Early Stage Breast Cancer - anyone on Letrozole and Ribociclib?
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I was diagnosed with stage 2 breast cancer with a high oncogene score. I finished chemo and surgery and am now on letrozole and Kisquali (been about 6 weeks). I wonder how many others feel like "their body is dealing with something" but don't know how to put it into words. I do have some digestive issues, some joint pain, but there is something else that I feel that is hard to articulate. It's almost a feeling of body harm, if that makes sense. I'm reaching out to see if anyone else has had this feeling. Thank you.
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Hi everyone, back in January I commented here that I was going to start Kisqali, which I did in February. The first 2 months were fine, didn't really have any issues. Then in early May I started to feel very fatigued. My blood work was starting to show my liver numbers increasing. They stopped the Kisqali and had me get blood work more often. My bilirubin, AST, and ALT kept going up and up. When my bilirubin got to 9 they admitted me to the hospital. I was in for 5 days. The numbers were so high they thought it was something else besides the Kisqali. They gave me a full liver workup and didn't find anything else. I think it was here or on another forum that I saw others with this issue and they were given prednisone to get it under control. I kept asking for this and they seemed hesitant to give it to me, but finally they did and the numbers started to go down. I stayed on prednisone for a month and my liver has fully recovered. I'm mentioning it here because like I said, I would not have known to push for the prednisone if I had not seen that on a forum like this! So just on anastrozole for now and soon will be starting Zometa infusions for low bone density. I am happy for those that can tolerate Kisqali bc it does seem to work well. I think it's important for your doctor to monitor your blood work. I know that is a pain but is needed.
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Hi. Thank you for sharing. Glad you have recovered. That was scary. I have been on Kisqali and letrozole for 1 and a half years. So far liver enzymes are okay . I just have a slightly decreased white count.
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@kayceezee Thanks for the reminder to do bloodwork. It's a total pain. I'm traveling now and have to get it done, and it's been a pain. Different health systems don't seem to communicate as well across state lines. I'm glad to hear your liver has fully recovered, and I'm grateful you shared your experience on Kisqali. I'm almost two years in, and sometimes I forget how powerful these drugs are as they have become such a regular part of life.
Looking forward to getting off of these.
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