We are 224,900 members in 82 forums discussing 157,996 topics.

Help with Abbreviations

Topic: Shadow in chest is recurrence

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Mar 9, 2017 02:02AM

jackboo09 wrote:

Hi

I am due to have a CT scan biopsy of a 29mm shadow in chest tomorrow. Having been told 50/50 chance, they have said this morning that it is highly likely to be Mets and not operable.

I have 3 teenagers and a fully supportive family. Positives: small mass and no evidence yet of other mets although I haven't had a full bone scan yet just the neck to pelvis area CT.

consultant talked about new treatment options from 6 years ago when I was dx with IDC with node involvement and 2cm breast lump. She said not curable and their aim was to get me back to living my life and said years. Is this just what they tell you.

I am hours on only from this news. Crying a lot. Can anyone add any positives.


Liz ( jack boo)

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Page 1 of 47 (1,410 results)

Posts 1 - 30 (1,410 total)

Log in to post a reply

Mar 9, 2017 03:55AM ml143333 wrote:

I don't have any magic words other than I wish I could change this for you. Praying for you and your family.

Mandy Dx 7/11/2014, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 8/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left); Reconstruction (right) Chemotherapy 10/17/2014 CMF
Log in to post a reply

Mar 9, 2017 03:59AM - edited Mar 20, 2017 10:46AM by obsolete

This Post was deleted by obsolete.
Log in to post a reply

Mar 9, 2017 07:10AM jackboo09 wrote:

Hi to you both who have replied to me following my post. It is 8.30 now and I was given the news at 10 this morning. They have given me a blood thinner injection so that I'm still protected over duration of biopsy. I feel ill with this news and yet have to face an invasive procedure tomorrow but they are moving fast and I feel confidence with the team who will meet next Tue to discuss my case.

It would be wonderful if this shadow turned out not to be cancer but it's unlikely and at least this way I won't have the shock on results day.

I had thought it was in a lung in which case I suppose it could've been operable. This is in chest but only scan will now provide an accurate location.

Thanks weare connected for your words about the kind of life I can expect now. Hope is so important. If I can have some then I will handle this better.

I think it's likely that I will need blood thinners indefinitely now. The thought of chemo and hair loss etc fills me with dread. It isn't easier because I've done it before- harder as I am well now, but won't be once chemo starts.

Much love for your support and the all important HOPE.

Liz x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 9, 2017 07:28AM Wildplaces wrote:

Hang in there - you will not know exactly what you are dealing with until you get the biopsy result.

The treatment of metastatic breast cancer is changing so rapidly and all the stats are behind in prognostic value.

The area of immunotherapy/targeted therapy is gaining momentum with clear indications that treating cancer of any type/stage should be multi modal - ie multiple lines of attack work best.

Visit the metastatic threads - they have lots of ladies who are doing ok/ life travel/ work on treatment for many many years.

Also look at oligometastasis


https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3995374/




generally it would be rare to have distal limb mets - so if you had ct chest/abdo/pelvis - MRI brain - the money is that is all there is

Breast cancer is a strange place where literally anything can and does happen - there is good and bad in that.

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 9, 2017 07:40AM Wildplaces wrote:

Also Liz,

It might sound obvious but this is no time to be shy...

Get information and ALL the help you can enlist in daily life.

There is a fair amount of evidence that women with good support system and resources have better outcomes.

Take as good care of yourself as you can.

Wishing you you the best possible outcome today!!
Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 9, 2017 09:08AM jackboo09 wrote:

hi wildplaces

Thank you so much for your replies. I am so very tired now. Just time to say that I have skim read the linked article. I did know about oligomets and it gives me some hope. As I said earlier from the neck to my abdomen area I am clear ( some increased thickening of endometrium) but that could be peri menopausal changes. It's 11 mm and I think potentially curative if it is early stage womb cancer.

I like the sound of the multi treatment options, just not chemo. How I wish I could avoid it and maybe do rads or ablation therapy instead? I will have to wait a little longer for the HER 2 result- might have Herceptin.

Liz x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 9, 2017 09:18AM proudtospin wrote:

sorry for the diagnosis, just got my own reoccurance news

I now treat myself to ice cream before bed and any other little things that make me happy

iris Dx 6/2008, DCIS, Stage 0, ER+ Dx 2/2017, Left, Stage IV, metastasized to bone/liver, Grade 3, 1/1 nodes, ER+, HER2+
Log in to post a reply

Mar 9, 2017 07:33PM jackboo09 wrote:

Hi

Leaving home for chest biopsy now. Scared witless

Will hope fully post again this aft when it's all over.

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 9, 2017 08:41PM Wildplaces wrote:

the actual biopsy should be under general anaesthesia or at the very least heavy sedation so it might take you a little longer to post :)


Once you know what you are dealing with...

Please check out the different mets thread of ladies such as zarovka, Bestbird ( including her generous free guide - you get an email with an attachment - it's a great resource) , Shetlandponey, heidihill ...you will find some incredibly well informed ladies and inspiring stories

You will find information on simple but important things such as:

- nutrition - anti-inflammatory diet - Dr Weil

- yoga positions to increase bone density

- exercise

- supplements

To more specialised issues on

- integrative oncologist that consult by Skype - accredited by American Board of .... Dr Brian Lawanda probably stands out.. but there are others

- mainstream oncology - multiple lines of antihormonal therapy, targeted, immunotherapy - trials and references...

(Lots of information on the "new" CDK4/6 inhibitors - we don't have them in Australia under Medicare or any care but they can be accessed by trials - the Americans have Palbociclib and are waiting on Ribociclib..)


Hang in there - you HAVE time to make the right decisions for you.





Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 9, 2017 09:07PM jackboo09 wrote:

wildplaces

I feel much strength for your support. Still waiting for a bed. Long waits here in UK. Anxiety dreadful. Told it will only be a local and could be painful.

I thank you for everything you have posted and will look into it all when I'm more focused.

Could do with sedation.

I'll keep posting if that's ok.

Liz x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 10, 2017 02:07AM jackboo09 wrote:

Am sitting up in a bed resting after the procedure. It was uncomfortable not agony and the Dr was lovely. He didn't have to go in very far and I keep thinking please let it be operable. Anyway I got through the wait and it's done. Home to our teenagers soon. Thanks again to anyone who has posted.

Liz

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 10, 2017 04:45AM Hopeful82014 wrote:

Thinking of you, Liz, as you await the results. Rest and let others do for you for a few days.
Dx IDC
Log in to post a reply

Mar 10, 2017 05:39AM jackboo09 wrote:

thank you hopeful

It has been a long day. Waiting on my medication then can go home.

Trying to block out the next stage.

Liz

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 10, 2017 07:42AM Wildplaces wrote:

Well done -enjoy your family now!!

(If this was done under local it must be reasonably superficial.

Liz - where you told mets or local recurrence?

There is a difference in both treatment and prognosis.

That is potentially good news.)

Rest well and take it slowly until you get your results.


Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 10, 2017 07:48AM Wildplaces wrote:

Ohh and one more thing do not spend too much time alone while waiting for results

I have a seven year old son which I parent alone.

I have an excellent source of support and during treatment ( does dense chemo and radiation) people offered to take care of him - That did not work for me.

I was better - no matter how tired and bold etc - with him by my side. It forced me to get on with things.

Young people are beaming with life - they are where you should be.
Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 10, 2017 08:37AM jackboo09 wrote:

Hi wildplaces

I finally walked through the door at 8pm. Some discomfort now and the blood thinner injection has made me feel a bit off it- headache and nasal pressure. Dealing with DVT as well as this shadow.

Totally confused about where it is and what that means in terms of type of recurrence. It is slightly left of the Middle area between breasts and well below collarbone. He didn't have to go in far with the needle to biopsy, so is this chest wall.

Nothing else found yet. Got pelvic ultrasound for investigation into endometrium thickening. Been told a Tamoxifen can cause this and being peri menopausal too,

The BC surgeon classes this as secondary cancer and was clear it wasn't curable. I get the feeling that they don't buy into oligomets here in Uk, although it could be different in London. I live in Yorkshire.

Life does indeed go on and I can relate to your point about your son and feeling better when you are near him. I got back tonight to English homework. My 15 year old son had the paper ready! I am an English teacher so can hardly say no I can't help him. I'm their mum and as long as I can will do my best to look after all 3.


Liz

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 10, 2017 06:45PM Wildplaces wrote:

from what you are describing there are several possibilities:

- local recurrence of initial tumour in breast or area where breast used to be - this might involve chest wall - muscle or bone - local recurrence

- metastatic disease - spread by blood or lymph to sternum - breast bone

- metastatic disease to mediastinal lymph nodes ( but usually this a deeper and complex biopsy...)

- lung lesion

- something out of the box that no one thought about...

A biopsy is good - essential - it will tell you what organ and what receptor status your lesion is.

In the strictest sense if this is cancer your lifespan will be shortened - so he is correct no, it's not curable. It is likely that you will see doctors and be on some form of medication for a long time. What he does not know, and No ONE knows about an individual is how long or how? And women have been rewriting the oncology books for the past twenty years.

If you are looking for inspiration - Google Sandra Spivey - who has been living with bone mets for more then 17 years. But she is not the only one - there are multiple posts on this site of women 6-8 years from metastatic diagnosis and the research field is moving and you don't know what treatment options will be available in 6 plus years....

At the moment particularly in early single organ ( and I think the endometrium will turn out fine - a crazy hunch mind you...) disease we just don't know how or for how long someone will respond to therapy, and there multiple lines of therapy available.

This is where the mind and taking care of yourself comes in - the better shape you stay in the harder you will be fighting the disease ( there is a huge immunological component) and the more likely you are to withstand various therapies.

Rest for now.

I'll be following this thread - so if you can let know what your results are.

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 10, 2017 07:00PM Wildplaces wrote:

I keep doing this one more thing ..thing

Traditional oncologists, will struggle with oligometastasis because they fear getting your hopes up and then having to let them down if "something" happens.

Katherine Rich once wrote " the opposite of certainty is not uncertainty is open mindedness"😊
Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 10, 2017 08:16PM jackboo09 wrote:

Hi Wildplaces

Thanks again for this valuable input; particularly at this stage of uncertainty. I feel quite a bit of negativity from last Friday's appointment. There are surely worse case scenarios than mine but I felt like I was the one promoting the positives. Forgive me for my layman's terminology here but this is what I have been told:

Highly likely to be BC mets ( secondary BC)

Appears likely to be inoperable ( from 1st contrast CT scan ) may be different after yesterday.

Not in lungs or any other organ. Not in sternum - I asked specific question. I presume not in ribs? Didn't ask about lymph nodes, again presume these would have shown up.

29 mm shadow ( called a mass at 30 mm) about 3-4 cm in from the description radiologist gave. Appears then to not be too deep.

I still have my reduced size left breast as my original surgery was a lumpectomy and breast conserving surgery. So I suppose this could be spread through breast tissue and/ or lymph nodes. I had full clearance of left underarm lymph nodes and one intra mammary was also positive.

Am resting up and trying to gain strength and positivity from yourself and others on this forum and my innate hope that there are some "good" aspects of this dx- who knows.

Liz x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 10, 2017 08:23PM jackboo09 wrote:

Oh sorry and one more question- I always thought that this kind of spread to the chest was local too and in that sense not distant metastatic disease. Confused!


Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 10, 2017 08:27PM jackboo09 wrote:

Sorry meant to add/ mammograms were clear and ultrasound to chest area couldn't detect shadow,

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 10, 2017 08:44PM - edited Mar 10, 2017 08:46PM by Wildplaces

Well I am not sure what to make of it ....but nothing inside the chest cavity is good news.

My understanding is (and I am not an oncologist) that local recurrence prognosis can generally be better then distant metastasis - although the histopathology - how aggressively these cells are dividing and what receptors they have plays a role too.

The same way that bone mets alone are generally more treatable than bone plus lung or bone plus lung and liver...

You will have to wait until you get your results to be able to understand what your next steps should be ...and once you have a treatment plan in place you'll just get on with it.

It's horrible waiting.

Don't stress too much about negativity - most medicos struggle with delivering "bad news" - it's easier to say " you have this and I can fix it"

My oncologist said to me at our first prechemo discussion

" I suppose you want to talk about the numbers?"

No, because I am not a number but a person.

Having said that he is knowlegeable and almost funny if you dig at that side of him, and I am slowly learning to trust him.

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 10, 2017 09:06PM jackboo09 wrote:

Yes I phrased the good news poorly there. It is all still very worrying. I suppose I was still hanging onto the fact that it's only one area for now. At the end of the day I'm second guessing here. If chest BC spread is any worse than other mets than maybe I'm better off not knowing!

I hope you are ok. I feel I need to apologise for these one sided chats. I feel for everyone going through this hell.

Liz

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 10, 2017 11:27PM Wildplaces wrote:

Hello Liz,

Far from it - I am wrapping up treatment with radiotherapy (and I have gotten so relaxed I am almost dosing off with my breathing on the silly rads table - quiet surreal I never quite get it is actually me up there) and I guess I am in the "same" place as you 6 years ago - true a bigger tumour, hence the mastectomy still a Grade 2 histology - so I will take my Arimidex, get on with life and keep an eye for potential problems and current treatments.

I might have not made it super clear but local recurrence can be better prognostically - and if you have been scanned - it is only one area!! One day at a time.

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 13, 2017 07:32AM Wildplaces wrote:

Hello Liz,

How are you doing?

Have they given anything to take for anxiety ( I have bought one of those silly heart monitors/step things - exercise is good for you...and my heart rate goes up to 120 whenever I approach an appointment ( I would have never known otherwise I thought I was ok..) so I can not imagine what you are facing)

Thinking of you over the next few days.

Ioana


Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 13, 2017 08:26AM Hopeful82014 wrote:

Ioana, I too had a hard time absorbing that it was really me going through all the tests and treatments - and radiation was particularly surreal. Thanks for phrasing that so neatly.

Liz, I'm thinking of you and hope you've gotten more (and more solid) information to work with and plan around.

Dx IDC
Log in to post a reply

Mar 13, 2017 08:37AM jackboo09 wrote:

Hi wild places and hopeful

Thank you both for checking in on me. I have had a mixed weekend. I am still adjusting to the blood thinning medication and so physically feel off it as well as coping with the new dx. It is still a combination of dark, tearful moments and some hope. I am trying very hard for the sake of my family.

Tue will be very hard. I'm so scared. I am trying to gather info but need this tumour biology first. I want to live. I don't want to accept the stats!

Love to you both

Liz x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Mar 13, 2017 10:49AM Wildplaces wrote:

Hello Liz,

The current stats are behind on a number of fronts so you are very clever to not trust them:

- Herceptin came onto the market in 1998 in USA

- CDK4/6 inhibitors have just arrived - Palbociclib first and Ribociclib following behind

- low dose chemotherapy is having a new face as is the concept of minimally effective dose versus most of the old RCT trials where drugs were given at maximally tolerated before side effects

- nuclear radiology techniques - PET Ct scan means that we ware diagnosing some women sooner - and stereotactic radiotherapy is shaping up big

- immunotherapy that includes gut biome - so manipulating your immune system to fight cancer ( in a cancer battle as Paget stated more then 100 years ago - there is seed and soil - the seed is the cancer and the soil is you and how you can prop up your immune system to control spread) is blossoming ( not fast enough but certainly getting a lot of attention and money invested in it)





a lot has changed in breast cancer in the last 10 years - and probably will more in the next ten.

The stats by their very nature are at least 5-10 years behind if not more ....

Hang tight, Lots of hugs from down under!! Ioana
Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 13, 2017 11:04AM Wildplaces wrote:

and ...

I am not sure how it is in Great Britain but I started my treatment after just one consult with the oncologist ... ( I have since had two other oncology opinions to add to my case knowledge - not because they actually changed things for me but because the 20-30 minutes you get in a visit was not enough for me to process things and sometimes different people deliver the same info in more effective ways)

( ohh...there was a phone all too...)

It helps to write down your questions for tomorrow and do not get up from the chair until YOU are happy you understand the why, when, how, if of your plan if one is proposed 😊

(for me the hardest thing has been continuously having to advocate for myself through the last 6-7 months...I guess we are ALL used to taking care of other people)



Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Mar 13, 2017 07:59PM jackboo09 wrote:

Good morning Ioana,

Thank you for those posts and the fresh optimism they give me . You are very knowledgable and I agree that it is crucial to be one's own advocate. Knowledge is power! I have decided to tear up the stats as I am a person and in relatively good health, DVT aside. I do hope I am not given stats on prognosis because I definitely do not want them.

Will take a pen and paper tomorrow and ask for a copy of the lab report for my second opinion. Hoping to feel better once treatment plan is discussed. I fear chemo again though and losing my hair.

Talking to people on this forum has been, and will be the catalyst to change my mindset to a more positive outlook. Just reading about the treatments helps. Wanted to ask about low dose chemo again. Do you mean that they are finding good outcomes with lower doses and therefore feel they might even outweigh the harsher regimes? Tablet form chemo was mentioned to me at last visit but I'm not sure I'd feel safe at home waiting to feel ill and not having any monitoring?

Thanks a million for the continued positivity.


Liz x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+

Page 1 of 47 (1,410 results)