Ribociclib/Kisqali with Letrozole - Any one on this combo?
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@deedles13 I totally get what you are saying, and refocusing life seems to be a feature of growing old for all of us, in a good way! This thread is somewhat quiet, given all the people who take this medicine now.
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Hello and thank you.
Many of us up in years were probably doing that, then BOOM…a rapid increase in learning to adjust.
I’m trying to make it fun when I can, I feel very fortunate having a lot of emotional and physical support.This is a bewildering part of life, though.
My husband had a very unexpected quadruple bypass the day before my dbl mastectomy. Our daughters came through like troopers being there for each of us in different hospitals and all the stress on them humbled us and we are so grateful to them.
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hi ! An UPDATE for women who were forced into a medical menopause and suffer badly from hot flashes etc. That’s me too.
Taken Veoza for over a month and it works 🥳🥳🥳 my sweats have gone from most of the night and several times a day to maybe 1 or 2 a night. Magic ! unfair I suffered for 6 years whilst it had to be approved at so many levels. But 👍
Maybe this helps someone , I had to advocate hard because not one doctor had heard about it.
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Hi Ladies, Has anyone on the Kisqali/Letrozole combo experienced a small increase in tumor size and elevated SUV while on this combo? If so did you stay on this treatment plan? Just had my PET Scan 2.5 years on Kisqali and it’s the first time my numbers were slightly up. Thank you.
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Hi @dah925, I’m probably not who you are looking to hear from as I’ve been on this treatment for only a year and had great scans till this last one. There was minor elevation in SUV in a few of my ‘innumerable’ bone lesions. My tumor markers are trending down but are still very high. My MO is hesitant to change my treatment and gave me the Guardant test to get a different perspective. Waiting on results and ultimate decision on possible changes in meds. The increases were very small and I am still considered stable but, to me, any increase is a progression I don’t want. I’ll let you know what is decided.
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Thank you @eddiej. I appreciate your response. I will be interested to hear how your doctors proceed. All the best to you for some good news to come your way.
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@dah925, my markers are gradually rising again, they are up at 80 now, having dropped from 200 to 34 after initially starting treatment. They hopped around the 40 level for 18 months but now there's a slow but gradual rise. My onc. says that he takes an overall view and doesn't rely on tumour markers alone. Which is nonsense as he was galvanised to change meds when markers hit 200. I'm curious re what the view is of tumour markers in other countries
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Hey ladies,
Just checking in after a 5 week ribo hiatus and a restaging ct scan that showed progression in both my breast tumor and the mediastinal nodes.. Also my tumors are now marked HR low + and HER2 low + which means the hormone suppressants aren’t helping much anymore. The initial plan was to switch to Verzenio once I stopped taking the steroids for my liver enzymes. But now I’m scheduled to start IV Enhertu in a couple of weeks. This is a situation I was not prepared for and there have been a lot of tears. I was really hoping to see results from my first line and treat this with pills, like so many other people do, but it wasn’t in my cards, I guess.
I’ll still lurk around and read about your success stories, you were the first people who showed me that there may be a possibility of a long quality life despite MBC. But I guess I’ll start looking for forums that match my treatment plan better as well.Stay healthy and hopeful 💜
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Good luck with the new treatment, dear @elena_p. I'm so sorry you had to move on so quickly from Kisqali but I know there have been people here surviving a long time with many treatments. I hope we can all stay ahead of the game!
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