INSOMNIACS place to talk in the wee hours
Comments
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Always up for good news!!! How exciting, Susan!!
🎼🎶 Rocka my baby on the tree top🎶🎶.,.,......
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Yay Susan. Nothing like grandbabies! Wish mine didn't live 7,000 miles away. They're now 8 and 5. We Skype often so they have never been shy when they come and visit. As soon as they come out of Customs, they run to giveus with the best hugs ever!
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Ms. CHEVY, I think what Ms. Spookie suggested is not a bad idea. Have you tried using pictures to communicate? I am sorry you are mourning her loss of independence and your relationship. Her fiancé sounds like a good man for committing to care for her. And it also sounds like she has a very loving son
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Chevy, your friend is well loved. How many boyfriends would stay around to be there for her and for an exDIL to come and help says so much about the kind of person she is. And to have a friend like you who still visits and is so worried about her. Love, ((((hugs)))) and prayers for all.
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Happy baby, Susan! I've been busier than a pig in a bacon shop. Leaving tomorrow for a few fun days in NYC with my niece, she's my best friend too. I'm going to eat everything in sight and start Dr Phil's 20 day thing when I get home. Have a new Lifetime Fitness being build closeby too.
Later girls....
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Susan,
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Thanks you guys! Yes, Carol is very fortunate to have that much love and care for her...! Margaret, he Xdil is using flash cards with her... but she seems to not be able to get thoughts "out" if she has any.... Yes, they have used an I-pad... and a lap-top, to show her the photo's I send to her on FB... but for her to "think" of something to say and then say it, is just not happening yet..... A thought seems to be with her for a split-second.... and then nothing..........
Sass, if you have any suggestions yet, or a web-site, or even something I can copy and paste to her Son, I could do it.... But since I'm not over there all the time, I don't want them to think I am questioning what they are doing... How could I help when I go over? I've tried everything I know...
She hasn't gotten any worse... in responding, since I first saw her in July at the Rehab center .... But I don't see that she has improved at all, from the first time we visited, either in mobility or speech. Her care-takers are always there for her... and Thank God for her Son.... He moved in with her, and left his home with his grown Son... they live close to her....
She has 2 other Sons, who live out of State, and a Daughter, and Grand-kids, but she hasn't spoken to her Daughter in maybe 40 years... I never asked what happened there.....But they are of no help.....Just her Daughter's Daughter, will come see her once in awhile.
They used up all of her insurance, maybe for the year? That's why she had to leave rehab... But at least she is home, with the ones she knows and loves.... Even the Day-Care providers only work for so long.... and then they leave......So it's up to the family (her Son, DIL, and Fiance)....... And Mike taking her out to plays, and dinners, is something she really enjoys....
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Good morning ladies!
Susan- that is lovely news and thanks for sharing. Glad to hear your DD is feeling well and all is coming along nicely!
Mema- enjoy your trip to NYC. This is great time of the year to visit!
What does DAH stand for? I have a guess......
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YAY SUSAN!!!!
Dumb Ass Husband.
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Spookie- LOL, that is what I thought!
I saw this article in Parade today and although I am not fond of the Pinktober month, I have seen some better things being shared to actually help women who are dealing with a dx, going through treatment, on the other side of it. I did see the clip on the Today Show with Joan Lunden and the tatoo guy. And thank God for BCO too that helps us to keep up on the latest information and connects us to each other (making my donation to them today.....)
I liked what this gal had to say here about looking for the support from your female friends. They have always been my life line, and were during the worst of it a few years back.
http://parade.com/429878/lhochwald/5-things-sandra...
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Them were the days!
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I read that too, was underwhelmed with it. They did speak with the dr who founded BCO, dr Weiss? And that was good.
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Spookie- every article I have read gives me one good take away (not usually more).
For the newbees out there, there are some good articles out there about what you won't be told when you get a cancer dx from people's reactions, to their advice on your treatment, to hearing everyone's cancer stories (ugh), to dealing with people at work. There was a great article I read during my rads treatment I need to find and repost for folks, I do so every year and it is time again!
Sassy- made my donation today to BCO, as want to see this site continue to help all the women it helping through all this crap!
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I'm with you Spookie. Can't say I came away with anything from this article.
We all handle our journeys differently, some of us more privately than others. We have to do what works for us.
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kathindc-
so true. There is no "one path" you do what works for you. Spookie I feel for you and your DD about the boys. Great day in clay class. Kids had so much fun. Heck I had so much fun. DD3 is having a ball with the Halloween Nightmare Factory they put on every year at her school. She is finally able to participate. The make-up is very professional and I was alarmed when I saw her come home! yikes scary ! This is great fun for the kids and a big community/ school fundraiser. Lots of work for everyone though.
Susan how exciting!!! Grandma to be!! May it all go textbook perfect. Long day and I am tired. take care all.
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congrats Susan, it's great to be a grandma the first time. I was a grandma at 39!
This is my gdaughter
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Dang, Ms. Smaarty....when I was 39 my older was only 10. You have a very creative granddaughter. I guess it runs in the family.
Rose, still waiting to see your work of art. How is your friend doing
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Good morning Early Bird(s). Hope your day is beautiful. Ha, I am awake before you.
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Yay Susan -----Sends our congrats to DD and SIL--Awesome
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Jazzy Thanks about the donation.
Invited dsgrl to come and join us
. She posted that she was able to donate to BCO when she purchases through Amazon. She posted it on Pinktober )HAVE A GREAT WEEK EVERYONE:)
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No I was up....Ha! I woke up at 4 a/m.... but no-one was here, so I read & wrote email!
Chicken neighbors are still in Hawaii... She SAID they would be home on Sunday the 23rd, but that is a FRIDAY, so they don't know, I guess.
AND they left a "lunch-box" with lunch-meat in it on the counter, that they forgot.... PLUS his ID! So how they ever manage their lives, AND their Daughters is beyond me! I'm waiting to see if any of my suggestions would HELP them... or if they really can't get 2 brain-cells to rub together to figure out what they are doing.......At least the Chickens and Edith the cat are happy! Those Chickens only lay ONE egg... in a whole DAY! That's between 6 of those lazy girls! Hah! Good thing the stores still sell eggs! Girls......... write this down............. Do not EVER try and raise your own damn Chickens! They are expensive, are very un-tidy, and just don't make good "pets".... Little Ivy, the 6 year old, crawls up into their nesting area.... and that is her "play-house"... I'm not going to say it is dirty, because that isn't nice.... but it is DIRTY! I would give that kid a bath in Clorox when she came down! I would not let her PLAY in their hen-house/coop.... EVER!
Look how cute THIS coop is!
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Good morning ladies- waking up to t-storms this morning. Weather dude says it is going to rain off and on all week. El Ninjo is back and doing it's thang!
Lots to get to today and wishing you all a good week!
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Cute coop
Chevy,rather than learn about all the different aphasias, try and have a chat with XDIL about Carol. Ask what type of Aphasia Carol has. Each has a different way to be managed. The XDIL and DBF would have been taught by the Speech Therapist about Carol's particular problem(s). Ask XDIL how she suggests you talk with Carol based on what she has been taught to do with Carol.
The two easiest aphasias to remember are:
expressive aphasia: patient understands what they hear, but they can't express(say) the words they want.
receptive aphasia:patient doesn't understand the words they hear i.e they hear jibberish ---I say "dog", they hear @^&&$.
1. When visiting talk in a normal tone. People sometimes raise they're voices thinking that will help. It does help with a hearing loss, but doesn't work with aphasia
2. Sit at the same level as Carol within her direct line of sight. Sometimes stroke victims are left with visual disturbances.
3. Talk without being overly animated. We do this with babies and it's a good thing, but with a patient that has a processing problem it's confusing. In being able to see your face she will get some cues as to what you are saying.
4. using tools to communicate appropriate to the type of aphasia. Flashcards, writing instruments, pointing poster, sign language.
Remember when you asked about whether she can think? Remember the story of Helen Keller. Thinking wasn't her problem. Communication was.
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Chevy, speaking of sign language. Depending on Carol's processing problem, maybe sign language could help.
http://www.babysignlanguage.com/
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Yeah, thanks Sass.... They have been using flash cards with her.... Same as in rehab... And yes, I do sit close to Carol, and look right in her eyes, like the rest do... Helen Keller lost her sight and hearing.... Her brain was still intact... Carol can maybe "think".... she just can't communicate.....
Carol can hear very well, with her hearing aids... like I can.... It seems as though she hears what you are saying, but the thought to reply doesn't get to her brain.... it just stops there.... In other words, she "understands"... and enjoys her outings!
She must have expressive aphasia.... because she can answer your question.... or laugh when we say something funny....
Next time I go over, I'll talk to Margaret, without Carol hearing us.... and watch her with the flash cards, and see how she does.... Thanks Sass!
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Hey Owlettes! Our cancer support group is having show and tell tonight. Trying to figure out what I should take but don't want to scare the newbies. Imodium, Gas-X, Prilosec, lemon drops, ginger ale, silvadene, boxes and boxes of gauze pads, eucerin lotion, and an iPad. What say you?
Spookie, my dad used the buckle end of his Navy khakis web belt, my mom used a hairbrush or a long handle wooden spoon, or a ruler, and all six of us managed to survive. You do what you need to do.0 -
Mags- hmm, show and tell. Well, I would share things you found were helpful to you/gave you comfort during treatment. Maybe something you discovered that helped you to get through? Anyone give you something special that helped you? Discover anything to eat you could eat when you are not feeling well? You don't want to scare them, but maybe share the things you might need handy (all those items listed above?)
If I were to share, I would tell people having some good movie channels (I got into HBO during my rads treatment) was really great during all my down time. Netflix is good too! I also found a protein drink at Walgreens I could take in when nothing else worked. As we all know, getting nutrition is difficult during treatment. Maybe a favorite tea or other drink to stay hydrated?
And a friend gave me a beautiful small quilt made by her church for cancer patients. I put it on top of me every night and felt the love of those people who cared to do such a thing. Comfort beyond anything I can even begin to express here.
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Mags, last year about this time, #1 kicked #2 in the head. I went after him. Got tangled up, went down. That's how I got my purple cast. Wrist still bothers me. I totally agree with your parents line of thought. Unfortunatly parents today, don't.
#1 has has his Safety Patrol belt taken away. He was so proud of that. Both will miss the Halloween festivities at their school. Both grounded no electronics. There may be more to come.
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mags, I would bring my dammit doll
don't know if you have one. Mine was sent to me by a fellow cancer friend...after I bangedher around a bit I sent her to another fellow cancer friend. Hope she is making the rounds. If you don't know...it's a cloth doll, tag says beat it against anything while saying dammit 0 -
got Evie's quilt done.
Front and back. I think I'll embroider her name on it.Now I need to decide what to do. Maybe read.
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