INSOMNIACS place to talk in the wee hours
Comments
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Here is the info on the Ken Burns documentary on cancer in case it is coming on your local PBS channel too in March. I love his work and think he will do the subject justice.
http://kenburns.com/films/emperor-maladies/
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My tangerine tree story. It's kinda long, get comfy.
Back in the late 70s, we were vacationing here. DH(dumb) decided we would buy some trees and take them back to Cinti. A 6' Palm, a Washingtonian palm, and a dwarf tangerine tree. Put them in a south window, in front of the heat. Palms died right away. Put the tangerine out for the summer.
My parents moved here first. We brought the tree back to Fl and put it in their yard. They moved again, we moved the tree again.
When we bought our house, we moved the poor tree AGAIN!
So it liked where it was, and produced mega amounts of yummy tangerines.
Then we had 2 years of hurricanes, a crappy cold winter, the poor thing started to die. Darn near broke my heart, after all it had been through.
They were so good, my mom went out to get some, with her walker, tripped over something, fell, broke her hip.
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I have been lurking off and on. I can't imagine how difficult it must be to make the decision to end treatment. Many of you gals have gone thru so much. But it all comes down to our own individual feelings, thoughts and beliefs.
I love the soup Chevy, wish I could just pop on over. But southern California is not just a hop, skip, and a jump away from Colorado. Plus, OMG.....it's cold where you are. Your yard is covered in snow..brrrrrrr.
Don't know if I mentioned that my refrigerator is getting ready to go out. Its been slowly going out for awhile now. Its growling at me loudly...it's probably 10 plus years old. I'm looking at getting a refrigerator with a bottom freezer and French doors on the top refrigerator part. I don't want a ice dispenser in the door, so that should save me some money. Also, I want white. So probably be out looking this next week.
My 3 dogs are all doing well. All they do is eat and sleep. I've been battling a stomach bug seems like 2 months now. Its making me tired. Might have to get that checked. I have routine blood test Monday and see my oncologist on March 17.
Just wanted to pop in and send hugs to all of you.0 -
Rose - I certainly understand you. When I was in the hospital last time ( for 10 days!) far from my DH and DS (my extended family is all in Europe and DH 's family is on the East coast) I hit the bottom. I was in pain or dizzy, foggy and with slurred speech because of the painkillers. I was swollen with all the fluid accumulation in lungs and in legs up to my waist, connected to draining tubes. I couldn't breath well, sleep well and going to the restroom was hell. At that time if somebody had offered me some means to end it I would have taken it. My deepest desire after diagnosed was to fight for as long as I could to be with my son who is very young, but in those deep dark moments in the hospital I just wanted the suffering to end. I am so so sorry about your suffering.
But, hey, I didn't mean to ruin all the fun with my overly serious post (I think most of mine are sooooo serious, hard to believe I'm a fun girl
If it makes anybody feel better (wink wink) the tangerines are completely inedible! They're sour as lemons! Probably not enough water and/or fertilizer. So they fall on the ground and squirrels would eat them (sometimes). And I can only use so many of them instead of lemons .....I tried one year to make marmalade and all I managed was to ruin my creuset pot (cause I forgot it on the stove and went gardening) and it it burned so badly I couldn't even rescue the pot!0 -
jazzy - I heard about the Ken Burns documentary. I heard it's very good. I read the Emperor of Maladies last year. It's an easy read but it depends whether one wants to read about cancer or not. I certainly avoided it for a long time. So I'm curious if the film has anything extra.
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I'm glad I read 'Emperor' years ago, as it was fascinating and very well written. Now, however, I really don't think I could stand to read it - it would just be too painful.
Magdalene & BeachB - so sorry about the burns and itching. How awful.
lbgal - your tangerine tree reminds me of the picking avocados from a tree in So. Cal as a kid - my parents were visiting friends from grad school who taught at UCLA and they had this huge avocado tree in their back yard. We thought it was SO cool that they encouraged us to pick from their tree. I also remember picking up a copy of 'The Feminine Mystique' from a side table and starting in on it while the adults were visiting, which generated an interesting conversation with my mom later on...
Rosie - wish things were vastly different for you. Sometimes control of your own life, taking control back from the cancer, means taking things into your own hands. But sometimes, just knowing that you can if you want to is enough. Be as true as you can to yourself and act from there. (As if you need any advice from me, right?)
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No more talk about this it's taken all the fun out. Had a huge fall out with D-H.. enough aggravation for one day. I snapped! I can count how many times that has happened in 29 years. Now back to snow balls, pole dancing, how to draw tulips on snow banks and life as we live it. (medicine, insurance, glass ware, quilting and animals!!!) Chevy where is your other sparing partner?? Your soup looks yummy.. fresh bread and volia! Dinner.
Smarty we still haven't seen any quilts from the show... can't you sneak a peek to us? We need to hear from those in Texas, unless their power is out. :-) If Ohio and the Mid West can keep the power on, Texas should be able too! patty are you lurking? Back home?
Be warm and safe owlettes.
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Ibgal- I am going to watch it, although it premiers on 3/30 here in NM on KNME, and I am flying back from the west coast that evening. So I will have to catch one of the reruns that usually follow the weeks after (like the Roosevelts did, my fav of the Ken Burns series to date).
Pawprint- glad you popped in to say hi and glad you are doing okay. I hope your blood test goes well and doctor apt in March also goes okay too.
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Rosie, shall we taunt them with photos of our gorgeous day here? It's probably safe to do so since cyber snow balls aren't as nearly as cold, wet and nasty as the real thing.0
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Patty Peppermint, how are you??
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Hi ladies. Back in hospital Mo admitted me again yesterday Same ole '. Big v , big D. And pain everywhere. Tonight have already had cy and cat scan Waiting for MRI results bi have been sleeping like 20 hours per day Lol d
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Hootie hoo
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here's some pics. Sorry, a few are a little blurry. This is a sewing show, so all kinds of supples, materials, etc for almost all hobbies. Plus classes to take. Biggest show of its kind in the west. We have sold out of the book and 2 of the patterns we are selling. Have to take orders and then ship. Been fun but very tiring also and my cold hasn't helped that any.
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Dang, Patty, you just can't seem to stay away from the hospital for long. I wish they would figure it out so you be home.
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Patty, hospitals don't make good hotels. Just kidding! Hope you feel better soon and get to go (and stay) home.
Watching the news: flooding in Miami looks like So Cal. Our local mountains have lots of snow
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Maddy! It was THIS one, Ha! But then I found another, and another.... and well.... you know........
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Morning gals! SMARTY! THOSE ARE ALL MADE BY HAND, OR HOW DO YOU GET THE PICTURES??? Is it pictures transferred onto iron-on material, and then sewn by hand/machine?
I am just baffled... I mean I'm over here just trying to do menial things, and YOU are over there showing the world your crafts and stuff! I'm impressed! To say the least!
Is it embroidery? Or just what are you doing there? And are they quilted, or wall hangings? They are all just beautiful!!!!!!!
Peppermint! WHAT DID YOU DO???????? I'm wondering how you can still sound happy, with all that going on with you.... And what is Big V and little D.... or what is it that you said? Ah geez.... wish you could find a better way to SLEEP! They are going to have a room reserved for you!
And no Hopeful... I'll just keep bombarding you guys with snow pictures....
Ha! Oh? You are getting Rosie in on your shenanigans too? Aren't you two up in the Pacific NW?
Hah! That's funny what you said MamaRay..... Haaaaaaaah! About Ibgal's picture! By the way....! What IS this Ibgal stuff stand for? Okay.... spill the beans.....
MAGS!!!!!!!!! They are trying to kill you! That's all! Don't hang around them no more! Might as well have poured it into a baggy, and said "HERE".
Oh wow... so glad you got over that "urge"...... sheesh! That would scare me. It just might creep up on you again.... but it isn't "enough" until we say so..... okay?
Ah Beaches..... No...... not yet..... But I truly understand you guys.... that are going through so much... I know we can't hang on forever, nor would we want to.... but wait..... I might want to.... So far, so good.... but I understand.
Oh no SPOOKIE! What are you telling us this stuff for? About your Mom and her falling over her damn walker and broke her damn hip?
See, that kind of stuff scares me... !! So I guess that means you don't have that stupid tree anymore?
Okay, get this... "MY TREE STORY".... These people moved out... no actually .... oh never mind... One morning I looked out doors, and it was snowing... (like that is something new here)... And I went outdoors to get the paper... And saw this little green plant thing in the curb... with snow falling all over it... It was shivering and wilting! So I carefully picked up that little pot, and brought it in, and gave it warmth and a loving home.
Then DD came from Orlando one time, and she packed that little Meyer Lemon Tree in her bags, and took it home with her... You canNOT grow any kind of Citrus fruit tree HERE in this CLIMATE!
That tree is HUGE! Out back in her yard on the golf-course! And I feel like it's Grandmother! And the Lemons are delicious... the end.
Oh LittlePaws said Hop Skip and JUMP! Like we can all do that! We don't need no refrigerator! We just set things outdoors... If we don't want them to freeze, we set them in this Coleman cooler out there....
Problem solved. So we have an immense refrigerator IN here, AND out THERE! Glad your pups are doing well...
What is wrong with your stomach? Have you tried Aloe Vera??? Mixed in with your tea, or smoothies, or just plain? It will really HELP any kind of digestive ailment... I know this for a fact....
Okay Ib's.... I think I can understand what you are saying..... I guess you just get to that point.... But I understand........
WAIT! HOLD ON ONE SECOND HERE! See you guys, SHE says those damn Tangerines are not any good! And she ruined her POT! Hah! So there...! You other gals must be growing something else.... Like maybe Ki-wi's or something ...
Yes, even EYE know that the soil and water PH make a difference... My folks had the sweetest lemon tree in their back yard, near San Francisco...
A hot cup of tea, with some of that Lemon, with a warm piece of San Francisco Sour Dough bread with butter! Mmmmmmmmmmmm!
Hopeful.... that was a sweet post to Rosie.... It made a lot of sense...
And then so Rosie comes on here, and has had a knock-down-drag-out with her DH! Are you guys better now? Do I have to come out there and straighten things out? I CAN, you know!
And I don't know where Cammi is! You guys will have to do until she EVER decides to come back.... Ha!
That wasn't MY soup! I got that from Google Images, and I didn't use red-onions in mine... Mine had Leeks....! So I can't take credit for that picture. But I will if you want me to.... Ha!
Morning Jazzy and Dutchess! Miami is getting flooded Maddy? I didn't see that....
Okay.... guess I'm done causing enough trubble for one morning! BBL!!!
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I so want to find the bleepity-bleep who woke everyone in my house @ 2 a.m. and knock the daylights out of them. Didn't get back to sleep til around 3:30.
Cranky because of that and the fact I haven't had my coffee yet, its hubby's job to make the coffee on the weekend. He made sure that he got his, still waiting for mine! Looks like if I want my coffee, I'll have to get it myself! You know they name streets after people who do this sort of thing: One Way
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Peppermint Patty- I am sorry you are back in the hospital. I hope they can find out what is going on. At least they will be able to keep you hydrated there. Feel better and keep us posted as you would like. Keeping you in my prayers for a quick recovery and return to home soon.
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Update : still in hospital. Think this is day 10 or 11. Can't keep up with the day. Friday was so dehydrated was seizing even though I've been on iv anti nausea meds for like 9 days. But the sun is shining outside ( finally ) and today is a new day. Looking forward to the future and not focusing in the present. Reading everyone post that there is still life out there is very encouraging.
Shout out and hugs to all
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Jazzy, good one!
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So it continues
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Beach, the no ice on the mastectomy site is b/c it's numb. Hot or cold should never be applied to a numb area b/c it can cause tissue damage. Similarly, if there is peripheral neuropathy of the hands or feet----no hot or cold. With the lotion that Spookie suggested. The RO approved. What he did was look at (spookie ?) it. With products having long list of ingredients, the RO should be familiar with anything that may cause the radiation to behave differently if a residue is left on the skin i.e. petroleum residue. Hope, you got some itch relief?
Mags, you should be boosting now? LOL Boosting, different meaning in the criminal world.
Jazzy, the insurance / business sites are where insurance or businesses check on financials and hazards etc of other companies or areas. I wanted to find the sinkhole status in my county and in Florida. Found one of the web sites. Can't get into it YET. I haven't given up. The other is A_Z financials. It'd be used to access solvency of a company. I'm guessing it may be a site that some one investing might use i.e Morningstar.
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Jazzy. Badger and RuthRub(sic?) belong to a group that meets each years. I think it the Exersise thread. LOL I'm not on the thread.0 -
Yes, the let's Post our Daily Exercise thread has something in the works. Can't make it to that either. I have my time off planned for the year with my work and conferences. I hear they are working on something in Cali.
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Patty, hope your March is much better than your February. Your hospital should be giving you frequent guest perks - fresh flowers, chocolates on your pillow and 10% off on your next stay. (which will hopefully be never)
Chevy, loved the insomnia posts. They'll give me something to smile about from 2:21- 6:13am.
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Rosie, Hugs. There is a thread that has stuff about making sure things are prepared. Bon did a synopsis on page 25 &26 of the first 24 pages. She's wanted to do a synopsis of the remainder pages, but I haven't checked to see if she has done it. Lots of stuff to make the transition easy for yourself and family. I linked to page 25. But there are pearls that haven't been included in the synopsis. Scan the first 24 pages can pick those up.
https://community.breastcancer.org/forum/8/topic/770023?page=25
this is what MA wrote in her topc box.
Joined: Apr 2011Posts: 1,378
ma111 wrote:
This post is for those of us with concerns and issues about death and dying to talk about them.
IF YOU CANNOT HANDLE IT, THAN GO TO A DIFFERENT POST PLEASE. We do not need people telling us to live life or to hear that other people have lived a long time, we have concerns. We are living life and would like for our diagnosis/prognosis to be changed. However, we are stuck with it and not in denial.
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Mags, your inner voice will tell you
. With the fibro induced by treatments, mine resolved after I stopped the AI's. Took awhile. Went back to pre BC level post-polio pain sequelae(PPPS). Everything is relative. Used to be unhappy with the PPPS. Now, It's just fine. Live at a pain scale around five (3-7). Mostly 3-5. Versus 10 with AI's.Jazzy, I'm just going to link those pages. The RiskMeter is the one I can't get into. If you find away to register let me know. Not sure if it's a subscription(pay) site, couldn't get that far. This one is the site that tracks at rates all the kinds of things
http://www.riskmeter.com/about.htm
his one has all the finanacial stuff
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Ibgal read about the one associated with Glia...........The vaccine that they used was polio and something else. I only remember it b/c I had polio. Vaccines will likely be our saving source eventually. They need to hurry up. Irony, Glioblastoma IS uniformly fatal. But it's numbers aren't any where close to BC numbers. Nice for Glia patients.............
Ibgal----Chevy keeps us serious people on an even keel. --OMD a crueset(sic)
Chevy that soup looks and sounds Mahvelous. Making pot roast, salad, and chocolate cake for dinner with dear cousin and her DH. Hope DBF shows up.
Paws, Nice to see you. The original French door frigs were a problem. They have been good now for about 5 years---ConsumerReport.org. No ice maker in the door even makes them better. Sorry, can't remember your furbaby's name that had the eye sx. Glad to hear they are both doing well.
Patty...........................Hootie Hooo sorry Lovey, I made THE chocolate cake. Haven't done one in years. PATTY, am I going to have to come out there and straighten those folks out.............ohhh @ your side HUGS L&H&P's
222222 Yikes flooding in Miami FL ----or Miami,Ohio? Had have soundscapes on all day no news.
Chevy, LOVE the sleeping things. Finally, have stopped ruminating ---mostly. At least way lot less that pre BC. BC kind of takes the wind out of that sail.---------Re: Big V--vancomycin, Big D diarrhea
Smarrty, love the quilts, more pics?
Almost caught up......If it seems I'm hogging page 746------I am, it's all mine (0-
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Sassy- been on that thread above many times. Got one person's feathers ruffled over some comments I shared. So I have sat backed and lurked. ok with me. Love the war between the South and the North... hahaha.. virtual snow ball fights who would have thought.
Chevy yes! We are civil to each other. Generally the worst things get around here is a snippy sarcastic comment or silence. So to actually yell at the top of your voice and shout in anger is wildly out of character. I mean we knew each other in high school and have lived together for 29 years.. married for 26. Relationships do change and ours has morphed into something neither of us get much out of. More like habit energy keeping it going. I nurse resentment since I feel trapped (reality is I am trapped..haha). TMI sorry...
Yes Hopeful - we are in a dream no? Feb was pretty sunny and mild, it broke records and today brilliantly sunny and mild.. cool but all the buds are out and it's lovely!!
Smarty I love the quilts! Amazing what folks can do. Thank you for sharing! Patty pleeease get better soon. Hospitals are lousy hotels and no place to get any sleep either! Sending you petitions for healing and well being! Howdy to Blondie too!
hugs to all.
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