My Husband, My Life, My Love, My Family, My Cancer
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@threetree Forgot to respond to your questions… Yes, I experienced mild cramping on Xeloda but no noticeable fluid retention.
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@intolight - I really appreciate your response. I'll see if my cramps get any worse, otherwise maybe they won't be a real problem. The fluid retention is mostly in my legs and feet and I'm beginning to wonder if it isn't possibly related to my sitting up at the computer more often these last couple of weeks. With these things coinciding with starting the drug it's hard to sort out what's causing what - a big ongoing problem with all this cancer treatment. These symptoms are much like what I get when my potassium is low, so maybe I'll make sure to eat some higher potassium food over the next few days. I'll get a routine blood draw at the end of the month, and that should show something.
So sorry about your daughter and granddaughter being sick. I wish them both a speedy recovery. It does sound like a real good set up that you have with your downstairs - perfect.
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Thanks for all your responses to my post. Maybe I am not as social as I thought. Prior to cancer, and when I was younger, I did enjoy being in the buzz of activity. But now, with the cancer, and older, and my mobility issues with the arthritis, I don't really miss going to the "latest" activity. Maybe older and wiser? Who knows. I just do not see myself being in the large crowds that were posted in the pics on Facebook concerning that fundraiser dinner. I don't want to go to activities like that bad enough to put my health at risk. Not worth it. And I will get back to attending church when the illnesses abate. And I can call my friends and go to lunch with them when there is not as much sickness around. I will have a better time if I am not concerned as much about the person sitting at the next table. Oh, don't get me wrong, I do miss some social gatherings. But not enough to risk my health.
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@threetree I do get some muscle cramps on occasion usually while I'm sleeping> No noticeable extremity swelling but I do feel like my week on I have a little chemo belly bloat. Fingers crossed this first week goes well for you.
@candy-678 You we all have our comfort zone and it's fine! I got the flu shot but not covid and I'm probably not as cautious as I should be sometimes. I am a big hand washer and sanitizer gal especially after touching door handle etc in public places.
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@mara51506 I’m so glad you are home and already planning what meal you want to make, I sounds like you are back to your energizer bunny ol’ self🥰I’m sure your kitties are happy too, that you are back home. I am just so happy you are safe at home and having a great recovery. I was so worried about you my girl. Please don’t over do it and try to commit to resting‼️🌷🩵
@xsuzx Did your onc say why he wants a bone or marrow biopsy?. Whatever the procedure, just insist you want to be out for it. My anesthesiologist alwasys says “don’t worry I’ll mak sure. I have a heavey hand, you won’t feel a thing or be aware.” I’ll be in your pocket and sending calming vibes.💗
So tomorrow is scan day at the Cancer hospital. Ugh such a long day. NM Bone Scan & CT. I’ve been so miserable since PT on Friday. it was my first day back since my radiation ad PT for the Radiofrequency ablation to my neck cervical spine. the PT must have stirred up the 8 facet nerve lazer injections that burned my nerves. I’ve been almost immobilized from the gnawing pain down my neck and scapula bones, all night i was awake with stabbing knife like pain in my C-3 C-4 C-5 C-7 where the neurosurgeon cauterized the 8 facet nerves on each vertebrae.. I was so annoyed at myself for telling him haow wonderful I felt and the procedure had worked so well and all I was taking for pain was Motrin & voltarin which has always worked when I get bone pain. but I should have asked him for oxycodone during my followup last Monday. H renewed my PT for my neck and learning how to use a cane properly .i thing the girl PT had me over do it with the neck strengthening exerises and shoulder pulley. She didn’t even give a good massage and traction the way my normal PT does, but he was out on Friday. He’s also aware I have compression fractures in T3 vertebrae between my shoulder blades and my PT has always helped me recover from the procedures in my neck. But Ihave not been in PT since before I went for the 10 day Palliative radiation for the met in my Acetbulum bone in my hip socket.. the last day for Rad was the day after Thanksgiving, The Rad Oncologist now has me in PT for my hip
@candy-678 hey there girl. It’s always good to see you drop in. Yes I remember having to retire from your career took an emotional toll on you. But you could not have kept that pace up dealing with the fog of cancer and all the side effects of treatment. Also dealing with ignorant people who just don’t get it when they treat you like the “identified cancer patient . I remember how you were so sad about retiring.I’m glad your QOL is good and you are doing so fun things that keep up you QOL.. I kind of feel the way. You do. My QOL is ok so far, even with Stage IV for going on 3 years, I was diagnosed in 2009 Stage IIIA and NED all those years until 2022 it shows up as bon Mets. I thought my life was done and over at my age even though I’ve always been active and young at heart and in my mind, I will be 77 in April and I keep thinking I plan to stick around into my 80’s if I can manage that but I don’t know how long my current meds will keep me reasonably stable..
Hi @threetree , I’m thinking of you as you wait to get some answers from your scans. Waiting is frustrating when your mind is going crazy wondering what’s what with this rechid disease. Sending som breath prayers your way. And hello also to @eleanora and @chicagoan and everyone else. Have a blessed evening Of peace and rest, everyone, oh and. @irishlove ….love ya Laurel. Have a peaceful evening with DH,♥️
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@cookie54 - That's really interesting about the cramps you get at night. That's when I notice most of this, so maybe it won't turn out to be anything more than this. Very helpful, thank you so much.
@shanagirl - Oh Shana, are you ever going to get a break with this neck thing? I can't believe how unpleasant (understatement) this has all sounded, and how amazingly you have risen to the challenge. It does sound like you've made some good progress, and this latest issue with the PT and all is hopefully just an unfortunate bump in the road, and things will smooth out again soon. I am "only" 73, and I too always figured I'd make it into my eighties, and I'd still like to, but like you noted, it's hard to see that these drugs can/might carry me that far. Family history and my relatively good health, before the cancer diagnosis all suggested I'd very likely get into my eighties, but ...
I think of you often and really appreciate your comments and support. I'm sending you lots of good wishes and a hug, as you continue to work on your neck problem, and for your scan day tomorrow. I know those very well, and how long and anxiety producing they can be. In your pocket, and here's to a good scan report!
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Good evening all you sweet gals. @shanagirl That saying is you are only as old as you feel, so I lie and say I feel fine. Now lets see what that adds up to in dog years. lol. I do not believe that 77 is anything more then a number. Just wish they could get you pain free so you can enjoy more fun things to do. @mara51506 You have certainly put me to shame with your housework getting done so fast after a serious surgery. We are just so very happy to see you and hear you and know you are going to be just fine! @threetree In your pocket for good results from scans. @intolight My email showed I have a message from you here at breastcancer.org. I'm afraid nothing has shown up. I hope you are doing well with your new treatment.
I have an endoscope Jan. 28th. It's a challenge swallowing fluid or fluid with meds. No problems with food, so far. Some minor acid reflux even though I'm on a proton inhibitor. I feel it's MS related, but neurologist doesn't. So Gastro said we will do the endo but he will also refer me to a speech pathologist. I like this plan. UTI is cleared finally back on Ibrance. It's been 4 months since full scan and I'm getting anxious that it's just too long to wait.
No snow here, but did drop to 30 this morning. Sis said going down to 11 and they had snow again today. Looks like 4-6 inches. Latest weather guy is calling for large storm next Sunday. Sleet, snow, rain across numerous states. I'm so grateful DH no longer walks a police beat up in the mountains of NC.
In pockets for all your needs.
Irishlove
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@irishlove Thank you for saying that, my apartment is small so it is not hard, just have to follow an order, make bed first, floor, box, bathroom. and kitchen. Still soak dishes and make sure they are done as well. Also got some recycling out back to take out tonight as well. Next week, got garbage to take out as well.
I do have laundry as well, what else is new I suppose and I am not upset about that fact, still love it myself. Love washing first, adding some lysol laundry disinfectant and then the softener cycle.
Not sure on food today, I have some beans pulled out, black beans and will probably air fry them, eggs could be on the agenda and definitely yogurt and jello. May try a softer boil, 7 mins on 140 in the shell, get a runny yolk out of them
I do hope everyone has a good day and I am in pockets for everyone.
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@irishlove - In your pocket for sure, for your endoscopy. Also very glad to hear that the UTI is finally gone, and that you are back on track with the cancer meds - so important. I woke up to 30 degrees also, and am enjoying it, because it's been coming with sunshine these last few days, and it makes for great walks; sun and frost together is a real treat in the morning. You are talking about @mara51506 and all of what she does re her housework, well I'm equally impressed with all you do for the "outside", tending to all the wildlife and plants; bringing various ones inside, due to the weather, etc. I couldn't do all that either. Hope you have a wonderful day.
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@irishlove I am impressed with what you get done outside as well. Most I get outside is in back in my container to store stuff til recycle or garbage day.
Everything did get done today and I am happy about that.
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@shanagirl Best wishes for your scans tomorrow. Your neck issues sound so painful. I hope that you get the "good" PT next time.
Stay warm everyone!
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I need a new freaking computer. Four paragraphs lost and boy did I try to recover them. grr.
@shanagirl I hope all your testing went well and quickly, too. That's a lot in one day. I found gabapentin helps with nerve pain that I have due to MS. @mara51506 I'm about routines. Curtains open to welcome the sunshine in and bed made everyday. I can't climb into an unmade bed. @mara51506 I love routines also. When I wake in the morning, open the curtains first and make my bed. I just can't climb into an unmade bed.
Lost half the post again. I wonder if it has anything to do with that solar flare? I'll just say goodnight and thank you everyone for your encouragement that keeps me moving. In pockets for all your needs.
Irishlove
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