says I steal the hen's babies.... no..... I eat them!
So we just have fun....
I've been painting, but came in because it is so damn hot out there!!!! I mean I could FRY one of those eggs on the flag-stone!
Sassy, that's all a good idea, but I'm the oldest one HERE..... or probably ANYwhere, and if I gave my DH a list of my contacts, he would think I was nuts! Besides he knows about as much about a computer as he does milking a cow.... He can overhaul an engine, but not work the micro-wave! OR the automatic washer..... not to mention the Dryer..... But it's almost 57 years for us.... so what he can't or don't do, I just do it myself. He does the same for me.... like brings me a little bowl of ice-cream when we are watching TV.
I don't know why I got started on this..... shut up Cammi.... xoxoxoxoxo
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chevy I was waiting for you to make me smile today ha ha ha soo good you came inside to post. I can imagine how hot it must be where u are. I envy you. Here is nice today so I went for a battery recharge under the sun as usual lol
Love how your Dh brings you ice cream lol
😁
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Chevy ROTFLOL --------give it to your DD
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Thinking of FBB and her family this morning...
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2TA - Love the story of your parents' marriage and anniversary... I hope Dad gets to at least go see his bride and give her the flowers. My MIL passed in January.... in June, she and FIL would have celebrated their 72nd anniversary. I told Dad that Mom would be celebrating right along with him, but just in another room (Heaven). We made sure to send a special card to him and spend some time with him that day. You are such a thoughtful, sensitive daughter... you will never, EVER, regret the time you have spent making your parents' last years as good as they could be, given the circumstances.
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JWoo - that's a wonderful idea you have, and I would have loved to have been your helper. I've done a lot of that kind of record-keeping. But it seems this head injury has taken a bigger toll than I imagined. All my "attention to detail" and "multi-tasking" ability is gone.
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Oh mY Gosh! I am back on page 509!! Just wanted to pop in and say hello! HELLO!! Been kinda busy and spending some time in the rabbit hole too so I have been AWOL for a while. You all talk to much to keep up thru email updates. My phone would never stop dinging!! So I haven't a clue what is going on with anyone! Sorry bout that....................
Hope you all are doing well. School starts a week from Monday and then maybe I can ketchup!!
Hugs and prayers are always out there for you girls though, even when I am MIA!!
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