Zometa side effects

@newfmamainoregon Horse chores are no mean feat! (I have horsewomen in the family.) Yes, this first injection can really be shockingly awful for the first week, but hopefully you are feeling better. This is the worst one. I find that Motrin, with anti-inflammatory properties, helps. With the next shot, it shouldn't be so bad, and some people report feeling perfectly fine. With my last shot two weeks ago, my fourth one, I didn't feel quite as strong as I'd usually like, but I feel perfectly fine now. For me, if I've expended a lot of energy the week before (ie. traveling), I find the recovery to be worse, so maybe don't overdo it right around the time of the shot? Anyway, hopefully you are out enjoying the spring.

Chocomousse - Thank you so much for posting this article. It is just so hard to find info about this; especially how Zometa supposedly helps prevent spread. This is one more piece of the puzzle that helps answer some questions.

Have been dealing with breast cancer for 24 years...4 surgeries, chemo, radiation, meds for 15 years...second primary 2023. 6 rounds of zometa. Last one have horrible side effects . 3 weeks ago .

Thinking I am done and done with zometa .body feels horrific.

Pain, all over . Can't take pain killers, am in recovery.

Thank you for your response and the Psalm.

I am seeking guidance from higher power.

I had 6 treatments of Zometa. I was really sick for the first few treatments. On the last treatment a new tch asked me "did you take your Claritin?" I asked what she meant, she had just transferred in and her previous clinic recommended Claritin with each Zometa treatment. I stopped on the way home and pick up the generic and took one pill, I had NO symptoms the next day. I wish someone had told me that before the first treatment. It is a safe cheap option, and it really worked for me. Good luck.

It works for me. I have been using it for years.

Hello. Been awhile since I have been on this thread. Besides not being able to receive a Zometa infusion if currently undergoing dental work, does anyone know if the opposite is true i.e., if I had an infusion in May, is it safe for me to now have a tooth extracted? I've read that the Zometa can stay in your body for up to 24 months. Also, does anyone know if Zometa can actually cause a tooth problem of any sort (not the jaw issue Osteonecrosis)? I am going to ask my oncologist next week but since she is less than helpful in most cases I thought I'd throw it out and see what you all have heard or experienced. Thank you.

Find a dentist who knows about zometa and has had breast cancer patients. My dentist was way more helpful than my oncologist..he is in Clearwater fla. Just in case..

Hi .it's Benay

Happy to share my dentist .

Please text me.

hi @intolight I am happy to hear you got to enjoy that burger after Zometa! You used to get the infusions and the bad side effects along with it right? I may be. Infusing you with @threetree. I have skipped my last 2 infusions due to dental work and other ongoing issues. I am off Verzenio as well. Now on Afinitor which I see you were taking at one time also…Anyway I was happy to see your post! Hoping you are doing well.

ok I had you confused with threetree I think. Have you always got the Zometa shot versus infusion? Just curious. So after 6 months all went well so far - that’s great and hope that continues. Afinitor is a scary monster but I’m hoping it works for me.

@marcials1 - Yes, I think you are confusing me with @intolight . I get a Zometa infusion every 3 months (ugh!) and always have some sort of side effects. Zometa is only an infusion, to my understanding. Anyone getting a shot is likely getting Xgeva. They are similar drugs and have similar side effects, but are given differently.

@intolight - Wow, it was 9 years for you with the Zometa every 3 months! That's a really long time before going to 6 months. Next November will be two years of every 3 months for me, and I was considering asking the onc if I could go to every 6 months. I've been pretty sure he will say no, but after hearing that you waited 9 years for the switch, I'm absolutely sure he will say no. Good for you for going so long without any jaw necrosis problems, etc. I hope the Afinator works out for you. I honestly don't know anything about it, but good, good luck!

@intolight - Yes, I think 9 years on Zometa sounds incredibly long. I think I was reading things that said a person should take a break after something like 3 years or so. I know what you mean about your 2nd oncologist maybe not knowing how long it had been, due to the state switch, etc. Like you said, there are so many drugs, dosages, and treatment plans. I don't know how the doctors even keep up with it all, much less us. I also agree that we sometimes get mixed up with our various issues amongst everyone here in the living room, but that the important thing is that we just have a good place to talk about it and good people to share all of this with.

Thank you all for this thoughtful discussion about treatment timelines and for the care you show each other in sorting out details. You're right that the sheer number of drugs and protocols can be overwhelming for both patients and doctors—and nine years on Zometa does seem quite long by current standards. Glad @intolight you get a sort of break with every 6 months.

So nice to have you all here to support each other through the confusion and complexity. The "living room" atmosphere you've created, where mix-ups are met with grace and everyone just wants a safe place to share, is exactly what makes this community so valuable 😍

Wishing you all well on your respective treatment journeys, and @marcials1, hoping the Afinitor treats you kindly.
Everyone please keep us posted here!