TRIPLE POSITIVE GROUP
Comments
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kae- I am delighted your tumor is mostly gone, great news! I pray the reduced dose helps ease your stomach issues next cycle. Hang in there.
Suburbs - so sorry to hear you're having a tough time. I have to believe the treatment is shrinking the tumor even if you can't feel it just yet. Specialk has a lot of encouraging points, most important is that neoadjuvant can halt cancer spreading outside breast. My biggest concern has been pCR and waiting has caused anxiety. Faith is all we have sometimes and I pray you have relief from the terrible side effects you're having. Hang in there and take care.
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posey and specialk - I had no idea the noise in my ears was tinnitus. I noticed it right after my first infusion, thought it had something to do with Herceptin. It is very annoying especially when trying to sleep. Thanks for the apple cider tip, I am going to try it. I haven't mentioned it to my MO but plan to on my next visit. Did either of you have tests to confirm it wasn't related to a vascular issue? It seems likely it's from the meds but it would be nice to know for sure that I don't have a blocked carotid artery or something else.
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Hmmm, good question, Deni. I have my next ECG coming up and I will make a note to ask them when I'm there (i.e. if they can read anything on that). I've also heard it can be related to blood pressure or some tiny structures in your ear.
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My ringing literally started later in the day of my first infusion, I never really discussed it with my MO and have had no other testing relating specifically to it. I had quarterly echos during the year of Herceptin, no issues other than a minor drop in LVEF. My blood pressure has been within normal limits from prior to diagnosis to the present.
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that's interesting about the ringing in ears, I have that also, never gave it a thought that it started after chemo. I meet with my MO next week I will bring it up also.
Specialk, my Blood pressure is high. They started me on a med for it which has brought it down some. My next ECG won't be for 4 weeks.
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SpecialK and deni1661, thank you for the information and perspective. I have been whining like a kid who wants a new bicycle about not having any metrics during neoadjuvant therapy when tumour is not palpable at the onset. Your notes help put things in perspective and my complaining was premature. I now have an order for a bilateral MRI which I will schedule in a few weeks. Crazy, I know, but I could have done a happy dance when that piece of paper came into my possession today.0
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suburbs - glad you will have an MRI - info is good! Don't worry about whining - we all do it, lol!
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suburbs, that great about the MRI
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Well Ladies ... I am headed back to surgery. This will be number 9 in 10 months.
I have a round lump on my left breast where my nipple once was. I have always felt something there since reconstruction but this lump came quickly in the last 72 hours.
My PS will talk with my Surgeon. My PS is skipping any image / films as he wants it out now and there is nothing an image will show to change his mind. He thinks it is an internal suture that did not dissolve. He does not suspect cancer. My PS says this will be a quick surgery. He will go thru my original scar line and the incision will be small.
I am OK with this. In some ways the "let's get it out now" is easier than the let's test and investigate when all this first happened.
I am ready for this to be in my rear view mirror.
Coach Vicky
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coachvicky,
I am sure it is just a suture. Keep us posted!
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Hi all!
I could use some input/advice.
I started Chemo TCH in April of 2016 with a LVEF of 53. I finished the TC part in August and continued the Herceptin every 3 weeks until January when my LVEF dropped to 50%. My oncologist wants it above 50. I waited 6 weeks and had another ECHO. LVEF dropped to 40-45%. I had to postpone treatment again, so, I went to a cardiologist and started blood pressure meds for high normal blood pressure. Last week my LVEF was just50. I'm bummed and scared because I know how important Herceptin is and I still have around 5 more infusions. I am considering going to Cleveland Clinic where they have a cardiac-oncology department. Any thoughts on all of this? PS. I'm 61.
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Star
I am 63 and I had the same treatment plan that you have described. My first MUGA score was 65, the second 68 and the third was 67 if I remember correctly.
I don't know if this made a difference or not but I walk every day. I do a minimum of 30 minutes usually 40 minutes and a minimum of 2 miles.
Best wishes.
Coach Vicky
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coachvicky - last May I had a suture granuloma removed that had formed at the same location as my original tumor. It was seen on a PET scan, lit up like cancer - so a bit scary and had grown to 3cm. It wasn't causing discomfort as it was displacing my reconstruction on that side - pain was gone with removal. Wishing you the best with this - hope things go smoothly!
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Thanks for encouragement and information. I am feeling much better!
Coach Vicky
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Hi CoachVicky, good luck with your surgery...sounds like your onc. knows what's going on. 9 surgeries in 10 months - enough already, you poor thing!
I have a hard ridge under my incision and am getting an ultrasound of it. Both my MO and RO think it's soft tissue, but I told them I want some imaging...
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just got the all clear on my 6 month mammo! Birad 2. Whoop Whoop! I move now to getting a mammo only once a year...next month I hit my two year anniversary of being cancer free!!!
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You go girl!
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Tresjoli2, That's Awesome!
@ Coach Vicky, How are you feeling today?
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Thanks for checking in. I had Herceptin treatment yesterday. I was really fatigued. My Oncologist ran some more labs and I will have an iron infusion on next Monday.
I didn't even know what an iron infusion was until yesterday! The things a girl can learn on this journey.
I am still set for surgery on Thursday. And feeling better today.
It really is one foot in front on the other each day.
For some great news, Friday was my husband's birthday. He got the go-ahead for lens replacement. That is his birthday present! He had put this off to care for me after my diagnosis in June.
Have wonderful Tuesday everyone!
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well, I just got my diagnosis on March 31. And after being a professional pin cushion this week, and undergoing more tests in a short period of time than I ever did in college, I find myself missing my frat party days. Am I the only one who ever felt like a good kegger couldn't hurt after you get a cancer diagnosis?I start chemo on the 18th, and while I am finally looking forward to being skinny for the first time in a decade, I think I would prefer more time in the gym. But size 10, here I come. I also guess I get to pick a new hairstyle, and thinking of trying to be a redhead. Maybe I shouldn't have watched "Who Framed Roger Rabbit", because I now want to be a cartoon. It will make the whole reconstruction part of this interesting if I hand them a pic of Jessica Rabbit. I am freaked l am overwhelmed, and reading these boards, just might keep me sane. Thank you.
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Jrod-
Welcome to BCO! We're glad you've found us, and hope these boards are a source of support for you as you begin treatment. The first days and weeks can be very overwhelming, but there's lot of info here that can hopefully put some of your concerns at ease, and lots of members who've been right where you are. Looking forward to seeing you on the boards, and best of luck with the start of your chemo!
The Mods
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Glad to hear you feel good. Keep me posted on how herceptin alone is, as I will be getting that after all this.
Had chemo #10 today. Chemo was as usual tiring, meet with my MO and she was not happy with how my left breast felt. So I had a Mammogram with a ultrasound. Guess my main lump has shrunk, but there are 3 others. One by my nipple has grown, and attached to my nipple, the skin around my nipple is very thick now and they set up appointment to see dermatology, Have a biopsy to see if cancer moved out of my nipple some way. How the hell can it do that? Frustrating!
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Jrodtx716, welcome to the party. This board has been my salvation with information and support. I hope you have the same experience.
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I have an echo coming up before surgery so I'll ask about the tinnitus then, it seems related to the meds. Thanks everyone for the comments!
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Jrod, sorry you have to be here but welcome. This board and these wonderful ladies keep me sane. There is such a wealth of experience and information I hope you will find helpful throughout your journey. Stay strong and take care
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coachvicky- praying your next surgery goes well, take car
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Shelabela - sorry to hear about the latest results, I would be frustrated too. How can 3 more pop up while you're getting treatment? Are you getting Herceptin/Perjeta yet? Praying the biopsy indicatesthose new lumps are non cancer. Stay strong, take care
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tresjoli2 - I'm so happy to hear your good news! Thanks for sharing, this is very encouraging for all of us
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suburbs, I'm so happy you're getting an MRI soon. That will give you a better picture of how well you are responding. You are definitely not a whiner so get that thought out of your head! You are very positive and encouraging
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deni1661, it's feels a bit strange to be celebrating the order of an MRi but there you have it. Tonight was a fun filled evening reading the patient information brochure for mentor implants. The statistics make you wonder why anyone would bother to reconstruct. Yikes. I feel alarmed, or rather informed
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