My Husband, My Life, My Love, My Family, My Cancer

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Comments

  • eleanora
    eleanora Posts: 545

    @seeq

    Thanks for sharing your experience with Verzenio. If that is the choice, I will refuse to start at the highest level, as that is where I was started with Kisqali initially and the pain was horrific. Even after a reduction to 400 mg, it was a 3-4 month adjustment period. My MO is dismissive of the impact of SEs, but I'm a lot more knowledgeable now (much of that due to this forum) than I was when I first reached Stage IV in 2022!

  • mara51506
    mara51506 Posts: 7,360
    edited 4:38PM

    @mkestrel Those are very beautiful pictures of the park you hiked in.

    @candy-678 Still in your pockets as you get more info in the PETscan and such.

    I just woke up, about to make breakfast to eat a bit later. Also doing some laundry to start with, when I get home I will do other chores.

    Wanting a nutritionally dense meal so going to add beans and lentils with beefless ground and cheese. I replaced beef with some left over elbow pasta from a pack of Kraft Dinner. Will add 1/2 cut beans, 1/2 cup lentils, a spoonful of queso, the tostitos variety, give a good stir in air fryer. I always use high temp which is 392 F on my wee air fryer. It should taste quite good, not sure on seasonings yet. Probably a mix of sour cream and salt for now. Waiting on a new sour cream seasoning and a garlic and butter seasoning. Says it is for streak BUT, cannot see a reason not to add some extra taste to a meal without an over abundance of fat. I will post later on. I am also looking into meals that can incorporate microwave popcorn, extra fiber there, I will see.

    EDIT The beans and lentils were delicious and I used some of the elbow macaroni to fill it out there was also beefless ground in there. I could not finish it so will eat later on. Used proper tostitos queso, added sour cream as well.

    I will post MRI results when get home, not expecting too much but on guard anyway.

  • candy-678
    candy-678 Posts: 4,284

    Cross- posting. I put on the Liver Met Thread too:

    I have had liver progression with my latest scan and am looking at third line therapy options.

    Any ideas?

    I have been on first line CDK 4/6, and second line PARP for a BRCA mutation. Now I am considering what is next. I want to stay on orals for as long as possible.

    Throw out some next options…

  • intolight
    intolight Posts: 2,985

    @candy-678 I have had bone and liver mets for ten years since original dx and on orals the entire time, but I do not have the BRCA mutation. I started IV chemo in January since I have gone through recommended orals for my specific mutations, etc. My bone mets are under control (are inactive with no new ones) and so far on chemo my liver mets are shrinking. I have requested maintaining the best QOL possible so we are not being overly aggressive. I don't remember your age but I am 73 and am happy for my last ten years praying for ten more.