Bone Mets Thread
Comments
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Thank you for you nice words,
We have identified the cause of the loss of appetite, but it still hasn’t improved. I still don’t feel like eating, and at the same time I have to eat because of the many medications I’m taking.
As for my current condition, I am still taking two types of antibiotics prescribed by the pulmonologist. I am also taking Afinitor, Exemestane, and Omeprazole for my stomach.
Sometimes, after taking any of these medications, I experience a severe coughing episode and end up vomiting everything I’ve eaten.
I don’t know whether I’m improving or not, as I’m waiting to finish the course of antibiotics so I can repeat the CRP test to see if it returns to normal.
What worries me is the vomiting after taking some of the medications. Yesterday, I vomited 45 minutes after taking Afinitor, and I was concerned that I may have expelled the pill before it was absorbed.
I will see what the coming days bring. I feel extremely weak and exhausted, and I hope this nightmare ends soon.
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@norah2024 I would definitely want to rule out any disease causing these digestive problems, and it sounds like you have. Have they prescribed an anti-nausea medication? When I was going through chemo, they automatically prescribed olanzapine for me, though I never took it. I basically lived on yogurt and kefir for five months while I was going through that. The gentle probiotic action of yogurt and kefir really helped for me.
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The idea of taking an anti-nausea medication is a good one. I will complete the course of antibiotics, and if my condition improves, I won’t need to take it, because my doctor said that the loss of appetite is due to the infection, and once it clears, my appetite will return.
And indeed, sometimes I do crave some of our dishes that I used to prepare before.
As for yogurt love it more than you can imagine. I actually asked my husband today to bring me some, and I think I’ll be able to eat it without any problems.
As for my condition, I have not yet completed the course of antibiotics, and it is the most unpleasant part, as I have to take it three times a day.
Thank you for your continued support and advice.🧡🧡
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Hello everyone, I am still very upset. I am feeling very dismissed by my oncology team. I admit it could just be me. My white blood cells are still low, still off verzenio. I have appt with nurse practioner who I love on Tuesday. Then I have a lab appt Friday. and then the following week meet with oncologist. I left another message for my oncologist about ordering a PET Scan she wants to wait until after I meet with her for March 6. I dont know what the deal is. I know to many scans have their own issues but I want to make sure the cancer has not gone outside the bones. I am feeling increasingly annoyed with no one to talk to. I don't want to change oncologist right now however that may be necessary. I was doing so well and feeling as good as possible, now I am so upset being another week off Verzenio.
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Can you go somewhere and just get a second opinion? Not a full on switch to another oncologist, but just a bit more input from another pair of eyes and ears. Do you have any urgent care/walk in clinics near you? I've used urgent care before, and my PCP, just to get another take and/or some reassurance when I'm in an unsure situation like you are. I think an urgent care would be totally appropriate on a weekend and given your low cell count. You can just tell them you're worried and want a double check and some advice. Just my two cents. I hope you get some answers soon.
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@jen1 I second @threetree 's advice to get a second opinion. It couldn't hurt. This amount of time between imaging scans seems off to me, and if nothing else it could ease your fears. Oncologists, at least the decent ones, expect for their patients to get second opinions.
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Thank you threetree and tougholdcrow . What good advice I don’t know why I have been avoiding a second opinion. I absolutely am going to do that.
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