Anyone starting brand drug, Enhertu?
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Going in for Infusion No. 19 on Thursday. I'm still at full dose with minimal side effects. I have been on Enhertu for a year. So far, my worst SE has been cataracts from the Dex. I had cataract surgery on both eyes, I'm off the Dex. Perhaps I didn't need it, but I now have perfect eyesight because of it, so I can't complain. I also suffer from ONJ due to my years on Xgeva. Another weird SE, but it forced me to slow down my chewing. Enforced portion control! I lost 40 pounds in a year. Some of which is also due being on Enhertu, I think. I had 40 pounds to spare and I have leveled off. Again, I got some benefit from a bad SE. I want to be encouraging to anyone out there who is following this forum. It's possible to feel well on this protocol. I just got back from Puerto Rico. I snorkeled and swam and drove an ATV through the rainforest. I don't think I'm rare. I just think that people who are feeling well don't post on forums.
At the same time, I am grateful to those who keep us all informed about their difficulties and setbacks and how they manage to work through all of it. Even though I've felt fine so far, I know it can't last forever and I'll keep up with this forum so I will have a store of information on how to cope with the little stuff and the big stuff and the existential stuff.4 -
I just found out I am going on Enhertu. I am going to read some of the previous posts and get caught up with this Thread.
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Hi @candy-678
I was on Enhertu plus Perjeta which is stronger than Enhertu alone and can say that it is a miracle combo. If you can tolerate the treatment, stay on it for as long as possible.
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I just had my second dose of enhurtu and perjata, these are encouraging results. Thanks and continued healing!!
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@lmgspann, hi! We’re really glad you’ve joined us here. You’re very welcome in this space, and we’re here to support you, listen, and walk alongside you as you go through treatment.
Please let us know how we can help, or if you just want to share how you’re getting on.
Wishing you strength as you continue forward.
The Mods
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Hi. I am on Faslodex and Kisquali but now have developed drug resistance and my Oncologist recommends Enhertu. I am worried about the side effects and discomfort and would like to hear any updated sharing on this.
mck
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@louisamck I'm glad you found this thread! As you can see from previous posts, many people have had encouraging results from Enhertu. The side effects seem to be wide-ranging, but there are many ways to manage whatever comes your way. Best wishes to you.
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Same to you, @louisamck , we’re here for you as you start this next step. It’s totally normal to feel worried, but you’re in the right place to hear real experiences and ask anything that comes up. If it helps, here's one of our articles on that you might want to take a look.
We’re all here with you!
The Mods
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Hi all,
I have gotten great information from previou sharings in the group on Enhertu. Thanks to all! all personal experiences are so valuable and useful. I have a metastatic tumor in my liver which grows significantly as pick up in my last PET scan in February, I will be having another PET scan in May to check the status and decide whether to change from Kisqali/Faslodex to Enhertu. I'm still worrying about the side effects...
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