My Husband, My Life, My Love, My Family, My Cancer
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@mara51506 Sweet Girl So much you are facing and having to plan for. I know your SIL & DB will be a blessing for you standing by your side. You will be in my prayers today and because you are so much on my mind and in my heart I will light a candle for you when I come upstairs to my room tonight. This is my way of telling you that I will be in your pocket. I know how overwhelming it is to have so many appointments one after the other so close together and how they all connect with each test & follow Up and treatment. I remember how stressed I was during the summer for that reason. I tend not to cry easily, and just to one day at a time in my mind rather than allowing myself to feel the emotion of it all. Then if ‘m told something by the Dr. I break down and cry…I know for now you are holding everything in until you hear from your RO and Neurosurgeon what’s what and numbing yourself from feeling anything. The few days off from all of this will be a reprieve for you to rest your mind and body, so give into that…🩵😘
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thinking of you Mara. Wrapping you in hugs
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Mara pocket duty for sure. It’s good your DB and SIL will attend. Sending hugs 🫂 and care.
Tanya
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@mara51506 - I am absolutely in your pocket and will be thinking of you for sure! Good, good luck!
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@mara51506 ‐In your pocket for your appt tomorrow.
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Sweet @mara51506 , I lit a candle for you tonight because you are in my heart and prayers. ♥️🙏
rest well this evenening
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@mara51506 In your pocket this morning for your neuro appointment. Glad DB and SIL are going, it's always nice to feel family support around you no matter what the news is. Better to be prepared and packed then hopefully you won't need it. Nevertheless I'm so glad your appointment is before his break in January. You have been so patient waiting and it's been long enough. Sending positive vibes , prayers and hugs you way💕
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Dearest Mara - prayers for you this morning🙏🏻🙏🏻. Special thanks for your DB & SIL for helping you.
Shanagirl - my MO just suggested I see my regular ortho doc. So I will plan to do that. In doing some research, it is possible for the ortho to repair the labrum tear through arthroscopy but the recovery is almost worse than a joint replacement. Requires weeks using crutches, which there is no way I could do that.
Prayers were answered - DHs pathology of 11 polyps came back benign. Thanks be to God!
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@goldensrbest Yes, praise god for the good news for your DH. That is an answer to prayer.
@mara51506 Covering you in prayers this morning.
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@goldensrbest I agree, Your MO knows best. Mine works with a team at the Brain & Spine Center which includes the Chief of Orthopedics, Nueuro Oncologists, Radiation Oncologist, and Palliative specialists and even Oncological dentist specializing in Jaw necrosis. These Doctors all collaborate with my oncologist at the John Theurer Cancer Center.
Yes the research I’ve done on the labrum and surrounding area is a tough thing to deal with as far as procedures for pain relief. The last 2 days I have had a lot of pain on my tail bone coccyx area , my next appointment is Dec 29, so I am also scheduled for regular scans in first week of January.. I still eel so tired from radiation and glad I have no appointments till the end of December and January.
Wishing all a pain free day 😊🩵
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OK, got some answers. I found out SIL situation, have to keep quiet as she asked me not to say any details but she has a lot going on, DB is in the middle of all of it so I feel for him.
Brain surgery is definitely happening, he wants the cyst out of there and wants to see about removing mets that were already there. Once done, will have PT and OT and looking into services. They were very nice, need a presurgery checkup.
We also had to discuss my DNR. Typically I am a DNR person but have to be willing to be brought back or the surgery would not happen so signed off on being brought back during surgery. Also need to get a will done and official Power of Attorney as they said that younger brother could be contacted and we are estranged. Luckily will is pretty easy but need to get a legal power of attorney. All of that will be coming.
Surgery will be sometime in January.
I am not feeling nervous particularly because I was expecting surgery anyway, now just have to go through the steps, get services for possible OT, Pt, who knows. I am in own pocket and DB and SIL pocket as well. Life certainly can pile on but we will get through it.
I was really hungry by end of appointment so they took me to the drive in at Mcdonald's, I do appreciate having the same neurosurgeon as well.
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Mara-Thanks for your update. Sounds like it all went pretty well. Glad you have a plan in place.
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Mara - prayers continue for you and your DB & SIL. We never know what others are going through….. Hopefully things will fall into place for you as you get prepared for surgery.
Pocket duty for all
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@goldensrbest great news about your husbands pathology.
Mara sounds like your medical team has a good plan for your care. Nice to have your DB and SIL by your side too.Take care ladies
Tanya
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@goldensrbest Thank you I appreciate that, I know they would too. Learning finally stuff that has been going on for SIL and DB puts into perspective not jumping to conclusions if people are not calling as often and certainly gives some valuable info and for me not to assume it has anything to do with me.
I am making some air fryer frozen pizza , threw some black beans in as well to crisp them up. I quite enjoy the crispy beans and lentils.
I told the neurosurgeon as we were discussing symptoms etc that other than when on steroids, my eating as been fine, I imagine there will be some steroid actions again, if so, need rabeprazole but will find out later.
I have got to say the pizza and beans were super good. The air fryer just makes a wonderful crisp on top of pizza and the beans get nicely crunchy in there as well. Nice not to feel like I need to chop up the beans or other stuff and could use crunchy beans to mix into queso and chips or doritoes as a more nutritious snack. I also was too late for chocolate so just had a fingerful of peanut butter as a small dessert.
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@shanagirl Thank you for your words. I am actually feeling more positive now that things are on track. Yes, day of surgery may be a bit nervous, but that is OK, hospital stay is blah but oh well. I plan to be in an out in 3 days if surgery is on a friday. I will also bring along chargers to plug my phone into and get to look forward to steroids but I do find I can nap pretty well and have a nice sleep mask I can take there as well and listen to my rain.
As to the after surgery part, I will see and have a call with my cancer clinic social worker in January. If I am honest, I will be glad to get back to a more normal routine of Herceptin and the odd scan, echo and routine MRI. I like my quiet life over here where the most exciting thing for me is a good tv program, soap etc and what to throw in my air fryer next.
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Your strength and calm as you deal with this latest development are admirable. Please know that you are surrounded by so many sisters who are thinking of you and hoping for an easy recovery. Make sure you wear clothing with very big pockets!
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@eleanora Thank you, I am glad to have the support of my family here and in real life. Appointments galore coming up.
I slept all night on couch unbroken, weird but there it is. Feel fine. got laundry, floors, cat area and sink to clear up as usual.
I have two more appointments coming up, pre admit stuff for upcoming surgery. 730 am dec 23 and and 10am dec 30. SIL called with those, problem is that my phone does not ring long enough, think it is only 15 seconds and have not found the right code to make it last for longer so when my phone did not pick up they called her. Oh well.
Again, will keep saying that I will be glad when all the preadmit stuff is done and get down to the actual surgery. My biggest issue for myself is just fatigue, when I was going through this the first time I was hopped up on steroids and no almost 10 years later, it is just a lot. I am still feeling pretty positive currently.
Meal is looking like almost a snack, going to crisp up some black beans in air fryer, once those are done, take queso and heat it up separately. Put beans, some tortilla chips and Doritos crunched up and have as more of a snack type vibe. Thinking of an egg tortilla later.
I do hope everyone has a good day, in pockets for all of us.
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