My Husband, My Life, My Love, My Family, My Cancer
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Was not too sure what to have for breakfast. I ultimately decided on 1/2 cup of rice. Made that with the usual water boiling, added a squirt of the garlic mayo and rice, also added some taco seasoning as well. Was heated on high on the burner, burner turned off and covered with a lid. Option 1 sees the mix thrown in the frypan with cheese and some of the beef from the double big mac, perhaps another squirt of garlic mayo which was not in the warm fridge. Would be quicker OR do a quesadilla out of the mix. I am unsure, will post on which one I decide on. They would both be similar I think. I am out of peanut butter so will play games for money and get free Amazon gift card to do it, got to get back on doing that sort of thing for budget boosting. I suck at surveys which are quicker BUT I am disqualified 98 percent of the time.
I am happy to report the rice, beef and mayo was good. All heating beyond the rice was in the microwave. I have two more beef patties in the mcdonalds double I ordered when out of food. Will likely have something with eggs tonight. Was able to get all things I picked out, 100 bucks but splitting the payment up into 6 and saving interest since I do have a credit balance. 20 bucks every two weeks. Taking a rest in between putting stuff away as well. I also have a lot of food, two frozen pasta bowls, one is a mexican bowl and other is a queso bowl as well, some more mayo BUT none of the queso crema stuff. Just regular queso and two sour cream tubs, more soft butter and 2 garlic spread, everything fits well in the fridge too. NO eggs were harmed in the putting away portion of this day. 😎
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Candy, thinking of you. I'm so sorry about your friend.
The recent deaths of exbrnxgrl and another woman who was well known to one of the support groups here, are also in the front of my thoughts today. My heart feels heavy.
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Good afternoon room
Sorry to hear of the loss of exbrngrl and the friend of Candy. It’s always a reminder that stage IV brings ends to people. Living with that reality and its reminders is part of survivor thriving or whatever. I’ve been dealing with cancer since 2003. Looking back I remember the best and worst times but while living through it I never defined it as thriving or surviving. SF cakes my heart feels heavy too.
Mara wow broken refrigerators are the worst. Costly replacing food and the clean up is yuck. I barely have energy for day to day; that’s not a fun project. I hope your brother enjoys his anniversary time and misses you and continues to make time for you. You’re a special person and normalize and comfort so many. Thank you.Liver biopsy sounds awful and painful.
MKestrel thanks for camping pictures.
My long distance grandson (San Francisco)is visiting for 1 more day. He’s 4 and a vibrant joy to be around. I can handle him in the pool for about an hour. I’m happy I’m still able to do that!Sending hugs and support for all.
Tanya
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Some good news to report. I was able to reschedule the appt at Memorial Sloan Kettering, so I flew to New York for what turned out to be a 20 minute consult. I really like the doctor and she has agreed to do it. Only complication is that she will soon be on maternity leave but since my case is a little complicated, I prefer for her to do the procedure since she is an expert. Next step is to get an MRI, ultrasound, then we'll see. I can tell I'm not as young as I used to be. Flying back and forth to NYC used to be no big deal. Now with this hip issue, travel is grueling and I'm kind of wiped out today but I'll be working and hopefully that will perk me up.
Hope everyone has a nice weekend whether it involves playing with grandchildren, spending time in nature or just relaxing at home.
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@chicagoan - Oh what wonderful news about the New York thing! I'm so glad you made it there and got some good news; sorry though about the aches and pains that seem to have come with it. I felt so bad for you when all those flights got cancelled the last time you tried. I hope you can work out a good time frame with the doctor and her maternity leave. Interesting too are your observations about travelling and being a bit older. I've been wondering about that for myself. I don't travel often at all, but have wondered about maybe going to visit a person or two and I'm just not real sure I'd really have a good time, due to the aging and cancer drug side effects. I hope that you too have a wonderful weekend - enjoy looking forward to getting the procedure done!
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I am sorry to hearr about exbrnxgirl passing, my thoughts are with her family and friends, here and in her real life. I did not have much interaction but knew her name from reading different posts she made.
Chicagoan, glad you got your appointment, I am wishing you the best of luck as well for your case. Get some rest between the travel and appointments.
Tanya, thank you. I have replaced the food and set the total on a 6 month payment plan, 20 bucks every two weeks, will not affect my normal budget. Nice to have staples like eggs and sour cream. My brother is working a lot and he is getting closer to 60 and 12 to 14 hour days will take a lot out of anyone. I hope he is resting. I have talked myself out of being sad about them, do my own stuff.
I slept better last night and woke at 11 am. No real plans for today other than the household stuff. I am planning to wash up some clothes. Got one of the skorts on. SIL suggested a size up from what I usually wear and it is really loose, lucky there are ties to keep it on. They will all make fine pajama cottoms or look up the style of skorts and yoga pants and capris.
Laundry will be for sure and possibly using a couple of the smallest washers since they are gentle on stuff. Using a mini blower to blow some of the dust out of my fan, planning to blow everything out, do a sweep and vacuum and perhaps a quick mop.
Not sure about meals, I did have the mexican nutrition bowl from Great Value but did not enjoy that and wound up disposing of about half of it which is OK, can't know if you will like something without trying first. Everything else is fine, I do want to try to make some quiche type things, I have the eggs and cheese and could possibly use a bit of the jiffy cornbread mix to dress it up. Use the magic bullet to whip up the eggs, some cheese with sour cream. Possible to chop in some beans and fill the muffin pans. Idea is because I picked out egg bites instead of meat pies accidentally, perhaps make my own. I have a lot of different choices anyway, could just make a quesadilla with a pre cooked egg and some garlic and cheese as well. I will post when I decide.
The other two skorts are going through the smaller washer first, they do smell mildewy because I honestly forgot them for a few days so using the oxy clean odour blasters. I wish we had the liquid version here in canada but the powder will be OK. Wee machine is struggling a bit but is still agitating them. Plan to soak first and then put through a normal cycle. Plan to just hang from the drying rack on my bedroom door after spinning.
I do hope everyone has a good day, in pockets for all who need me and will post later what I decide to make for food, lots of different options to have.
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My first meal today was good, had the queso and chicken bowl, put a tiny bit of sour cream in as well as dried seasonings of steak, sour cream and onion and white cheddar with a dash of salt, mixed after it was heated. It was delicious so will stick to that one for bowls. I also did a tiny squirt of mayochup, mayo plus ketchup together. This mayochup is very good as well. At somepoint, I may want to try a pizza sort of vibe later but in a quesa dilla by spreading my garlic and parm mayo out, addd cheese and perhaps a chopped burger. I will see, depends on my energy level.
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Hello dear sisters:
Mara - sorry your fridge took a dump and caused you to lose so much food. Glad things are back to working!
Candy - my heart aches for you and your friend’s family. So hard to make any sense of such a rapid demise. And extended condolences to exbrnxgirl’s family. So much loss. I hate this damn disease that steals all we love.
Threetree - I’m glad your biopsy is behind you. It did not sound pleasant. Hope the results lead to a line of treatment.
So I was absent for most of last month because it was a difficult time. I turned 70 in the early part of July and had a hard time reconciling the me at 70 vs. the me pre-MBC dx at 64. I also had my scans mid-month. Bone scan came back in a couple days and had a new finding of uptake in my right femur. Of course my mind went to dark places…what did it mean. Was it progression? Took over 2 weeks to get CT results back and thankfully everything was stable. Saw oncologist at end of month and she was not concerned about bone scan, particularly since I have no pain. So I will wait until next set of scans and if there is still an issue I will push for further testing. Finally, my 6yr MBC anniversary was at the end of the month. We all know how that sort of thing can mess with our minds. I also saw the plastic surgeon mid-month for a consult regarding my implant removal. He was shocked that I had no pain and full range of motion. He offered that he could do a flap type surgery but I said unless it’s an emergency, I don’t ever want to see another OR. Will proceed to get a prosthesis.
I am here for pocket duty, day in and day out. We are all in need - I think it’s a daily thing of who needs it the most. HUGS to all🤗
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@goldensrbest Thank you, yeah, losing all that food sucked but oh well, got more food and to avoid taking 30 percent of my budget all at once for the replacements, did set up 20 dollars every two weeks to pay off the bill so it helps the payments feel less substancial. No interest either since I have a credit balance.
Decided to cook up an egg with garlic, cheese, beef patty from the McD meal and cheese on top, it exploded which scared the hell out of me and both cats jumped straight up.I was surprised because the yolk was already whisked but oh well. Just going to let cool and use some garlic and bacon and the garlic and parm and a bit of the maychup which is great. Small amounts of each though.
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@goldensrbest I can relate to your post. When anniversaries/birthdays come, sometimes I wonder what my life would be like if I didn't have cancer. I feel like it has aged me so much-both the cancer and the treatments. Relieved to hear that you are still stable. Can understand why you don't want anymore operations. Here's to an uneventful August.
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@goldensrbest - A belated Happy Birthday to you! I know what you mean about the birthdays and "cancerversaries", etc. and how they can really mess with your head. I'm 72 now and it was essentially on my 70th birthday that I was diagnosed as stage 4. I was originally diagnosed at 65, but that was stage 3, and I moved on, unfortunately. Glad to hear that your scans were stable and of no real concern to your doctor. I've had a few of those myself, where they seem to note something, but the doctor isn't all that worried, and then we wait for another round of scans. What a life, huh?
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@goldensrbest Belated birthday wishes from me as well. 🎂
I could not sleep last night, sure I dozed a bit on the couch but that is OK, nothing particular on the agenda. I am presently trying to stop colour bleed, looked it up on youtube and supposedly you soak it in cold water with dishsoap vs laundry detergent so I am presently using the 2nd largest of the washers, will leave for about four hours and try again. The orange skort is the culprit. It is a PIA for sure. I am stubborn and a PIA when needed too. I am grateful that it was washed on its own, should move the stuff out of the tub in case draining will allow extra to come out.
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Goldens- I can relate to the thinking of how would I feel now, at the age of 54, if I would not have been diagnosed with Stage 4 at the age of 47. I think I would have been the type of woman that post-menopause I would have gotten arthritis. I have RA and my mom had OA, so I think I would have suffered from arthritis in my "golden years". But I think the cancer treatment (lowering estrogen levels) sped up the arthritis. I feel like a much older woman than 54. My sister is 53 (we are 16 months apart in age) and she is limber and healthy. On the go all the time. I feel like I am 90, and walk like that too.
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@candy-678 - Yes, those anti estrogen drugs really do promote and aggravate arthritis! I feel like my parents seemed to me when they were 10-20 years older than I am now. I think no matter what age we are, these drugs makes us feel much, much older. It's such a shame!
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Let's try this again. My computer just wiped out my post. Don't know why or how.
Hello everyone. It's difficult to read of @exbrnxgrl (Caryn's) passing and @candy-678 close friend, too. Some days are hard to find joy but I do know that grandchildren and family (Mara's brother and family) are so important in our lives. We seem to narrow our social lives whether by choice or by other's decisions. Sure miss going out for dinner, wearing heels and dancing with DH. For those that can move about, keep bringing those wonderful stories and pictures our way. To @kbl what a lovely memory you created for your grandson and family. Prayers for a peaceful journey sweet one.(from another thread).
We are making the most of this enjoying Phillies baseball and eating some mighty good food prepared by FACTOR distributers. I do not own stock or have any affiliation with that company, but I no longer have to cook. @mara51506 if I could cook like you do it would be a different story. You get so much joy out of creating different dishes. @threetree I remain in awe of your strength while testing goes on. Next time sing a tune like Beach Boys (Bermuda, Bahama, come on pretty Mama) and imagine sunbathing on a beach. That works for me, well a wee bit, anyway. I learned something new today about those numbers that I wish were good lottery numbers, versus CA numbers. I had no idea they could rise due to treatment.
As for me I have an MRI this week to see if the Neurosurgeon can help with the severe spinal pain. I've been waiting for sometime to get this far, having done PT for it and of course, insurance and referrals that go missing. Also, I am devastated that my sister has pulled back her support. No more long phone calls, just basic text once a week. She was my bff for 69 years, so this is very sad. She's quite conservative about doctors and meds and since I'm on opioids and anti-depressents, well she stated she believes I'm a addict. I cried for two days and now I'm taking my power back as best as I can.
Laurel
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irishlove, so sorry to hear of your sister's comments. She clearly doesn't understand. Did she ever have any interest in learning about breast cancer and the effects of the meds? Must not have been paying attention. I have an issue with my sister too. She won't ask me how I'm doing or for any details. Originally very interested but I didn't answer her a few times when I was feeling overwhelmed. Said she wouldn't bother adki g me again. And hasn't. Makes it hard to want yo talk to her. Some of husbands family never asks either. Glad I have a few good friends. I hope you do too.
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@irishlove I am so sorry to hear about your sister's withdrawal and judgment of you. She probably has no idea of the level of physical pain you endure due to the MS and cancer. I don't know what to say but I am glad that you are taking back your power. In some ways cancer is making me colder-I really don't care what other people think because they have no idea of what I am going through. There's a woman on Instagram who has founded the "I don't care" club. It's hilarious. She speaks the truth of older women who no longer care what other people think. It's freeing.
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Irishlove - if only your sister could walk in your shoes for a day or too. What a gut punch to lose her support. Our oldest daughter always asks me how I’m doing. Our youngest never asks but she sees my demise on a regular basis (at least a couple times a week).
It’s ironic that we all complain about our arthritis getting worse on our meds yet there is never any clinical correlation! When I saw my oncologist last week I complained about the anastrozole affecting my joints. She negated that theory and said that drug makes for a more generalized ache all over. Not sure I believe her….
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FYI:
Anastrozole (Arimidex) is a common medication used to treat hormone receptor-positive breast cancer in postmenopausal women. It works by reducing estrogen production in the body. However, as with any medication, anastrozole can cause a range of side effects. Here's a breakdown of common and serious side effects:Common side effectsHot flashes:These are experienced by about 36% of women taking anastrozole. They are similar to those experienced during menopause and can include sweating, chills, and anxiety.Joint and muscle pain: This is also a very common side effect, affecting about 36% of patients. It can involve pain and stiffness in the hands, knees, and back, often starting a couple of months after treatment begins.Fatigue and weakness:Feeling tired or unusually weak is a common experience for those on anastrozole.Nausea and vomiting:These are possible, especially when starting treatment, but often improve over time. Taking anastrozole after eating may help.Headache:A common complaint for many individuals taking anastrozole.Mood changes:These can include depression, anxiety, nervousness, or difficulty sleeping (insomnia).Vaginal dryness and irritation:Anastrozole can cause vaginal dryness or irritation.Bone pain and increased risk of fracture:Anastrozole can weaken bones (osteoporosis), increasing the risk of bone fractures.Swelling:Fluid retention can lead to swelling in the legs, ankles, or feet.Back pain:This is another commonly reported side effect.Skin rash:Some individuals may develop a rash while taking anastrozole.High blood pressure:Anastrozole can sometimes elevate blood pressure.Cough or shortness of breath:These symptoms can also occur.
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@irishlove I am so sorry that your sister has withdrawn her support, that is so hard to hear. To say you are on opiods getting relief means she does not understand. Hugging you from here and in your pocket. I am glad you got out and glad you are enjoying the FACTOR meals, may need to look at the recipes and replicate some of those.
I am debating a walk, want to start training to walk at least one way to the mall, I miss the long distance walking I was doing even from the start of this disease, used to walk while my brain was swollen as well. I could probably start with the walk to my favourite burger joint, sit down for lunch or dinner and get home well, bring my neck fan and other cooling supplies though it is not that hot. The burger joint is about a half hour each way. The mall will need to be a different route due to road construction for a bus rapid transit system. I just have to actually get around to doing it.
Laundry is on the agenda, decided to get rid of the skorts I purchased as I hate them. Another purchase not needed, sticking with the stretchy yoga points. I do like the Tshirts I purchased, pink and light blue which is great and I have both pair of black capris. I have an older pair of black capris as well.
Budget boosting through mobile games is profitable as well, will be ordering 10.97 peanut butter for 1.97 with the gift cards earned on various sites. This may be the way to get stuff that is wanted vs needed and save some money too. I ordered some kraft caesar dressing with bacon, both from Amazon, both less expensive which is good. Paid 4.00 for two bottles of dressing and the peanut butter as well, coming tomorrow.
I don't know what I am having yet, need beans and rice, might throw in eggs as well but not too sure. I know I plan to add some of the garlic mayo or garlic parm while water heating up, give some flavour, option two could be queso with the rice.
Decided on an easy one, made up 1/3 cup of rice which I added garlic and parm mayo, will chop 1\3 cup black beans and cheese dump in the frypan, was debating baking cheese on top but decided to just chop cheese into beans, add some queso to the frypan, heat a couple of minutes and turn it off. Quicker and they taste just as good. It is heavily garlic and will use some sour cream in there as well. Used up mcdonalds garlic mayo style sauce in there as well. Will let it sit on a burner that was high but turned off with lid for all flavours to get in there. I don't think there is anything else to add but a little sour cream to give some zing and salt. The rice and beans with cheese done up as above was delicious by the way. I also crumbled some queso flavoured chips as well, filled me up and I had a chocolate bar. Yummy.
Other than that, earn some more on the games if I want to buy other stuff. I hope all have a good day, for those struggling, I am in your pocket if you need me and in everyone's pocket as well.
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Belated Happy birthday!
Hope the day included all of the things you love most.
so sorry to hear about your sister but proud of you for taking your power back. I'm also in the accelerated arthritis club and have convinced my MO that the estrogen suppression is a big factor. Fortunately, she agreed to prescribe Celebrex, which helps reduce the pain.
how is your diverticulitis? Just went through my first experience with that and it was miserable. Had to stop Kisqali for a month because of the antibiotics. Everything back on track now, although still more tired than usual. I have been too exhausted to post very often or even read back, but improving in small steps. Surprised to read in your post that @cookie54 is on a clinical trial. How are you cookie?
In pockets for you and @threetrees biopsy results as well as @shanagirl s multiple neck and dental treatments.
Healing thoughts and virtual hugs to all.
Eleanora
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@eleanora Glad to see ya and glad you’re feeling better! Hmm I’m not on a clinical trial must be a mixup. Thanks for asking, I’m ok. Trying to enjoy the summer since here we are in August!May you continue to improve and never deal with diverticulitis again!@goldensrbest Happy belated birthday to you! Hope you had a nice day celebrating you. I know what ya mean about mixed emotions with each birthday and milestone. Hugs
@irishlove I’m speechless that your sister would act this way. I’m sorry that must have really broke your heart. With you dealing with the effects of two diseases I have no idea how she came to her conclusions. Keep on doing you and focus on getting some pain relief. In your pocket for MR this week.❤️
@intolight @threetree Agree with meds and various therapies our eyes take a beating too. So far hasn’t happened again, fingers crossed.
@mara51506 I hope you get back to walking its so good for our mental health too. Since the humidity has dropped I have been trying to take advantage of it to walk.Looking forward to walking in the Fall.
Hi to all here, thinking of many here❌⭕️
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My friend's funeral was yesterday. Nice funeral. Celebration of life. Different ones told stories, memories, etc. We laughed. We cried.
I am thinking more about my own funeral. I am stable for now, but we know that can change anytime. I have sat down at my computer and drafted my obit. I have made some notes about the planned service, but I have not formally gone and pre-arranged my services, casket, etc. I just want things done for my family- a sister and a brother only- and I want things done the way I want them done. I have always been a planner for other things in my life, why not this too.
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Glad to hear you're doing well. The info about you being on trial meds came from Irishlove's post. Considering all of the physical, mental and emotional stress she is under in addition to fighting cancer, understandable that she confused you with someone else. Her sister is unbelievably cruel. Hope she is comforted by all of the "sisters" she has here.
Sorry about your friend. Glad to hear the service comforted you. Good idea about planning for the particulars at the end. I want mine to be as simple and stress free as possible for my children.
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Dozed on the couch from earlier last night until about 4am so decided to stay up, did not do anything much except sit on my butt. Bit tired today but I will survive it as it is not the end of the world. Waiting on my peanut butter and caesar dressing to come from Amazon. Had to get two of them and they are Kraft dressing not the renee's which is my favourite but not needing a full order. Had gift cards that knocked the full price for both items to about 30 percent of what it would have been which is great. 7 dollars off.
More budget boosting will happen I do believe as I may want to add more to my grocery fund, got a rewards balance on another grocery card for paying off other monthly stuff that I spend on. I am also done with buying anything off the top of my head and just save the money instead after thinking about something I may think I want. I don't incur debt as it were but some of the stuff I get could be better served to go toward groceries or saving up for something that makes sense.
First meal will be different for me. Put two eggs, some beans and queso along with sour cream in my magic bullet. Whipped up smooth and plan to use my muffin tins to bake them up. Already sprayed the muffin tin, will fill maybe half way and bake at 375 in the breville. If these work out, can add peppers, beans and other protein source. Once done, not sure how many there will be. I will post if successful. Later on will likely have meat pies IF the caesar salad dressing arrives from Amazon before then.
Nothing else to say, I do hope all are having a good day, in pockets for appointments, scans or general things for everyone who needs me.
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@candy-678 It's funny you mention planning your funeral. I was thinking about that last night too. I wound up deciding to do nothing-let whoever is grieving me plan it. I may change my mind but that was my mood last night. I imagine my relatives will just be annoyed with all my stuff. None of them are churchy so maybe there won't even be a funeral. I'm slowly trying to get rid of things but then I get new things too. My burial plot is in northern Wisconsin, so if/when I go to hospice, I hope I can do it up there so that my body doesn't have to be transported far. I should at least write out instructions for my SIL who is currently my POA.
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The whipped egg in the muffin pan was good. Due to beans, it came out a brown colour but still really good, would make again I think. Got the peanut butter and caesar dressing which I prefer with meat pie, got two chicken and veg mini pot pies and will add some caesar and bacon salad dressing, should be pretty good as well.
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Well, slept OK, better than yesterday. Just planning out my day, not sure what I want to do. Need to be a little scheduled. Finish up the sink, left stuff to soak overnight, I like to just rinse off anything left and then dry, no real scrubbing. Noticed I am almost out of dish soap so bought 3 for 6.75 full size bottles of Palmolive from Amazon. I do prefer the orange citrus scent but settled for the green original scent and they all work the same. Nice sale price. Paid out some other bills as well, pretty normal morning.
I decided it would be pretty stupid to throw out the skorts as I could wear leggings underneath and make a different fashion statement or wear as pjs. Clothes I will donate or dispose of would be a size lower than I wear now. No clothes to be purchased this month, no really stupid stuff either. Stuff I need to stock up whether food, pet supplies or anything else. No other stuff. I also do not need to keep stuff I have not put on in years. I have a couple of Mom's sweaters taking up space, thinking I will donate those as I really am not attached to them.
Got a lot of laundry to do, will probably need to use a wee washer along with the big one, put a couple of scrubbers in a mesh bag for protection and clean the pair of them beyond a simple soap washing, has worked well before. Finish off the skorts finally, one is in the dryer, am wearing another one.
New food combo percolating in my head which is not original to me. Taking a tortilla, butter and light toast and then top with peanut butter mixed with beans. I would pulverize beans beforehand in the spice grinder and mix into peanut butter, should just taste like peanut butter. I figure that would give more protein and fiber and be a bit more nutritious. Trying out today. Also debating making an egg sandwich by using the mini grill on the egg, some peppers and cheese, I will debate. If I do the egg, would fold into a tortilla and use the queso pan to press down to flatten it. Dip into the mayochup combo which is the bomb. My fridge is stocked and more organized, just using different boxes to contain different sections and avoiding stuff being lost in the back.
Another task I want to get to is getting rid of sugar from a giant container that has been with me since before my Mom died which is around 8 years, I do not currently do anything with sugar. No compost here. Thinking I will need to do a bit at a time, no rush and no need to attract ants, use old containers with lids to throw out. Not comfortable dumping down the drain. I want the container itself as it is large and could be useful to store items. It will take a few steps.
I hope everyone has a good day and in pockets for all who need me.
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Relating back to the last post. I did lightly toast a buttered tortilla, oven goes up to 7 but I chose 3 instead. After it was done toasting, put some black beans into the spice grinder, they turned to refried beans sort of texture. I mixed up those beans with peanut butter and put on top of the toasted tortilla. It still folded, was kind of like a big mac in that the inside peanut butter and bean wanted outside but overall, surprisingly good and I would eat it again. No measurements on the beans, about 3 spoonfuls of beans and a good helping of peanut butter, full to the point of skipping my regular chocolate bar. Now going to let the butter melt leftover in the pan to get dry so I can either dispose of it or reuse as a degreaser when cooking again.
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