ER-, PR-, Her2+ Roll call
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Hi all, been a hectic week as my Dad (turned 89 yesterday) had an emergency room visit, emergency colonoscopy and emergency cancer surgery on his colon. What a wild ride. He is not recovering like i had hoped but I do have to remember he is almost 90. He had an 8.8cm mass so decisions need to be made as I beleive his treatment options will be cery limited. Meanwhile, i have my second annual mammogram Tuesday and hoping for clear outcome. Life comes at you fast.
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Hi to everyone. Wish everyone peace and comfort. I had surgery first and then treatment.. a friend of mine had treatment initiated and then surgery. But, they were able to modify her treatments to achieve better response than the initial treatments. I think her tumour was smaller though and hormone positive.
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I had teatment before surgery as well.
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@grammie2 Thank you for asking. May your grandchildren be healthy and have long lives.
@djschmidt1 I’m sorry to hear about your father. I’m sure you will make the right decisions for him.
@todaystheday Yes, my sister had surgery first as well. I hope it was the right decision.
It has been 23 days since the surgery (BMX). She seems fine for now. I think the treatment should start soon, because HER2 +++ doesn’t wait. Do you think this waiting period is normal?
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Completely new here. Diagnosed 2/16/26 then got receptor status in MyChart 2/20 of ER-/PR-/HER2+. I meet with surgical oncologist Monday. 2 identified sites of DCIS and 1 3mm IDC identified in the biopsies.
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@bcnc321 I am glad you found this forum. We are all at different stages of this diagnosis and I am certain you will find love and support here. Please don’t hesitate to ask any questions you have, someone here will have the experience to answer or share their experience.
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@bcnc321 I’m sorry about your diagnosis, but welcome… I hope one day you’ll be able to say that all of this is behind you. Please keep us updated on your progress.
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Oh goodness!! I hope your dad will get the treatment needed and heal well!! Many prayers for your mammo! I'm still on "every 6 months). It's always a little un-nerving for sure! Keep us posted!!!
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@bcnc321 you are in the hardest part!! The diagnosing and the treatment plan. I promise you once you have a plan in place it does get easier mentally!! I had a nurse friend tell me that as I was in the diagnosing stage. I thought she was crazy!! Nope. She was right. Not that the journey gets easier, it's just when you actually know what the plan is, you know what to prepare and fight for. There are some other newbies posting so I'm glad you will have others who are starting in the journey. There are also several folks like myself, who are further along and we all will try to help and answer any questions we can. HER2 is somewhat different but even with that we can vary in the journey. Hugs and let us know how we can help!
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What @grammie2 says is true, thr first weeks are a roller coaster as the docs get figured out the treatment plan. Lots of poking and prodding at this stage.
We are here to support you.
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Hello girls! I’ve been really suuuper busy in this return to work at 200% (I wish it didn’t have to be like this, but I have no choice). I haven’t been able to come here. Regarding the new diagnoses, I just wanted to take the opportunity to reinforce what the other ladies said, the worst phase is this initial phase, before starting treatment... After that, it’s just a matter of following the protocol and managing the symptoms. Everything will be fine! We’ve also been on that side and now we’re moving on with our lives in the most normal way possible. Stay strong and if you have any doubts, we can always try to help. All the best to everyone!
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Thank you all for taking the time to respond. While I haven’t yet spoken with anybody beyond receiving my results and scheduling my appointment with the surgical oncologist. I feel pretty well-versed and well read on process for HER2. I’m ready to get moving and ready to get the MRI scheduled and have results so I can confirm whether we are looking at neoadjuvant or adjuvant treatment. I’m a CFO professionally so I just want to have a plan and start moving down the checklist.
Of course, that’s part of all of this in trying your ability to be patient and sit in the in between phases.are welcome any tips on preparing for a DMX (I’ve already decided that I can be at peace with that and very comfortable with it) and things that you may have done to make life easier in the recovery process and then the targeted therapy process. Again, grateful for each of you for taking the time to respond.
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Hi @bcnc321 — and also sending a big hug to everyone in this thread.
@myoldersister , you’re in that tough in-between space waiting to start treatment after surgery. That waiting period can feel endless. We’re thinking of you as you heal up and get ready for next steps.
@djschmidt1 , what a whirlwind with your dad: Emergency surgery at almost 90 is a lot to carry, on top of your own mammo coming up. We’re holding both you and your dad in our thoughts.
@catarina_fm going back to work at 200% while navigating all of this is no small thing. It’s a lot, even when you make it look strong from the outside. Please try to take care of yourself, and give yourself some breathing room.
And @bcnc321 — your “let’s get the MRI, make the plan, move down the checklist” mindset makes so much sense. The in-between phase is hard precisely because there’s no action yet. For DMX prep, simple things help: front-closing tops, a comfy recovery setup, and lining up help.
Thinking of you all!
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Great news! My second mammo is all clear. On to year two of remission!
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What awesome news!!! Congrats!!!
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Exactly as you said… the first stage is very hard in terms of waiting. It has been 4 weeks since my sister’s BMX, and we just came for a follow-up appointment. The doctor said the healing is continuing, but we are waiting for the scab over the wound to fall off.
I asked what was on my mind. I said, “HER2-positive doesn’t wait. It’s been 4 weeks and we’re still waiting. I’m getting anxious.”
The doctor said, “We don’t like waiting either, but we’re waiting for the wound to fully heal. There is no reason to panic. We removed the cancer, and with adjuvant (protective) treatment, it will be managed.”
I feel partially relieved… but only partially. I hope she heals quickly and we can continue the treatment where we left off.
Do you think this process is normal?
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