INSOMNIACS place to talk in the wee hours
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Happy Do Over Birthday to our own PattyPeppermint
I think these look like fun.
Not a clue what's in these but I bet they could put some pounds back on.
And a nice fruit tray so we all get our Vitamin C today.
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Simplicity get an alo Vera plant cut a piece take the gelatin that comes out and apply that helped me so much .
I bought a small plant and she did very well until one day winter came like it does around here and I completely forgot it out one day and she froze
The natural one is amazing for the rad skin
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Chevy sorry about your friend.
Sending you hugs
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Spooke it's beautiful to there thou. Took the kids camping one night on Shackleford Banks. An island with wild horses
Hardest damn camping trip ever with the biggest reward! Such a gorgeous memory. Thanks E! I'll try that. Didn't even think about an aloe plant. The tightness is really hitting fast. My PT lady gave me a band to do my exercises at home but then says "don't over do it!" Bleh. I really don't want to lose mobility. What about sexy time if I ever have it again? Can you imagine? Lol
Laughter is very needed and welcomed Susan. I can't imagine. I hope you get all the time you and your family need. Hugs.
Luv, right now I'm just using pencils and these fancy 2 ended marker/brushes a friend gave me. Haven't been looking lately thou. Too stressed, tired, busy, etc etc haha Thank you! I have a few Mandala books as well. I'll upload my favorite tomorrow
Thanks Queen! I'll have to look that up.
Luv you're welcome here anytime if you ever pass through for a race, or anything else. I'm not much into racing (you can imagine the looks I get when I give that answer lol). I don't follow but I'll watch or attend a race here and there. I don't have a big place but well fit ya somewhere!
Gotta work night shift tomorrow. Only 12-8, and I've done good all week. I seem to be adjusting back to a normal schedule fairly well but I'm exhausted!! I thought it funny that my PT lady asked if I thought my fatigue was from the rads. Evidently RO's are taking a survey. Hm. Hth am I supposed to know/differentiate what contributes to my fatigue? They don't believe rads causes fatigue
I wonder how many RO's have been through this? Chevy, thanks for joining my update page. Always nice to have people around that understand.
Hope all have a good night! I'm going to try to sleep
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simple, try this but ask your RO first. Some docs don't think twice about their patients getting burned. My friend and her DH went thru rads and swears by this stuff. Calendula gel or cream. Also, yes you can get very fatigued from rads. My dad had them for postrate cancer. Me, never had and chose not to go that route. Love your owl.
I bought 3 adult coloring books but haven't got around to trying them yet. All zen doodles, one all cats.
Patty, if you pop in now, you should go back 3 pages to read all your birthday wishes.
Lover and I had a nice lunch. She introduced me to Thai food. We will have to go back. And it rained while we were eating. Most of you know rain isn't a big deal but I'd love to have nice grass like you do Mags. You've heard of California Gold? Well that's brown hills and lawns! It didn't last long and made my car dirty!
Mags, hope you get your enclosed patio. You'll have a sunroom! And how is painting in oil easier? I can't draw to save my soul. Wish I could.
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But you do lovely quilts!! Would like to ask your opinion on this. The history is my gma made it from flour/sugar sacks. It is hand quilted. Can I machine wash it? Is there any type of pattern you see? Anything else you could pass on?
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One of my co-workers has a degree in counseling, and she just read an article the other day that said that coloring has real relaxation effects.
Simplicity, my nurse practitioner had rads and surgery only for her breast cancer, and she said rads made her tired. Your body is processing a lot, it only makes sense. Don't know why the ROs are so skeptical. Sure it doesn't happen to everybody, but we all recover from other treatments like surgery and chemotherapy differently as well.
Mags, that's a fantastic drawing. A studio sounds like the best Christmas present ever!
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smarty, if you machine wash it I would go to laundromat and do a big machine. But prob would dry clean. Pattern I see is 3 across then move 1 over and 3 acros
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spookie, I can see a 4-patch plus a solid. Don't know if there's a name for that. I agree with Susan, I wouldn't wash it. With 1/4" seams it would probably fall apart if machine wash. Don't know how safe a dry cleaner would be. Ask what they would recommend.
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Wow, nice sketch Mag. Yeah, I wish my grass looks as good as yours.
Simplicity, I almost called you Destiny...brain fart for a few seconds there. Girl, I don't think I could finish coloring the owl before I get a migraine looking at the all patterns going in different directions. Freyfrey did some 3D coloring not too long ago. Talk about Frey, where is she? Had anyone heard from her??
I have heard Calendula Crm helps with radiated skin too. Thank you Ms. Smaarty for the lunch. We need to try different dishes next time. It's always good chatting with you
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Ms. Sas, how is the baclofen treating you? Hope it was a good visit with your doc.
Ms. CHEVY, hugs. Hope you will have a good visit with Ms. Theresa. Make sure you don't take any bugs home with you
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silva dyne is made for burns. It's a very light feeling mousse that you can apply several times a day. It's not heavy or greasy. I think it made a huge difference. The other stuff I tried didn't work as well. Everyone's different. I don't understand why it's not std treatment. You did get burned. I had to push for it.
I also had fatigue. Had to nap daily but rads was the end of my treatments. Other friends that had lx and rads said she was tired too.
I am still tired but I blame the tamox and now arimidex. I think I got more sleep when I had a new born in the house:)
Frey colored with those 3D crayola books. I'm thinking they would make great Christmas gifts and be light for shipping.
LMG - have you ever heard or drank English afternoon tea?
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Morning gals...... Spookie, maybe just soak it in a tub? And squish it with your fingers.... I wouldn't try it in a machine either, unless you fill the washer, I use shampoo..... add the coverlet, agitate it on slow for a minute, then let it set for a couple hours.... then drain the water... let spin for a minute, then fill with rinse water...and just mostly let it soak, but push it around with your hands, then drain, and lift out into a little bucket... then throw it over a clothes-line. If you don't have a clothes-line... go build one.
I have one of my Mom's hand-sewn coverlets, with a "star" pattern.... but in those days they used whatever scraps were left over from all of their sewing... Some of their fabric was so delicate, and flimsy.... and mostly cotton....
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Is this what you gals are talking about? I thought you used crayons........
And then I found THIS! You can click on one, then print, and make your own book!
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Thanks Smarty! I'll check.
Love the pencil drawing Mags!
Spookie, thats a beautiful quilt!
Thanks Zills for clarifying.
Chevy, I use pencils cause it seems easier to fade into another color? Crayons are so waxy...
Must go shower & get ready for the day. That time of the week lmao
I missed somebody. Love to all & hope for a good day for all of us
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So cool that some of you get to see each other & hang out!
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Simplicity - I used after rads a lovely calendula cream from California Baby. Very nice scent and very soothing. Still use it on winter dry itch. It's at health food stores but I bought mine at Target in the baby meds. They're making a smaller size jar as it is a bit pricey esp. for something for babies behinds. My RO specified only a RX cream called Xclair and the lovely greasy Aquaphor during rads time. Towards the end I did have to use Domeboro soaks on my nip owee but only for a short time.
http://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=30d6dc33-e457-466b-9159-d8e7cd791820
This is the best meds site ever. Sassy endorsed lol. This is for the Silvadene cream. Note that it is a sulfa derivative. Good so long as you're not allergic to sulfa drugs.
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Thanks Luv! I'll check it out.
Too much on my brain this morning. I need to write some things down & thenburn the damn thing.
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Zills - I don't know for sure if I've had English Afternoon. I confess I am a tea hoarder and really don't know exactly what I have. Haul me away. I just bought Twinings Ultra Spice Chai - oh my OK so long as I take my Zantac. I'll drink it. Also Celestial Seasonings Lime/Watermelon herbal for next summer. I had not seen that one. If it warms up again which it probably will I'll try it. I have a couple of small bags from the English Tea Store (off Amazon) - Buckingham Palace Garden Party and Ginger. Neither strong enough to suit me. But now that I've found my mesh cup tea infuser I can add more loose tea. I need to find some good loose plain black tea.
Odd. The old Assam tea I have is much stronger than the new stuff I bought. I'd have thought the old stuff would have lost some of it's punch. Same brand - Taylors of Harrogate. But the old stuff is just about gone so onto the new lol.
I have been using a lovely local honey called Nature Nate's. In all the big local stores but not in my little hometown grocery. Very good stuff and I'm not a big honey lover. I splurged on one of the larger sizes but it was good to the bottom of the bottle.
Simplicity - I would be lost without my lists. I think at the moment I have 3 going for different things.
Chevster - do you know anyone who quilts? They might direct you to a reputable cleaners. Otherwise the bathtub soak is what I've heard also.
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We are such a chatty group So funny!. 2 pages over night
Rosie, it's a travesty that the state government, news, or public hasn't challenged the contracting with the insurance company that doesn't follow state law. (shaking my head). You continually amaze me. Taking in such a troublesome dog so that kids that aren't yours wouldn't be sad. Do they come to visit the dog? Your border collie sounds like a treasure.
Mags, nice visit with the neuro doc. Sounds like a keeper for sure. He listened to you. Love that when docs are good at that. They are the type that gets to the root of problems. Your cake for Patty looks oh so delicious. My fav. The dripping frosting hmmmmm. Please, share your recipe. I notice that you do the walnuts differently--more whole than ground. Your pencil drawing is beautiful. Your Dh is a sweetheart for doing all the things he's doing for your happiness. Nice. LOL on the grass and walking in it. In Florida there's lots of reasons NOT to walk in the grass. I miss the feel of lush soft grass. Wouldn't even think of laying in the grass for a nap. Used to love that in the warm sun.
Loverly, It's hard to believe those flowers are real. What is their name? Haven't read far enough to see if you've updated on Mitsy. Hope it's going well. It's funny that so many of us have experiences with couch eating dogs
Pics from lunch with Smarrty?Zills found you
Lilgoats I guess we are both without ears now.
Boris the concrete eating dog--some teeth and digestive system. My neighbors DD's dog ate a glass plate that had brownies on it. Ate the plate. How stupid can the dog be that chews glass. Extensive surgery. Cost the gal about 2500$. 0 -
Spookie does your washing machine have a gentle or delicate cycle? Maybe use that with woolite and line dry like Chevy suggested. My delicate cycle is very gentle. I love old quilts, so very pretty.
Lovgoats- PBS had a documentary on the history of Tea... very interesting show. If they run it again watch it. One of the types I thought sounded so good is the Morracan (sp) way of drinking their mint tea. It's loose mint leaves and green tea steeped and then they pour it from quite a height into glasses. Most drink it sweetened. I bet in that dry arid climate it is extra refreshing.
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Oh my, where to start. For some reason I am just hurting all over this morning. And cold! I NEVER get cold, but here I am with my winter robe and lap rug just listening to the ticking of the clock. I found a neat picture on my laptop, then lost it because I was looking for something else. My photo storage is sooooo messed up. That would probably be a good occupation for me while I'm waiting for my studio. Anyway, it was a photo of when I gave my mom that drawing, all framed, for Christmas, and as she always did on Christmas morning, she had one of those stick-on bows stuck on her head. My mom was such a character, and what a life she had! When she was my age she was a full-time college student, and I can't even drag myself out of my chair. Crap. Well I'll see if I can find it again. What I was looking for was a digital watercolor I did of a French Quarter gate and courtyard, I have it framed and hanging, but I have the digital somewhere for the artist thread. But I never found it. Must be on my desktop Mac that I haven't used in a year.
Simpy, don't use silvadene while you are getting rads, because it can mess with the beam. You'll need a rx for it anyway. They let me use it weekends the last couple weeks. But it is just for the skin damage, not the tightness. My clinic was very strict on what I could use on my skin during tx because some formulations have ingredients that refract a beam. Dove soap, eucerin or aquaphor lotion. There is another, they gave me a small sample. Don't remember, will have to go find it. Still have it in med cupboard. It contained calendula. I also picked up some calendula cream at the health store but didn't like it as well. I had 36 tx, the skin over my scar was pretty nasty by the end, and still brown.
Rose wants out, more later.0 -
Simplicity, I need to explain why I didn't jump in with a recommendation re: skin care with rads. Three areas I won't tread are 1. Lymphedema 2. chemo drugs. Both require serious study. I don't wish to take on either study. 3. Skin care in rads. It's beyond burn care. It's a burn that is continually being burned until rads is over. The use of a wrong product can make the burn worse. I used to teach paramedics. Each year I met with the Burn Specialist prior to her doing the lectures. The question was "What are we teaching this year?" Within the Burn Community, it was a constant evolution of management.
If I were having rads, I would get the info for skin management from the RO's team. I would also seek counsel from the regional burn center to see if they concurred with the recommendations.
Many regional burn centers have outpatient burn care. If it was me, I would schedule an appointment with them to evaluate the burn and write a treatment plan. The short and long term outcomes of burn care management are too important. This may seem radical and overkill, but it's not. It's the safest approach.
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Ok, continuing. Rose didn't want out, the little snert. So I made a cup of coffee and went and got a pain pill. And the stuff I was talking about. It's called miaderm, and it was formulated by a rads doc. My clinic had some but it was pricey. Look for miaderm.com. Oh, and something else. I was warned to not use heat or ice on radiated areas. Of course, all this comes with the standard "Check with your rads doc before trying" caveat.0
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Four pages ago when we were discussing the dogs destroying things, I went looking for a pic I knew I had downloaded, and couldn't find it. It disappeared from whichever device I had it on. So I googled and found it, now I know it's there, and I will share it with you.
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I keep forgetting to mention that Beatmon and I live in the same town! And it's not very big! So... Beatmon, lunch sometime?
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Smarrty, At the Mo's office yesterday. The had a wall mounted quilt. In each square had a quilted ribbon corresponding to the different cancers. It was striking.
Loverly I talked with frenchfrye either two or three weeks ago. Her markers were all down from over 300 . two were within normal limits. One was one point over normal. Considering she had lung, liver and something else mets. she's a walking testament to good oncology care. I'll giver her a call. I didn't try Baclofen again , yet. I want the conditions to be a certain way before I try it. I want to give the drug the best possible chance of working. Mo visit was good. Nothing radical
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Thanks for the advice everyone! They gave me 2 tubes of miaderm and I apply it often. PT gave me a band to exercise with yesterday. My range is good, but I can feel it tightening big time.
What kind of dog Mag? I have 2. A daschund mix and a pit mix. My daschund is older..and well, getting harder to deal with lol
No worries Sas. I am just going to stick with the miaderm.
Mag hate to hear you're hurting this morning
I stay cold too since chemo for some reason. Sleep with a heating pad at the foot of my bed haha Hope the pain eases so you can rest.0 -
Thanks, Simpy. What kind of dog is which? I wasn't sure of your reference. Rose is a Schnoodle, and though she is the dog of my heart, she is a manipulative bitch. I can say that. It cracks my family up when I do. She doesn't like to go on the wet grass because it tickles her tummy when she squats. I'll post her pic.
But first, Sassy, I have a must-see link for you. I saw it on Facebook and said, Sassy has to see this! It's awesome!
What to do with ancient Chinese ceramics
This is Rose. She fancies herself a great huntress.
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