Bone Mets Thread
Comments
-
0
-
Hi bone mets ladies. Pain with bone mets varies for me for different reasons. @xsuzx I’m sorry for what you are going thru with the bone Mets showing up so quickly after your original breast cancer. I had gone 13 years before it showed up in my bones. Ribs ,Thoracic & lumbar spine., hip, sacrum, tailbone and last month a new lesion on my Acetabulum (where thigh bone socket attaches to hip.) that was causing me new and sharp pain when walking and pain sleeping on my side and groin pain. My Oncologist had his Radiology oncologist consult and evaluate me for Palliative 10 day Radiation for the pain. I finished the 10 day course the day before Thanksgiving,. The Pain has gone away especially in my groin, but I still limp with a little pain the first few steps after getting up from a sitting position, then once i get going I can walk painlessly. I still have not walked around the block yet because it’s been too cold and windy. Here at the Jersey shore🥶❄️. it was a good that your oncologist did a liquid biopsy on you, which probably gave him a lot of information about your type of cancer and what medication treatment cocktail will work best for you.
@threetree Hey there. 🩵🌷. Whenever I have any pain that;s new, my onc has me scanned to see if there is anything progressing in the area that;s hurting, before he decides how to treat the pain with radiation. up until now I’ve never needed anything more than Exedrin, a heating pad, or the Voltaren gel. But the radiation seems to have helped.
@norah2024 I read your update. I;m sorry you are going thru your uncertainty right now. If you don’t feel convinced by the current. diagnosis, or that your doctor is recommending the best treatment, then you should go with your gut and get an opinion from an oncologist that comes highly recommended in your area…. having stage IV metastatic cancer is not something you want to have treated by a doctor who you don’t feel confident with. Has he done a liquid biopsy from your blood lab tests to look at the cancer genome dna to know the best med treatment for your type traveling cancer cells in your blood?.
@tougholdcrow Hi there 😊🩵
1 -
oh thank you for getting back to me. I go for my first radiation consult tomorrow morning so hopefully we can get this ball rolling. Even pain pills don’t seem to help but I meditated and it has calmed down thank goodness. I had it yesterday and today. Hopefully it will stay manageable. Thank you for sharing your sternum story.
1 -
Shana girl, it has been 8 years since my original LCI and they did lumpectomy and Arimidex for 5 years. So it’s 8 years between. Is that soon? What is a liquid biopsy? Is that the genetic testing he did my last visit? I know I will become more familiar with all of this…..and thank you for the quick response. I’m a little nervous about tomorrow, and glad radiation helps the pain. Thank you everyone ❤️
1 -
Thank you for your reply.Regarding changing doctors, I have thought about it and my family has advised me to do so. However, he is considered one of the best doctors here and has an excellent reputation, which makes me hesitant to leave him and start over with another doctor.
Especially since I no longer have insurance after my husband retired and we began paying out of pocket. This is something many hospitals do not like, as we carefully review every test to determine whether it is truly necessary.
I started the new medication about a week ago, and I have an appointment with the doctor in three days for blood tests to see how well my body is tolerating the treatment. I hope things go well so that I do not have to change doctors again.
As for the liquid biopsy, I did have it done while I was on Kisqali, but the process was not well organized. I never clearly knew which mutations were tested for, nor what the actual results of that biopsy were.
0
