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Dec 10, 2019 02:52PM
Yes. Very similar situation.....
First of all, I am sorry you are dealing with this.
Second...my story...14 months after finishing TC chemo (had BMX before chemo) I developed a palpable lump. I was referred to PS because they were "sure" it was scar tissue. PB was 99% sure it was scar tissue. My gut told me otherwise, so I asked to have it removed and he gladly obliged. After removal (it was taken out in a few chunks) he said it still looked like scar tissue but he sent it to pathology to be sure. It was IDC. I set up appointments with a new local oncologist, as well as one with a well known major medical clinic. The big clinic did an ultrasound and found nothing else. They recommended reexcision since margins were not clear, radiation (I did not have it previously), ovary removal, and aromatase inhibitor. I asked for Oncotype because my gut was that this was more aggressive. They refused to order it, even when I said I'd pay out of pocket; they were "sure" my surgeon must have missed some and that this was non aggressive. I saw a local MO the following week. He was new to me, but came highly recommended. He ordered an MRI which was clear. He agreed that since my cancer was "not behaving" he wanted the Oncotype so we had all information available to make treatment decisions. It came back quite high (40...it was 16 the first time). During reexcision, they also found a second small tumor that they did not see on ultrasound or MRI. This was several inches from the first. Armed with the info on high oncotype and second tumor big medical clinic agreed chemo was warranted. So...I then had chemo, ovaries out, radiation, aromatase inhibitor.
Sooooooooo.....make sure your team makes no assumptions. Get an MRI and have it read by more than one place. Find out what they plan to do to assess lymph nodes. I'd want some sort of a scan since your cancer is not behaving. If you are ER+, HER2-, get Oncotype or similar test. If they tell you they are not usually used in recurrences, I can tell you that there are NO blueprints for local recurrences, so get all of the information you can to make treatment decisions and this is part of that. Do not hesitate to get multiple opinions.
PM me anytime with questions.
8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
8/26/2013 Mastectomy: Left, Right
9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/23/2014 Reconstruction (left); Reconstruction (right)
1/29/2015 Lumpectomy: Right
2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH)
2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC)
2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal
3/31/2015 AC + T (Taxol)
8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall