My Husband, My Life, My Love, My Family, My Cancer
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Well, I slept well. Put a light blanket over my head so it would be more humid, less cough. I did call in sick to the Herceptin this week mostly because I did not want to go but wanted to avoid spreading it around. I do not believe it is pneumonia or anything too serious, only been a week or so. Less production from chest, no change in appetite either. The nurse was pretty insistent I go to a walk in but I declined as it is hard for me to get around in the snow.
Lost my box knife cutter, been using scissors BUT decided I want actual knife cutters. Going to play mobile games to lessen the cost. I did get the scissors but accidentally but money in my paypal instead of amazon, duh. Oh well, that is life. My paypal will get 15 bucks so I can send the 5 bucks from paypal plus the 15 back to myself.
Having the leftover KD meal which has extra stuff, add some garlic to the mix, should be good. Not sure about the second meal, likely one of the mini pizzas.
Hope everyone has a good day and in pockets for everyone.
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Hi everyone. Geez it sounds like the winter bug has really been affecting our group. @mara51506 I am so grateful that you are not injured. I'd cancel that paratransit ride too. You know when the medical staff is upset by cancellations, they need to walk a mile in our shoes. Then they will understand. Please take it easy and healTquickly. Don't be so hard on yourself for being unable to get up after your fall. I sure couldn't get up myself.
Been a rough fall into winter for my health. I believe the bacterial pneumonia was from aspirating fluids. I just can't swallow properly when it comes to fluid. Food is ok. Have an appt. with Gastro for this, although I had asked for speech pathologist. Had prior problems years ago with same issue, caused by MS. Then the flu hit and after days of diarrhea and vomiting, I passed out on the bathroom floor. DH called an ambulance. They looked for diverticulitis as that's what I thought the problem was. They gave me IV hydration and said it's the flu, nothing more they could do. Then along comes UTI and pus on my tonsils. So I started cephalexin for 7 days. Cleared UTI but you guys were right, the throat remained sore and I have upper respiratory infection. The nurse said my lungs sounded clear. Now I'm on Amoxo-clavin for 10 days. I also started a colitis flare. It's manageable at this time with diet. The biggest symptom is constipation along with pain along intestinal track. Off Ibrance for 10 days. Hopefully I can get well soon.
Have a question for anyone that has a support program sponsored by your insurance. I signed up for this program and was excited when I found out it's oncology nurses and are available for phone calls on a 12 hr. day. Today I rec'd my goals for 2026 from them. Man did I get angry. One said that I must deal with hydration properly so their will be no more ED visits for IV hydration. I responded that I had the flu for a week and it was an absolute necessity, but I'll try better in 2026. Hmm. Third goal they stated I need to learn to cope better with a serious illness. Now that really peed me off. I wanted to respond and say hey wanna walk a mile in my shoes. I told them I have a therapist to help me. I'm worried they are trying to interfere with that and the medications prescribed by the therapist (she's a physchiatrist). I hate managed care programs!
In pockets for all my sweet friends. Thanks for the pictures and concerns. You gals are the best.
Irishlove
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OMG, My brother came into my bedroom startling me awake, he genuinely thought something happened. I do not keep my phone on overnight so the neurosurgeon office called and then called older brother since yesterday, said he thought I was dead. Got up to learn need to start having scans so CT scan tomorrow then in the coming days will be booked for MRI and consultation. Luckily could get an appointment for CT tomorrow at 4pm and called Paratransit, they are able to take me to that hospital. I don't know my way around that particular hospital but will figure it out. It is too bad hospital called so early because phone is not kept on at night normally. Finally some movement on this brain cyst. Apparently he thought I was dead as he banged on my door for 1/2 an hour. Poor guy. I will leave phone on overnight so can receive calls. Once the brain nonsense is over, will go back to do not disturb and listening to rain or leave phone on and listen to rain anyway.
Not sure about meals today, probably do up some crispy lentils and beef, pulled out a pound of ground beef, if thawed in fridge from last night, will cut in 4 pieces to go with other stuff I make. All sound yummy to me. I still have the KD and riced veggies mix leftovers so they could furnish a mean for me as well and pulled out cheese too. I will see what I decide to have, something in the air fryer for sure. Other than that, burritos would be a quick and really good thing to have.
Laundry going now, My SIL was going to come over to help clean it, told her do not need that to happen as my toilet is clean, just have lots of spray for the toilet bowl to clean it all the time. Oh well.
Hope everyone has a good day, in pockets for all, in own pocket to figure out how to get around a new hospital.
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@mara51506 Can you turn your phone to do not disturb but allow phone calls from your DB and SIL? That's what I do. Only immediate family can still call me after certain times. They can also text although that can be annoying. My DD texted me last night after 10 (she was at work) and I answered it only to read it was about my DGD Advent calendar gift she forgot… oh well.
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I will see, best bet is to leave phone on, until everything is done as the hospital may call so need phone open, I will survive. Don't want people to think I am dead, DB was knocking on my door half an hour and I cannot hear stuff with rain sounds going. Will wait til brain is done before go back to normal.
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I would leave it to just allow brother but unsure how to allow calls from hospital as well. I also have the lifeline people coming so I will see what happens there.
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@irishlove Oh no now the flu, ugh! Im sorry it’s been so rough lately. Ummm and I’m right there pissed with ya😡 really learn how to cope better??? MS and cancer oh yeah no big deal nurses, I’m living the dream… seriously! Continued prayers and healing vibes your way❤️
@mara51506
Oh geez your poor brother! Don’t blame you for not wanting to be disturbed while sleeping as it’s hard enough. Happy to hear your finally getting things started with your brain issue. In your pocket for scan, may you navigate the hospital smoothly❌⭕️1
