INSOMNIACS place to talk in the wee hours
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Well poop on that! Snow in Jacksonville.... Wth.. Remember Sas anything but sushi or oysters or super spicey.
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surprise, yes I am still alive
. lol.... Just started felling better. Long story, short, this last chemo beat me up pretty bad....really my fault...never told doc how bad I was doing. When I finally did he pulled me off it and put me on a chemo break. So now i am doing better, lots better, and started a new treatment yesterday. Way to difficult to go back and read, sorry....I don't lurk when I am not on, so I know nothing. Sorry if I worried anyone, just was a bad time for me.
Sas called me today......in her warm weather in Florida.....while I was sitting by my fire place at a negative 6 outside.
I am posting this next picture for her... Enjoy sas
Hope everyone is doing well.
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OMD YAY Spookie, spookie and kris will be jealous of the fashion wear LOL
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Sas, the original Columbia
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Spookie OKAY, Wow,,,,,,,,,,loved that place. Only there once---blown away.0 -
Celebration with chevy was great! Will be the same menu. Never been, onStar will find it
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Rose, Google Columbia restaurant in Tampa. See what you think
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Susan Back !
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you are funny
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I went to visit a childhood friend in Tampa and he and his wife took us there...unbelievably good and the atmosphere is amazing. go!
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Okay KJ==will do--it's so old world just like it was 75 or 100 years ago
The White Sangria is unbelievable. Chevy , Spookie, and I had it at the Columbia in Celebration. Yum. Course I was drinking more than them, but................Glad your back Susan -------Yay
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yes! I had the sangria and something else...I don't know my drinks that well...but anyway---yummy!!!!! Enjoy! Good times!
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Susan. - yea ! Welcome back. You have been missed and asked about many times. Super glad to "see" you. Glad you switched tx. Hope this new one is gentler and more effective.
Hi/1. Tea sounds great. Giggles sounds excellent ! Sorry about your shoulder issues.
SAS. The great awesome SAS. What would we do without your knowledge ? So currently taking morphine sulfate er 2am and 2 pm, gabapinton -1 am, noon and pm and hydromorphone for breakthru pain 1-2 every 4 hours. Yes I take them consistently. Really don't like the mo idea of increasing any of them. They knock me out. Seeing me sleep all the time isn't good for ds's and dh or me ! Gotta be a better solution. Seen pain mngmt dr several times - their suggestion is pain pump inserted. Mo disagrees since they only deal with them in Memphis which is a good hour away. Every hospital visit , every refill , every checkup a long car ride. Heck ridin to the end of my road is very painful. I've had two rfa's, like 7 kyphos and a lot of nerve injections. Each time believing this one would be the miracle pain cure. Not! Grr.
Thanks for the encouragement y'all. So very needed. Not sure if I need a hand up with a Kleenex available or a kick in the rear. Maybe both.
Hootie hoo
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May or may not see some snow today. Not a whole heck of a lot but it will make the ground white if we get some.0 -
Patty can we talk on the phone.? if yes, I'll PM you my #. Today have to go to town for labs. Talk tomorrow?0 -
Hi Susan! Good to see you and glad you are feeling better
patty-I'm so sorry you are struggling, try not to beat yourself up about your boys seeing you a certain way. They love you and you love them...that is all that matters. ((hugs))
So glad it is Friday! Yesterday was hell at work, busy busy busy! Flights canceled, delayed....thanks to winter.
My parents gave us a car yesterday and last night our truck died. We've been down to one vehicle for a few months now and I was so excited to have a car...now this. Dh thinks he knows what is wrong, but I'm mad at him because he should have taken care of it before this happened. Dh has been really moody the last week or so and I'm over that too. Sometimes I wish I was single.
There I said it...whew!
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Well we did get some snow. Think we got 3 inches.
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Wow Mommy 3 inches is more than just a "white ground" amount.
Tang - does your DH suffer from seasonal affective disorder (SAD)? I've been extraordinarily bi***y these last few days. I think because of no sun. When we do have a bit I try to stand in it. If he works inside early/late he's probably not seeing the sun at all except on the weekends and even then it's not been good. My DH does the same leaves things until they don't work, not so much with the cars but with stuff around the house. I hate to be a nag, but it does come down to that. I think most of us wish we could be single for at least periods of time. Have you considered a run away girls weekend out?
Patty I would think maybe transitioning to a patch would be just as effective as a pain pump and a whole heck of a lot less maintenance. Maybe your MO could even dispense it. Think about a Fentanyl patch. Do remember you have to be on a significant morphine and breakthru dose to transition but don't remember the amount. I have seen at one hospice the MSER dosed 3 times a day at a lower dose. Not the usual but that's the way they did it. The contract pharmacy - a very large hospice supplier only - did not balk at this even though I was taught every 12 hours like you're taking it.
Susan - just lovely to hear from you. (((HUGS)))
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Hi All!
Chiming in to let you know we are looking for your "stories of love for February.Each and every person who encounters a diagnosis or illness spawns a collection of love stories around them. The stories come spontaneously from partners, parents, siblings, friends, nurses, doctors, community, Breastcancer.org members, peers, and even pets. Sometimes it happens organically and without notice.
We'd love to hear and feature your "love stories" in the month of February. Please share a story of love that enriched you, may have surprised you, made you feel stronger or supported during your breast cancer experience.
Please email us at community@breastcancer.org or PM the Moderators, and don't forget to include a good quality photograph that best represents you or your story. We will be posting the stories here:
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At least it was the nice fluffy stuff, easy to shovel!
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Sassy and Spookie- I looked up the Columbia and it looks super! I'll meet you there soon as I know what all they will do. Right now I have a 10 alarm headache that is just crushing. ugh.. rarely get these, but when I do they flatten me. It must be a front moving in, woke up with it. I hope when I am at the clinic I can get them to do a MRI of my left knee... it's been giving me grief since summer- enough! I love to look at snow but hate shoveling it!
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Boynton Beach inlet Skycam along the SE Coast of Florida where temps are in the upper 70s with light East winds
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Susan, yeah you're back. Hope the new chemo is better. Hang in there girl.Hope everyone has a good or better day. Cold here, only 46. See california isn't always warm and sunny! high, thick fog and grey.
I know it's relative. A friend is coming next week from Omaha, it's 1 degree there with wind chill -23. OMD, I'd die a frozen popicle. We're going to Monterey next week where it's suppose to be in the 70s.
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Goats, and please note NOBODY is at that beach cause it's too darn cold. Water temp at Clearwater is 54.
Rose, do you have fibro? I do, am extremely weather sensitive. Everything tightens up, aches, and sometimes the headache.
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LMG-the seasonal thing makes sense...I think I have that issue as well. The fixing things is everything girl, house stuff, car stuff....etc. He's up there now "looking" at it, probably won't have done today though. I love him but he makes me crazy sometimes!! I would love a girls get away, that is something to think about.
Sas- on the Paris/Charlie thing...it's horrific and disgusting. I hope you are right in your assessment and that the world stand up to this crap once and for all!
((hugs))
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Tang..... I know..... We ALL get that way sometimes..... If it ain't one thing, it's another.... just any thing to drive us crazy.
Our DD in Orlando gave my Husband one of those "lights"..... for people who may feel depressed from the Winter.... Well, I figure you have to USE it before it would do any good. So I know it is supposed to "help".... but it doesn't help bad-moods any. MAYbe if he would have been forced to use it when he was 18, constantly throughout his life, well MAYBE. But men are just men.... Like my Brother always said.... "What is? Is."
SOMEtimes things are so sweet and peaceful around here.... and it's easy to always be happy, but sometimes other's bad moods just grind on you. We love them, even though they drive us crazy....
But don't you just look at him sometimes, like when his hair is sticking up, and he looks so silly? And your heart just melts....! He's yours, and that makes it all worthwhile.
Lunch with SANGRIA! You GO girls! Yes, that was the best.... I'll always remember that.... I don't remember what we ate, just the presentation of the Sangia! It reminded me of one time in Puerto Rico.... at this Restaurant.... And I had heard about "Mexican Coffee!" Well they bring it to you and add stuff, and then light it on fire....! Damndest thing I ever saw! And it was sooooooooo good!
It was cold an icy here again today..... DH slipped on the ice right out back.... Man, it's hard to miss.... but he fell on his knee and came hobbling into the house.... I haven't even left the house....!
Supposed to be nicer today....
So glad they finally caught and shot those terrorists.... I don't think that kind of trouble will ever end.... Too many extremists in the world now.... Crazy people will always be with us..... Yes Tang.... It IS horrific!
That was your yard Smarty? And you still have GREEN! Beautiful yard!
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holy I am behind again lol Ok so I got hoe and the building transformer broke so been replaced now so no heat or hot water till midnight lol I am lucky I have small heaters anelectricity so I am ok I had to boil water and shower with a bucket lol
Hope u all have a great weekend Chevy finishes ur gloves lol ll send soon
Talk to u later.
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hey peppermint, what happened while I was gone? So sorry to hear you r in so much pain. Praying for you. Xoxoxoxoxo.
Still cold here...but I'm in chicago.....suppose to be....and as always, unpredictable.
Hope everyone had a good day. I have been sleepy and a bit nauseous, so haven't done much.
Chevy, you and hubby be careful on that ice. We don't bounce as good as we used to
Think I'm going back to sleep...night night
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just checking in I'm ok reasons labor they lowered my presence and then highered it because I can't breathe. you guys have been busy.
Called that 18 different pharmacies trying to get my pain meds and nobody has themor they're telling me they don't have it because they were afraid people are going to be coming in there are stealing or robbing them
hang in there everybody today it's about 32 its been it was 9 yesterday and I believe it was seven the day before.
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Blondie- if you sign up for hospice they ALWAYS had the scripts needed and would deliver in a locked box! That's what they did for my Dad and it was impressive. They controlled his pain totally. You can always flunk out of hospice and they deliver - you stay put warm and toasty and not out of breath. I would suggest that route, forget the local pharmacy. Hugs to you!
You know I thought to add that I mention this for your convenience, not because you will check out in 6 months. No one can tell how long they have, but fighting about getting what you need out of commercially available resources when you have major pain relief needs - hard road.
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