Complex ADH with greater chance of surgical upgrade ANYONE?!?!
So my story has been long and drawn out and I just dont know what to think or do.
2 years ago, found a lump. Dx mammo/us determine "mildly irregular anechoic cyst". Lump never leaves. No follow up other than annual well womens visit. 7 months ago, nipple discharge near lump. Go see OBGYN and he blows it off as hormonal and that i will just live with it the rest of my life, but I push for US. Shows dilated ducts.
Keeps happening and hubs says i need to get it checked out. So I go in September. Then I realize I have a strong family history and need genetic testing. She also.recommended contrast MRI. MRI shows "segmental NME" which indicates DCIS but more imaging needed to verify so BiRads 0. Ultrasound and mammo followed by biopsy and diagnosis is "ADH with papillary changes." Report states ductules had papillary and micropapillary architecture with one ductule containing mucin debris." Genetics come back and my myriad risk score shows me at 27% risk and that was before having had a biopsy and ADH diagnosis. Surgeons PA tells me my case is now complex and there is a higher risk the biopsy missed cancer but would not quanitfy what that meant. Just said "you need to tall to the surgeon." But then schedules me out 3.5 weeks. So here I am, with every turn showing worse and worse possibilities but no definitive answers. Because of the room amd gloom she gave me with my particular type of ADH I decided to go to MD anderson for a second opinion. I could not get tin there (due to my insurance) any sooner than my other appointment. I am ready for answers and what exactly is going on and what will potentially happen.
Uggggghhh!!!!!!!!!!