Has Anyone Tried These Immunotherapy Options for Stage IV Breast Cancer?
Hi everyone,
I’m Ralph , and I hope it’s okay that I jump in here. I’ve been reading the forum quietly for a while, but this is my first time actually posting.
I was diagnosed with stage IV breast cancer last year it spread to a couple of bones, so things have been a bit up and down ever since. Right now I’m on hormonal therapy + a targeted drug, and overall I’m tolerating it okay. Some days are heavier than others, but I’m doing my best to stay steady. I had a scan a few weeks ago that showed a tiny bit of progression, and it honestly shook me more than I expected. I’ve been trying to keep my head clear and look into anything that might help me keep things under control.
A few days ago I stumbled across this article about cancer immunotherapy im just wondering is this is true ? 😕
They talk about things like dendritic cell therapy, hyperthermia, LITT, TACE, and different types of immunotherapy that aren’t usually included in standard treatment. I don’t know… something about the way they described it made me feel a bit hopeful, even though I’m trying really hard not to fall into the “miracle treatment” trap. The idea of boosting the immune system or targeting the tumor more precisely instead of flooding my whole body with harsh meds it just sounds so appealing when you’re already exhausted by everything.
But at the same time, I’m very aware that stage IV isn’t something you fix with a magic button, and clinics love to make everything sound more promising than it really is. So I guess I’m just a bit torn.
I wanted to ask - has anyone here ever tried any of these more experimental approaches?
Things like dendritic cell therapy, or hyperthermia, or even TACE?
Did you feel like it helped at all? Did your oncologist support the idea or think it was pointless? And if you traveled for it, was the whole experience worth the stress and cost?
Even small impressions or honest stories would help. I’m not looking for false hope - I just want to understand if these things are actually helpful for real people, not just in articles.
Thanks for reading this. And honestly… sending love to everyone fighting their own version of this disease. It really helps to know we’re not alone.
My regards ,
Ralph
Comments
-
Hi @ralphrosenzweig1972, and welcome to Breastcancer.org.
We're so very sorry for the reasons that bring you here, but we're glad you've found us and decided to post. We are sure you'll find our community a wonderful source of advice, information, encouragement and support — we're all here for you!
While you wait for responses from others who may be able to weigh in, we wanted to point you to a reliable article on our site all about Immunotherapy for Breast Cancer. Also, some information on Treatments for Metastatic Breast Cancer. Some of our members have also had success with Radiation for Metastatic Breast Cancer. You might also consider a Clinical Trial for MBC where other types of treatments might be used.
In addition, we'd like to point you to the Bone Mets thread where you can discuss with others their treatment options.
We also offer a few free, weekly Virtual Support Groups for MBC folks. We hope you'll consider joining us if you need more support.
Please let us know how else we can help and welcome again!
—The Mods
0 -
Hi Ralph, Can you put in the link again, I can't connect to the site…
0 -
its should be working now
0 -
Well, no matter, you are early in treatment, and have many powerful combinations ahead of you. ER+ MBC is one of those "coldest of cold tumors", typically does not respond to immunotherapy, but there are a lot of things that can be added in to improve the odds, so it feels like its getting closer. Keep tabs on your tumor mutation burden (TMB) (genomic testing or biopsy), if it eventually gets over 16 then there is a much higher chance the tumors will respond to existing protocols. The problems are in opening the tumor microenvironment, exposing cancer neoantigens to the immune system, and keeping the T cells active. As you are doing, keep an eye on the topic for future.
0