INSOMNIACS place to talk in the wee hours

15185195215235241462

Comments

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Spookie--if I move the tree, where do I put the tree. Too much effort to take down LOL. It's soooooooooooo convenient to just turn the lights on Thanksgiving day. Or like when you any Phyliss were here it was fun to pretend. Even more special when little ones come to visit. I put presents under the tree for them. BTW what are you using your glass jar for? I'm still collecting that pattern for a friend of DS's. I was seeing a fair amount of it, now it's slowing down.

    On the fibro thing, I wasn't implying that thyroid was the only source. Many things can start the cycle. I was just pissed that there is a connection historically to thyroid management. You know I love science, but sometimes it pisses me off. Too many docs have lost the ability to listen and physically evaluate patients b/c they concentrate so much on diagnostic tests. It's as if the patient becomes superfulous to the situation.

    My PCP and I were talking last visit. American Heart Association has just revised---Normal ranges for BP. Roughly that's about the 6th time that I can remember changes occurring, since I got into the business in 1969. The joke RE: the CPR standards when I was teaching was "What are we teaching this year?" Same with management of cardiac arrest. We were also talking about the new ranges re: cholesterol. and use of Statins. 

    Change is fine as long as it DOES NO HARM. I knew from living through the time in the 70's that fibro and CFS were considered NEW. It ticked me off at the time that patients were sooooooo treated that it was all in their head----psychosomatic. I had post polio then, I was very careful who I talked to about it. Those of us that had polio all were. There was a stigma with it.  

    Now reading about thyroid and find that docs were managing s/s's of CFS and fibro for years and decades by actually listening to the patients, and only after a man made test did they decide these problems couldn't be from faulty cell work. It was arrogance on the medical communities part. Does that make it clearer why it irritates me?

  • Enerva
    Enerva Posts: 2,985

    Blondy happy birthday 🎂 

    image

  • Enerva
    Enerva Posts: 2,985

    Yes yonge st still hip but lots of beautiful creations there lol I will make this to sell in cancun. I got a good friend there right by the beach. So this is the one from yesterday,  very sexy ha ha ha only remember it's to wear in a hot beach south of here lol 

    image

    image

  • susan3
    susan3 Posts: 2,631

    enerva..you r soooo cute...I am Impressed...it takes me forever to finish my knitting projects..a bit  ADD...I put them down WAY to much and start something else. I am the queen of NOT finishing....bit I do so much stuff....lol

    Blondiex....happy birthday to you, happy birthday to you, happy birthday dear blondiex, happy birthday to you SillyHeart

    Went to zoo with hubby...forgot who asked that

    Chevy...beautiful pictures :)

    Morning all

    Just ordered some hats from amazon. My daughter put the kibosh on two of them said they were old fashion....when did I become not hip???  I really liked those two. Oh well, got 5 others...with her ok.lol

  • Holeinone
    Holeinone Posts: 1,418

    Blondie.....

    image

  • good morning ladies.  

    Enerva. - wow love the tops. So much talent from so many ladies in here. Is the back complete or still working on it ? I hope it is complete it is just so sexy. You are beautiful.   Haven't seen any walking pics lately , still walking ?  

    Blondie - happy happy birthday.  Hope you have a great day.  I think it is wonderful it will just be you and kids. Sounds like a memorable day. Love that your mo doesn't think it's time for hospice yet. That's encouraging.  

    Susan - glad you got to go yo the zoo. I love the zoo. My dh and ds tske me to the zoo on mothers day every year. It's Ben our tradition since our very first mothers day. Keep saying we have to change the day for this tradition. The animals are always hot and lazy. When we go in the spying or fall the animals are up doing all kinds of things. I could stay all day at the zoo. 

    Mammaray - re new treatment - you can so do this !!! We got your back.  Hang around , keep posting and let us encourage you ok 

    333 - aha your back. I think I got you and mammaray confused. Are you the one that helps with a special needs grandson and also have a mom and mil in the nursing home ?  I kept asking mammaray questions about it. She must have thought I was crazy. Nope , just confused. 

    Hio - a trip alone sounds great.  Def just what you need after all this stress lately. 

    Chevy  - what are you doing posting in the "older womens" thread ?  You do not qualify !!  Ok maybe in age and wisdom only but you sure don't act/talk like an older woman. I am sure those older ladies love you like we do but you cant post there first. No way.  

    2nd / hugs 

    Cami - are u sleeping in ? 

    Hello to all I have missed   Hope you have a great day.  

    Hootie hoo 

  • Enerva
    Enerva Posts: 2,985

    Patty thanks yes I am still walking lol I will take pictures today for you  I am finishing laundry then will go for my walk then will crochet another top navy blue for my sister. Yes the back has just a string to lace up. Lol yes very sexy for my nieces and the young girls in Cancun ha ha ha one of my sister will go there for 3 months so I will give her a dozen tops to sell over there ;) 

    Weather is so nice that people there wear next to nothing lol 

  • badger
    badger Posts: 25,041

    oh Enerva, you are beautiful AND talented! 

    hi owls, been reading and catching up. Lots going on. ((hugs))

    I wanted to share my dad's story, as it relates to things several here are going through. He picked up a staph infection while sharpening surgical instruments at a hospital. You know how guys will test blade sharpness by licking their thumb then running it over a blade? Well that's what he did, and apparently one of the instruments still had a trace of staph, which then got into his bloodstream. It congregated at and decimated the mitral valve of his heart. One night he didn't finish his potatoes at supper and mom knew something was wrong (dad was diabetic and ate everything she allowed him to eat). Took him to the ER where he was admitted and scheduled for heart surgery the next day. Once discharged, he was on antibiotics via PICC line for weeks afterwards.

    The surgery was successful but the anesthesia hastened the degenerative process of Alzheimer's disease. Mom took care of him at home for another four years, not an easy task. As he got worse it wore her down but she didn't want to put him in assisted living. (We didn't know how bad it was until after he'd passed and mom shared some stories.) The issue was settled when he fell and broke his hip. More surgery, more brain scramble. Mom's doc put his foot down and said you cannot bring him home. Let me be the bad guy and order discharge to rehab, which is what happened. From there he went to memory care, where he lived for two years.

    His body was relatively healthy but his brain was not. The last time I saw him, we chatted pleasantly but I discovered later he hadn't a clue who I was. But he knew mom and I was with her so I was OK. That broke my heart but I came to understand that in his mind I was a little girl and he didn't recognize the nice gray-haired lady who came to visit.

    They had nursing home insurance but it wouldn't pay for memory care because it wasn't considered skilled nursing. Mom dipped into her IRA's and laid out a huge chunk of change for his care. 

    Now mom has moved from FL to WI to be closer to me, and is 15 minutes from where I work. It's independent living with assisted living in the same bldg. They also have a memory care facility but I don't think she'll need that as the Alz runs in my dad's side of the family. It's a nice place to live and she can afford it but it takes all her soc sec and pension so we budget any extras very carefully.

    I'd better post this so it doesn't disappear! ♥ to all

  • Smaarty
    Smaarty Posts: 2,615

    imageHappy birthday Blondie. The big one is for you, we each get a cupcake. (Now that's making me want a cake!)

    Enerva, is the top pattern on Utube? If so can you post it? I'd like to make one before my cruise. What kind of yard are you using?

    I should take the Gkids to the zoo before school starts. Like going. 

    Blessings, thanks for the tips. I'll start playing with smoothies and see what I can do and like.

    Everyone be good, if not then have fun.  BBL

  • Enerva
    Enerva Posts: 2,985

    Badger thanks for sharing. Alz runs in my mom s side and I had such hard time with my mom :( I wish there was a cure for it. It's so nice when family care so much. I see many elderly people in my building and they are on their own.  :( 

    I hope your mom is well for many many years ;)

  • smarty. Yum yum. That looks so delicious. Not sure how you got your name smarty" but it seems to fit. You are so talented. Now do I understand correctly you are gonna make a shirt like Enervas? 

    So many birthdays lately. So many reasons to celebrate. Wish we could all jump in a plane and meet some where tropical to celebrate. Yes Cami, a party.  Maybe cami can organize it all. Now to pay for it all :  if only I could win the lottery without actually playing ...hmmm...gotta kept thinking on that one. May have to put SAS on it. She can figure out anything! 

    Badger thanks for sharing. Just helps remind me you never not what is going on in other people life's. That person I am fussing at the stoplight , the crazy coupon lady taking firever in the hand ahead of me etc. Gotta cut people some slack right. Your mom sounds like one tough lady. So sweet she has you and vice versa. Enjoy whatever time you have together.  

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Badger so nice to see you, Sorry that happened to your Dad. Your Mom was a soldier. Alzheimers is on my Dads side too. We're all hoping we got Mom's genes on that one. Lots of longevity into their 90's with faculties intact. Here's hoping :) Too bad re: care and not considering it a skill. Altered mental status patients are the hardest to access b/c they can't really tell you. Assessment is the strongest skill of all. Without it, you might as well not have a nurse at all.

    PPatty, lol  your funny, luvya for it.

    Chevy, Cami, LMG Spookie, Phyllis, Blondie---heard from SweetPea----she's doing good, Austins growing like a weed, Tim is good, New house is good, She's working. No mention of BC assuming that's all good. I called her on my B-day. She Pm'd back. :)

    Blessings waving...........

    Jwoooohooooooo waving...................

    Tang waving......................................

    2TA too :)....................LMG tooooooooooo, love the goat clips on wimp,com and youTube. Never knew they were so playful.

    Enerva, what are you selling them for. 30-40 dollars . Everyone should suggest what number they'd part with. I tend to be cheap. You may get higher suggestions. LOL,Particularly,  since they are sooooooooosexy they could draw a lot higher price. I might even go higher. But I'd be deluding myself OH ahem LOL.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Anyone that likes to loose themselves in dreaming about renovating or building projects. This is THE place to go---HOUZZ

    3,797,337 Home Design Photos

    http://www.houzz.com/photos

  • Pawprint
    Pawprint Posts: 354

    Hope everyone's Sunday is going well. Got my car repaired. The battery leaked onto the battery cable and corroded the connection. I will post a before repair pic, it looked really gross. I never noticed it because the battery has a black cover over it. I spent the majority of my day yesterday getting this repair done, so today I'm relaxing watching movies on tv with my fur babies. 

    Happy Birthday Blondiex...I hope you get to celebrate big time. 

    Love the knitted tops Enerva, you do very nice work.

    Sas, I did some research on the thyroid and anemia connection earlier ths year. The doc checked and ran the separate values for thyroid and of course said my thyroid was fine. I questioned my T3 value, but doc thought since it was 'within range' there was no reason to suspect anemia connected. So still the great unknown as to why my iron saturation/storage is low. Infusions do help, but only short term. I'm still researching it and challenging the doc. At least the doc listens and orders tests when I'm concerned. I'm just tired of being tired. 

    Hi 2nd, hope you are doing well. 

    Cami, you got me with that lamp pic...we all have dirty minds on this site. 

  • Enerva
    Enerva Posts: 2,985

    Sass thanks for sharing ;) I love those links 

    Well my walk was great but I have pain in my joints these days so only walked 2 km 

    image

    image

    image

    image

  • Pawprint
    Pawprint Posts: 354

    Enerva, Such beautiful pics. It looks so peaceful in your area . I'm sorry you are having joint pain. What do you do for the pain besides walking? Is 2 km over 2 miles? I'm so bad with the math conversion.

  • 3rdtimenow
    3rdtimenow Posts: 126

    Enerva, all of your pics are beautiful, hope your pain improves. Happy birthday, Blondie. Badger, Alz. is another terrible disease, my MIL is dealing with it, so very sad how it steals them inch by inch. Very stressful for the families. Patty Pepperment, that's me, special need grandson, the light of our lives, mom and MIL, we have our hands full. Hope everyone had a restful weekend and a good week ahead. Only 9 more treatments, yay. Stephanie

  • enerva. Thanks for posting your walking pics !!!! Yea.  It is so beautiful there. I love the water. Water and sunshine are " healing" for me.  I really don't know the conversation either, is that about 1 mile ? 

  • spookiesmom
    spookiesmom Posts: 8,178

    What are the beginning signs of Alzheimer's?  Is/are they different from dementia? Reason I'm asking is DH. Three times this week he has said stuff that is just really spacey. Not the first time, and DD is starting to notice little things too. 

    He will be 70 in Oct. his dad had Alzheimer's, a stroke got him first. I see the same PCP but don't know if I should say anything to doc. 

    Thoughts?

  • 3rdtimenow
    3rdtimenow Posts: 126

    Hi Spookiesmom, Alz and most dementias, have some very similar patterns but are different. A neurologist is the one to do a thorough check. If you can speak to his  regular doc before hand,he can do what they call a mini mental check on his next visit. I would not wait, as there are meds. that can slow down the progression, so if his dad had it I would have him evaluated. I have joined Alzconnected. org. a great group of people with lots of  helpful hints and a fountain of information. There is also hotline you can call with people on hand that are a great resource. You can also find some tests on line, with a few questions and small tasks for a quick check. There are many other things that can cause memory problems, so he should get a good physical. Thyroid problems, low B12 levels, medications and the one that knocked my MIL off of her feet, urinary tract infection. Best of luck. Stephanie B.

  • dutchiris
    dutchiris Posts: 783

    image

    Anybody know what these are?  I went for two 2 mile hikes this weekend and saw these.
  • Holeinone
    Holeinone Posts: 1,418

    Mushroom Sprout ?

  • blondiex46
    blondiex46 Posts: 2,726

    thank you for all your birthday wishes, they are appreciated....
    enerva you are so talented, love them, and you are thin and young you could pull them off, me not so much

    Chevy thanks so much...and yep next year I will do the same, just the kids, love them being adults and having a good conversation, we had a wonderful time, and then cake back at DD2's house and the grandchildren played, loved it....

    thanks susan, wonderful...

    have a wonderful night bb tomorrow...

    xoxoxoxo

    Sandy aka blondie!!

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Paws the standard three are TSH, T3, Free T4........ The new one I've learned about is Reverse T3 --RT3.  From T4 >>T3 and RT3 are formed. They both attach to receptor sites on the cell wall. But RT3 once attached is very binding to the receptor site. It's a pretender--doesn't work and prevents T3 from attaching. 

    T3 the good hormone is prevented from attaching to the cell wall, therefore, can't do it's work.

    RT3- is a essentially a bad hormone.  It's testing I have never heard of, but there are labs that will test for it. 

    Why it isn't accepted by mainstream medicine, I don't know. Not there yet :) More to read and search. But the fact that it's identified as attaching to a receptor site and prevents T3 from attaching, is similar to many other chemical descriptions that are already known to me. The fact that it can be measured says that someone went through the steps to develop a test. Why develop a test that has no value. Why develop a formula to show the ratio of the two.

     I will pursue answers until I'm convinced of value. 

    There are other tests identified on the web site. but the RT3 seems at present to explain why the cell doesn't respond. The mainstream medical community sets the standard on primarily TSH.  My TSH has been tight at the low end of the old standard. The new standard is the lower end of the old range. I have been in that range since 2007. If the standard was correct, I should feel fine. I don't---oodles of s/s's head to toe--literally hair to toenails signs of malfunction. 

    The lab value for TSH, T3, and T4 measures the amount of hormone circulating in the blood. No lab value can show how functional a chemical is. It is presumed that an accepted normal value means normal function. This is not true or may not be true. 

    Measurement level does not = applied function. (hells bells, now I sound like Sheldon).

    Let me give you an example of a  two different chemicals that bind to the  4 hemaglobin receptors on the red blood cell. Oxygen (O2) and Carbon Monoxide(CO). O2 provides the life giving chemical that allows cells to live. When CO is is present, it binds to the hemaglobin(HGB) receptors on the red blood cell. CO has a stronger binding power to the HGB receptor than O2. O2 can't knock CO off.  Too much CO, we die. This concept is known to me. 

    This RT3 and T3 relationship is new to me. Need to continue learning.

    The STTM web site talks allot about iron connection and thyroid, this is, also,new info for me. Particularly, if the iron is low a problem can occur. There is so much new learning, it will take time for me to digest it. Thought I'd let you know b/c of your low iron problem. I thought you might want to read too.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Spookie-- the minimum before considering any fancy testing is the basics.  Take to PCP. things that should be measured--Oxygen saturation, glucose level, blood pressure, pulse ,respiration. Ascertain any recent injury. Labs minumum CBC, CMET, UA, next level blood test, Folate, B12, TSH. The PCP will take it from there.    

    If you have an acute onset change  and are concerned, call EMS they can measure all the basics, do an assessment and  in concurrence with medical control by radio determine if the acute change needs transport to ER.

    Sorry I missed your call :)

  • jwoo
    jwoo Posts: 936

    Happy Birthday to everyone that I missed! ((hugs)))

    sorry i am out of the loop- will be so for a little while. I had a dear friend get into a very serious accident and am trying to set up fundraising and a support schedule for him and his family. just wanted you to know i will be out of touch for a bit. If you need me, PM me and I will get back to you when I can. 

    Love you all and hope you are all doing okay. 

    please drive safely. 

    jeni

  • blessings2011
    blessings2011 Posts: 1,801

    jeni -  we will miss you! Prayers for your dear friend..... xoxoxo

  • blessings2011
    blessings2011 Posts: 1,801

    SUPER MOON TONIGHT! (On my little instamatic camera.....)

    image

  • ADJ
    ADJ Posts: 203

    ok, now I know I have found where people are still awake! 

    While I am continuing to deal with weekly abraxane, neuropathy, lymphadema, difficulty walking, and more, I wouldn't trade it for what my sis and her DH are going through. After driving across the country in a big motor home with grandkids in it, his behavior became bizarre enough to warrant head scans. He is hoping to have a huge glioblastorma removed in the morning. Sis is aware that he might not even have the surgery if it has grown, and that his baseline will never return to "normal.'

    Isn't there a verse that says what does a man gain if he gains the whole wold but loses his soul? Something like that. Praying for Mike and the battle just beginning. 

    Loved th moon tonight.

    Anita

  • Pawprint
    Pawprint Posts: 354

    Welcome ADJ, sorry to hear about Mike. Sounds like your sister is really dealing with a lot. People here post day and night, it's a very friendly group. 

    Sas, thank you for the info about iron and thyroid test. I remember when I was researching the forum on the STTM site. Lots of people are dealing with symptoms because of thyroid issues. It is very aggravating that most docs don't take it seriously, or push the same tests, looking at the same values and then prescribing the same old thyroid medications. My doc checked adrenals , cortisol, and standard thyroid test and then iron. 

    Great pic of the monn Blessings. 

    I hope yor friend gets better quicklly JWOO