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ADH Club
Can we start a thread on ADH (known as atypical ductal hyperplasia)? There may be one already existing, but without a lot of hunting around, it's not easy to locate and may not be recent. I'm 51 and have (had) no risk for BC other than being a female - non smoker, no immediate BC in my family, I'm fit, I exercise, eat…
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How high is "high risk"?
When I have looked online at the forums here and on other websites, I'm frequently seeing people who mention being high risk because they have a lifetime calculated risk somewhere between 20% and 45%. I'm not seeing anyone mentioning a risk higher than that. I have a Tyrer-Cuzick model 73.2% calculated lifetime risk. I…
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Complex ADH with greater chance of surgical upgrade ANYONE?!?!
So my story has been long and drawn out and I just dont know what to think or do. 2 years ago, found a lump. Dx mammo/us determine "mildly irregular anechoic cyst". Lump never leaves. No follow up other than annual well womens visit. 7 months ago, nipple discharge near lump. Go see OBGYN and he blows it off as hormonal and…
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ADH LCIS Lumpectomy #2 Now What?
When I was first diagnosed with ADH 2 years ago my surgeon mentioned prophylactic mastectomies and I thought he was very extreme for bringing it up. Now I just finished my second surgical excision for ADH (pathology showed LCIS). I'm starting to wonder what happens next- I can't be having surgery every 2 years! I think my…
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History of ADH; breast biopsies in April to May 2023
Hi All, Thank you very much for your kind support this past month. I really appreciate it. I had core needle biopsies and an excisional biopsy in 2009 when I was found to have fairly diffuse atypical ductal hyperplasia (ADH) on the right side. I have been on the 6 month screening alternating MRI with mammograms for about…
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ADH and LCIS treatment recommended is anastrozole for 5 years
Hormonal Therapy recommended for LCIS and ADH by an oncologist. Medicine they are asking me to take is Anastrozole and I am looking for feedback from the community on the side effects experienced from this drug. It is not actually FDA approved for this prophylactic treatment of post menopausal women and these types of pre…
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34 & recovering from 3rd lumpectomy in 3 years…so over it!
Hi all, I’ve been around the forums since my first BIRADS 4C biopsy back in 2019 right after I turned 30. Came back as a radial scar with ADH and a few other things. Since then, I’ve had 6-month alternating mammo/US and MRIs because I have extremely dense breasts, and I’ve had 2 more biopsies which have both resulted in…
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ADH saga
Hi I just needed to reach out to someone somewhere. I’ve been in limbo since Feb 2023 and it’s now June 2023. I’ve had a basic mammogram - next level mammogram/US- 3 core biopsies, 2 confirmed ADH and last one done yesterday and awaiting results. I have a surgical biopsy for the 2 confirmed areas and if the 3rd shows ADH…
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Lumpectomy after bloody discharge
hi all. im looking for anyone to shed light on my risk with the following. im 41. two years ago i had a lumpectomy for what turned out to be a fibroadenoma. just had another surgery to remove a duct that was seen to be dilated with a lesion on ultrasound. i had bloody nipple discharge with this. my pathology reports showed…
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LCIS, ADH, ALH, Family History, Dense Breasts
Last week I had a central duct excision for bloody nipple discharge. The results came back today and show LCIS, ADH and ALH. I have a family history of breast cancer (my mother, twice IDC) as well as my sister (DCIS). My breasts are very dense and nodular which means i am constantly having ultrasounds. MRIs etc. Given…
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Just diagnosed with Atypical Ductal Hyperplasia (ADH)
So... I was just diagnosed with ADH (had steriotactic biopsy after single cluster of microcalcifications appeared on mammogram). Which they said is "not cancer", but cells that are at risk for turning into cancer one day and puts me at moderate risk overall for developing breast cancer in either breast in the future, based…