ER-, PR-, Her2+ Roll call

@djschmidt1 I'm so sorry you have to deal with this.

@snm I am so excited for you and so glad you could immediately see great results. Wow!

@fossf56, I'm so sorry to hear you’re going through this. It’s frustrating and upsetting to learn things are different than originally thought, but to receive a misdiagnosis has to be incredibly angering on top of that. I hope you find a wonderful new oncologist that you love and they get you get on a plan you respond to fast 🙏🏼❤️ 

@djschmidt1, Ugh! I'm so sorry to hear about your company restructuring and the timing! I hope there’s a good lateral transfer option for you. If not, I'm in the comms field and happy to offer a free second set of eyes on your resume, branding, or anything else that might help.  

@snm, congrats on getting nipple tattoos you love! I'm still a ways off from that, but I'm planning to get them done too. I hope I can find someone skilled and close by when the time comes. I'm considering something unique, like hearts instead of circles, to add a fun touch. 

I’m on day 2 of round 4 of TCHP, over here. Solidly over the chemo half-way mark, plugging along….

Thank you @bailey.boo , I am angry still. It feels like the oncologist never even read my pathology reports and even asked about my former decade ago cancer which the data is available to her as it was the same network. And I'm having such sever diarreah daily from I think phesgo for the past 9 weeks, that pisses me off too. I do have a former oncologist who had moved location a few years ago and we now live close by. I'll be calling her on Monday. ❤️

Oh gosh @fossf56 I’m sorry you're also dealing with diarrhea ugh. 😑 am having it pretty badly after my second immunotherapy last week too. I also have a weird rash on my face unlike the other rashes I had after chemo.

Thanks for all the good wishes on my work situation - - so my story is - I will be 62 this week and since I do have an intermittent absence FMLA in place right now through April, I’m consulting a labor lawyer to understand my rights. After much thought, my ideal situation would be continued insurance coverage through age 65 until Medicare takes over and perhaps disability along with the severance. I work for a very large company that could potentially be convinced how bad of a look this is for them to RIF a cancer patient just shy of retirement age. Not really like me to push back but it can’t hurt to try is my thought….

@snm oh, wow! Those images are so real-looking! That is incredible!!

@djschmidt1I admire you for looking into what your rights might be and maybe pursuing something in that regard. I echo @snm - you fight hard.

Uggh and grrrrrrrr to the diarrhea issues, everyone. I hope that gets better.

Hello everyone! I was diagnosed at 38 with BC ER-/PR-/HER2+. I will do 4 cycles of AC and then 4 cycles of docetaxel with immunotherapy. I have already had 1 AC treatment; next Wednesday I will receive the second. Then, if everything goes as expected, I will have a lumpectomy (although my tumor is 8 cm, the doctor thinks it will shrink enough to be able to preserve the breast) and axillary dissection.

I have been reading your posts and confess that reading stories of positive cases cheers me up. Thank you to everyone who shared their testimonies! The diagnosis was terrifying for me, as it certainly was for you, I know that some cases go better than others, but it's great to see so many successful stories! We will be fine :)

Good luck for you all and take care! 🌻

@catarina_fm sending you love and good vibes. Im sorry you had to join is but as aborayis said, ask us anything. We are here to support each other. This board has been a Godsend.

Hello everyone! Thank you very much for your support 😊 I wasn't able to come to the forum for a few days because I had another cycle of AC and I confess that I feel really bad and feel sick. I try to think that it's a bad few days and then it gets better... It's really good to know that I have women who understand me and with whom I can speak and clear up doubts... thank you all so much! I'm here for you too. Let's get through this! 💪

@catarina_fm i didn’t have it myself but I’ve heard AC treatment can be tough to go through. After these two treatments you may be able to recognize some patterns in how your body responds. Knowing the patterns can help you know when to best to rest and take it easy, and maybe even taking something they’ve prescribed as soon as you recognize the first twinge of a side effect. Every little bit of sense of control will help. I hope you feel better soon. Hugs.

@bailey.boo i hope you feel better soon, too. Two more to go after this? Do you have 6 all together?

@snm How are your tattoos healing?

@bailey.boo YOU LOOK GORGEOUS!!!! I adore that hair on you! You are an inspiration, in thrive mode as you are. So many great tips, too. Thank you for the spirit boost!

@aborayis my 3D nipples made my husband take another look as I got out of the shower! Ha! 21 years of marriage and he did a double take!!! The nipples are all healed up- no issues at all. I'll need a touch up in Nov. He said they look like nipples and in the right place 😁. I made another appointment to get more of a decorative line art tattoo over my remaining scars.- hopefully henna inspired design of some sort.

@bailey.boo omg! I luv the purple tinted hair- looks so real and awesome! You are totally rocking it! Where did you get the wig from?

Hi girls! How are you? 🌻

As for me, I feel pretty good after this second AC infusion. The first few days were really bad, I hate being sick and I developed an aversion to certain foods/smells, but after a few days, I feel practically normal 😉

@snm I didn't know there were 3D tattoos for nipples! In other words, you won't need to put nipples in, is that it? If I have to have a mastectomy, I like that idea! (Doctors still don't know if I'm going to have a lumpectomy or mastectomy, it depends on the results of the treatment). I don't know if my scar from the fully implanted catheter will be very noticeable (right now it is), but I had already thought about getting a tattoo over it in case it looks bad.

@grammie2 It's great that you had your family nearby and could be with your grandchildren! should be a breath of fresh air 😊 and it's so good that the last infusion is soon! I'm doing 4 sessions of AC and then I'm going to do another 4 of TCHP and the doctor has already scheduled me for an MRI to do between the 6th and 7th infusion. I don't know if I'll have another one before the surgery, besides this one.

After the surgery, I don't know what my future will be. The doctors haven't decided yet, they will wait for the pathological result after the surgery and at that time they will decide what type of treatment I will do next.

Good luck for us! 🙏

wow! I wish I looked as stunning as @bailey.boo during treatment, you go girl!

As an update I’ve just finished radiation and I’m itchy and sore but one more treatment done!

After talking with HR, they have extended my employment through March 2025 which gets me through treatment. I’ve noticed I feel nauseous two days after immunotherapy for two days and my onc says I shouldn’t….anyone else have this experience?

My hair is growing in slowly and life is getting somewhat back to normal. My husband and I are working on our house to sell and downsize for retirement and live life!

I hope all is well with you warrior queens!

@catarina_fm and @snm! I so enjoyed their visit!

Good to read and catch up on everyone! This last chemo is kicking my bootie. I am so thankful I didn't feel this bad with the first 5! Surgeon appt tomorrow, so a little anxious about the next step. When I met with her before chemo, she seemed positive I could do lumpectomy or mastectomy. I have to have radiation either way because of the nodes. And the whole node removal thing has me anxious. Wondering if I will be one who ends up with lymphedema. I think I'm just tired of feeling tired and not normal :(

How's everyone else doing?