INSOMNIACS place to talk in the wee hours
Comments
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Oh Cami, I forgot what it feels like to be cool. I agree, weather this summer everywhere is whacky. But I sure wish I had some of your rain.
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yes, once my niece gets it she will send me a picture and I will share with you all
Good night I ll take a pill tonight, I hardly slept last night
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Blueberry – these days, you don’t know what lightning and
thunder will bring. Sheesh! This weather!Cami – what you say is so true – especially if the drugs
have side effects, and make the person think that they are well enough that
they don’t need the drugs any more… it’s a challenge for sure. I am officially
stealing your description of your mind today: FLOOPY!!!! It fits me perfectly.Sassypants -
Pawprint – thank goodness we don’t get the "muggy part" of the
heat up here. That’s really miserable!Enerva – I had to look again to see where you are. Those
walking path pics are amazing. SOOO peaceful and calming! And those crocheted
tops you made? At a craft fair in Laguna Beach, I saw some knitted and
crocheted, oh, kind of “collars” you can put on a sweater, and she wanted $75
to $95 for one! And they took much less yarn than your cute tops! Hope you
sleep well tonight!0 -
Ay, Caramba! I keep getting stuff mixed up. But things eventually come back to me, so I guess that's improvement, eh?
Like when I'm talking... I know the word I want to say, only I can't remember it. Then it's kind of like I see a slot machine in my brain.... different words keep appearing in the window, then the right one appears..... Ding! Ding! Ding!
I'm driving a little, just to test my skills, but only short distances on semi-deserted roads.... it's exhausting because I am paying so much attention to EVERYTHING.... never realized how much I took for granted just getting in a car and zooming off.
Got a pedicure today and drove myself. I HAVE to get pedis.... can't bend over that far!
DH now officially has his own APAP machine! (That's an "adjustable" CPAP machine.) After trying a gazillion different masks, he finally found the one he likes, and other than a few times during the night when the seal breaks and extra air flows into the tube, he really likes it. He says he wakes up refreshed, and never feels like he has to take a nap during the day.
I WANT THAT!!!
But my Obstructive Sleep Apnea test won't be until September, after the three month waiting period for this Post Concussion Syndrome to be over. Or maybe I'll just stay FLOOPY!!!Hey - is anyone going out to watch the Perseid Meteor Shower tonight? I would, but the best viewing time is 2 a.m. and I have an appt to get my teeth cleaned tomorrow a.m. If I could sleep in, I'd get up and watch. It really is awesome - especially if you are away from city lights.
Nighty-night, Owlettes!
xoxo
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1:36 am
Lol
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sorry you're still up. How about a puppy for tonight?
This is Lemon, she's the newest baby in the family. She belongs to the newlyweds. About 7 weeks old, she was original all white.
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Blessings, not sure I can stay awake that long. I'm exhausted.glad you're bad to driving, even just a little bit, feels good to have your independence.
Smaarty, what a cute puppy! How did she get her name?
Enerva, you are so very talented! I hope the recipients appreciate your efforts! So wish I could wear one of those beautiful tops!
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Blessings u r doing a bit better, but I hope this hurries up more so u get unflooped, it's an odd feeling. I haven't driven in so long, I'm always nervous about my reflexes more than anything, for some reason what I lack in my brain now has moved to other parts of my body and they have a brain of their own without telling me about it.
Enerva did u take those pics.? Wow I haven't even heard an owl since I was a kid.
Smaarty that puppy is adorable and looks so content, like we should.
2nd I hope u'r doing all right.
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Smaarty, Lemon the puppy is so cute. I love the markings. Since I'm awake reading, I decided to look outside to see that meteor shower that Blessings mentioned. All i saw was a dark sky full of stars. I must have missed it since I looked at 3 am and Blessings said 2am would have been best viewing time. I'm going to try and sleep a few hours before my alarm wakes me up.
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Morning gals! It's just so nice getting up and reading what you gals have to say......
And I love the pictures!
I'm going to meet my older friends..... YES Cammi, that IS possible! Ruthie is 90, and still driving, which the thought just amazes me... And old Ray is in his 80's... The other two are my age and a little older, but we talk as if we were in our 40's!
We meet at this little Diner, that we have been going to for maybe 15 years.... Connie always waits on us, and we meet at 8:30, every month... So we will all meet, and laugh and have fun. I used to work with them! Different departments, but somehow, we all became friends, and after we retired, we kept meeting ..... just like we did when we were working... We've lost a few, but we keep on meeting....
Then going back home to pick-up DH and go up to the Casino to mess around.... I take a book, so when I spend what I can afford to lose, I start reading and just taking it easy...
Smarty! I LOVE 'Lemon"....! He reminds me of Spud.... that dog ..... oh was he in Little Rascals? Anyway he's cute....
Cammi, that was funny.... you have brains in your other parts! Makes sense though.... Because our heart has a mind of it's own, and so do our emotions...and even though our brain is trying to make sense of what we are feeling, those parts don't listen! And we just go on our way, not taking orders from No-one!
See guys, Cammi will know what I am talking about......
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here's my new do's
Morning all
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Susan,love your new do! Great pic of you. Good luck with the SEs this week, hope it's not as bad as last time. Does it get easier or stays the same each time?
Don't know for sure why they named her Lemon but part of it was when they call her in a dog park, she'll be the only one to answer.
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I here it gets harder ...but always up,for the challenge. Ran 2 miles today to show that chemo...ha
I actually ran with no hat so people would understand why I was breathing so hard and running
So slow...lol. Should be able to run tomorrow morning, then not for 10 days.
Did you ever get all,your clothes shopping done ?
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OH Susan you look soooooo beautiful. 2 miles? Okay I'll get off here and go swimming. Shessh what a nag.............................
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sas..you go girl...go do your laps..feel so good afterwards
. Bag balm...smells...eweeeeeee0 -
Okay Susan, LOL I did my laps and I doooo feel better. I have minimal sense of smell. LOL. I don't even notice it. DBF the same way. You could use vicks, That way it takes care of the itch AND opens your sinuses ROTFLOL.
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Beautiful, Susan!
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Susan you look beautiful, I am impressed you are able to run wile during treatment. I lost the feeling in my feet and I could not even walk fast cuz i would trip over. I am happy for you, hope you are able to continue running
Sent the parcel to my niece this morning I am sure she will love it
she is the one that sent me the little owl ) she is a sweet girl0 -
Susan, wow, I'm impressed. Never could do running. I am enjoying my swim aerobic classes, go twice a week. I'm almost done shopping 5 new jeans, 4 new tops and my friend gave me 4 others. 1 Capri, waiting for 2 more in the mail, and just got 3 bathing suits, only 1 will stay. Going to have to buy new underwear soon. I got rid of a bunch that were always at the top of the stack, the ones at the bottom were pretty new and not stretched out, but they're starting to bag now. 6bras but 2 I'm not going to wear, they hurt my armpits, good thing they were cheap. Weigh in tonight, hopefully still losing, I want at least 5 more, haven't hit the 160s yet. We go to 3 meals a day starting tomorrow and add in dairy products. I'll have to see if milk is going to be an issue.
Here's my poor lonely closet
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A THRIFT DAY
Handled Cake Plate in the Waterford-Clear pattern by Anchor Hocking-Crystprevious unknown what ipaid , but just a few bucks...........R.Com 6.00$
Small Fruit/dessert Bowl in the Waterford-Clear pattern by Anchor Hocking-Cryst4.00$
6-Part Relish Dish in the Waterford-Clear pattern by Anchor Hocking-Cryst1.00$ R.com 13.00$
Cupped-Edge Torte Plate in the Wexford pattern by Anchor Hocking-Cryst1.00 R.com 45.99$
LOL almost all will be gifted.
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Owls from my back yard! I mean from Holland! Just had to post it for you gals.
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http://www.wimp.com/moneyexpected/
This is so cool!
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Ok, so I'm way behind but I just have to get this off my chest and had no where else to turn!!
Had my 6 month checkup today, one year from end of chemo but 6 months from last appt! Anyway, why did I come away feeling more confused??? I hate that I am NOT a very good advocate of my own health!! I try, but I never get in all my questions and leave confused and worried!!
My DH says that I'm overreacting but he is not the one with cancer!! So this is the story.......
Only lab done was liver panel, all was good!!
During physical exam, DR mentions, or should I say ask, why is your left arm bigger than your right, well, hell, I don't know!! The left is NOT the cancer side!! So we just pass over that, it is not mentioned again!! He then notices that I have patches of "breakouts" and asks about that, well, hell, I'm not sure what causes that either except for the fact that I've had allergies all my life but haven't had a breakout like this since I was a teen!! So again, we pass over this, then he listens to my lungs and asks me if I'm having trouble breathing, WTH!!!! No, I haven't, is what I say, so again it is passed over!! He then asks about the aromasin, which I have stopped since March, told him why, he says, OK, we will switch to femara!! UGH!! And I will see you back in 3 months!! WTH!!! I then ask about the back pain, it is basically pushed aside, but he did say that if I still complain in Nov, he will talk about a scan!!
So now, I'm still concerned about the back, but now I'm scared to death as to why he asked about trouble breathing!! I mean, geez, did he hear something?? And if so, what and why didn't he address it further?? I know, I was trying to keep up with Questioning, but didn't do a good job!!
I HATE this crap!! It is controlling my thoughts and I don't like it!!
Oh and he said I need to exercise and lose weight!! REALLY??? Like I didn't know that!!
Anyway- blah blah blah!!!!!!!! When will it ever end?? Oh wait, I know - never!!
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Nettie sending you hugs, I totally get what you are saying.
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Nettie, if you are not satisfied with these answers, get another appointment. Go in armed with a list of questions, so you won't get nervous and forget something. He is working for you, not the other way around, why stress over all of this until your next appointment. We must be good advocates for ourselves and any good doctor will respect this. My docs were poo pooing the lump I found in April, saying you had a mastectomy it only scar tissue, I pushed for an MRI and here I am, always trust your own instincts, it's your body.. I am finishing up with Rads next Thurs. and am supposed to start Aromasin then, I am not scheduled for another MO appointment until Dec. but I have so many questions about side effects etc. so I made another appointment for after my last treatment. Good luck
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Nettie,
My doc asks questions about body systems like, are you having trouble breathing?! to just pull things out in his exam. No worries.
Anita
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Oh Nettie I feel so bad for u, but 3rd is right call again and tell them how u feel and u need to have a conversation with the Dr. BTW whenever any Dr. listens to my heart or lungs that question is always asked and when I talked about my back I got some kind of scan--so u have to make sure u really stress this--and try u'r hardest not to be afraid, I know it's difficult but meditate also everyday for relaxation.And if u want ask for meds to help u.
Yes Chevy I would have totally believed that was u'r back yard.
Susan honestly u look great, u are so pretty. And running like that is an accomplishment.
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Nettie----you just walked into a cow cake. If you don't know what that is --it's cow manure. Commonly known as SHIT
I took your complaints(medical usage) about you pain. Organized it. Gave a completely logical reason, that you had a 100% reason to either ask for MRI from MO or a referral to an orthopedist to evaluate the spine. Posted the whole thing on page 523.
After many posts, you asked how to get to 523. What that told me is, you read nothing of what I put together.
Your post now after a visit with MO, identifies many complaints(medical usage) that did not get a response.
All the docs have limited time to deal with a patient. You need to go in prepared with a list. If in the time your are with them, they haven't answered your question, you need to say "This is NOT been answered.". You need to stick on that until they respond.
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Just a question re: your last post re: getting the very expensive brace and that you knew everything about Scoliosis --when was that recommendation made and by whom based on what diagnostic evaluation. Based on the info you gave me you have never had a diagnostic MRI.
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You have new onset problems that--------YES ------he blew by-------read the above bolded statement. . The complaint re: arm swelling needs to be addressed. The skin issues need to be addressed. The lung issues need to be addressed. MY recommendation-- reschedule an appointment with him/her for the near future-----not 3months. The Standard of Care--1. Is identify a problem 2.Determine a cause 3. What referrals or diagnostic tests will accomplish an identification and resolution of the complaints(medical usage). Tell him he did none of this during the last visit--------Not acceptable.
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Nice finds Sas!
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Nittie I am so sorry you have that kind of doctor. I now go in there I let then talk then I pull out my notes and say ok thanks here I need to address a few things. I also say I want to get a bone scan. Or I want to get an MRI etc I stop asking " do you think I need a bone scan? Or do you think I need an MRI? " in my case when ever I ask a doctor do you think? They always say that is not necessary. So I now say I would like to have..... Or I want to have...... Done for my peace of mind. If the doctor refuses I go back to my FD and demand a referral to another. It's terrible that we have to push and push but that's just the way it is. I am waiting to have my revision surgery and after that I will demand all kind of answer about pain I am dealing with.
specially my sternum it is worrying me cuz when I had my first bone scan my sternum did had a small light on it and the onco asked me if I had any kind of injury which I didn't then she said she will consult with other doctors then they said it was nothing to be worry about but now when I sneez it hurts lol so I will ask as soon as I get my surgery out of the way. 0
