Kisqali
hello everyone, I am new to this forum and wonder if anyone can help me. I have invasive lobular cancer which had spread to my lymph glands by the time I was diagnosed, a year on and I an I have had a mastectomy, completed radiotherapy and have started taking Letrozole.. My Oncologist yesterday has offered to start me on Kasqali ( Ribociclib). Can anyone tell me if you have started this medication and how you are feeling.
Just want to hear some personal accounts before I make the decision.
I am so fatigued already and battling to hold down a busy full time job, so wan to make the correct decision.
Many thanks everyone!
Comments
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@suelarue12345 I have been on Kisqali for two years, and struggled with fatigue for many months but it tapered off and I feel pretty great now. I also had chemo, so some of the fatigue may just have been an after-effect. I kept moving, and I think that helped.
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@suelarue12345 Hi! I am in my second cycle. I had to reduce my dose from 400 to 200 mg because of my white blood count. I felt some tiredness by the end of the ON time, but exercise helps me. On the lower dose I felt fine. I am in my off week now and I am experiencing some mild nausea (not even sure if this is from the medication, but possible). I hope it goes away sometime soon. Good luck!
3/19/26 - I want to add some info that I learned after posting the info above. I realized that my nausea stayed for a longer period because I was not eating snacks between meals for a week (attempted of fasting). I found that not only taking the kisqali with meals but actually making sure I had small snacks along the day really helped me with nausea situation.
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Hello @rose_garden78,
Is a lower dose as effective as 400mg in preventing recurrence?
Orginal Dx Feb 2026: Stage 2a, Grade 3 IDC HR+ and Her2neu negative, ki67 30% and LVI +
Underwent lumpectomy, now on RT and Letrozole
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Hello @tougholdcrow,
I have been diagnosed recently with stage 2a BC in Feb 2026. What can I expect about this journey? How frequently scans will be done? MRI or mammogram or pet ct?
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Hi Yuviii, I am sorry that you have to go through this. It is stressful at the beginning, but it gets better! I was diagnosed with stage 2 as well (Feb 2024). I had it in one of the breasts but decided to remove both. If you do reconstruction, I believe that twice a year you do the mammogram/MRI (you can also ask you doctor). No reconstruction, no need for scans. Are you doing surgery?
About the efficacy of kisqali, I was informed the it continues to be effective.
Take care!
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Hi @rose_garden78, I have undergone lumpectomy in Feb 2026. Right now I am on RT as it was a breast conserving surgery.
You too take care:) More strength to you. Cheers
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@yuviii I am not sure of yhe imaging schedules for early stage breast cancers like yours, but i do know that the kisqali and letrozole combo is good and powerful. For me, the side effects (mostly fatigue) lessened as time went on
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Hi everyone. I was diagnosed stage 1a in April; had lumpectomy along with sentinel nodes followed by 4 weeks of radiation. The MO put me on Letrozole and Kisqali. After 2 weeks on the Kisqali I started having mild chest pains and occasional irregular heartbeats. They’ve decided to take me off the Kisqali until I can see an oncology cardiologist in late October. I’ve been off the Kisqali for 2 weeks and the chest pains are lessening, but I’m now having all kinds of odd joint pains. Started in my right hand, now in my left and my ankle will occasionally give out on me. I knew joint aches were common on the Kisqali but didn’t expect it to continue to worsen after being off it. Has anyone else experienced this?
Thanks and take care everyone.
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