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Topic: Shadow in chest is recurrence

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Mar 8, 2017 07:32AM

jackboo09 wrote:

Hi

I am due to have a CT scan biopsy of a 29mm shadow in chest tomorrow. Having been told 50/50 chance, they have said this morning that it is highly likely to be Mets and not operable.

I have 3 teenagers and a fully supportive family. Positives: small mass and no evidence yet of other mets although I haven't had a full bone scan yet just the neck to pelvis area CT.

consultant talked about new treatment options from 6 years ago when I was dx with IDC with node involvement and 2cm breast lump. She said not curable and their aim was to get me back to living my life and said years. Is this just what they tell you.

I am hours on only from this news. Crying a lot. Can anyone add any positives.


Liz ( jack boo)

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
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Dec 25, 2018 06:20PM Wildplaces wrote:

i found this helpful, despite the title it includes HER pos

Pat - there is a section on SERDs ( greater potency then Falosdex, oral form, clinical trial and used in combo with CDKs). Bestbird has a good sum on her post on ASCO 2018.

https://onlinelibrary.wiley.com/doi/pdf/10.1111/aj...

odd i can not paste a pdf - and annoying because we all have different access

☺️🎄

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Dec 25, 2018 10:40PM marianelizabeth wrote:


Early morning from inside our townhouse. Spots on window sorry.

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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Dec 26, 2018 12:27PM Sadiesservant wrote:

Interesting article Ioana. Thanks.

It’s encouraging to see the direction that research is taking which will hopefully break down current barriers that patients are facing. In particular, I find the adherence to the use of a CDK4/6 inhibitor as only a first or second line treatment frustrating as I suspect, and this article seems to support, that these agents can be used to treat heavily pretreated patients over the long haul.

My situation is case in point. I was only on palbociclib for a short period of time and unfortunately couldn’t tolerate the impact on my blood at the dose I was on. I then failed on Arimidex (not palbociclib). Now, on Faslodex, palbociclib is not an option (only approved as first line by the Cancer Agency and insurance won’t support going back on a drug which was discontinued), Ribociclib is not supported and Abemaciclib is nit available in Canada. It’s unfortunate as I believe I may have benefited from the addition of a CDK inhibitor. Hopefully this research will open things up for use and reuse further down the line.

But I seem to be doing well on Faslodex. It would be interesting to know if the more effective SERDs will work in the future if Faslodex fails. I can say, a pill would be nice although I am not overly fussed by the monthly jabs. I can get a bit stiff after (worried a bit about tomorrow - my GP is away and I have a locum - I have my GP well trained) but it’s a small price to pay.

Beautiful view Marian. I’m now heading out for my traditional round of Boxing Day golf. Just nine holes at an executive course but the bragging rights of knowing we CAN play golf at Christmas time is what it’s all about. Although I could take some of your heat Ioana!

Hugs to all!

Pat

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone
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Dec 26, 2018 09:17PM Wildplaces wrote:

Its short because its mid afternoon...and...

personal view - sustained by zilch research - ha - is that no one gets the full spectrum of use of CDK4,6 and same goes with the side effects. An observation by JKL ? on the liver thread was when they fail people seem to get a wildfire progression - not sure - but something about having the butts pulled out of your WCC for long periods of time tradionally makes me uneasy, but (again) i dont know. So when they should be used, for how long, in what combos, and how to get back on them is nebulous...I mean is it plausible after 12-18 months if you have stable disease to go back to AI only ??? and if you have progression - in the abscence of a defined mutation - can you try chemo while on AI - never understood why the two were mutually exclusive. i mean yes the AI failed - but why???? I think its also about the side effects but ...side effects are different in a 30 year old from a 50 from a 70 plus with comorbidities...

i remember i asked my IR why i couldnt take AI while having rads - app from a SAfrican study the risk of pneumonitis is higher but the numbers have not been reproduced - i took my chances and took the AI thinking that cells with oestrogen blockage might be more susceptible - but its a coin toss - do you actually want cells stronger and thus more likely to split for rads - where is the study????? no one knows.

back to CDK4/6 note that Fabrice Andre mentioned that the alpelisib combo is really the first targetable mutation treatment - short of that, the next step now is largely up the experience of the oncologist and the motivation of the patient.

we have the same CDK4,6 issues in australia access wise - ribociclib is now PBS but only for newly diagnosed mets, palbociclib did not reach a financial resolution. palbociclib has come to the patient party 😳 - if you want to use it, you pay $40,000 for the first few months ($5000 per month) and then its free, independent of MBC treatment stage

anyway a little movement in treatment options - not enough but...

interesting is the doxycycline work of lisanti et al

https://onlinelibrary.wiley.com/doi/pdf/10.1111/aj...

i know its early breast ca - but what it seems to affect is the cancer stem cell - and they are the ones that jump from organ to organ - so in my thinking responsible for progression - given the relatively safe profile ( well cf chemo) of this antibiotic - i wonder.. keep watching

did i say short 😉😟

Marian - thank you - glorious !!!! thank you!!!!!

hugs to all,

☺️🎄🐣

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Dec 26, 2018 09:28PM Wildplaces wrote:

wow that was pretty full on - i am often frustated when i try and untangle the logic of some of these ....

usually quite light by nature - about to go for a swim, fish kind of a Nice broth, and a glass of wine

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Dec 26, 2018 10:28PM Sadiesservant wrote:

😏 Always interesting trying to keep up with your brain.

On the AI fail, I originally assumed that it was related to my prior use. However, More recently I have begun to question the effectiveness of Arimidex for me. I may be totally off base but have wondered about one thing. Femara in the adjuvant setting caused problems for me in terms mood swings and irritability. MO switched my to Arimidex which resolved the problem. Now I am experiencing similar moodiness on Faslodex (but have no intention of bailing given that it appears to be holding things steady). Given the link between estrogen deprivation and chemical changes in the brain which lead to mood swings, is there a chance that Arimidex was never completely doing the job, i.e. never worked rather than failed due to resistance? Just a question.

I do recall the boomerang effect discussion regarding Ibrance. Another interesting puzzle.

Hope you enjoyed your swim.

Pat

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone
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Dec 27, 2018 01:12PM marianelizabeth wrote:

I will soon post some info and possibly a link to an article written by a Cancer UK fellow who worked with~~bear with me~~my daughter's best friend's new husband who met Kath, the best friend on my 2014 Annapurna Base Camp Trek. Alan left his awesome job in London to move back to Canada to be with Kath and I met 7 Cancer UK brilliant men and women who came for the wedding in August. Now that Alan is home where he was born (his mom and i worked together in nursing decades ago and crazily enough she died of IBC 20 years ago) I have the most amazing resources. It took 18 months from arrival to score a perfect fit job at British Columbia Women and Children's Hospital and not sure in in oncology as this just happened 2 weeks ago. Wow, sorry for the long blab but it started because of Alan's friend who has written a medical article on Ibrance given with Faslodex not necessarily having proved what they had hoped for. Of course it is early days/years but I look forward to reading it along with gleaning whatever I can from Alan and his UK buddies. I had dinner with Alan only last week and not for long. Sadly my brain does not work as it used to and it becomes harder to process information.

Ioana, your posts got me going and thank you. Pat how was golf? Liz, how goes the holiday break? Jo, would love to hear your latest too. Di, I so often think of you when my one handed life frustrates me. Mary had to help get my snowshoes on yesterday and she has Renauds so by the end her fingers were blue and white. However it was worth it as she and her partner and I did 2.5 kilometer loop in the spectacularly beautiful park up here on Mount Washington. I came back to the house and they did a different loop. Everyone is out today doing different things on the mountain and I am home peacefully enjoying myself.

Tomorrow we check out but it has been really fun other than the couple of short times when tension got the best of us and I felt to blame. But I do believe we made some progress and worked it out at least for the moment. Maybe I get some slack due to the fact that Christmas is always been hard for me.

As we head into the new year I will be reflecting on how I can be a better person. It certainly has changed me.

Love to you all.

Marian


Looking out from our living room.

David, me and Mary.


breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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Dec 27, 2018 09:24PM - edited Dec 27, 2018 11:54PM by Wildplaces

Pat,

Hope the golf was great!!!

You are spot on - there is a fair bit of detail (this and a few more ) if you go looking under "hypothesis" but broadly AIs fail because:

- aromatase independent oestrogen pathway

- oestrogen independent ER function

- ER independent growth signalling

https://breast-cancer-research.biomedcentral.com/t...

Anastrazole and Letrozole are non steroidal aromatase inhibitors.

Letrozole is more potent then Anastrazole at 2.5mg per day versus 1mg - although I would venture the side effect profile is higher.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC20012...

Exemestane is a steroidal aromatase inhibitor that irreversably binds aromatase. Aka suicide inhition.

The steroidal component has been associated with severe mood swings etc.

Fulvestrant is a selective receptor degrader - acts on ER.

Interestingly some works suggests

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC20012...

Depending on the reason why the AI fail in a specific patient it is totally reasonable to think you may be able to use other hormonal therapies in combos. Add to this tumour heterogeineity - meaning it may fail on only part of your tumour mass - and the picture gets cloudy.

What is coming out loud and clear is that smaller doses in multiple combos potentially changed over time before ??? and this is where i go out on a limb - progression occurs might be the way of the future. The aim being to minimize side effects and maximize therapeutic impact.

This is not rocket science - odd its the way we treat pain - multimodal, hypertension and even diabetes...

Some of this was not done until now because really there just werent enough options on the market.

Marian - Love your messages - so good to see you getting out. Maybe I will see snow nextChristmas.

Snow to all,

😊🌷🎄🐣


Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Dec 28, 2018 06:49AM Sadiesservant wrote:

I sure wish I had been better at biochemistry! I found memorizing Kreb’s Cycle an ordeal - it was all downhill from there 🙄 .

I hadn’t realized there was such a difference in strength between Letrozole and Anastrozole. Interesting. I did try to switch at stage IV but my MO wasn’t supportive.


Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone
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Jan 7, 2019 12:17PM Jojobird wrote:

Hello everyone,

So good to hear from you all! The holidays got hectic with cooking and fatigue and decorating and then - you guessed it - more fatigue, but we plowed through and had a nice time. Honestly, I love Christmas. I love the food, the cheesy music, the decorations -- all of it.

Marian, I absolutely LOVE your hair! Love the color and the style - so fierce, so rocking and strong. It suits you! I'm sorry to hear about the situation with your husband but can empathize. Hub and I have sure had our share of ups and downs, and counseling has helped us with our latest rough patch. Glad too that you had the week off from chemo, and hope it's going well.

Pat, good to hear that things are stable healthwise. And I so admire your efforts to declutter. Have you seen the new Netflix series on decluttering, with Marie Kondo? So far I've watched two episodes and find it inspiring. It's also made me really think about my purchases. A good friend of mine, before bringing anything home, asks, "Will this be future clutter?"

Wildplaces, love the tree and the fruit salad. How were the books and five days off?

Liz, baby Eira is an absolute biscuit! Cuteness and puffy-cheek overload! It gives me strength to hear that you will soon be two years out from a metastatic diagnosis.

Di, you are in my thoughts. I am thinking of you and hope you are well.

I had a CT scan today and will hear results tomorrow. I am oddly zen about the whole thing. Anyone else have that? Scans come, they go, and I'm choosing not to get too emotionally wrapped up in them anymore. I'm also returning to work in three weeks (part-time) and I have some anxiety about it. My coworkers are incredibly supportive, but still. I've been on disability for nearly a year. I think I won't expect too much, and that competence and adequacy will be enough for now. Showing up and doing my job with fidelity will be enough.

Wishing you all a great new year from the rainy skies of California,

Jojo

My blog: pinkstinks.blog/ Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Surgery 4/18/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Dx 4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 4/27/2018 Taxotere (docetaxel), Xeloda (capecitabine) Chemotherapy AC + T (Taxol) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jan 7, 2019 04:01PM marianelizabeth wrote:

Jojo, I have rarely since the mets diagnosis worried too much about my scans. Yes it is good to know but I don't lose much sleep waiting.

I saw my wonderful GP this AM and within 3 minutes of departing his office, I got a call from a plastic surgeon's office with an appt. for tomorrow at the Victoria General. I saw her last year but that was for a followup from breast surgery 6 months prior and before mets. It is for my hand which is fast changing and atrophying. Even if nothing comes from it, nice to go and find out. Love my GP too!

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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Jan 17, 2019 11:38AM Sadiesservant wrote:

Hi all.

It's so quiet on this thread these days. I hope all is well with each of you. Marian, I am so glad that you have a good medical team. I know how important it is to have a good relationship with our physicians and also feel blessed that I "lucked out" with an awesome MO and a pretty darn good GP! I definitely feel well supported.

Things continue to go well for me in terms of my treatments. While it's unlikely I will ever be defined as NED, Faslodex seems to be keeping things under control and radiation did wonders for my back/hip pain. I had a bit of a flare up of the hip pain over Christmas but I think that was from overdoing it in terms of too much time on my feet. Still have that weird right flank pain but nothing I can't live with and other than that feeling very well.

The only hiccup these days is that my attempts at decluttering have fallen to almost a dead stop. Not from lack of trying but most of our things don't fall into the "junk" category and we have entered the post-Christmas recovery period which makes selling the bits and pieces challenging. Hopefully by February things will pick up. I have a LOT of stuff to shift and a mother who finds it hard to let of things. Lately I have been trying to tackle books... this one is even hard for me! But honestly, I think they breed when I'm not looking!!!

Well, must run. Wishing you all well and hope that the new year is proving to be a good one for you so far.

Hugs. Pat

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone
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Feb 8, 2019 07:14PM DiV wrote:

Hi all! I know it has been some time since I posted. I'm so happy to hear that some of you are getting pain relief with treatment.

Liz your trip sounded wonderful! Waiting for pictures! Grand baby is so cute!

Pat so glad to read that your house remodeling is coming together. Happy that treatment is keeping cancer at bay.

Marian your pictures look beautiful so glad you had a great time!

Loana you keep us all up to date on all the new treatments out there. Greatly appreciated!

Jojo Hi!

Well as for me I had a recurrence in March to my right lung. Had radiation treatment. Thought all was going well until November. Ct scan shows new spot on left lung but was too small to tell what it is. Had Pet scan a few weeks ago and spot got bigger but still undetermined. Told my oncologist about pain in scapula again. Dr couldn't tell what it was due to radiation to that area. Today I had mri. Dr called and I got the dreaded news. My cancer is back in same area in chest wall. Dr will call me Monday after he speaks to my radiologist to discuss if I can have radiation cause I've already had radiation to that area. Now I have to wait all weekend to find out what we are going to do.

Dx 6/7/2013, IDC: Cribriform, Left, 3cm, Stage IIA, Grade 2, 0/6 nodes, ER-/PR-, HER2- Surgery 7/9/2013 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Tissue expander placement Chemotherapy 9/12/2013 AC + T (Taxol) Dx 9/30/2016, IDC: Cribriform, Left, 6cm+, Stage IV, metastasized to other, ER-/PR-, HER2- Chemotherapy 1/8/2017 Carboplatin (Paraplatin) Radiation Therapy 1/9/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 3/19/2017 Lymph node removal: Underarm/Axillary Dx 4/12/2018, IDC: Cribriform, Right, 3cm, Stage IV, metastasized to lungs, 0/6 nodes, ER-/PR-, HER2- (IHC) Surgery
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Feb 8, 2019 08:26PM Sadiesservant wrote:

Hi Di,

I am so happy to hear from you but, at the same time, am saddened by your news. I understand completely how frustrating and at the same time heart stopping it is to not know what is going on. I'm still trying to figure out about the radiation as I've also had areas that have been radiated that may need another zap. I do know that there are women on the site that have had multiple treatments to an area. Of course, the chest wall is tricky but I really hope you can kick this to the curb again.

As to me, things have once again taken a turn but I still don't know what the heck is going on. I had been feeling so well and then in mid-January I started to have increased pain from my hip/groin and in my right chest/flank. I hesitated to contact my MO as he felt it was smooth sailing based on my December appointment. I finally had to reach out as things have been quickly getting worse. The pain is constant, I have some coughing (although I really have not been able to figure out a pattern) and I am now experiencing frequent nausea, particularly in the morning and at the end of the work day. I seem particularly fatigued as well. My MO ordered a CT - after much waiting I reached out today and found that it has been scheduled for the 16th thank god. So once again I am in that strange place of not knowing what to wish for. Obviously progression is not on my wish list but it would be nice to know that I am not completely loopy.

All this to say that I get it Di. I am thinking of you and please, don’t stay away too long. There are folks here who worry about you!

Hugs. Pat.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone
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Feb 10, 2019 03:17PM jackboo09 wrote:

Hi all,

Di, good to hear from you and very sorry that you are waiting this weekend to hear about more treatment. I feel confident that your team will have a plan. I wish it wasn’t necessary to have a plan though, that goes without saying. Reading your post, it is clear that your fighting spirit is shining through Di. Waiting is terrible. I pray that Monday brings some relief for you as being in limbo is just awful.

Pat, it sounds as if things were pretty steady and then changed quite rapidly. I’m so sorry you are experiencing some symptoms and I hope the scan will give you some answers. What will you do about work just now? I know how dedicated you are to your job, but would it be possible to take a short break ( if you feel that would help of course)

Life for me has been pretty steady. The weeks have flown by since Christmas. This is a big year for my 3 children who all take important exams. My daughter Lucy was sixteen on Feb 6th and I have added a picture of her in the dress she will wear for her prom in June. I celebrate the moments as they come and I admit to having a tear in my eye when she finally chose the dress.

I hope others will chime in and say hello. The thread has been quiet ( myself included)

Sending a big hug to everyone.

Liz x



Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
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Feb 10, 2019 03:20PM pupmom wrote:

Jackboo, my daughter's birthday is also Feb. 6! She's 20 years older than your girl, who is beautiful!

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Feb 11, 2019 09:32AM jackboo09 wrote:

Ah thank you pup mom- very seeey if you. My Lucy gives me pleasure and pain in equal measure.


L x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
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Feb 11, 2019 09:33AM jackboo09 wrote:

meant to say very sweet of you!

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
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Feb 13, 2019 01:40PM KBeee wrote:

That prom dress is beautiful!!! And your daughter is even more beautiful!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 13, 2019 11:48PM jackboo09 wrote:

Thank you Kbee

She needs me to keep going.

L

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
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Feb 14, 2019 12:01PM grainne wrote:

And you will. X

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 14, 2019 02:57PM jackboo09 wrote:

Thanks grainee

The support on here is wonderful. I scan again beginning of March.

X

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+

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