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ADH LCIS Lumpectomy #2 Now What?

When I was first diagnosed with ADH 2 years ago my surgeon mentioned prophylactic mastectomies and I thought he was very extreme for bringing it up. Now I just finished my second surgical excision for ADH (pathology showed LCIS). I'm starting to wonder what happens next- I can't be having surgery every 2 years! I think my risk calculations are approx 40%. I'm wondering if I should actually be seriously considering the prophylactic surgery.

Comments

  • moderators
    moderators Posts: 8,549

    We're so sorry you find yourself here and dealing with this, @lettucenyc. The decisions around how to approach being high risk and considering prophylactic therapies and procedures can be so difficult! Even more so because there is rarely a right or wrong, yes or no, black or white solution.

    Have you spoken to your surgeon about next steps following this latest excision? It may be time to revisit the conversation, with second or third opinions from other surgeons and breast specialists. We know it's a lot to consider, and ultimately the decision is yours and yours alone, but reviewing all your options again may give you a new, different perspective.

    Please do keep us updated on how you're healing and what your next steps may be. We're all here for you!

    The Mods