TRIPLE POSITIVE GROUP
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thank you Deni1661,
I should find more out today. Hoping for good news!
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jrod, not sure who told you you would lose weight from breast cancer...it is usually the opposite. Believe it or not most women gain weight during treatment...
Sorry about your diagnosis.....I found this board very helpful. However, pls remember that not everyone is equal and often those with problems post and those whose treatment went well stay off the boards...so don't think that recurrence or all side effects will happen to you. Stay positive!!
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Today is my last radiation. Lumpectomy, chemo and now rads done. Herceptin for the rest of the year and starting tamoxifen soon. (MO told me to wait until rads were done). I'm very thankful to have found the lump and having a plan that got me to this point, thinking positively about the future. I'm looking forward to getting my life back on track and moving forward.
To anyone struggling with their diagnosis...no, cancer and treatment isn't fun or anything we wanted to have to do, but medicine has come so far that we CAN be treated. Our outcomes are much better than they were 20 years ago, and I hope 10-20 years from now they are even better for others. I'm going to hold on to the fact that my pathology being what it is, I have a good shot at being around 30 years from now.
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Shelabela - any word yet? I'm curious that I read IIIB in your signature...how come you were put there? Was it in your chest wall? I hope the other points are cystic for you and thanks for the updates. Thinking of you.
Jrod - Welcome and not welcome (i.e. it stinks to be here, but since you have no choice with your dx, I'm glad you are here.). You clearly have a strong sense of humour which I didn't have within me when I started out. Your humour will take you places for sure. The day I was being biopsied last June, a woman my age was in the waiting room and noticed how ill and upset I looked. She came right up to me like a force of nature, handed me a Kleenex box and says "I was in your shoes 20 years ago and I'm back now. I said 'bring it on; I'll take ya' then and now I'm going to kick its axx again". We are all different in how we handle, and all ways are ok. And I find this a very good support group and everyone is so willing to share information and support.
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poseygirl, still trying to figure out all this. No nothing in my chest wall, I have 4 spots in my left breast, plus multiple lymph nodes, main lump was 4 1/2 x 4. Maybe size and other lumps put my in that stage.
So my Onco called. The spot by my nipple was there before I was just not told how close to the skin it was. The thickening of skin is from cells changing
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suburbs, I hear you about the implants - my thoughts exactly. All of the reconstruction options were confusing and alarming....I went with DIEP because my PS said that was the "safest" option. Still not jumping for joy but had to make peace with my decision. Surgery in 2 weeks so I'm trying to prepare men
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Shelabela- did you get results from biopsy? Is the thickening of skin normal from cells changing? Thinking of you and praying for good news
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Leslie2016 thanks for sharing the good news and encouraging words! I too am grateful for the treatment options compared to just a few years ago. I'm happy everything is going well for you
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Hello All!
Had my surgery yesterday. Official term was "biopsy of the left reconstructed breast."
When I read "reconstructed breast" I thought that sounded strange at first. Then I thought ... look how far I have come on this journey!
My Plastic Surgeon said it was just a cyst and not a suture granuloma. He said it looked fine and not to worry. He did, of course, send it to pathology.
Thanks again for the support, well wishes, and messages.
Coach Vicky
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coachvicky, that's great!
Deni1661, I did get the results. The cells are dead! The thickening is from being attached to the nipple. So close to the skin. Thank you for asking
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shelabela, this sounds like good news. Hurrah. Hope you are feeling better.
Coachvicky, sounds like more good news. Another hurrah!
Leslie2016, congratulations on reaching a milestone. I am wondering what Herceptin only every 3 weeks will be like without the TC and Perjeta. Perhaps like a walk in the park in comparison. Must put this on my research to do list. : )Please keep us posted.
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Suburbs, I've had 2 rounds of herceptin on it's own so far....NO side effects. I was almost dancing going in to the chemo area the first time I was getting herceptin alone, I was so happy that I wasn't there for chemo and knew whatever SE's I did have, it would not be as bad as that docetaxel. Nurse assured me I shouldn't have any SE's (she was right) and said many woman getting herceptin almost use influsion time as "spa" time so to speak...it only takes an hour, but it's downtime...read a book, have a cup of tea...quiet time.
She is right...I'm looking forward to sitting and reading on Wed when I do this round. I've had my second echo...no problems. They will monitor your heart function while doing herceptin, but other than that, I don't have any SE's0 -
Leslie2016, thanks for the heads up. Yes, I can imagine that you felt like dancing on the way to infusion. With TCHP, I refer to myself the last kid picked up at daycare, the last one to finish. One hour sounds fabulous compared to 6. Where is my party hat.I'm seeing a glimmer of light at the end of this tunnel.
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I got some not great news today. They found some lesions on my liver in the PET Scan, so looks like another MRI, then a possible biopsy. The oncologist said they could be benign, so we will see. This delays the start of my chemo. However I am meeting with a doctor on Monday to see about getting into some drug trials at MD Anderson. I also got my port in yesterday, I know i will get used to this weird feeling in my neck, but since it's day one, feel like I swallowed something wrong. MRI is scheduled for Monday at 6:15. And for Jennliza, yes I read that you can gain weight, which was a shock....but again I just went by the movies and made for TV specials and chemo meant skinny. Right now I don't care, fat or thin, just want to get the chemo started and get the party started
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Jrodtx, welcome to the party none if us want to attend. The delays must be driving you crazy. I hope your tests come back in your favor and chemo gets rescheduled again quickly. I'm about five months into this now and am just now starting to get my head around this triple positive business. As far as I can tell, we just have to jump through a few extra hoops. And of course at MDAnderson, you have access to all the latest research and treatments.
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jrodtx716, sending positive thoughts and hoping your new news ends up being a non-event. I understand your concern about wanting to start chemo soon. If you have questions, you've come to the right place. And as for support, this group has been my life line the past two months. Please keep us posted.
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I was also told they were going to do twice daily radiation for 4 1/2 weeks. Is that normal? From what I have read they stopped doing the twice daily radiation for IBC. Did anyone else have to do twice daily? Did this lead to more blisters or more fatigue from radiation? And thank you all for the kind words, I don't have a strong family support, but luckily I have great friends, and now I have y'all, so again thank you
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jrodtx716,
Welcome. Sorry to hear about your PET scan. We are all on that uncertain train right now. But we are on board together.
I don't have a port so i don't know about that feeling. Just got done with Taxol #10.
I was told i would need Radiation 1x a day for 5 weeks.
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CoachVicky, glad to hear your news (I just messaged you asking). And good for you too, Shelabela.
I was one of those people who definitely lost weight on this journey. I started at 118 and went down to 106. I'm gaining so fast right now and am pretty much back to my weight. So I think it's individual.
Jrod, I'm so sorry that you have to go through all this anxiety and waiting. I had spots on my liver when diagnosed in June and then I had an enhanced MRI to take a closer look. They said mine were hemangioma. So hang on to that possibility right now. But yes, the scans and waiting are grueling to an extreme degree. Hugs to you.
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Great news Ladies!
Got my pathology report a few minutes ago.
The cyst is BENIGN!
Coach Vicky
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That is AWESOMEnews coachvicky! thanks for sharing
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shelabela- glad to hear the good news!
Jrodtx716 - sorry to hear you are going through more tests and waiting. That's the worst, hang in there. We're on this journey together. This group has been a life line not just for information but also support and encouragement when it's most needed. Sending prayers for good news soon and treatments can get started. Take care
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I have not been here for a little while because I have been doing better. Thought I would give some hope even though I am not done with the herceptin until end September. I have finished the other treatments, gone threw MRI for my body and bones. Had a lump that needed biopsy. Lots of agony and worry. And voila...I am now suddenly declared cancer free...Wow...does that mean I get my life back? Well, for now it feels like I am starting to plan things for the future for the first time since my diagnosis, something I was unable to do during treatment. A moment of a feeling of gratitude and relief. I hope this happens for everyone here and that this monster never comes back.
I am still experiencing problems with "chemo brain" and aces in my body feeling like I am 100 years old, according to my nurse this can take a long time to disappear and is due to the treatment.
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Wonderful, Vicky...that is so great
Kattis...so glad you're feeling good. I SO know what you mean about planning for future. It's like there is this brick wall slammed in front of you on the day of your diagnosis. Good for you - enjoy some fun; you deserve it...
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A benign cyst, Coach Vicky! Awesome.
Kattis, YES, you get your life back! Glad to hear you're feeling better. Hope you just feel better and better!
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Kattis ... Cancer free sounds WONDERFUL
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Hi All, I'm back with another side effects question...
Lately I'm noticing some irregular heart action...like atrial fibrillation or something like that. It happens over a period of about 30 seconds and maybe once a day. My heart will go boom, boom, stop. boom, boom, stop. Regular is just boom boom boom boom.
Does anyone else go through this? I have had palpitations in my life before, but not for quite a few years. I'm wondering if Herceptin is causing this. I have an Echo booked next week, so that is coming up. I will mention it along with hearing my heart beat in my ear - it has been there for years, but is more intense. I hope nothings is wrong here...
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Posey, I've felt my heart go "wonky" here and there too. My last echo (a few weeks ago, after 3 herceptins) came back good, so I'm choosing not to worry about it at this time. I would guess the herceptin does have something to do with it, but since my echo looks good, I'm good. Hope that helps.
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I would mention it for sure. Herceptin does cause irregular heart. Hope all is good!
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