INSOMNIACS place to talk in the wee hours
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Every place has some beauty. My DH and kids have always lived within a days drive of the beach and I doubt they could live far from the ocean. Forests and Mountains are my favorite, a day at the beach is pretty great too. Nice thing about Western Oregon you are 1.5 hours from the beach in most towns and usually 3 hours from snow covered peaks and deep forests.. nice. Those pictures are lovely.
We watched a travel show on Mumbai in India and it was amazing! I can't get over how many people live there and the history.. a whole different world. Beautiful place.
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my DD was born in a 1968 Pontiac S. It had a bench seat which was lucky for both of us. She only took 1-1/2 hours to have her which is why we didn't make it. We did get to the hospital parking lot. A nurse came out and finished delivering her. Her head was already out when we got there. I have fast births. The boys were 3 hours each. I think we inherited this from my grandmother. My mom was born in the toilet! My sister is a little bit slower then I am. My daughter goes 4-6 hours when she had hers. No one has a baby under 8 lbs in my family. I'm curious to see if my granddaughter has inherited this. My niece didn't. Her first took 24 hours.
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Oh, Sistahs - it's me - just checking in to say hi....
So many familiar names and so many new ones. This past September I hit my four-year Cancerversary, and am happy to say that I finally hit that milestone so many newbies hope for: that my BC experience was a bump in the road in my rear-view mirror. My five year anniversary will be next year.
These days, though, they are paying more attention to my BRAIN instead of my BOOBS... apparently my TBI last year knocked something loose and now I can't STOP sleeping. Well, the Neuro dx'd "Diffuse Axonal Tears" since I hit the back of my head and tore the axons....
I went through months of hellish insomnia, and now I sleep all night, can't wake up in the morning, nap in the afternoon, fall asleep after dinner, and go back to bed and sleep all night. I am saving on laundry bills since I see no reason to get dressed if my only activity is napping.
Even after numerous home tests and local outpatient tests, AND treatment with APAP and Oxygen, the Neurologist and the Pulmonologist decided I needed THE BIG GUNS, since nothing was helping. Yep - to them, I'm THAT patient!
So in September I did an inpatient sleep study at a Kaiser in the Bay Area (sucked), then last weekend, we made the six-hour round trip again for a second study (slightly different), and then next month we go up for a more advanced two-day inpatient study.
I'll do the usual polysomnography overnight, then they'll wake me up the next morning, and I'll keep my jammies on, with all my electrodes attached to my scalp, face, neck, body, arms, and legs.... and I'll be free to walk around, watch TV, use the computer, play games, AND (like I would even DO this) go to the hospital cafeteria. If not, they'll bring me food.
Then every two hours they'll tell me to go back to my room, turn out the lights, and see if I can take a nap. HAH!!! They'll wake me up after 30 minutes. I'll be discharged the evening of the second day.
SO - I know I have missed thousands of pages and a gazillion posts, and I hope y'all are doing well. I miss everyone here, but found that trying to keep up after my head injury was too stressful and confusing. I'm way better now, so hope to check in occasionally to see how everyone is doing.
xoxoxoxoxo
p.s. Not to brag or anything, but it was SO COLD here the other day, I had to wear a long-sleeved shirt!!!! LOL
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Blessings Happy to see you. You sound so much better than when you last posted. You likely will be immortalized in a "Paper". If they decide you are so unusual that you are a new syndrome insist they put your name on it versus their names. What you have been through is awful. If you need us to come to a jammie party to help just hootie hoo and we will be there. Missed you. HUgs
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Cubbie "pop those tags". Ah-hah a real shopper. Transitional clothing from a thrift is such a good idea. I don't like shopping for regular clothes and thrifting clothes is beyond me too. It's a wonder I ever have anything to wear. Spookie's right, we thrift when I'm over there. She drives and waits in the car while I make a run in. Unusual when I don't find something. My core thing that I look for is glass. How's the anxiety? Insomnia?
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Blessings- good to hear from you and congrats on passing year #4 (I just passed year #3 myself). I hope the sleep studies will help you to find better balance with awake vs. sleep. I have been awake since 2:30 a.m. this morning (sigh).
Also, my sister lives in CA and also said it has been very cold out there. Keep warm!
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Morning Glories!
Smarty.... I know, right? But this little house is little, and no room to put it in the house.... I could put it upstairs, but it is REALLY heavy, and then I'd have to go up the steps more than I do now, so I'll just leave it out there, covered up, and can ride it in the sun... But okay.... I'll move it over to a sunny place...Then just take the tarp off and get on that expensive clothes rack...
Hope Nick will be better! WAIT! DD was born in a CAR? So was that where she was conceived? I've HEARD of fast births, but not mine... both of them took YEARS! It seemed like.... That would be so scary!
Morning Kath! I've seen beautiful photo's of Japan AND Canada in the Winter... I can see them everyday from where we live, and anywhere we drive... The "foot-hills" are covered with snow, but we can see the high-peaks above them.... And when the sun reflects, and the clouds are in a blue sky, it is like heaven! We just don't go up there much...Not in the Winter anyway....
Beautiful photo's Loverly! And the Aspen framing the Grand Teton picture is gorgeous...
Cubbie, they ARE gorgeous...Where do you live? Are you in the middle of somewhere?
Yes Rosie, every place DOES have some beauty... Except maybe here, when all the leaves are gone, AND the plants, and the trees look sad, and the ground is frozen... and even the ditch is barren... And I miss the sounds of all the birds, and Raccoons and wind blowing through the leaves. I hardly ever even go out on the North side of our house in the Winter... where my one "garden" is....... I just look through the windows....
But it's home.... We were born here... and I think the change of seasons gives us a break.... Ha! I love going to Orlando though! And seeing the beaches.... just sitting there. We used to go fishing a lot, and sitting by the streams and lakes in the Mountains was really gorgeous!
And so here is BLESSINGS! Who's watching the dogs while you are gone? Are you doing a little better now? CONGRATULATIONS ON THE ANNIVERSARY! Now if we could just get your little brain hitting on all 8 cylinders we will be in business.
We think of you, and just glad you can post once in awhile... So they will treat you like a Diva? And bring you meals? I opt for that... Don't go wandering around with those see-through gowns on, with the back all untied, traipsing down the halls..........
Which reminds me.... When Theresa called last night I asked her how her "neighbor" Betty was... (across the hall)... She saw her standing in her door-way, without her pants on.... She asked Theresa where she was going, and she said "back to my room" and she asked her "is it dinnertime yet?" And Theresa said "no, and you better go put some pants on before you go down there".....
And she said "okay"......She gets a lot of help, because the staff takes her back and forth for her meals... but she can't remember to put her pants on! Theresa is surprised she is still THERE, and not in the "memory care" part...
But Theresa is doing GREAT! I can't believe the turnaround.... Maybe when they gave her 2 pints of blood for her Anemia, she somehow contracted that UTI which almost killed her? Anyway they changed Doctors, and hopefully she won't get knocked down like that again.... MAN, I thought she was a goner there for awhile. Judy & Steve are taking her up to their place in Indian Hills for Thanksgiving with all the family.
When she calls me every night, it just makes my heart sing...! We laugh and just act silly... I'll have to tell her "don't forget your pants."
Sass, I still don't know what you guys are talking about...."pop those tags" and "she drives and waits in the car and you run in????"
What ARE you doing? Holding up the place? Are you Thelma and Louise or something?
Did you see that Jazzy? And you don't bring it up? Are you in this WITH her and who-ever?
You guys are COLD? You don't know cold....... But I remember visiting my folks and going to Fisherman's Wharf... It was ALWAYS cool there! One time I was there with my Brother, and I somehow was given a Black Mustang convertible rental car! I even knew how to make the lid go up and down! Well KENNY would ONLY drive with it up! Probably 40 degrees out, and us going across the SFOBB with the top up! And he had the HEATER ON! We laughed so hard! I had to carry a comb/brush every time we were together! I needed a motorcycle helmet....
So that's all folks.... Have a nice happy Sunday! xoxo
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At 5'3", I was an inch taller than my mother and I felt so tall! I could reach things on the kitchen shelves for her. Then I married my 6' hubby.... My daughter is 5'8", my son is 6'1". When we installed ceiling fans, hubby set the chains so I could reach them - they bonk my son on the head. In my mind, I'm still tall though.
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smarty now thats a good baby story.
Chevy. Normal does not come in mind when I think of you. But who cares. We love you just the way you are.
Blessings. Hi
So I guess it's true a lot of us are shorties. I thought I was short at 5 1 but it looks like some of you are shorter than me.
I am having another great day. Last night we all went out to eat and then walk it off by hitting a couple stores to browse in. Feels so great to be alive! We are trying to enjoy every minute of me feeling good. I've got some white beans and ham in the crock pot and I'll throw in some corn bread later will have supper. I need to get me some good recipes for the crockpot. It is so much easier to do than cooking when I feel terrible. And the food can be better for us than all those frozen meals I've been preparing since I've been sick. Anybody have any delicious crockpot recipes that like to share?
Hugs all around.
Hootie hoo
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Chevy, My poor BIL had hepatitis C, which eventually killed him. At one point, it was affecting his brain. He couldn't remember how to put his pants on. Had both feet in one side and had already put his shoes on. Sad because he was a really smart guy.
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I think as far as "Betty" goes, she is alright, just has Dementia.... My DD Janie went to school with HER Daughter... Ironic isn't it.... But she is just getting cranky, and only does what she wants to do.... and will snap back at you if she feels like it....
She just gets confused about dressing I guess.... And going to her room, or where she is..... etc.
When my Grandma's dementia got bad, she would put on 2 dresses.... It's just such a heart-breaking disease.... I GUESS it's a "disease".....
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Chevy, mine were all "normal" conceptions. My sister had 1 conceived above my dads head when he was driving in a rv. I have one grandson who is a Disney souvenir.
My MIL will be moving into assisted living soon, we haven't told her yet and she's not getting to decide this time. She's really starting to get bad with the memory loss. She thinks she just fine. I hope I don't go that way. So far my moms mental state is hanging in there.
Hi blessings. Nice to hear from you. Don't they have sleep centers in S CA?
Patty, don't cook much in a crock pot, sorry
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Man,a that's tough.... But the AL where Theresa lives... wait.... this is where she lives...
http://www.sanmarinoretirement.com/
I think it is very expensive, but they are renting her home, plus getting her Husbands SS.... and maybe his Pension? But it's about $3,000 a month... I know it's better than a nursing home.... don't know how much they are anymore.... AND she is getting more care, more PT, and more help learning how to take care, of herself, like dressing, etc.....
She LOVES it there.... But she knows what's going on.... She was brokenhearted, of course when they all decided that living alone would not be happening.... but she got used to it fast......
Matt & Janie came by, and had our toilet innards in working order in about 15 minutes! I was so HAPPY! New handle also!....
Our whole bathroom was added onto this house probably in the 40's...... Before that, since the house was built in 1886, they all had out-houses.... But we are lucky no more has gone wrong in there than it has! The old galvanized tub is sealed in the concrete floor, along with the toilet.... Problems under the tub a couple years ago, but we had someone come out to fix that! See, the pipe under the tub broke apart, and we found out when water would be right outside the bathroom wall! THAT was a PITA! We had to knock out part of the lower wall, to get under the tub drain! And THEN put it all back together after it was fixed! But we DID it.
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Ms CHEVY, I was going to ask, but saw your post
We are blessed to have flushing toilet, handle or not. I remember having to use this growing up.
Squat toilet. To get rid of the waste, you need to scoop water and pour it into the toilet. You may ask how do you use a squat toilet...
You squat. I wonder how many people who try to use the "western" toilet do it like the example on the right.
Ok,enough gross tutorial from me for the day.
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Checking in
Hey chevy
Patty miss u, u sound awesome, makes me smile
Blessings glad to see u
Miss u guys mostly lurking
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You likely will be immortalized in a "Paper". If they decide you are so unusual that you are a new syndrome insist they put your name on it versus their names.
Ms. Sas, your quote to Blessing is hilarious. Why is it that the one who discovered a disease always used his/her name?
Blessing, hopefully, they can figure out a way to help you with the possible narcolepsy.
Patty, don't have any crock pot recipe, but I have tried making minestrone or lentil soup in a crock pot before.
Cubbie, I looked up tag popping....naughty, naughty you.
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Oh, hi Ms. BLONDIE.
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Smaarty, that's good news about Nick. I can't imagine how he is managing right now.
Blessings, I've never heard of a sleep study like that. Sounds like it will be a strange experience, hanging around the hospital taking a nap every two hours. More like a nap study!
Sas, I usually hate clothes shopping, but I actually like shopping the thrift stores. Since people donate clothes from different eras, it's not the same old styles over and over again in every store, like at the mall. I saw a shiny shirt in a gold print that I almost bought a month or so ago but it was a little too small for me. It just needed a vest or something like that to go with it. I was thinking, "Hello, the 70's called and they want your shirt back!" And I'd respond, "Tell them I'm not done using it yet!"
Anxiety is still a problem - I have good days and bad. I'm waiting to hear the tumor board's recommendation tomorrow, can't imagine why that would make me anxious!
My biggest problem with insomnia is that I wake up after 4 or 5 hours and can't get back to sleep.Chevy, I am in the middle of nowhere! Hicks from the sticks, as the saying goes. Glad to hear Theresa is doing so well, and she gets to take a trip out for Thanksgiving.
Patty, beans and ham and corn bread...sounds good. I love cornbread, sometimes I used to make a half or quarter recipe and just have cornbread with jelly instead of toast for breakfast. Never have had a crockpot, but my coworkers keep telling me I should get one.
Hi, Blondie!
Loverly, I swear I'm not doing any naughty form of popping tags - just shopping! I guess it can mean swapping price tags, but it also just means buying, at least as far as I know. I'm not "hip" with the "jive". Where did you grow up that you had a squat toilet? Usually those are an asian thing.
It looks like the Thanksgiving standoff may finally have ended. One of my relatives has agreed to cook the turkey. I really thought it wouldn't happen, and was pricing those family size frozen lasagnas at the grocery store this afternoon.
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pepper Pat I like to do beef stew in my crock pot. When we lived up north I could get what was called cottage ham, and would put green beans in with. Florida stores never heard of this, so a pork butt is almost as good. Go on line and look around for what sounds good.
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Cubbie, I KNEW you wouldn't do such thing. The Urban Dictionary gives awful definition to even an " innocent" word or phrase. I'm clueless to a lot of idioms.
I grew up in Viet Nam. Most Asian countries I have been to still have squat toilets.
We just dropped Mitzy off at the dog boarding. I didn't think it would be hard. It's like dropping my kids off at pre-school She looked terrified
We miss her (already)walking around in the house with her tail constantly wagging and the happy howl she makes when one of us come home. We are leaving early tomorrow for Hawaii for 8 days. Really hope this time away from us will not set her back. 0 -
I remember going to a picnic and some one made corn bread with a can of creamed corn in it and molassas. Holy cow was that ever moist and delicious. So that's how we make it now. I make lots of stuff in the crock pot, most vegetarian. Hit the internet for recipes Patty.
Loveroflife- I had to laugh when I saw your photo of the "toliet." When we took the train from Hanoi to Siagon we were on the train for 2 days. I just about died when I went to the bathroom and found a pole to hold on to and a hole open to the tracks below. There was sink to wash your hands with spritz of water. There was little spatters of pee and poo every where. All that mess got tracked back through the train and down the cars. (the cars were all open to the air, hot and humid, sleep on the bunks seat down and one above.) I thought then, now I understand why we got all those shots before coming here. I swear it was just a place for hepatitis to spread.. can't imagine how any Mom taking a child in the bathroom could hold onto the kid.. pee /poo and not fall over. The train was rocking and rolling and all the waste went untreated right onto the tracks. This was 1994.
Out in the villages those little concrete pads with an opening were everywhere.. squat and go. They say it's easier on your gut and a more natural way to evacuate bowels. The other image I will never forget is of little kids 2-3 years old with their pants open at the crotch. They had a shirt on and then the pants had no seat/crotch... open so the kids could just squat and pee/poo right in the gutters. Which in the rural villages ran open sewage right in the gutters along the side walk. It's a whole different world.
The other thing about that train ride. They charged the Westerners 300.00 for 2 tickets for the train ride and meals. The Vietnamese paid probably less than a 1/3 of that. Well they made the meals and served them in huge plastic buckets with a laddle and plates. Then we watched them wash the buckets in the river. The animals and water buffalo just upstream. I told DH no way I am eating anything on this train. We brought bread, peel type fruit, water bottles sealed and super processed French cheese in squares that didn't need to kept cold. On day 2 I broke down and drank coffee and condensed milk on the train.DH was like "you are going to die." I told him the coffee was to strong for anything to live in it and I think I will chance it. True coffee addict! It was delicious and no diarrhea or issue! The other Mom and Dad and son sharing our car couldn't believe we wouldn't eat the rice and chicken and food. I am like not worth it..
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Loverly, poor Mitzy. She will be so happy to see you when you get home, though. She will see that you always come back. Wow, Thanksgiving in Hawaii! I'm sure if you have turkey, it will come with pineapple!
Rose, my niece went to Peru several years ago and ran into the "one charge for the locals, bigger charge for the tourists" thing. Her friend was a local, and when they took a cab, they got charged the "tourist rate" because she was along, and could never pass for a local with her blue eyes. Her friend was mad at the cabbie, saying "I live here! You don't charge me this much when I don't have a visitor along!"
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Good evening ladies!
I am watching the American Music Awards and do marvel how few of the musicians I know. I guess I must be old, LOL!
Loveroflife- I took a trip through the middle east in the late 1980s and we took a bus from Israel over to Cairo for many hours with NO BATHROOM on the bus! I made the driver stop somewhere so I could pee (there is no way I could hold it for 8 hours, just riddick). The bathroom was basically a hole in the floor. I remember how shocked I was and will say I had no idea how to hit that spot either! It was my first time seeing what many people have for facilities in other parts of the world. Whenever I come back to the US after being overseas, I am SO grateful for the plumbing here!
Hi Blondie! Hope you had good day! Turkey time coming soon!
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Oh WOW! BLONDIE!!!!!!! Where have you been miss missy? It's okay if you lurk... just pop in to say hi once in awhile...........
Did you see miss Loverly talking about those.....um......... squatting things???? I mean I am lucky to be able to SIT...Ha! But climb up on top? Ain't no way in h*ll could I do that.
You have to be an acrobat to do things like that....
Anyway, how are you doing? We make so many friends on here, but sometimes we accidentally lose track of them...
And did you SEE, there is a THREAD named after you??? You must go see it...People talk to you all the time...
Hey Cubbie! Fun post! You are from "nowhere" in the middle of "somewhere' Hah! Just don't pay no attention to them on the tumor board... they don't know nothin'..... All you gotta worry about is today... Not even tomorrow.... except you should worry a little about getting some Thanksgiving Turkey...
I remember working for Pepsi on the week-ends, handing out samples of Pepsi, and trying to sell it... Well this one Thanksgiving, I was working in a store, in a really poor older part of town.... And I would see these poor people getting a frozen turkey dinner for themselves... It just would break your heart..... and one time I saw an old pair of shoes by a flip flop display.... So someone must have traded their old shoes for a pair of new ones...
Another time, it was raining, and I would see people with plastic bags on their shoes, held on with rubber-bands.... Sometimes we just don't realize how fortunate we really are....
You guys.......... WHAT ARE POPPING TAGS? Do you mean switching tags from one thing to another? You BAD girls! Do I have to come over there?
Okay, get this....... My moron BIL said that when he does self check-out... He looks up the picture... like the cheaper cabbage, and he doesn't click the RIGHT picture like Savoy cabbage .... which is HIGHER! Same with that "Belgian Endive".... He looks up head-lettuce! And only charges himself the lesser amount! I think that is so CHEAP! And I told him so! You know, we could save MILLIONS if we were all a tight-a$ like him!
He and his equally moronic wife are in Laughlin NV right now.... probably with the money he saves on CABBAGE!
Loverly... Can you learn to groom her yourself? I did that one with Lacee, and I almost cried when I saw that look on her face. I was watching through the window, hiding behind a display... I promised her I would not do that again.....
So I learned how to do it myself... I would fill the baby-pool with water, (on the picnic table) and when the sun heat it up, put her in it, and she loved that! Then brushed and trimmed her.... and THAT was a job, because of all her fur and long hair... Even her nails... and she was most gorgeous! In the Winter, she got the tub...
Morning Rosie... That IS the best corn-bread recipe! Such an interesting story about your adventures... I read about things like this in some of the books... Have you read Memoirs of a Geisha? Those poor people don't know any difference, you know?
I remember my Dad telling me how the Geisha houses in Japan didn't have restrooms... But you didn't want to look out the windows... that's where everybody WENT! Oh Good Lord !!! The main question should have been "What were you doing in a Geisha house?" He told me stuff after Mom passed away.... Dad was sent to Hiroshima 2 days after the bombing... to help clean the streets with push-brooms....
Anyway, I love reading what you guys went through.... like reading parts of a book!
Jazzy! I just have to say, I watched the opening number from the AMA's... I was just plain disgusted with that whole routine! I mean anything GOES anymore! And Jennifer Lopez, is a great talent, but she was nothing but a skanky tramp on that stage! All that grinding and whateverthehell they were doing is really not necessary! Just a rotten low-down raunchy excuse of an opening number.... Nothing usually surprises me, but THAT number ranks right down there at the bottom. And no, I don't know none of that music either... those people aren't normal.... I think the only normal one was Taylor Swift... did she perform?
Okay, have I complained enough this morning? Ha! Talk to you later...
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Rose, I was in China in 93, and I saw the same thing with the kids. The crotchless pants. It was quite different. And yes, squat toilets everywhere. Thankfully my legs are strong enough to do that. One communal bathroom where the partitions were only waist high, and a trough that you squatted over,, and you could see everyone's waste floating by. And when I was in Southern France in the 80's there were squat toilets in some of the old buildings. Footprints in the tile work, so you know where to place your feet.
Squatting on a rocking, rolling train,,, that is,, OMG!!!
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Well, that cinches it, I'm never leaving the country. Read about India, one of the things the President of india said he was going to do was make a toilet for each family or maybe it was each village. The problem was the people wouldn't USE the toilets. They preferred going in the fields. No wonder everyone wants to move here. The land of the free, the home of the brave, and sanitary indoor toilets.
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I remember the first time I had to use a squat toilet. I was so worried that I would go down into it. It wasn't bad and there is something positive to that concept. Must say that the ones I used did flush so you weren't exposed to any waste. One a funny note to the first time, one of my DDs had to use the bathroom at the same time. We were in a busy train station and I believe we were the only Westerners in there. All of a sudden I heard my daughter's camera. Yup, see took a picture of it!
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Holy cow! The trouble y'all get into when I'm not around! Where to even begin! Blessings, I'm having a pj day with you, second in 3 days. Yesterday I did 3 things. Went to early church, then DH and I went to PetSmart for dog food and then to our favorite Mexican restaurant for lunch. I'm still flat on my back for that little bit. And had to have a pain pill to do it at all. We have our cancer support group tonight so I will get up and have a pain pill and a shower for that. Wish some doctor cared enough to find out what is causing this. I'm just useless as I am.
When I was little, we spent three years in Japan (it was Occupied Japan at the time) so those squatters were common. We had a Japanese house that had been modified to have a gravity flush toilet (the kind with the tank up on the wall). Otherwise it was unchanged: rice mat (tatami) floors, hibachis for cooking, futons for sleeping, and sitting on the floor at a low lacquered table to eat. The bathtub was a 3'x3'3' tiled box attached to an outer wall, and next to it, the floor sloped slightly to a drain hole on the wall. You scrubbed down first and rinsed off before you got in the tub to soak. It was heated by a fire built outside on the wall. The house even had a name: Minnenosakacho. We had a housekeeper/cook/nanny named Kiyoko-San who took care of me.
Oh, Chevy, I loved Memoirs of a Geisha! It made me feel like I was there. I could almost smell it, Japan had its own smell. Your dad was lucky he got out of the geisha house though. When we went there, my dad had been there for 6 months, and had gotten mixed up with an 18 year old geisha. Her mammasan (not her mother, her pimp basically) came to our house and told my mom she needed to tell her husband to leave the girl. Guess she was losing money. So he came back, and I eventually had two more sisters.
Oh, and if you're interested in trying the squatter style, look for a YouTube video on a new device called The Squatter. I highly recommend the video, even if you're not interested, it's a hoot.
Sassy, you know I used to thrift but I had to stop when I ran out of room and DH wouldn't buy another curio to put things in. Mine are packed like jigsaw puzzles. Not an inch of space to spare.
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Also look for the "squattie potty" that is a plastic stool type thing,, where you put your feet when you are on the toilet to poop. Raises your knees above the level of your hips. They are at Amazon, and Bed, Bath and Beyond. My PCP recommended it cuz it puts your body in the natural position for pooping,, and for those of us with "issues",,, it really seems to help.
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https://www.youtube.com/watch?v=R9rLvxSOZnw
