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Faslodex Girls Thread

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  • tbos805
    tbos805 Posts: 49

    @radiation_cinderella - I, too, have developed a new allergy - to shrimp and shellfish!! What the heck! ?? These were some of my go-to protein sources. I didn't figure it out until the 5th or 6th time eating shrimp as I always blamed everything on the Verzenio. Good luck managing your allergies and thanks for the conversation -

  • brutersmom
    brutersmom Posts: 1,215

    @radiation_cinderella I am now on restasis. My eyes were always itching. I was using moisture drops every hour or two. Claritan made it worse because it dried me out more. Ibrance drys out my eyes, nose, and mouth. During allergy season I also used patady. These drugs do mess with our body in many ways.

  • I’m starting Faslodex tomorrow and want to know what to expect. This is my second go round with breast cancer. Last time Ductal stage 2 -lumpectomy, radiation, with 2 years of chemo for HR- cancer.
    This time, same breast, stage 2B lobular. 1.5 months out from a double mastectomy with reconstruction. And now start treatment tomorrow for at least 5 years will probably add Letrozole once we see how I adjust to the Faslodex.
    Just want to know general what to expect and other people’s experience with it.

    Thank you!

  • brutersmom
    brutersmom Posts: 1,215

    I have been on Faslodex for close to 2 years. I have had very few issues. The worst part is just getting the shot. I call them a pain in the butt. The only time I had a problem is when I had the flu shot and faslodex within a day of each other. I do try and walk after the shot. In the winter inuse heat. I was told to avoid ice because it can increase the risk of developing lumps. Make sure you relax the leg they on the side you are getting the shot. Inlike to put my knee on a chair. Hopefully the nurses will guide you.

  • shanagirl
    shanagirl Posts: 681

    @brutersmom I went Monday for my Shots. I’ve been taking them since 2022, almost 4 years. No issues. Only that the next day the lump in my buttcheeks from the shot gets sooooo itchy li a big hive.So I spray BACTINE on it and the “Hive” subsides immediately and goes away after a day or two. I get the Xgeva shot in my arm first then my butt cheeks.There is a recliner chair there in the chemo lounge and I put my knee on the chair hold the soft chair arms and shift my weight so the injection sight is relaxed. I alway forget which side to shift my weight though. I always have to ask which side to I relax? 😊

    @tbos805 . My husband developed an allergy to shrimp and cannot even go near any shell fish anymore. Started during a shrimp dinner I made when our children were very young and all of a sudden at he dinner table his face blew up,and his eye became slits. Our GP who lived in our neighborhood told him to come right over to his house where his practice was on the first floor. As soon as he saw my husband at the door he gave him shot of epinephrine. He said don’t ever eat any shellfish again because each exposure is more severe you may not even make it to the hospital. He would go into Anaphylactic shock. So he also prescribed an EpiPen. Over the years, we noticed that he can’t go into a hibachi restaurant without his asthma being triggered by the shellfish cooking. So, though he was always asthmatic, shrimp never bothered him nor did me eating shellfish in a restaurant across from him. I also developed seasonal allergies, in my 50’s. Then, asthma after a bout with the bronchitis during those years. So I developed late age asthma. I didn’t develop cancer until my late 50s . So I guess our bodies are always dealing with illnesses throughout our lives.🫤🌷🩵

    @weareburnetts I am so sorry you are dealing with a 2nd go around with breast cancer. You are in the right place to get support and encouragement as well as gaining information about your diagnosis, and medications. Fasoldex is a good treatment to help you thru this Breast cancer nighmare, I hope your Fasoldex injection goes well, and make sure they warm it before giving to you.Take great care.💕

  • brutersmom
    brutersmom Posts: 1,215

    @Shanagirl. I do the same thing with the weight. I blame it on my left and right hand confusion from my mother trying to force me to be right handed. Something she always said she read in a dr Spock book.

    Also my shoots don't need warmed. They can be out for several days now. Some places still refrigerate. My facility has not for about a year.

  • eddiej
    eddiej Posts: 120

    @brutersmom Same! I’m also a lefty and am forever saying the wrong hand/way but showing it correctly! My fam knows to watch where I point vs what I say My parents used to say I was the only kid saluting the flag with her left hand during assembly as a child. I play all sports as a righty but can switch hands when playing pickle ball now and paddle ball when I was young. 🤣🤣

    I really don’t mind the F shots and I really like not having to take a pill(s) everyday so do pray Faslodex works for me a long time! 🤞🙏

    Same for all of you!!

    xo juliana

  • shanagirl
    shanagirl Posts: 681
    edited August 13

    ugghh, I fell so yucky since my Fasoldex Xgeva injections last Monday. Sooo much bone pain this month and really weak and tired.. I’m sitting her right now feeling so tired and not wanting to get things done. I’m wondering if those injections are worse this month because of my recent hospitalization for Hemorrhagic Pneumonia???. Ugh I feel like I just don’t have the energy to move.

  • threetree
    threetree Posts: 2,732

    @shanagirl - I always needed a good week or even two after the Faslodex shots, and in my case the Zometa infusions. I think it's just harder for you this time because of all that you've been through with the pneumonia these past months. Rest for awhile and give it some time. Hugs for sure!

  • brutersmom
    brutersmom Posts: 1,215

    It is probably harder because you were sick. I was told that for everyday you fight an infection you body needs a week to recover fully. Hopefully next month will be better

  • tbos805
    tbos805 Posts: 49
    edited August 13

    @shanagirl - Healing takes a LOT of energy!! You are having to replenish your energy "account" so keep napping and resting and making those "deposits" so you can make bigger and bigger "withdrawals" as time goes on.

    "Resting is doing." ~ Matthew Haig, The Comfort Book

  • Rosebessie
    Rosebessie Posts: 195
    edited 6:15AM

    @shanagirl Im sorry for the pain and discomfort. Did you have the Faslodex and Xgeva on the exact same day? If so thats a heavy dose of similar side effects😱😱!! I pray the pain eases up. Indeed, infections make the body so weak that the medication side effects have a field day. Sending love and hugs 🫂🤗❤️

    Im due my Faslodex next Wednesday/Thursday and at first I was going to get the Zometa the same day, but i remembered that'd mean a double wammy joint and bone pain, fever etc., and i decided to separate them. So I get my Zometa today to I give the side effects about one week to ease up before tackling the Faslodex next week. I know doing them same day would be too heavy on my medication ravaged body.

    Blessings to all you strong, brave Faslodex girls.