Posted on: May 8, 2022 03:27AM - edited May 8, 2022 04:11AM by ssc110907

ssc110907 wrote:

please tell me if I'm over reacting, or under reacting. I tend to under react and don't go the the dr until things are at a breaking point, and really bad.

Short back story...family history of BC, dense breast, 3 benign masses in rt. Breast 3 yrs ago. Was suppose to follow up at 6 months to watch things, and never did because of covid.

About 2 yrs ago I started getting shoulder pain in the rt. Side, but know I didn't have an injury to go with it. Had an xray done, it showed nothing. So they sent me on my way. Pain came and went, came and went. But the last 9 months has been a steady constant pain. Worse at night, feels deep...not muscle/tendon, as it doesn't hurt to touch it. Pain has now moved to my right collarbone, and the upper part of my spine(radiating through my right side scapula area.)

In the last 3 months, I have lost almost 20 pounds, which is unheard of for me. I can NEVER lose weight even when I'm doing everything in my power to do it. This is going down about a pound a week without trying. I have be slightly nauseous for the last 2 months, and less appitite, but am forcing myself to eat as normal as possible. So that's not where the 20 lbs has gone.

I've also been having crazy night sweats for about 3 months. But my thyroid levels are good, and I'm still young for menopause (37). And extreme fatigue for the last year or so.(10-12 hours of sleep at night, plus a 2-3 hour nap during the day...and still exhausted).

Then to top it all off... I found a breast lump about a month ago. It is pretty high up and was out of the area that the mammogram could see. It is below my collar bone, about 1.5 inches below, and maybe 2-3 inches away from my armpit on the same side of all the bone pain. Armpit is also slightly swollen.

When they did the mammogram and ultrasound, they only found other masses on the mammo(which he assumed were cysts, but didn't biopsy). Then with the ultrasound, the tech. And radiologist couldn't find anything where my palpable lump is. It's large enough to be felt by multiple people, and feels like 2 lymph nodes(maybe under the pectoral muscle). And they could even feel it with the ultrasound wand. But nothing showed. The radiologist finally pulled up what he called a tiny little lump of fat under the skin(even though my lump feels deep down). It was so small, he didn't even take pictures of it or measure it. And it only appeared on the screen everyonce in a while while he was trying to show me. A tiny mass he can barely find in the ultrasound just doesn't match up with the 1.5 inch lump we can feel. They also did not scan my swollen armpit. But he said I was young, so come back in a year.

Followed up with my PCP a week later. And he said I should just trust the imaging. But wanted to do basic bloodwork for my other symptoms, and get me in to the ortho for my shoulder pain. (Still haven't got that appointment). My bloodwork came back mostly normal. But my calcium is right at the border (10), my alk.phos. is higher(105), my protein is right at the border (8.1) and my anion gap is right at the border (12). All of these numbers are pretty large jumps from all of my previous bloodwork from over the years.

Wow. Sorry for my book. I guess I just need to hear if I'm being crazy for thinking they could be missing something big that my body is trying to tell me. Or if I'm just overly dramatic, and need to just trust the results and deal with it. I just can't shake the feeling of something not being right with my body.