Bone Mets Thread
Comments
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@threetree and @norah2024 - I had seen a long, detailed video about it and found this short one. I just received my order and noted that it is packed in plastic. I will try half a tablet to try today because I am very sensitive:
https://www.youtube.com/watch?v=g2-0RMcygqk
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hello everyone
Since starting Afinitor, I have been experiencing a severe loss of appetite.
At first, I was able to eat small amounts that helped me get through the day, but now my appetite is completely gone, and even foods I previously tolerated have become unbearable.
I have tried several methods, such as gargling with baking soda and water or salt and water before meals, but these did not help much. I also tried eating small meals every two hours, however the nausea makes it very difficult to force myself to eat.
At this point, I cannot tolerate any cooked food at all—only some fruits and raw vegetables. Even bread, yogurt, and milk are no longer tolerable for me.
What worries me most is that with this medication, loss of appetite and nausea have become daily issues. During chemotherapy, these symptoms usually lasted only 3–5 days and then I was able to eat normally again.
With this new medication, I don’t know how long this will continue, and I am very concerned about ongoing weight loss.
I would greatly appreciate any advice, experiences, or suggestions regarding appetite stimulation, ways to reduce the smell of food while eating, or the use of nutritional supplements or IV solutions.
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@norah2024 Just speaking as an old person, old people often drink protein drinks for calories. Are you able to tolerate those?
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I’m sorry you are going through this. I am having similar issues, but because of fluid in my abdomen. I almost stopped eating.
I spoke to a dietitian at the cancer clinic, and high calorie, high protein is the best thing, but small portions as to not overwhelm you. Believe me - I understand this!I’m doing small chia pudding for breakfast, or a smoothie with yogurt and fruit. Also small mouthfuls of cottage cheese. Egg salad seems to sit ok, as does plain toast. I can tolerate some juices too. I see some of these may not work for you. But the important thing is the calories.
To look at some food just turns my stomache. I can’t make dinner - or eat any meat.
Good luck, I really hope you turn the corner on this, but I absolutely understand what you are going thru.
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Norah, you could ask your doctor about mirtazipine. It’s an antidepressant used to stimulate appetite. I took it once for depression and could have eaten every pizza in Chicago. The animal shelter where I volunteered used it for cats that weren’t eating.
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@norah2024 - Is Ondansetron (Zofran) an option for you? Dissolves under tongue for nausea. It is like a miracle for me in that it seems to relax my stomach and stop nausea in its tracks. Comes in 4 mg and 8 mg dosages. Magical - I swear by it. Hope this helps. Healing thoughts for you - Terry B.
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Thank you, ladies, for the quick responses to my questions and for offering so many solutions.
I actually thought about this, but my husband opposed the idea and said that these products contain many dangerous things. He’s a health fanatic and always pushes me to follow his health-related beliefs. I might buy them and take them without him knowing.
Thank you so much for your kind feelings.
I truly search every day for whatever my appetite desires. I absolutely cannot tolerate cooked food at all, not even grilled meat. Yesterday I forced myself to eat a few pieces of grilled meat, and I was washing them with water to remove the taste, then eating them quickly with large gulps of water. I just wanted to eat something so I wouldn’t collapse.
I buy fruit because it’s the only thing I can eat without hesitation, even fruit juice. As for vegetables, I can’t tolerate them either. I used to eat cucumber, lettuce, and salad, but now I only eat lettuce.
Regarding the antidepressant you suggested, I will ask my doctor about it at my next visit, as it might also help reduce my depression.
As for Zofran, I remember taking it after chemotherapy doses, and it was effective for me, but I couldn’t tolerate its taste. I’ll try asking the doctor about it.
When I first started taking the medication at the highest dose, I experienced loss of appetite for a few days, but it wasn’t this bad. I used to eat my meals, just in smaller amounts, and my weight began to decrease until it stabilized — calories in equaled calories out.
But after my doctor adjusted my dose to 5 mg, and I didn’t receive this dose until after a week during which I stopped the medication, and I also changed the dosing time from 10 a.m. to 8 p.m., all of this led me to a stage where I can no longer eat anything at all.
Thank you again, and I hope my condition improves in the coming days.
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