Oct 17, 2015 01:52AM weety wrote:
I tested positive for PALB2 about two years ago after my dad's pancreatic cancer diagnosis. His father also had pancreatic cancer. Because of this mutation, I still see my oncologist every 4-6 months and he runs tumor markers for both breast cancer and pancreatic cancer. every 2-3 months. I also see my gastroenterologist yearly for an endoscopic ultrasound of the pancreas, as well as an MRI of the pancreas to assess for any changes. So far I've had two of the procedures and no change has been detected. However, my brother who also is PALB2 positive and seen by the same gastroenterologist, had mild to moderate indications of chronic inflammation of the pancreas at his first endoscopic ultrasound. They are following up on him in 6-8 months, I believe. Pancreatic cancer is so scary, and having two family members already die from it has put us all on high surveillance. I don't think I will ever be able to prevent it from happening if it is to be, but at least this surveillance can catch it early if any changes are detected.