INSOMNIACS place to talk in the wee hours

JunieB ~ Marti is a good girl....she does have her naughty side though So relieved for you that the infection was "contained" . Six weeks of antibiotics is a loooong time ~ ain't no bug-a-boos gonna be able to get you! FFH had a total knee replacement 4 years ago. It was weeks before he was able to move about on his own. And he is a tough-guy. You are a Super Woman! (raising my arms and cheering!) Unbelievable that your bags are packed but you don't know where you're going. Home or SNF I hope you will have all the help you need to stay comfy and safe. (((hugs & more hugs)))

Wish I could send you this care package to snuggy and make you laugh while you heal

Jazzy ~ Thank you for posting about Orlando. My heart has been so heavy since reading the news yesterday morning. I thought about, but didn't post anything then. Sunday was a day that already had enough worries. (sigh)

The media will turn this tragedy into a circus. The public will be outraged, rightly so, but not for the right reasons. No matter what your faith, political party or personal opinions we must not loose sight of what is important.

It is not important who you love. It is the ability to love that matters most. Each human-being existing on this planet is a unique individual. We are all different yet we are all the same. We are all the same species living on the same Earth. We don't have to "like" everyone. We do need to love everyone. Because we are all one.

Prayers for all.

she is so darn cute. This was last month and yes the chicks belong to my dd.

I just found out that DGD with family (Evie) are planning to move to Colorado in the next month or so. They all just visited there with family and now want to live there. So maybe next year a trip to Colorado. Never been there.

Baby Evie + Baby Chickies = Cutest Baby Picture Ever

Smaarty ~ Hope the move takes a loooong time and that you will be able to have many happy visits wherever they settle. Colorado must be a beautiful place - DSS was tempted to relocate after staying for a business trip. He was there in the winter with all that snow and coldness. He loved it! And this is a kid who has only known sunny, warm beach life. He'd have to trade his surfboard for a snowboard! Now he's looking at Texas...... Oh these young people and their insistence on growing up.....and away

Myra ~ Hey there! I like juice. I don't like coffee - no matter how ya "take" it ! Congrats on the gym workouts, you are very dedicated! You are sooo right. This isn't a thread; it's a lifeline

FeelingFeline ~ Good Morning! Or is it afternoon for you? Is Ireland 5 hours ahead of US eastern time? I think I'm 5 hours behind no matter where I am!

JunieB ~ Hope you are nestled down in a comfy spot, feeling fine, wherever you are. Found this just for you!

Hello Ladies!

JunieB, thinking about you and hoping that they will be able to place you in a good SNF so you can concentrate on healing. Wow, Cipro for a few weeks? Did doc mention the possibility of weakened tendons/joint?

Currently at dental clinic. Waiting for local anesthetic to kick in. Nasty bitter taste in mouth. Feels like my cheek is swollen. Need crown replacement. BOO!! Double yuck!! Stressssss

BBL

Still waiting. $700+ bill waiting for me afterwards

Awww Ms. Sas, don't be so hard on yourself.

What happened at Pulse was pure evil. I can't understand the twisted mind of the killer. What's even more sad is the comments made by people praising the killer and justifying his action. Self righteous hypocrites!

And to find out the killer's ex-wife knew what was going on and said nothing!! She said she heard him talking about doing something and that he checked out Pulse ahead of time and she even went with him to get ammo?!?! She needs to be put on trial and put away for life! Of course I'm just going off what was reported on the Today show!! But stillWTF?!?!

I also want to send prayers and hugs to all the family members for their loss. My heart truly aches for them all!

Also sending healing thoughts and prayers to the Family of the 2 year old boy playing on the beach at Disney that was dragged off by an alligator! Reports say his father tried to fight off the alligator to rescue his son. My heart breaks for All!

Dear Lord, I pray that You hold all of the Families involved in the newest tragedies in Your loving arms and surround them with Your healing hands. In the wonderful name of Jesus I pray. 🙏🙏🙏🙏

Loverly, I'm trying to keep busy and not think about it to much. I've been trying to catch up on mowing 3 acres of yard without getting caught in the rain. The past 2 days I've gotten rained but playing in the rain has been ok too! lol

Hello Ladies!

After much, much PIA confusion/miscommunication I made it to the SNF. Same one I was at in 2013.

Despite the first case manager saying what she did in regards to how far I'd walked, they finally came to their senses once they took into consideration my co-morbidities and weakness on my left side from my hip reconstruction for the chondrsarcoma, living alone, etc.

Also, in mid-afternoon Monday, the infectious disease doctors said I would be on the Cipro. Then at 5:00 p.m. I was told that I wouldn't be using the Cipro.

Their thoughts were that since the bacteria only grew on one of the 7 specimens, and I have no evidence of an active infection, they determined that taking a wait and see approach would be best at this time. I am glad not to have to take an antibiotic I don't absolutely need. Especially because of the SE' s of tendon problems, etc. As well as the overuse of antibiotics today and drug resistant bugs.

Now on the brighter side! I checked Facebook this evening and found a "friend request" from my half-sister. Yeah!

Smaarty - Very cute pic of Evil & chicks.

Shep - Thanks for the cyber-hug & the precious pics of the little Cairn. Do you know the owner of that gorgeous baby or are they pics you've found on-line?

Feline - Thanks for the encouragement.

Loverly - Ouch! The dentist is never fun and even less so when you get the bill. Hope you're feeling better.

Sas - Do not berate yourself. All of your advice is a blessing, but you aren't supposed to carry so much responsibility for us every minute of they day. During all the confusion at the hospital, I stayed particularly calm, because I am of firm belief that God IS in total control and he does take care of us every second of every day. As you can see all has worked out well and I'm working on headed home from here. Yeah!

Thanks for your concern.

When I got to the SNF yesterday, I got to speak to a young woman who was one of the CNA' s here when I was here before. It had been nearly 3 years since we'd last spoken. Well come to find out, in the last 1.5 years she had been dx with Triple Negative BC. She is 28 years old and has a 3.5 year old son, plus miscarried a pregnancy just before she started chemo. So majorly SUCKS! I told her about these threads, but she's part of a Facebook site for woman with her dx.

Guess that's all for now. Will check back again soon.

Shep-Meeting with MO was just ok.  Trying to process it all right now.  She is recommending 10 years of Tamoxifen, and said I would not be considered a TN.  Without Tamoxifen I have a 10-15% chance of reoccurrence.  With it drops to 5-7%.  I guess I went in blindly and really didn't expect what she recommended.  I'm still trying to do some research and questioned her about the Tamoxifen, because I have read with my NF, it might actually be resistant. I really don't want to take a med, that may not even make a difference. She said she had not heard the information on the NF, and would look into it.  I'm also having a harder time with the 10 years, since my ER+ is only 8%.  She says the current guidelines are even if you are 1%, you are considered ER+.  While I know I should be thankful that I can take the medication, it's had me more tearful than my BMX (maybe it's just the next step of it all).  She also stated that my tumor does qualify to be checked thru the Oncotype test.  But she will only send it if I'm open to the idea of chemo.

Has anyone had the Oncotype test done, and then have their ER/PR score change?  I have a friend on FB who also has NF.  She stated after reading my post that she had heard NF breast cancer is resistant to Tamoxifen and that when she had the Oncotype run, her ER+ changed.

Any thoughts would greatly be appreciated. 

Happy Hump Day everyone.

Sensi - ((hugs)) You've just been through major surgery and now are having to make treatment decisions. More ((hugs)) Being ER+ an estrogen blocker is imperative. If the Tamoxifen doesn't work there are other meds to try. It is worrisome that your MO is not familiar with NF; at least she is going to research it. ER/PR status can change at anytime. I was initially ER+ 93% and PR+ 81%. Two years later I had a "new" lymph node biopsied and it showed I was ER+ 94% and PR- 0%.. I had been on Tamoxifen for the first 2 years. After the new cancerous lymph node popped up I was switched to Femara. I didn't know about the PR status changing until I read in the lab report. My MO never mentioned it - I don't know if it meant anything or not.

I call BS on your MO toying with you about the Oncotype test. She works for you! Tell her you can't make a decision about chemo without being tested and that she needs to get it done! Telling you she'll only do the test "if" is wrong. I hope you can stick some chewed up gum on her chair or somethin' next time you see her.

You'll get better advice from the others. Don't forget the chewing gum though

Sending you thoughts of healing and comfort .........