Log in to post a reply
Jul 29, 2018 10:34AM
Welcome to this community! I'm also kind of a newbie, diagnosed with recurrence in March of this year. I'm sorry you had another recurrence and am sending you empathy and strength in dealing with the scanxiety. Can totally relate!
I've been off these boards awhile, on vacation and puttering around the house and hanging with my teen daughter, but it's so good to hear from everyone. Di, I'm sorry about the new recurrence but will keep my fingers crossed that it's not malignant, and even if so, that you can get into the trial. Your deck looks lovely.
Pat, I am so happy to hear that the pneumonia is abating. What a relief to have that drag of energy ease up. Hoping for good news regarding your hip, and that you definitely get some rest next week.
Liz, I am hoping your time at the seaside is refreshing, and am with you on enjoying the summertime downtime.
I hope I'm not missing anyone else, and though I don't know Claire so well am sending her healing and strength.
We were at Bodega Bay, a seaside city north of San Francisco for several days and enjoyed waking to the ocean, eating good food at a nearby restaurant, and just walking on the beach. It was so lovely. Came home. I'm back on round 5 (out of 6) of Taxotere and Xeloda, just had my infusion on Friday and am dealing with the steroid insomnia and crash. It will come today. Not a day to be super-productive, but I will go to the grocery store. My kid starts camp this week and this will give me more time to write, think, read, and chill.
I'm also struggling with not being into my job so much anymore. I love my coworkers, who've been the best support team ever, but the work itself just doesn't engage me like it used to. The uncertainty of my prognosis also doesn't help. Hard to get motivated to read, update my skill set, and prepare when - who knows? My tumor may have not have shrunk enough. Perhaps the chemo isn't working as well as they thought. Then what? Anyone else have this going on? I'm on disability until November and just don't know what will happen.
I'm also withdrawing from Facebook and social media. My family of origin is very dysfunctional, and it's hard for me to see everyone's family summer reunion pictures, happy camping adventures, and curated, picture-perfect lives on my feed. I love my husband, daughter, and friends - many of whom are a kind of family - but I still grieve for the abuse of my childhood.
Life is not a straight line, is it? One step at a time. Love out to all.
My blog: pinkstinks.blog/
3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2-
4/18/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right
4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2-
4/27/2018 Taxotere (docetaxel), Xeloda (capecitabine)
AC + T (Taxol)
Whole-breast: Breast, Lymph nodes