Can we have a forum for "older" people with bc?

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  • mommarch
    mommarch Posts: 534
    edited April 2015

    Welcome NCDI, you will find this group amazing.

    I went for my PT evaluation today. Will actually start on Thursday. I have some home excercises to do

    will get started tomorrow. We had to go to the nearest walmart today to get some things of course it is in

    Fort Stockton which is 110 miles one way. DGD went on a field trip with her photography class. They left on Sunday and canoed down the Rio Grande. They had a great time. On Thursday she leaves for San Antonio with the Spanish Club for a Flamenco dance compition. They won't be back until Sunday.

    Well need to get to bed.

    Hugs to all

  • blondiex46
    blondiex46 Posts: 2,726
    edited April 2015

    Welcome ncdi, the waiting game sucks n jaxkie speak 4 yourself i am 61, lol

    Mommy good luck 4 surgeon, n we will b in u r pocket.

    Termite glad to see u

    Hey chevy, n everybody else i didnt acknowledge 

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2015

    Morning gals.... I hope all the problems are all fixed with our site today! What would I DO without you all? I found this link yesterday, and everytime I watch it, I laugh!

    http://www.wimp.com/bathroomrewiring/

  • carolehalston
    carolehalston Posts: 9,181
    edited April 2015

    So far I haven't noticed any problems with the web site.  Hope I'm not tempting fate by saying that.

    Hoping the surgery goes perfectly, Anne.

    Mommarch, it sounds like GD is having fun in school.  That's great.  Good luck with the PT. 

    Minus, I didn't realize (or didn't remember) that you have problems with LE.  You don't complain like some of us do! 

    The muscle pain and stiffness in the back has eased.  I had the same ailment a couple of months ago.  My sister and mother both pointed out that gall bladder problems can cause back pain. 

    Really disappointed this morning that I wasn't down on the scales.  Nothing good to report on Wednesday Weigh-in.

    Off to Walmart this morning while it isn't pouring down rain.

  • puffin2014
    puffin2014 Posts: 979
    edited April 2015

    I'm still noticing problems with the site this morning. The little icon twirled forever before the homepage loaded, thought it was going to time out.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015
    You cannot prevent the birds of sorrow from flying over your head, but you can prevent them from building nests in your hair. Chinese saying
  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Puffin,
    That sounds similar to the problem I'm having. I seem to be able ( though so very annoying ) to do what I want to do for the most part, but the address bar at the very top twirls and twirls and I don't have the tool-bar available. I've tried a couple of things to no avail.
    I may have to call Microsoft and have them check to see if they can find something that I can't. 

    I wasn't ( or so it seemed ) affected in any way when everyone else was having difficulties -- but now that most are fine, my woes have begun.  I cleaned my cache, and restored my computer.....that didn't seem to have had much affect.  I'll keep working on it and see what happens.

    Jackie

  • duckyb1
    duckyb1 Posts: 9,632
    edited April 2015

    Your not alone...........it is happening on every thread..............well most anyway...........mine goes from having my icons above our message place to GONE, then pops back in, 'and then out, and when I type.....I am on word 10, ;and the screen is on word 1..............not right now, but eventually it will happen.......

    Really frustrating especially when you type 90 words a minute, and I am not being funny......I use to do 120, but have slowed down............hopefully Mods get it all right.

    Seems they fix one thing and something else goes wrong.......

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2015

    I know! I PM'd them yesterday, and that was fixed, but I think they are still having problems.... Whenever I post, it doesn't show up, and then opens at the top, and you have to scroll to see it!

    90 words a minute? Damn girl! You really ARE good!

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Glad to know my posts are being seen. I started to wonder. I, of course, could see them, but when things are a little wonky and no one posts too soon after you --- or mentions anything from your post when they do --- it sorts of starts you wondering.

    Glad too that I'm not the only
    one.  Do find it a bit quirky that I sailed through the first round with no issues and honestly -- what is going on for me now sounds easier then what the rest of you dealt with, but I still would like to think I could come here and have everything operate just like it did.

    Hope the Mods can come up with something.

    I have starting staying in touch with them -- just hoping. 

    Jackie

  • duckyb1
    duckyb1 Posts: 9,632
    edited April 2015

    This year has been horrible..........back in 2011 when I joined, I never had a problem with the website....it ran great..........and on for 4 years........no problems.........wish I could say the same for this year..............oh well Shit Happens.......

  • anneb1149
    anneb1149 Posts: 821
    edited April 2015

    Mornin' all,

    Checkup this morning went fine. He is going to do both sides. First thing he said, Minus Two is that what he is doing will not affect the LE. They say I need to wear a sleeve and gauntlet all the time, but I don't wear it when I am just sitting and reading. When I drive or even travel , I wear it, and of course, if I am doing anything strenuous. But most days I just putter around, especially here in Ga. Dr also said I could drive the day after surgery if I feel up to it. We'll see... Oh, and I can't wear a bra for two weeks- yippee since I've had one on 24/7 since Oct.

    Anne

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Wow -- going braless -  a dream come true.  Just kidding sweetie !!!!SmileIt all sounds pretty good from here.  Going to get ready to go take a two mile walk at the Rec. Center.  I'll talk to ya'll later.

    Jackie

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    I found this just a little bit ago and thought it was good enough to share:

    Life Lessons Written by a 99-Year-Old Man   © Provided by PopSugar Life Lessons Written by a 99-Year-Old Man 

    My great-grandfather is 99 years old, and living almost a century has taught him a thing or two. Andy Anderson's life story is one for the big screen - he met my great-grandmother on a Saturday, and they married on the following Saturday. They stayed together until my grandma took her last breath 67 years later. In between those 67 years, they had two children, adopted another son, and were the greatest party throwers in the county (we have the pictures to prove it).

    Without going to college, Andy worked his way to the top; he became the corporate manager of the dairy department of Safeway for the entire country. He earned the nickname Mr. Cheese, which eventually turned into Grandpa Cheese among the family - a name that has admittedly gotten a few brow raises. My point is, Grandpa Cheese has taught me a lot about life. I could think of no better person to give the world a few life lessons than him. Here's what he has learned in his 99 years.
    1.Always maintain a good sense of humor.
    2.Never be too good to start at the bottom.
    3.Exercise every single day, even when you don't feel like it.
    4.Don't spend more money than you make.
    5.Drink orange juice every day.
    6.Love at first sight is not a fable.
    7.Having a bad job is better than having no job at all.
    8.Eat around the mold; don't go wasting food.
    9.Your family is the most precious thing you will ever have in life.
    10.Eat sausage every day - it worked for me.
    11.Your life is delicate, and if you neglect yourself, you'll spoil. That's what cheese taught me.
    12.Don't ever be afraid to be your true self.
    13.Everyone has too many clothes. Wear what you have and quit buying more.
    14.You must be able to forgive, even if it's difficult to do.
    15.Save your money now and spend it later.
    16.Love is not always easy; sometimes you have to work at it.
    17.Find something comical in every single situation.
    18.If you're faced with a problem, don't delay trying to figure it out. But if there's no way to figure it out, you have to forget about it.
    19.Make sure you're doing what you love; don't be afraid to follow those dreams you have for yourself.
    20.Education is important, but not necessary. Life can be an education in itself.
    21.Explore your world and stay curious.
    22.Try not to take yourself so seriously.
    23.My full name is William Bradford James Anderson, and my initials always remind me to ask myself, "Why be just anybody?"
    24.Have common sense. Think about the most reasonable answer to every situation. If you don't have common sense, you're a bust.
    25.Life is a gift that you must unwrap. It's up to you to determine if what's inside will lead you to happiness or dismay. You have the power to make that decision for yourself.

    If you're wondering what Grandpa Cheese is up to these days, he's riding his motorized scooter around Benicia, CA, and "planning on what I'm going to do when I start to get old," he says.

    Jackie

    P.S.  I love what he has to say about his initials.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    A bag of apples, a pot of homemade jam, a scribbled note, a bunch of golden flowers, a coloured pebble, a box of seedlings, an empty scent bottle for the children. . . . Who needs diamonds and van-delivered bouquets?  -Pam Brown

  • duckyb1
    duckyb1 Posts: 9,632
    edited April 2015

    Teka, thanks for asking.........she is holding her own.....they have to get her Pheno Meds up to a level of 30.....2 weeks ago she was at 26, and had 2 seizures back to back..............they increased her Pheno, and if she still seizes after that they will put her on Potassium Bromide......

    My daughter is almost nuts and so is her husband........prisoners in their own home because they are afraid to leave her........if she "cluster seizes"..........it could be fatal..........so they can't go out for long.........when that happens they give her a Pheno Suppository to stop it from becoming Gran Mal..........she has a Neurologist who is very good.....just has to get her level to where they can have control............

    Thanks agai for asking......this is her a week ago.imageimage

  • blondiex46
    blondiex46 Posts: 2,726
    edited April 2015

    Wow ducky

  • duckyb1
    duckyb1 Posts: 9,632
    edited April 2015

    She is sweet Teka..........and on 13 months old.........it is so sad....I do believe the breeder knew that she had puppies with what could be a problem.......she denied ever having pups or females or males with epilepsy, but I told my daughter I don't believe her...........it is against AKC rules to breed a dog with the condition, but we have to prove it........not that she would never give up Stella

    Paid $2,500 for her, and researched thoroughly.........really sad............

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2015

    I'm so sorry! I remember having to take my Grandma's dog home with me..... Then Grandma had to live in Assisted Living.... I kept "Patty"..... She started having seizures, for some reason! We tried the meds......... but the seizures just kept coming more often.......

    And then with Lacee.... She was only 11, but something went wrong.... tried as long as we could... It just breaks your heart to see your fur babies hurting or not feeling well.... we love them the same as our kids............

    I'm sorry...........

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Ducky, I think even highly responsible breeders can 'sell' dogs that don't ( really don't like thinking about it ) quite come up to par for some reason, but they do have to tell you that they have been 'culled' from the ones that are exhibiting championship qualities.  Not sure how this is done --- but I do think when it is known that some 'defect' is likely to turn up --- the buyer of the animal is asked to sign that they will neuter or spay at the proper time.  Some breeders are better than others -- I too am sorry this has come up.

    Jackie

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    You are a child of the universe, “fearfully and wonderfully made.” In the history
     of creation, there has never been anyone like you.  Accept this reality about
     yourself— that you are a special, unique human being who has a place on this
     earth that no one else can fill.  Acknowledge yourself as a glorious expression of
     your loving Creator.  This healthy self-love will form the foundation of a joyful
     and satisfying life.  Then, as you love and accept yourself, your inner light will
     shine outward to bless and heal your fellow human beings.

     Douglas Bloch


  • duckyb1
    duckyb1 Posts: 9,632
    edited April 2015

    That is a fact.....if you know you have a dog especially with Epilepsy you are suppose to have that dog spayed or neutered,and never use them for breeding........and lets face it.........if she didn't and either the Mother or Father of Stella mated with one of her dogs and it took...............at $2,500 a pup, and they can have 4 or more pups...........................that a lot of cash..............so it could have happened......

    She is the only one who knows who else bought pups from Stella's litter, and I am sure she will not give up that information to my daughter.........my daughter did already tell her "you better contact all the other people who bought pups from Stellla's litter, and tell them what happened to her..........it is the right thing to do.

    Who knows if the Bimbo did......my Nikki is so distraught, and has never followed up, just interested in getting Stella to the right Med level so she can have a normal life..................so all of them can.....it is horrible.....

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2015

    I just found this...... Seems like the younger the dog is, the better her chances are?

    http://www.petmd.com/dog/conditions/neurological/c_dg_epilepsy_idiopathic_genetic#

  • Teacher64
    Teacher64 Posts: 402
    edited April 2015

    Been assisting a friend/neighbor who is now home from having BMX. She's doing well but I've felt sad. I've talked with lots of women since I have been through this but she's the first person I've been close to. I thought I was past the blues

  • wren44
    wren44 Posts: 8,107
    edited April 2015

    Teacher, It is sad that anyone has to go thru this. Somehow it seems easier when it's yourself rather than observing. Sort of like it being easier to be hurt than to watch your children hurt. How nice that you are able to help her. I'm sure it means the world to her.

  • duckyb1
    duckyb1 Posts: 9,632
    edited April 2015

    She has a good chance of doing well if they get her levels up......we're hoping......

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2015

    Morning gals.... Nah Teacher.... things will always remind us of something that has happened, or I think the older we get, the more things hurt us to the core....

    I'm (we) are trying to hold up Theresa, our older neighbor/friend, who is away from her DH... She is in Assisted Living, and he is now in a Nursing Home, in the Hospice section... Sometimes she is alright, but once in awhile she realizes that he is not going to be with her much longer, and she just cries when I talk to her... So we have to be stronger.... and listen, but talk about other things... It's like she wants us to hold her up... tell her things will be alright, and that it is in God's hands, and we can just hold onto life for ourselves.... And then I get off the phone and cry........ It's okay....

    And I still get sad thinking of our dog Lacee... they mean so much to us... but when they are gone, they just live in our hearts, and we can't help but feel lost without them.... And little things remind us of them.....


  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    When I was a girl, my temper often got out of bounds.  But one day when I became angry at a friend over some trivial matter, my mother said to me, "Elizabeth, anyone who angers you conquers you."  -Sister Elizabeth Kenny

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Good Morning -- and it's very pretty here.  I think another warm day for us is in store.  I took my car to the carwash and gave it the heavy-duty -- wheels, un-carriage, double wash and rinse and some spot rinse and wax.  I took out my floor mats -- they are actually fabric bath mats with shag type nap, and they are in the washer.  I need to sweep it thoroughly, then take Armor-all and clean and detail and it will be like new ---or like a 2004 that is fairly clean and neat. 

    Teacher -- I agree with Wren.  It is harder to "watch" someone else's cancer journey.  Thinking back to many of the early months of my own personal journey.....I was very consumed just with getting through it all as well as I could.  I seldom had time to think about a lot of it --- there were some big struggles and part of it was just not knowing.  I think with being close to someone else 'doing' it all now, it would stir up a lot of buried fears and huge areas of discomfort.  Maybe part of the "fear" is wondering if this person's outcome will be as good as we feel our own is -- which certainly eases some of what we went through. 

    Chevy -- it is so very difficult to 'remember' our beloved furry family members.  I certainly would not use the word luck in this case, but I do feel having been and still to a degree, being a "rescuer" and so having LOST a lot of furry loved ones has to that degree, but only that one, made it easier for me.  When ( it does still happen now and then ) I become sad about one of my 'friends' I find comfort in the fact that these companions generally always have far shorter lives than we do.  Also, their yardstick is different --- if we smile, give them little treats and pretty much show them nothing but love they are totally fulfilled.  They generally ask for nothing except some recognition from you and when they have it --- they have a perfect life.  They don't ( other than pain or other disabilities ) fight against the inevitable -- and seem so much more accepting of their leave-taking then we are.  We always want more --- but as long as you show them love -- they have had it all.  They fulfilled their role in their own life and know it --- and so they go to the Bridge where health and sunshine, and frolicking 'become' them once more.  When I think of my 'losses' I usually think of all the ones that are gone playing and enjoying a life once more that had become hopeless and futile while still here.  They graduate back into good health ( just in fact as we do ) and get to play until the day they reunite with us again.  I guess you'd say I'm more ambivalent --- missing them, but seeing them healthy and happy again and waiting for the day I show up. 

    Off to do some more fun things.  Hope you are all going to have a wonderful Saturday.

    Blessings

    Jackie

  • ritajean
    ritajean Posts: 4,042
    edited April 2015

    Hello everyone!

    I have been gone again for a few days because we have been having problems with our internet. I called for assistance earlier in the week and was told that Frontier couldn't get anybody out here until yesterday. Then the technician told me there wasn't anything wrong but he would update my system and that would solve my problem. It was working when he left and an hour later it went out again. I called again and he came back and so far (knock on wood) it is cooperating. How frustrating! I spent the whole day waiting around for him but hopefully it is now fixed.

    It's a beautiful Saturday. We bought a few hosta to put in the shaded area around the trees that we created a few years ago. Most of the original ones are poking through but we had some bare spots and these filled them in very nicely. There's not alot that grows in our yard since the woods shade much of it. I keep looking for colorful shade plants but never seem to have much luck. I can grow some wavy petunias but impatience don't last around here because the deer eat them.

    Anne....hope the surgery went well for you.

    Welcome NCDi....You've found a good site to call "Home!"

    For you readers out there.... I just read an excellent book by Kristin Hannah called The Nightengale. It was one of those books that I just couldn't put down so just wanted to share it with you.

    We are heading to the golf course this afternoon to a welcome golf party for our new club members this year.....golf, potluck, and Bunco. Should be fun!

    I hope everybody has a great weekend!