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Topic: I'm not on a "journey" and I'm not a "warrior." Who is with me?

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts —

Meet and support others who are affected by these issues around anxiety, depression & other emotional effects.

Posted on: Dec 7, 2020 12:49PM

MochiPie wrote:

No offense to those of you who see this as such, but I do not. I feel like that symbolism is tantamount to a quest for enlightenment and that is bullshit. It's hard not to bristle when people without this diagnosis assume that's who I am now. I was never that kind of person before, and I don't see myself becoming that kind of person in the future. I'm not sure if mental health is the right place to put this, but the way I see my diagnosis and treatment versus the way most other people categorize it makes me feel as if I'm the odd one out.

My take is that I have a disease that is being treated, not fought. I received tests and a diagnosis that stressed me out more than I thought anything could, rocked me to my core, and brought an immediate pivot to my perspective and priorities. I suspect that by the time I am finished with treatment, it will change me more, possibly permanently, possibly not. It's definitely transformative, physically and mentally, no doubt about it.

Can this be a safe space to bitch about that touchy feely stuff?

Dx 11/3/2020, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2+ (IHC) Surgery 11/11/2020 Lumpectomy: Right Chemotherapy 12/8/2020 Taxol (paclitaxel) Targeted Therapy 12/8/2020 Herceptin (trastuzumab) Radiation Therapy 3/22/2021 Whole-breast: Breast
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Dec 7, 2020 09:04PM ShetlandPony wrote:

Amen, Sisters.

What I do is Endure. Thatʻs it.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Dec 7, 2020 10:38PM voraciousreader wrote:

last June, I had my umpteenth surgery. So, before they put me in la la land, a nurse goes over my medical history. And, as another person is getting ready to put the IV in my left foot, because they can’t use either arm, the nurse says to me, “Boy, have you been through the ringer.” Hmmmm....I thought, a stark, yet polite....well, not sooo polite way to describe how I got to here. Yes, two emergency life saving surgeries, breast cancer and violins playing now for a rare, but not too rare genetic disorder, Ehlers Danlos Syndrome which has caused me to have lots of orthopedic surgeries, has not, and I repeat, has not given any new meaning to my life.

My life is, what it is, nothing more, nothing less than what I make of it. I will never be defined by my maddening medical history. That is not a journey. Homer’s Odyssey? That’s a journey. Noah and his Ark? A journey.


My living of life is closer to Constantine Cavafy’s poem, Ithaca. My history and my future are made up of my family, friends and books. They are my journey. They keep me centered, calm and joyful. They all take me to different places in my heart. They sometimes make my heart so full of happiness. I could be saddled with pain and loss. But, I choose to safely store those two emotions in a small compartment in my heart. There is enough in life to worry about, so why let pain and loss stifle me? And worry? I try not to do too much of that too....


So, I am on a journey. But it isn’t a breast cancer journey, nor is it a journey comprised of being put through the ringer from all my other maladies. My journey is letting life unfold around me and soaking up the things that bring me joy.

When I do arrive at the finish line, which I hope is decades away, I hope I will be remembered for how I lived rather than for the way I died....



Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Dec 7, 2020 10:52PM - edited Dec 7, 2020 10:53PM by Olma61

illimae, I think I am on the same page with you. I think I'm pretty tough to have gone through everything I have gone through, especially in the beginning ...just to get myself into treatment was a “battle" as I was uninsured when I started. Then, showing up for Taxol every week, etc. I don't mind patting myself on the back a little, although in the beginning when my sister told me “Wow, you're taking this really well", I rolled my eyes and said “just doing what I have to do right now. “

I have not been through anything that thousands of others haven't gone through and some of them, much more. I think we are all pretty tough for enduring it all and for showing up.

Is the “cancer journey" “teaching me" anything? Sure, but no more or no less than any other life experience has. Well, except for that greater sense of urgency I have now, to go ahead and do things I really want to do, because tomorrow is not promised.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/29/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/29/2019 External: Bone
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Dec 7, 2020 11:18PM Cowgirl13 wrote:

I, too, can't stand all the warrior crap. MochiPie, thank you for starting this post!

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/17/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Dec 8, 2020 04:10AM Rah2464 wrote:

I am so not a fan of the survivor moniker either. None of us make it out of this world alive, we all just have a more pronounced situational awareness than we did prior to a cancer diagnosis. This is a complicated disease, and the emotions around it are even more complicated. Thank you so much for creating this thread so we can all give voice to our frustration about the pink washing of breast cancer.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 8, 2020 05:04AM Traveltext wrote:

Great comments here. This was my take a few years ago

We read a lot about how cancer is a battle, a correlation that is as sensational as it is inaccurate. A battle implies an enemy, whereas cancer, the uncontrolled division of cells in our body, is an illness with a cause that is sometimes known, more often not. It means dealing with the disease with your immune system, medications, surgery, chemo drugs, a healthy diet, regular exercise, and with the support of loved ones. Finally, you either die of the disease, or with it. Then there's the unfortunate implication that if cancer gets the upper hand, you haven't "fought" it hard enough.

Cancer is no journey. Most journeys have a planned destination, but a cancer diagnosis represents an unexpected life diversion into a medical process over which you have very little, if any, control. It's an unexpected turn of events, a bit like planning a trip to Bali and ending up travelling in Syria. Cancer takes you places you don't want to go and when I take a real journey it's to somewhere I want to be.

Now, a few years later, I’ve hardened my attitude towards the language used to describe those of us who have gone through treatment for this disease, because five people I got to know well on this forum have died, and because I know survivorship is something that can easily slip from our grasp. Giving my pal Rob a big hug on one of his dreadful last days, we were lost for words as I was leaving. Fuck cancer, he said, fuck cancer I repeated. This just about sums up my attitude these days.

NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Dec 8, 2020 08:23AM - edited Dec 8, 2020 02:20PM by SummerAngel

I'm with all of you. I understand that people are trying to be kind when they say these things, but they drive me crazy. I guess there are a lot of people who enjoy the terms and welcome them, though, or they wouldn't be used so extensively. Even this October I saw a local news interview with a woman who has breast cancer and she was calling herself a warrior and survivor and fighter. Ugh, I had to turn the channel.

Personally, I tell anyone I had breast cancer if it comes up in conversation because I've found that if I talk about it like any other illness people seem to accept it that way, too. It seems to normalize it a bit and not make it some scary thing.

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 3/27/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 6/1/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right Surgery 6/1/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/27/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/3/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Dec 8, 2020 08:33AM ilana_lisa wrote:

I am with you. And THANK YOU for articulating the feelings I have been having since day one of my diagnosis.

The journey thing just blows my mind. Even a close friend asked me if I was keeping a journal to memorialize my journey. I'm not sure what she had in mind, like a scrapbook or something? I politely told her that no, this isn't something I wish to look back on with fond memories.

Dx 7/10/2020, IDC: Cribriform, Left, Stage IIB, Grade 2, ER+/PR-, HER2+ Targeted Therapy 8/5/2020 Perjeta (pertuzumab) Targeted Therapy 8/5/2020 Herceptin (trastuzumab) Chemotherapy 8/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/21/2020 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy
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Dec 8, 2020 08:55AM ctmbsikia wrote:

If I could make it ONE DAY without seeing myself or thinking about what happened, and what could still happen, THEN you can call me a survivor.


Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Dec 8, 2020 09:16AM illimae wrote:

ilana, scrapbooking, lol! I can see it now “dear diary, had my skull cut open for brain surgery today but the hospital breakfast was pretty good (insert smiley face and needle stickers) and a decorated hospital wrist band 😆

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Dec 8, 2020 09:19AM DebAL wrote:

ilana, omg! I'm glad you corrected your friend. The idiotic comments have definitely decreased for me unless it is someone that knew and I haven't seen for awhile.

I tried to think back at what I said to others going thru BC prior to my own diagnosis. Trying to think about the stupid, uneducated comments I may have made. I shudder to think what I could have said. My best friend was diagnosed many years before me. I remember telling her I'm sorry that I had to "get it" to "get it". A coworker that was diagnosed said the same to me. She said " i'm so sorry i didnt understand and i wasnt there for you in the right way" My best friend and i lean on each other now when we have our waves of worry and anxiety. And its nice to come here for support. My mom is the one that's comments get to me sometimes. I'll say my thoughts then firmly change the subject and she gets the hint. She's 84, I love her and I choose to give her a pass I guess. I just don't go there with her.

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Dec 8, 2020 09:39AM DebAL wrote:

i know I never used warrior, bravery, or bought anything pink. I may have said "you got this" a few times. (Cringe,shudder, smack me)

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Dec 8, 2020 10:35AM - edited Dec 8, 2020 10:36AM by Purpleb3

Coming out of lurker mode to thank you for the laugh and thanks to everyone for this thread. I felt a little bad for my attitude towards the pink folders and notebooks I was given and tossed in the trash. Now I see I could have used them for elaborate doodles of fuck cancer surrounded by cute stickers, glitter and bows.


Dx 11/11/2020, IDC, Left, 3cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2-
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Dec 8, 2020 10:46AM - edited Dec 8, 2020 10:50AM by MelissaDallas

I should add that I am on another quilting forum where ladies are asking advice all the time about making “comfort" or “"chemo" pink ribbons quilts. I always tell them they should rethink and just make a pretty “unpink" one, but, sadly, I tend to be the unpopulat opinion. Where are allthe cute testicle fabrics and quilts? Do people with Chron’s Disease get diarrhea brown quilts made for them

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
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Dec 8, 2020 11:08AM MinusTwo wrote:

OH MY - brown quilts..... and scrapbooks. Laugh out loud way to make my day!!!

Traveltext - glad you re-posted your thoughts.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 8, 2020 11:23AM moth wrote:

I have a bumper sticker which says fuc (pink ribbon sideways) cancer. I don't know that there's anything more to say about it

I do psych myself up for treatment or scan days (esp.now that we go alone for all apptmnts). I sometimes wear these

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Dec 8, 2020 11:57AM MountainMia wrote:

MelissaDallas, I make about 4 throw quilts a year for my local VA Hospital. (They are not "Quilts of Valor.") I make them in grown-up colors, not necessarily red-white-blue or patriotic layout or design. I always try to make one that might suit a female patient. Not everyone decorates their living room or bedroom with red, white, and blue! I actually really like pink, but if someone made me a pink quilt, it wouldn't get used.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Dec 8, 2020 02:49PM edj3 wrote:

Moth I love those. A friend gave me a small beaded bracelet where the beads are Morse code and spell out strong af. I love that thing so much.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/3/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 8, 2020 03:02PM - edited Dec 8, 2020 08:47PM by ShetlandPony

Oh my, I was smiling at Mae's scrapbook when I came to Purple's embellished notebooks and laughed out loud. Which made my nurse poke his head in to ask if I was ok! Maybe not too many people laugh in Pre-Op. Today my “journey “ includes an exciting shore excursion tothe OR for an amazing stent exchange ERCP under anesthesia.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Dec 8, 2020 04:45PM Melbo wrote:

I love this thread.

My “journey” today included many, many phone calls to get same-day imaging because I have a blood clot in my jugular vein where my port catheter is. It was an incredibly long, stupid day where it seemed that if it could go wrong it did go wrong. Advocating for myself to insist on a same day appointment despite two different unhelpful front desk people telling me I could wait until Thursday does not make me a warrior. It just makes me a pain in the ass willing to call back several times in a row until I finally got the help I knew I needed.

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Surgery 12/20/2020 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/31/2021 Whole-breast: Breast, Lymph nodes
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Dec 8, 2020 04:53PM Rain88 wrote:

What a great thread! I really enjoyed reading all the posts, thank you! "Journey", "worrior" "battle" and so on are overused metaphors that make me roll my eyes... And why would anyone want to gift us pink stuff knowing it is THE cancer colour? Do they believe we don't think enough about it and we woud benefit from cute reminders?! I don't have anything agaist pink, it's rather unfortunate that people would appropiate it in such a way.



Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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Dec 8, 2020 06:07PM illimae wrote:

Rain88, unfortunately people have been beat over the head with images that say pink=support. We know better :)

I actually don’t mind the color but rarely wear it, especially to the cancer center. I did once when I was bald and had a stranger tell me I’ll beat it but when I said I was stage IV, she looked so sad, I almost felt bad for her.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Dec 8, 2020 06:21PM MsMurphy wrote:

I have been feeling a little stressed and anxious the past couple of days as I am about to start chemo soon after getting through 2 surgeries. Reading this has made me feel so much better and given me a laugh as I haven't bought into the whole pink ribbon thing either.

When I first received my diagnosis, my thoughts were never about starting a journey or battle but about how much of a f'ing inconvenience this was all about to be. I felt good and healthy so was annoyed that this little pea size lump was about to flip my world and delay all the goals that I was finally in reach of and make me feel worse than I ever had.When I shared my diagnosis with my bosses, I told them I didn't want pity and that I intended to work all the way through this. I hate that look people give you like you are practically dead just because you happen to have breast cancer.

Moth, I bought myself a similar bracelet that says "I can and I will..." I wear it on days I feel that I need a little mental boost. I also got a pair of socks that say "f🎗ck" on one and "cancer" on the other. Some days a sense of humor is the only way to get through this. 💪

Dx 8/27/2020, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2+ (IHC) Surgery 9/24/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/17/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 12/18/2020 Herceptin (trastuzumab) Hormonal Therapy 5/31/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 8, 2020 06:22PM Rain88 wrote:

Illimae, you "almost felt bad for her", what an ironic twist. (I can't help but smile, a kind of an absurd joke.)

Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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Dec 8, 2020 07:21PM ShetlandPony wrote:

Nice bracelets, moth and MsMurphy. I have a necklace with a saying in Japanese and English:

Fall down seven times, Stand up eight

It’s what I need right now. I also like Keep calm and carry on.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Dec 8, 2020 07:27PM ShetlandPony wrote:

Melbo, not a warrior, not a traveler, just a pain the ass. Aka someone who knows how to advocate for herself!

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Dec 8, 2020 08:16PM 2019whatayear wrote:

Illimae - your posts are just the best. Smile And you are one tough cookie- or tough as nails whatever metaphor you prefer.

I was watching a session of the San Antonio Breast Cancer Symposium this morning and did you know that Black BC patients are less likely to be prescribed Herceptin for HER positive BC. Black BC patients are more likely to be diagnosed at a younger age and with TNBC are less likely to be included in clinical trials and I could go on. So for what it is worth I've decided anytime anyone says I am brave or a warrior, I'm going to say as a white lady who just turned 50 I'm not in a battle--but there are lots of BC patients that have to fight to get the care I don't have to fight for and that's not right.


5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
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Dec 8, 2020 08:26PM Traveltext wrote:

2019whatayear, I watched that session too, hoping that it might mention the disparity with Black and White men too. They didnt, so I posed a question to the speakers.

Love your reason to withdraw from the battle!


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Dec 8, 2020 08:39PM - edited Dec 8, 2020 08:41PM by 2019whatayear

Yes that is very important too- I want to know about those disparities as well! I am glad you are there asking your questions. You are an excellent patient advocate!

It was interesting for me to learn that men w/BC are more likely to have the BRCA gene--which does makes sense and I suppose it is pretty self evident.

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
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Dec 8, 2020 08:53PM illimae wrote:

I find it appalling that any HER2+ person would not be given Herceptin, it’s standard protocol! I wonder if there’s more to it, perhaps lack of insurance? If it’s a doctors call, it is beyond wrong.

2019, thanks, happy to provide a laugh :)

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)

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