INSOMNIACS place to talk in the wee hours
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Rose- I am sorry this is so hard with Hospice. I can certainly understand the need to be in an an inpatient setting. I like the idea of the death with dignity option from what you have shared. Being in a peaceful place where you will feel okay and feel it is what is best for the family sounds like something to consider.
I think going on your trip and having some time to sort this out is a good plan. Wishing you peace and good time with family.
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I know this sounds odd wanting not to die at home but. We had a neighbr that sold their home after her DH passed very young from cancer... too hard seeing him in the bedroom dying.. too many memories. I do not want that to happen here, lots of happy memories. So I suppose I could flip flop back and forth between hospice and back in treatment but I can see insurance yanking that rug out. It almost makes more sense to ride it out without hospice to keep your options open. IF you had someone who would treat symptoms.. is this just BS or what??? Soory to be the blues maker... I just didn't expect this. chit!
I am editing this because I do have 2 inpatient options but neither are in this town one is over an hour away.. need to check insurance coverage.. ack. I was talking to a friend and then remembered hospice did tell me about the other inpatient place. Whether it is covered who knows.
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(shyly) No, the 'not wanting to die at home so you don't leave memories too painful for your family to bear' makes absolutely perfect sense to me, though I would not presume to guess at specifics in your case.
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Rosie - The 2 hospices I worked for did not have an "inpatient" unit though one did have hospital use but only saw that infrequently. The 2nd one was just beginning to make some inroads into hospital inpatient. I would say most do not have inpatient and those that do are the bigger national co affiliates. I know of a couple of smaller privately held ones, more of the hospice house type, but I don't think the norm. I'm sorry the local nursing home is nasty. That was going to be one of my questions if they had a NH affiliated with it. Oh I see you've thought of another hospice. Have you let Google be your friend to check out other options?
I perfectly understand your reluctance to die at home. You have a DH and most esp. children who will still live there. Maybe some calls to the Amer. Cancer Society?
This is the Nat'l Hospice and Palliative Care Organization. There is a place to note a "dedicated unit". Also has a handy dandy map for easier locating.
http://www.nhpco.org/find-hospice
I hope you are getting some rest and building memories with your girls. When are you going to Florida?
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Hi ladies I just discovered this thread a few days ago and have been lurking.Rose if you have to travel to impatient hospice Hopewell house in pdx is great I am a cna and worked/lived in pdx untill a few months ago. I wish hospice provided caregivers as part of the service because agencies ( which I work for) are extremely expensive.I've come to respect you as I've caught up on all the posts and I would have been honored to take care of you. Hospice cases were the cases I loved the most. Death with dignity is also an excellent option. I hope your able to find the fit that allows you to pass peacefully and painlessly, and with the least amount of trauma to your family.One day at a time. Hugs
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Oh Rose, this is what I love about you....your sacrificial love. I pray and hope that you won't run into a wall with the insurance regarding the inpatient hospice. I can totally understand about not wanting to die at home. When my time comes and if I have a choice, I would prefer to die in the hospital. Hoping and praying you have the strength to persevere and wisdom to make the right decision. May you find peace. Hug
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Rosie, I wish I had an idea to share for you but it sounds like you've got a few ideas to start the creative ball rolling. I can empathize with not wanting to be at home since two of my aunts chose that route. For me, and especially my cousins, their homes were never the same. Hugs.
Chevy--I had a similar experience when I was in the ER for what turned out to be an inner ear infection that caused my first case of vertigo. I don't vomit when I get nauseous but within about 30 to 45 minutes my intestines decide they're feeling left out of the party...so the attendant rolled me down the hallway and left me at the door. Not only did I almost keel over pulling up my pants but I finally made it out only to find out that my driver had bailed on me! I had to hold on to the wall the entire way back the exam room...then I used their wifi network to fire off an angry email to the hospital about the whole mess and let them know what a HUGE liability they were taking on with that kind of treatment.
So now, Owlies, I need some advice and there's a TMI warning...almost all my hair has gone including my pubic hair. I've been taking biotin, mostly for my nails, but I'm also getting a little bit of hair growth though the hairs are very fine and fragile. I've gotten a few ingrown hairs on my head and a couple on my legs but in the last day, two have popped up on, well, the correct term is labia majora: one is a quarter inch left of a very sensitive nerve area and the other is about 1/2" south of that. Mom always said a very hot compress for pimples but obviously that's not going to work and the tea trea oil I tried was a terribly painful idea...any ideas?
And Chevy...I don't think aloe vera is going to cure this one!
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Marla! WTH you doing? I mean THAT'S a new one! Don't tell no-body... we keep this to ourselves... Maybe it will fall out on it's own....
Oh wait......... Maybe call the Fire Department? Tell the Para-medics exactly what the problem is, and you will get every para-medic within 2,000 miles rushing to your home! They won't have a clue what labia majora is....(and neither did I, but I assumed).... So give them the location of where the problem IS, and they are THERE!
Forget the Aloe Vera... Get Jack D. and drink it until submission.
Rosie... Is there any way your Docs, or team or friend can call or notify someone with the State? I mean I know of people who are at their wit's end, and will call a radio or TV station, and explain that you need HELP! It's just ridiculous that you are in this position, with no-where to turn.
I hear what you are saying........ I wonder if BC.ORG has any suggestions? I mean there are women here from all around the world! Maybe someone like Beachbaby? Someone with an idea?
Can that place you went to tell you of any OTHER place they know of? We need a referral, is all! Maybe someone in the Media field, like a newspaper help section? An open letter? We just need to rattle some cages... maybe kick some butt!
Guess this means you aren't coming out here to help me with the Parking area here? Wish I could help you little kiddle! xoxoxo
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Ah, Chevy...I wish I could drink the Jack then I could numb myself and try to perform a hairectomy but with my luck, I'd miss and cause further injury...the other problem I have is that it's in the region of a scar I have from a run in with a barbed wire fence while wearing a pair of running shorts. Remember the running shorts in the 80's? Not a good idea to 1) forget the key to unlock the gate to your dad's property 17 miles out of town because you have to turn on water the avocado trees when he's out of town and 2) get the bright idea to climb through the barbed wire when your legs are jelly from track practice. AND it's my curse in life to always have cute ER docs when I have embarrassing injuries.
And I'd call for medics but the problem is that I know most of them since we have one ambulance service for most of the county. And as an emergency dispatcher, one of the first things we learn is that the medics will cut off your shirt...break your thumb, cut off your shirt....sprain your ankle, cut off your shirt. And if I drove myself to the ER after getting second degree burns to my tatas so that I could avoid that particular ignominy then I sure as heck am not going to call for my hooha--they'd want to cut off my shirt AND my pants.
So I'm hoping the nurses out there have an idea other than Nurse Ratchet's burning hot compress. She also offered to lance them with a needle but I think I'd rather call the medics. But it seriously hurts enough that I can't sleep--every time I move, it's like a knife. Oy!
Speaking of nurses, happy birthday Sassy!
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Happy Bday Sas!
Rose, I wish I could be of more help to you in your situation. I applaud your not wanting to put your family through more pain than they already are going through with them losing you to this crap we call "C".
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🎼 Happy Birthday to you🎶 Happy Birthday to youuuu🎶
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BBL...going back to sleep. Not time for me to wake up yet
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lol
Hate to see what my cake is going to look like in Nov., i'll be 40 (yikes!!!!!!!!!!!!!)
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NEVER use tea tree oil straight. Dilute it with another oil, almond, grape, sesame,
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Another day of 90s here, but it comes with some relief this afternoon in the form of storms! Never thought I'd be so glad to pray for a good thunderboomer to clear the air!
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rose--so sorry this is more complicated than expected. I have no ideas. Insurance is a bitch! Hugs for you!
Spookie--you mentioned crabby bills? I went to high school with the owners son...who may be the owner now, pauly Jenkins. They lived in bat cave nc, near chimney rock. The restaurant they have here is on the river. It may be gone. It's been 20 years since I was there in high school. I ate crocodile for the first time there. I visited your town in college and ate at one of the crabby bill's. I think there are about 6 down there? Anyway, small world
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Flowers from the farmers market yesterday. For my friend, Rosevalley
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jones, is a small world. The family did have several restaurants here, after Bill died most closed. This is the only one I know of now, and may be the original location. Did you mean alligator?
Rose sent a pm last night, was leaving 6 am her time today to go see her mom here in Fl. Guess she won't mind I said that.
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Beachbaby, you came into this world on the beach? Welcome !! Love the beach.
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Happy birthday Sassy!
Some benefits of 65: some prescriptions will cost less, one of mine went from $10 to .80. Now everything is at a senior rate!
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It makes me angry that Rose is dealing with this stuff regarding hospice care, of all things hospice care shouldn't be this complicated!!
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Hope Rosie has internet access on her travels to feel the love we have for her.
Marlana - I would try hot (relative to not burning yourself) shallow bathtub soaks. And even better if you can haul - hmmm - that area under the running water. If none of these are possible get a squeezy bottle, even a well cleaned out ketchup/mayo one, and squirt repeatedly with that hot water. It should finally work itself out. Maybe a bit of pain relief cream - I gather it is mostly external. Not sure if the chemo boards could be of better help. I had years ago a very large pimple (thought it was a Bartholin's cyst - not) and this advice was from my gyn. Of course I was much younger/fitter and did the haul it under the running water bit.
Welcome to our little world Beachbaby. Yup sure wished hospice had a provision for more direct care. Try explaining "continuous care" to a family in distress. They don't hear the short term, intensive, end of life. I worked with so many elderly; I think I had only 3-4 under 65 and they were Medicare/Medicaid except for 1. That 1 did have private insurance that changed during her hospice care and made her switch hospices - not covered. I had more trouble with patients finding our hospice (often thru a good referral) and then not being allowed in that particular facility. Thank goodness I did not do the financials/legals for the 2nd one I worked for. I had a very good biller who could straighten out most stuff.
Tang - see your message. It is much more sticky with private insurance. Not sure what my DH's even pays for. Medicare is easy/peasy.
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Of all places, you managedto hurt your tata and tutu. Marlana, were you a tomboy???? I can tell....my goodness girl!
I hope you diluted the green tea oil with another oil before applying to the sensitive area. For ingrown hairs, I usually try to pull them. The tricky part is to break the skin to get to the hair. I have never had ingrown hair in the garden...well, not that I know of. How can you tell unless it is mowed? Not that exotic (yet). Maybe I should put a warning prior to writing this huh?...but I am speaking in code. Hopefully, no one will be offended. Be careful though because you don't need an infection. Hey, best wishes on your last round.
Good morning everyone
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Hope you have a fantabulous birthday Sassy. Doing something special?
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HAPPY BIRTHDAY SASS!
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oh wait.... it says Konan.... let me try this again.....
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Happy birthday Sassy!
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Cute Jazzy.
Anyone remember the polar vortex doggies? I think I could stand a good dose of snow today. It is blazing hot and still today. Enjoy the video.
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Marlana, I agree with the bathtub soaking. Perhaps a nurse could help if the soaking doesn't work. At my age, I can't even see my hooha. I would definitely need help.
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Afternoon Owlies, Thank you for all the birthday wishes. YAY another one. Happy dance.
Today's topic is hoohas? Think I will take this to another box
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